Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Maureen, I had a decompression 13 years ago & did really well, but the recovery did take a long time. I had a fusion 9 months post-op & a lot of my symptoms have gone away, but again the recovery has taken a very long time & at least for requires enormous amounts of patience - something I should have since I'm a piano teacher (I do for my students), but not for me. I really think (at least keeping my fingers crossed) that mine is or will be a success. Hope this is somewhat encouraging. jen > >Reply-To: >To: " Chiari Listserv " <chiariegroups> >Subject: surgery >Date: Wed, 21 Jul 1999 14:33:04 -0400 > >Hi, > >I am hearing that many people who have surgery continue to feel bad or >actually feel worse after surgery. Does anyone feel better? And how long >does feeling better last? If one doesn't have surgery, will it eventually >be absolutely necessary? And will most have to have surgery more than >once? > >Thanks, > >Maureen___________________________________________________ >Maureen T. Baron >E-Mail to: mbaron@... > > > > > > >------------------------------------------------------------------------ >Avoid list congestion: ><A HREF= " mailto:chiari-unsubscribeegroups " >Unsubscribe from >wacma</A><BR> ><A HREF= " mailto:chiari-owneregroups " >Send message to management</A> > ><< winmail.dat >> _______________________________________________________________ Get Free Email and Do More On The Web. Visit http://www.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Maureen, I had a decompression 13 years ago & did really well, but the recovery did take a long time. I had a fusion 9 months post-op & a lot of my symptoms have gone away, but again the recovery has taken a very long time & at least for requires enormous amounts of patience - something I should have since I'm a piano teacher (I do for my students), but not for me. I really think (at least keeping my fingers crossed) that mine is or will be a success. Hope this is somewhat encouraging. jen > >Reply-To: >To: " Chiari Listserv " <chiariegroups> >Subject: surgery >Date: Wed, 21 Jul 1999 14:33:04 -0400 > >Hi, > >I am hearing that many people who have surgery continue to feel bad or >actually feel worse after surgery. Does anyone feel better? And how long >does feeling better last? If one doesn't have surgery, will it eventually >be absolutely necessary? And will most have to have surgery more than >once? > >Thanks, > >Maureen___________________________________________________ >Maureen T. Baron >E-Mail to: mbaron@... > > > > > > >------------------------------------------------------------------------ >Avoid list congestion: ><A HREF= " mailto:chiari-unsubscribeegroups " >Unsubscribe from >wacma</A><BR> ><A HREF= " mailto:chiari-owneregroups " >Send message to management</A> > ><< winmail.dat >> _______________________________________________________________ Get Free Email and Do More On The Web. Visit http://www.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 At 2:33 PM -0400 7/21/99, Maureen Baron wrote: >Hi, > >I am hearing that many people who have surgery continue to feel bad or >actually feel worse after surgery. Does anyone feel better? And how long >does feeling better last? If one doesn't have surgery, will it eventually >be absolutely necessary? And will most have to have surgery more than once? > >Thanks, > >Maureen___________________________________________________ >Maureen T. Baron >E-Mail to: mbaron@... Hi Maureen, You have asked some questions that I don't have the answer to, and some that have no definite answer. I also learned from being with this group that some people continue to feel bad...some are worse and some feel better. As for how long feeling better lasts I think that depends on the individual. I have been told that I can stay just as I am now with no progression or, I can come to a brick wall and have to have the surgery. There are just no pat answers to some questions. I have ACM1/ Syringomyelia/Fibromyalgia. So far everything is being taken care of with medicine. I don't feel good but I can tolerate the pain. Hugs, Judy Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 At 2:33 PM -0400 7/21/99, Maureen Baron wrote: >Hi, > >I am hearing that many people who have surgery continue to feel bad or >actually feel worse after surgery. Does anyone feel better? And how long >does feeling better last? If one doesn't have surgery, will it eventually >be absolutely necessary? And will most have to have surgery more than once? > >Thanks, > >Maureen___________________________________________________ >Maureen T. Baron >E-Mail to: mbaron@... Hi Maureen, You have asked some questions that I don't have the answer to, and some that have no definite answer. I also learned from being with this group that some people continue to feel bad...some are worse and some feel better. As for how long feeling better lasts I think that depends on the individual. I have been told that I can stay just as I am now with no progression or, I can come to a brick wall and have to have the surgery. There are just no pat answers to some questions. I have ACM1/ Syringomyelia/Fibromyalgia. So far everything is being taken care of with medicine. I don't feel good but I can tolerate the pain. Hugs, Judy Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Hi Maureen, I am definetly feeling better after haveing the decompression surgery. The recovery can be slow and subtle. I had so many symptoms before surgery, it takes time for the body to relax and heal. If you have specific questions let me know. Rita Oldenburg ACM 1 Decompression 4/3/98 & 12/15/98 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Hi, I, also , am doing well after surgery, Fifteen months later I am feeling good. Hope there are more of us " doing betters " than the " nots " Love to all, Diane, California, surgery by Dr. Batzdorf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Maureen, You can count me in as one the Chiarians who definitely had a successful surgery. I had mine 12/98, and I am now 7 months post-op and doing very well considering how I was before the surgery. Before my surgery I could barely walk, my legs were so weak and heavy. I had other major symptoms too, but my legs were the worst. Not all of my symptoms are gone, I didn't really expect them to be. But the ones that are left, I can live with--I call them " nuisance symptoms. " I posted a little while ago when I returned from vacation at the beach. This year at the beach was so great, because I could walk and walk and keep on walking without pooping out. I never had to take Advil for those Chiari aches and pains (okay I did have a mini-hangover one morning and had to pop a few, but that's another story!) Hope this helps you, Sheila > >I am hearing that many people who have surgery > continue to feel bad or > >actually feel worse after surgery. Does anyone > feel better? And how long > >does feeling better last? If one doesn't have > surgery, will it eventually > >be absolutely necessary? And will most have to > have surgery more than once? > > > >Thanks, > > > >Maureen_______________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Maureen, Please don't let the posts here discourage you!! In general, the people here (myself included) are a small percentage of the Chiari population that is still seeking answers for themselves, their children, or their spouses. There are PLENTY of success stories out there!!! Chip is one of them, and he has a whole bunch more on his web site. Check it out! Wendi wrote: original article:/group/chiari/?start=20714 > Hi, > > I am hearing that many people who have surgery continue to feel bad or > actually feel worse after surgery. Does anyone feel better? And how long > does feeling better last? If one doesn't have surgery, will it eventually > be absolutely necessary? And will most have to have surgery more than once? > > Thanks, > > Maureen___________________________________________________ > Maureen T. Baron > E-Mail to: mbaron@... > > > > > > Quote Link to comment Share on other sites More sharing options...
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