Guest guest Posted August 25, 1999 Report Share Posted August 25, 1999 At 1:48 PM -0700 8/24/99, C.J. Lawrence wrote: >Sandy wrote, in part: >>I went to a wonderful Dr. at Univ. of Mo. for the disk >>problem. He also has done major research in the field of ACM. So I go >>back to him Sept.7 for a good talk about this problem with the ACM and >>I go in Sept8 for surgery on my disk. So anything you all can tell me >>would be very appreciated. > >You say he has done " major research in the field of ACM. " On your next >visit I would suggest querying him a bit more about this, i.e. what is his >definition of " major. " > > >Phoenix, AZ > Sure hope it is Dr. Oro :-} JM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 1999 Report Share Posted September 3, 1999 Hi Beth- I'm sorry to hear about your mother in addition to your chiari. I'm 20 years old and have gone through several surgeries to fix my little " chiari " problem. I would love to talk to you through e-mail, so feel free to e-mail me. jared in seattle jbean4@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 1999 Report Share Posted September 3, 1999 Hi Beth- I'm sorry to hear about your mother in addition to your chiari. I'm 20 years old and have gone through several surgeries to fix my little " chiari " problem. I would love to talk to you through e-mail, so feel free to e-mail me. jared in seattle jbean4@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2001 Report Share Posted June 10, 2001 Welcome to the list Sue. You can find lots of advice here. Friends, Type 2 Co-Moderator diabetes Co-Moderator AllergyandAsthmaKids@... New member > Hi everyone; > > I am a new member, just registered today. > > I little about myself: 46yr old female working full time as a > programmer analyst, celebrating 25 years of marriage in August, one son > 20 years old. Gestational diabetes during pregnancy (diet controlled). > > Diagnosed in 1998 with Autoimmune Liver Disease, drugs include > prednisone (currently 20mg) for 2 1/2 years, Imuran (currently 200mg, 1 > 1/2 years), Actigall (currently 600mg 1 1/2 years), Prilosec/Prevacid > (one year). > > Other stuff: Osteopenia, lattice degeneration right eye, dry macular > degeneration right eye. > > Yesterday during a annual physical, through my request (plus two other > treating physicians) was testing for my glucose. Reading returned 265. > A A1c test was ordered and I should have the results Monday. > > As I will not be able to get off Prednisone for a while, is there anyone > on this list that has managed both prednisone and medications that > control the blood sugar? > > I need all kinds of information regarding diabetes. Everything from > equipment, testing, symptoms of high and low sugar. Just anything and > everything. > > Thanks! > > Sue > > > > To leave this list please go to diabetes-unsubscribe > Hope you come back soon! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Der : Hi. My name is Janet and I was diagnosed with PSC only three weeks ago. I am a 49 year old female and I am pretty new to the group as well. I just got an email from Jim Young, a PSC member (yungjl@...) who was a great encouragement to me. I have had " mysterious " symptoms for about 4 years, but was only recently diagnosed with PSC. I have not developed itching or jaundice either, but I do experience fatigue and lack of appetite. However, I have lost 40 pounds!!! :-) (that's a good thing; I was trying to lose, but, of course, I DID NOT want to lose it this way!!! :-)))) Obviously, I have not been listed yet, either. Since I live in New Jersey, the hospital where I will have the transplant (whenever the need arises) is located in Newark, which is close to me, so I am blessed that way. Anyway, we are here for you. We understand. **************************************************************** This e-mail and any documents accompanying this e-mail contain information which is confidential and/or legally privileged. The information is intended only for the use of the individual or entity named on this e-mail. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or the taking of any action in reliance on the contents of this e-mail information, is strictly prohibited and that the documents should be returned to Saiber Schlesinger Satz & Goldstein, LLC immediately. In this regard, if you have received this e-mail in error, please notify us by return e-mail or telephone () immediately, delete the e-mail and all attachments and destroy all hard copies of same. >>> Oaks 08/02/01 02:13PM >>> Dear PSC group, I have just joined the group and thought I should introduce myself. Obviously this is a group I would rather not be a member of, but am VERY happy there are some other people with PSC I can talk to. I am 41 years old, was diagnosed with ulcerative colitis in 1978 and with PSC in 1996 (although I had elevated liver enzymes as far back as about 1990). I think I have actually done pretty well considering, and so far it has not had a major impact on my lifestyle...I started on URSO in 1996, and went to the high dose in 1999. About 1 1/2 years ago I had some sludge/stones and blockage that was fixed with dilation of the major strictures, and for about the last year have had the occasional infection that has resolved with antibiotics. Thankfully, I have not had itching or any amount of pain except during blockage or infection. However, over the last few months, fatigue seems to be creeping up and infections are a bit more frequent although there are still no other signs such as jaundice or other signs of liver failure. I guess my " dilemma " at this point is accepting that things may be progressing, and that before too long I will need to head over to Seattle and begin the process of getting listed for transplant...I have made a real effort to keep a positive outlook and " ignore " the problem except as needed - so getting to this stage is a real emotional downer! In any case, I was wondering at what stage or level of symptoms others were at when they got listed. Oaks ---------------------------------------------------------------------------- - J. Oaks Department of Veterinary Microbiology and Pathology Washington State University Pullman, WA 99164-7040 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Hi , My hubby has had PSC for probably 13 years and hasn't been listed yet (fingers crossed), so I can't help you there. I see you work at a vet clinic??????? watch out, we'll be getting free advice from you...just ask Aubrey, our resident Dr., if he billed for his services here, he'd be a rich man!!! take care and welcome, Patti >From: Oaks >Reply-To: >To: " 'egroups' " >Subject: New Member >Date: Thu, 2 Aug 2001 11:13:36 -0700 > >Dear PSC group, > >I have just joined the group and thought I should introduce myself. >Obviously this is a group I would rather not be a member of, but am VERY >happy there are some other people with PSC I can talk to. > >I am 41 years old, was diagnosed with ulcerative colitis in 1978 and with >PSC in 1996 (although I had elevated liver enzymes as far back as about >1990). I think I have actually done pretty well considering, and so far it >has not had a major impact on my lifestyle...I started on URSO in 1996, and >went to the high dose in 1999. About 1 1/2 years ago I had some >sludge/stones and blockage that was fixed with dilation of the major >strictures, and for about the last year have had the occasional infection >that has resolved with antibiotics. Thankfully, I have not had itching or >any amount of pain except during blockage or infection. > >However, over the last few months, fatigue seems to be creeping up and >infections are a bit more frequent although there are still no other signs >such as jaundice or other signs of liver failure. I guess my " dilemma " at >this point is accepting that things may be progressing, and that before too >long I will need to head over to Seattle and begin the process of getting >listed for transplant...I have made a real effort to keep a positive outlook >and " ignore " the problem except as needed - so getting to this stage is a >real emotional downer! > >In any case, I was wondering at what stage or level of symptoms others were >at when they got listed. > > Oaks > >---------------------------------------------------------------------------- >- >J. Oaks >Department of Veterinary Microbiology and Pathology >Washington State University >Pullman, WA 99164-7040 > Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 , Welcome to this group. Sorry you have to be here but this is a great place for information and encouragement. Watch out for the TGIF's every Friday. Jump right in with one if you have one. Barby married 21 years, mom of 5 sons (ages 9-20) KS UC - dx in 1965 (11yo), total proctocolectomy with ileoostomy 1972, BCIR (continent ileoostomy)1994 PSC- dx in 1999 nordgren1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 my husband name is billy, he's 38 years old, we found out he had psc 5 years ago.he was put on the list in may, the only medcation that he is taken is actigall. he's goes back to the doctor next tuesday. he's seem to get more tired lately, but he still working anywhere between 12 and 13 hours days. but he started having these ache in his legs lately and i was just wondering if it was normal, his skin is staying yellow now all the time. it's doesn't go away like it use to. and he has been losing more musscle mass lately. thanks sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 Hi Sandy, Welcome to our group. I'm sorry to hear about your husband's diagnosis. My husband also has PSC and is on the transplant list. Please tell us a bit more about you and your husband. Is he on any diuretics, such as Lasix, for swelling in his stomach and legs? My husband is on this, and takes a Potassium supplement which is to make up for the potassium loss from the Lasix. This loss of potassium can cause hand and leg cramps and Ed (my husband) takes Quinine at nighttime for this. He seems to get this leg pain at night mostly, and the quinine helps. For the hand cramps, he takes a calcium supplement. You'll get a lot of useful information here from many people more qualified than me! So, please feel free to ask away.... Gracie Reynolds wife of Ed, dx '93, listed '98 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 Sandy, Welcome. You have come to the right place if you are needing questions answered and encouragement. This is a great group of wonderful people. We are here for you. Blessings, Barby married 22 years, mom of 5 sons (ages 9-20) KS UC - dx in 1965 (11yo), total proctocolectomy with ileoostomy 1972, BCIR (continent ileoostomy)1994 PSC- dx in 1999 nordgren1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 Sandy, Welcome. You have come to the right place if you are needing questions answered and encouragement. This is a great group of wonderful people. We are here for you. Blessings, Barby married 22 years, mom of 5 sons (ages 9-20) KS UC - dx in 1965 (11yo), total proctocolectomy with ileoostomy 1972, BCIR (continent ileoostomy)1994 PSC- dx in 1999 nordgren1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 sandykmuenich@... wrote: > MY HUSBAND HAS PSC, HE'S ON THE LIVER TRANSPLANT LIST NOW. LATELY, > HE'S BEEN HAVING ALOT OF ACHE IN HIS LEGS. THEY ALWAYS SEEM TO BOTHER > HIM, IS THIS NORMAL? AND DO ANYONE HAVE ANY ADVISE THEY CAN GIVE ME > TO HELP HIM, I READ ALOT OF THINGS ABOUT PSC, BUT I NEVER HEARD OF > ANYONE HAVING THESE PAIN ALL THE TIME. THANKS SANDY Sandy, Hi, I'm Cheryl. Glad you found this group. I dont' have the answer for you. But I have suffered from pains in my legs and about everywhere else. This is a type of arthritis that people with ulcerative colitis get. Many of also have some kind of inflamatory bowel disease. I had these pains pre-diagnosis, by the end of the day I could hardly function. Have you talked to your dr about this? Maybe someone with more knowledge can help. If you don't mind tell us a little about you and your hubby. Cheryl ID, 42, PSC 04/01, UC 12/00 married 23 years, 3 dau: 22, 20, 13, 1 son: 17, one grdau: 2 yrs, HS English teacher. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2001 Report Share Posted September 12, 2001 Welcome to the group - nice to know I am no longer the rookie. As you'll come to find out, everyone in this group is very supportive and caring. When is your first appointment? I think had her first appointment last Friday and asked the group about some general questions to start off with. You may want to go through archives starting around the 1st. It may be helpful. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2001 Report Share Posted September 12, 2001 Welcome to the group - nice to know I am no longer the rookie. As you'll come to find out, everyone in this group is very supportive and caring. When is your first appointment? I think had her first appointment last Friday and asked the group about some general questions to start off with. You may want to go through archives starting around the 1st. It may be helpful. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Hi Becky! Glad to have you onboard. There are members here who have PCOS and can have some great input on that. Your thyroid----Please post your lab values with the reference ranges. This is very important. The Free T3 and Free T4 and TSH are your best bet. You will find people here who truly care about what goes on with you. Waiting to hear back from you. New member Hello everyone. First off I must apologize for the crossposting. I found so many PCOS groups at once, I'm sure a bunch of you are on them as well. But I wanted to get my introduction out. I'm 25, and it wasn't until last December that I was diagnosed with PCOS. Even years of complaining of different symptoms and thinking I was completely psycho, the my gyn never mentioned this to me. From the time I was in high school I had irregular periods. I think my freshman year of college I had it 3 or 4 times the whole year. In high school I pretty much never wore light pants to school for not knowing when/if I'd get my period next. In college I was put on BCP, where from that point everything seemed to go downhill. I began losing my hair and gained over 60 lbs in the 6 years I was on it. On top of it all, my blood pressure was soaring high. I might add, that these symptoms are mimicking what my mother had when she was my age. Then depression was kicking in and my inability to concentrate during PMS. So I was put on Zoloft. Then came Norvasc for HBP. Oh, and for an added bonus I was taking Clari! tin for allergies. Finally, last year, I did something noone would recommend. I stopped everything cold turkey. Yeah, I was grumpy and somewhat going through withdrawal, but I was sick of side effects. One of them, don't know which was making me break out in a rash. Finally, that is when I switched doctors and I wanted to try a more natural route. I found an MD that was also an acupuncturist and he was covered under insurance. At that point my blood pressure was fluctuating, staying high at about 150/100. He also did a few blood tests on me and said though my TSH was in normal range, it shouldn't have been that high for someone my age. It's been ranging 5.0-5.9ish. Though everyone else said it's "normal", he knew something was up. The remaining tests came back showing all the signals pointing to PCOS. I was immediately put on Metformin 500 mg 2x day, and a small dose Levoxyl. I'm currently at 50 mcg but will be upping it to 75 mcg on my renewal. Is this too small a dose? I am now looking into more natural remedies, such as herbal supplements. Also, now that I know what is wrong with me it's just a matter of time before I start feeling better, right? I live in the Chicago western suburbs, so any practitioners in the area that anyone knows of is appreciated. I just moved from another suburb and I'm just starting to find people in the area. BeCkY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Hi Becky! Glad to have you onboard. There are members here who have PCOS and can have some great input on that. Your thyroid----Please post your lab values with the reference ranges. This is very important. The Free T3 and Free T4 and TSH are your best bet. You will find people here who truly care about what goes on with you. Waiting to hear back from you. New member Hello everyone. First off I must apologize for the crossposting. I found so many PCOS groups at once, I'm sure a bunch of you are on them as well. But I wanted to get my introduction out. I'm 25, and it wasn't until last December that I was diagnosed with PCOS. Even years of complaining of different symptoms and thinking I was completely psycho, the my gyn never mentioned this to me. From the time I was in high school I had irregular periods. I think my freshman year of college I had it 3 or 4 times the whole year. In high school I pretty much never wore light pants to school for not knowing when/if I'd get my period next. In college I was put on BCP, where from that point everything seemed to go downhill. I began losing my hair and gained over 60 lbs in the 6 years I was on it. On top of it all, my blood pressure was soaring high. I might add, that these symptoms are mimicking what my mother had when she was my age. Then depression was kicking in and my inability to concentrate during PMS. So I was put on Zoloft. Then came Norvasc for HBP. Oh, and for an added bonus I was taking Clari! tin for allergies. Finally, last year, I did something noone would recommend. I stopped everything cold turkey. Yeah, I was grumpy and somewhat going through withdrawal, but I was sick of side effects. One of them, don't know which was making me break out in a rash. Finally, that is when I switched doctors and I wanted to try a more natural route. I found an MD that was also an acupuncturist and he was covered under insurance. At that point my blood pressure was fluctuating, staying high at about 150/100. He also did a few blood tests on me and said though my TSH was in normal range, it shouldn't have been that high for someone my age. It's been ranging 5.0-5.9ish. Though everyone else said it's "normal", he knew something was up. The remaining tests came back showing all the signals pointing to PCOS. I was immediately put on Metformin 500 mg 2x day, and a small dose Levoxyl. I'm currently at 50 mcg but will be upping it to 75 mcg on my renewal. Is this too small a dose? I am now looking into more natural remedies, such as herbal supplements. Also, now that I know what is wrong with me it's just a matter of time before I start feeling better, right? I live in the Chicago western suburbs, so any practitioners in the area that anyone knows of is appreciated. I just moved from another suburb and I'm just starting to find people in the area. BeCkY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 thank you so much for your words of encouragment. I worked out so much last week that by Friday I was sore, I am taking a breather. I know I need to change the way I eat, it seems like I do well after I go food shopping but due to my family being on such a fixed budget towards the end of the month it's like I'm eating whatever I can. I know I need to change this somehow. I can slowly feel myself blowing up and I don't want to become emotional about it. Maybe you can give me some pointers. I am so glad you emailed me. I check my email every other day. I hope to hear back from you soon, my god bless you. Tiombe' (Just in case your trying to pronounce it, it's said like this Tee-om-bay)"Mother Earth (Tyra)" wrote: Welcome Tiombe! Congratulations on your new marriage and on finding Tae Bo! You and I are around the same size and I know what it is like to feel disappointed with my weight and how I look. I began tae bo about 3 months ago and have had to also make SIGNIFICANT changes in my diet. But in the past exercise and eating very healthy is the only way that I have been able to lose weight. Also, I, too, gained weight when I first married. What I say to you is that you have got to BELIEVE that you will lose the weight. If you do not believe that you will then you will most likely not do things to support your weightloss efforts. I am one who does not believe in diets. My goal is always to eat healthy with no starvation or constantly feeling hungry. I subscribe to Bob Greene (Oprah's trainer) and Dr. Phil (Ulitimate Weightloss Solution). They teach people that weightloss is about creating a lifestyle to support it. So my recommendation is to most certainly change the way you eat if it is not conducive to weightloss. I have found since eating healthy that I feel SO good and proud. I do not know when you joined but the entire time that I have been a member of this group I have stated that losing weight has been so hard this time around for me. However, it was not until I got serious about exercising everyday AND eating a low-fat, decreased carb diet that I have finally been able to see a decrease in the scale. The other key in using tae bo for me has been taking my focus off of losing weight. encouraged a woman to not focus on losing weight but to focus on perfecting her tae bo techniques. She did so and ended up losing 90 lbs! I found that when I did tae bo to lose weight, I was frustrated that I had not lost weight when I thought that I should have and my workouts were kind of lazy. I would try to workout just enough to lose weight. Because it took so long for me to see a weight decrease, I finally HAD to subscribe to the perfect the tae bo philosophy to stay motivated. With my mind on getting better at tae bo, I worked harder and BAM! I lost some weight! Be encouraged!!!!!!!!!!!! YOU can do this! Tae Bo Love TyraAs Deb has said: "Fitness is a journey and it begins with the first step.""This isn't about weight loss, it's about enlightenment" -Visit our new vault site http://taeboon.isportsdot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 thank you so much for your words of encouragment. I worked out so much last week that by Friday I was sore, I am taking a breather. I know I need to change the way I eat, it seems like I do well after I go food shopping but due to my family being on such a fixed budget towards the end of the month it's like I'm eating whatever I can. I know I need to change this somehow. I can slowly feel myself blowing up and I don't want to become emotional about it. Maybe you can give me some pointers. I am so glad you emailed me. I check my email every other day. I hope to hear back from you soon, my god bless you. Tiombe' (Just in case your trying to pronounce it, it's said like this Tee-om-bay)"Mother Earth (Tyra)" wrote: Welcome Tiombe! Congratulations on your new marriage and on finding Tae Bo! You and I are around the same size and I know what it is like to feel disappointed with my weight and how I look. I began tae bo about 3 months ago and have had to also make SIGNIFICANT changes in my diet. But in the past exercise and eating very healthy is the only way that I have been able to lose weight. Also, I, too, gained weight when I first married. What I say to you is that you have got to BELIEVE that you will lose the weight. If you do not believe that you will then you will most likely not do things to support your weightloss efforts. I am one who does not believe in diets. My goal is always to eat healthy with no starvation or constantly feeling hungry. I subscribe to Bob Greene (Oprah's trainer) and Dr. Phil (Ulitimate Weightloss Solution). They teach people that weightloss is about creating a lifestyle to support it. So my recommendation is to most certainly change the way you eat if it is not conducive to weightloss. I have found since eating healthy that I feel SO good and proud. I do not know when you joined but the entire time that I have been a member of this group I have stated that losing weight has been so hard this time around for me. However, it was not until I got serious about exercising everyday AND eating a low-fat, decreased carb diet that I have finally been able to see a decrease in the scale. The other key in using tae bo for me has been taking my focus off of losing weight. encouraged a woman to not focus on losing weight but to focus on perfecting her tae bo techniques. She did so and ended up losing 90 lbs! I found that when I did tae bo to lose weight, I was frustrated that I had not lost weight when I thought that I should have and my workouts were kind of lazy. I would try to workout just enough to lose weight. Because it took so long for me to see a weight decrease, I finally HAD to subscribe to the perfect the tae bo philosophy to stay motivated. With my mind on getting better at tae bo, I worked harder and BAM! I lost some weight! Be encouraged!!!!!!!!!!!! YOU can do this! Tae Bo Love TyraAs Deb has said: "Fitness is a journey and it begins with the first step.""This isn't about weight loss, it's about enlightenment" -Visit our new vault site http://taeboon.isportsdot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 Dear Jan, I too go through the expectations of family, life, etc that far exceed my actual abilities to do them. If you would like to chat or e-mail, you can reach me at my personal address fiv3owls@... Where do you live? It would surely be nice to complain completely instead of pretending that I am ok and together - I certainly AM NOT!! Hope to hear from you soon. I am also available at fiv3owls on Yahoo messenger and the same on AIM. This is a great group with wonderful insight and information. Everyone is kind and compassionate because we all know the pangs of chronic pain and the issues associated with it. ~Tammy Jan wrote: >I hope someone here can respond and feels that they have some >interest in what I say. I would like to have a friend to talk to >about the pain issues I have 100% and the loneliness and isolation >that follows. good day to all, jan townsend Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Jan, My name is and I am also new to the group. I also have sciatic nerve in both legs that goes down to feet. I have a bulging disc that caused this 3 years ago. I also have DDD in neck and back and have spurs along spine and neck. I have fibro also. So, I know what pain is like. I filed for SSD 2 years ago and now I am waiting for a date to be set to go in front of a judge. I hope you find the support here. Good Luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 thanks wishing you a pain free (as possible) day. jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi , WTG on getting back in the groove!!! I think I'll have to get Fat Blasting next. How long is it? Regina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 --- " Coppens " wrote: > > My name is . I have had six lower back surgeries including two > lumbar fusions. I am classified as having failed lower back syndrome. Hi - Welcome, although I'm sorry for the pain that's brought you here. You'll find lots of folks here who can empathize with back pain and the neuropathy that often results from it. I'm one myself, although I drew the line at one back surgery after it resulted in adhesive arachnoiditis. I can't imagine going through six of the things. I think you'll like it here. Cheryl in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 Hi , Welcome to the group!! Boy it sure sounds like you belong here with the rest of us!! Sorry, just a little fun, I have had two failed back surgeries with a spinal fusion, and decompression{well it was supposed to decompress the disc!}. That was four years ago that I injured my back, and I am still living with daily pain. I really know how you feel with your back pain. Does your spinal stimulator help you at all? I was hoping to get a pain pump but I am still waiting to hear from Social Security to see if I was approved or not. I had my hearing back in November 2005. Again, welcome to the group, , and I hope you start feeling better. Huggs, Sandy Moderator " Coppens " wrote: > My name is . I have had six lower back surgeries including two > lumbar fusions. I am classified as having failed lower back syndrome. > I currently have a medtronics spinal cord stimulator and am just > trying to get through another day. I am married with three beautiful > girls ages 11, 10, and 6. I hope I can be of some assistance to some > members and I am sure I can learn alot from you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 Hello Willow My name is I use to live in SW Missouri till 3 years ago. I remarried and moved two hours south of St Louis. I am mostly a lurker occasionally posting here. I have found great information, as well as support. Welcom to the group from Missouri Willow wrote: > My name is Willow Sekerke. I am a 52-year-old totally > disabled woman (former pharmacist)who lives in a small > trailer in rural SW Missouri. Quote Link to comment Share on other sites More sharing options...
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