Re: new doctor and suboxone

[Guest guest]

Netty,

You are not going to like what I have to say---but, I agree with your doctor.

 If your insurance will cover treatment---you should go in for detox--and stay

in for counseling for as long as you can.  Those of us with FMS/CFS--NEED

counseling---as life starts to look pretty bleak at times.

I had to do that when I became addicted to alcohol and pain pills---and I am so

much better off for it now.  I am now taking NO pain killers---and doing well.

 I still have pain from time to time---but, clearing all of those pain killers

out of my system by detoxing---saved my life.  I think that my pain is less on

NO medication--because I have stopped having those rebound effects of the

medication starting to wear off.  It is truly amazing....

All I take is Cymbalta now--and that has helped my pain w/o having to take pain

meds OR alcohol......

If you want to talk about this privately....feel free to contact me.  I know

that it is a scary thought to give up your pain pills---but, if you do it under

supervision, in a hospital....it CAN be managed---and you most likely will come

out the other side feeling much better.....At least that is what my experience

has been.....

Lynn

[Guest guest]

Netty

If you have insurance and they will not cover suboxone, why don't you have

the doctor prescribe a different pain medication. You shouldn't have to

spend hundreds of dollars on a prescription if you already have insurance.

Have you looked at pparx (dot) com to see if you qualify for assistance?

pparx'.'com

Why are you starting suboxone? That is not for pain patients, it is for

addicts. If you go on it, you'll have a VERY hard time EVER getting pain

medication again because the future doctors will view you as an addict.

Steve M in PA

[Guest guest]

Netty

If you have insurance and they will not cover suboxone, why don't you have

the doctor prescribe a different pain medication. You shouldn't have to

spend hundreds of dollars on a prescription if you already have insurance.

Have you looked at pparx (dot) com to see if you qualify for assistance?

pparx'.'com

Why are you starting suboxone? That is not for pain patients, it is for

addicts. If you go on it, you'll have a VERY hard time EVER getting pain

medication again because the future doctors will view you as an addict.

Steve M in PA

[Guest guest]

Taking a certain number of pain pills per day does NOT make someone an

addict*.*

Steve M in PA

[Guest guest]

I second what Steve says. This hysteria that is going on nationwide regarding

painkillers is infuriating to me. For me, my four tablets a day of Morphine ER

are a Godsend. And yes, I NEED them. Yet, until I did a ridiculous amount of

doctor shopping to find a sympathetic rheumatologist, I was treated like a drug

addict too by way too many internal medicine doctors. Besides my list of

ailments, CFS, Fibro, I am also a porph, porphyria, Which means there is a short

list of rxes that I can safely take without triggering a porph attack. And at

this point in my life, a porph attack could kill me. So I need meds that are as

natural as possible. Morphine is great for me. Because of it, I've never needed

an antidepressant, or anything to control my IBS, and does a decent job overall

on pain. And in ten years, I have only needed to bump the dose one time. So, for

me, morphine is a great drug and has negated the need for at least four other

drugs that all would be porph triggers. There is no " golden rule " for any one

single patient. We are all different in out needs, Steve being the perfect

example. What he has had to go through in to minimally control his pain is a

nightmare. So Nettie, I feel for you so much.

, Cheeseville Porph, CFS, FIbro

>

> Taking a certain number of pain pills per day does NOT make someone an

> addict*.*

>

> Steve M in PA

>

[Guest guest]

Lynn,

I had pretty much the same problem; severe pain while on 150 mcg or Fentanyl and

40 mg Oxycodone per day. When I detoxed in the s Hopkins pain treatment

program, I felt no additional pain without the narcotics than I did with. After

no narcotics for two years, my breakthrough pain got so bad I went on methadone.

The more I took, the worse the pain got.

Finally, my neurologist and pain docs got together and told me that I had

'opiate analgesia,' a condition in which the use of opiates actually INCREASES

the sensitivity of the pain receptors, causing more pain. The higher the opiate

level, the more sensitive the nerves, the higher the pain -the vicious cycle.

I am now getting relieve using Cymbalta, nortriptyline, Tramadol, Meloxicam, and

when needed, codeine. The low dosage of codeine is below the level of opiate

needed to trigger the opiate analgesia, so it does help with BTP.

>

> Steve M...

> No, it does not! �But, in my case--I became very DEPENDENT on the pain

medication---and therefore was always anticipating when I could take another---

> It is so WONDERFUL not to be feeling that way any longer...Sometimes, it helps

just to detox off of what is in our system--and start over again.

>

> I had such terrible pain while ON pain killers---that is just AMAZING to me

that once I got off of them---and started taking Cymbalta---that I have more

good days than bad. �I never would have believed that I could survive without

pain killers....I am thinking that when I have a flare-up--I will probably need

SOMETHING to help with the pain.....but, not as much as I used to take.

> Lynn

>

>

> ________________________________

>

> Subject: Re: new doctor and suboxone

>

> Taking a certain number of pain pills per day does NOT make someone an

> addict*.*

>

[Guest guest]

& all

Do you mean opioid induced hyperalgesia? The extremely rare,but over

diagnosed, condition (NOT saying you don't have it, in fact I believe that

you do) where your mind reads mu-opioids as pain? That sucks! Have you ever

tried any kappa-opioids? I'm NOT RECOMMENDING them, I'm just asking if you

did because I'm curious about how someone with OIH reacts to kappa opioids.

The receptors for mu-opioids and kappa-opioids are different and in

different locations. In theory, OIH patients should be fine with kappa

opioids, but if it were me, I wouldn't try it.

When you took your first dose of an opioid, did you get pain relief

initially? Sorry, but I've never " met " anyone with OIH before.

BTW, OIH is typically over diagnosed because it is diagnosed while people

are still on opioids without taking them off of the opioids. Since you were

diagnosed after going off and back on the opioids, you don't fit into the

typical category of over diagnosed patients. I was once told I had OIH and

I tapered off of all opioids. I was completely off of them for over a

month, but I was still suffering with 9-10/10 pain 24/7, that's not true, I

passed out for a few hours every 2-3 days and I started to sound a little

crazy (according to my family, who begged me to restart the opioids after

about a week, but I was stubborn and convinced that I'd get better if I

waited long enough, plus I didn't want the doctor to say I wasn't off of

the opioids long enough).

Steve M in PA

Not a doctor. Not medical advice.

Lynn,

I had pretty much the same problem; severe pain while on 150 mcg or

Fentanyl and 40 mg Oxycodone per day. When I detoxed in the s Hopkins

pain treatment program, I felt no additional pain without the narcotics

than I did with. After no narcotics for two years, my breakthrough pain got

so bad I went on methadone. The more I took, the worse the pain got.

Finally, my neurologist and pain docs got together and told me that I had

'opiate analgesia,' a condition in which the use of opiates actually

INCREASES the sensitivity of the pain receptors, causing more pain. The

higher the opiate level, the more sensitive the nerves, the higher the pain

-the vicious cycle.