New member

[Guest guest]

Hi Pamela, welcome to the board......do you have any side effects from the

lupron shots?

New Member

Hello,

I am a new member (I joined yesterday) and just wanted to introduce

myself. My name is Pamm I am 46 years old, married with 2 grown boys. I

found out around 2 months ago that I have fibroids, I had a pap test

(which I had not had done in 18 years) and when the doctor tried to

scrape for some cells I began to bleed really bad. She ordered an

Ultrasound and I was told I have fibroids along with the beginnings of

cervical cancer. Due to spotting blood real bad and severe anemia I was

put on Lupron shots I had one on the 8th of last month and am scheduled

for my second shot on the 6th.

Since I have fibroids the doctor has decided to do a hysterectomy

probably in Feb. if my iron count goes up enough so I am able to have

surgery. I also suffer from hepatitis C and fibromyaliga, and

osterarthritis which complicates things for me even more. I also have

severe back pain and am wondering if it is from the fibroids I also get

just awful cramps but have noticed they seem to be getting better now.

Mabe from the Lupron? I have had problems for years but the last 4

years I have experienced more bleeding along with large blood clots

which the doctor said is from the fibroids so hopefully when I can have

the surgery I will at least be rid of the pain from this. Guess if I had

went and gotten a yearly exam many of my problems would not be so bad.

I just wanted to say hello and I am glad to be on the list.

Pamm

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[Guest guest]

Pamm, the presence of fibroids can definitely cause back pain, depending on the

size and location of the fibroids. I didn't realize this at the time that I had

a uterine fibroid embolization to treat my 13-week size uterus, but later on, as

the fibroids shrunk, I realized I hadn't been to see my chiropractor in a while.

Can you tell us more about what you mean by the beginnings of cervical cancer?

What did the Pap show? Did you have any biopsies following the Pap, maybe as

part of a D & C? For the fibroids alone, there are other choices for treatment

other than hysterectomy, although I'm not sure how your other health problems

would impact on them. It sounds like your situation is kind of complicated.

We're glad you found us. Leonie

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this message in error, please notify the original sender (or the WSPR

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your computer. Thank you.

[Guest guest]

So far I had two periods in a two week span of time and that stopped

along with the blood spotting but I am now having awful hot flashes and

seem to be more tired then normal but with the fibro and hep C I tend to

be run down all the time anyway. Thanks for the welcome. I do know that

the Lupron shot did not hurt one bit then about 10 mins later my fanny

began to hurt and burn where I got the shot and by the end of the day I

could hardly ever sit then I got a bruise so I am not looking forward to

that again but guess you have to take the pain it only lasted a day.

Pamm

[Guest guest]

Hi Pam,

I also want to welcome you to the group! I am a new member myself

(as of one week). There are some compassionate and knowledgable women

in this group! Just want to let you know that I also have experienced

back pain, awful cramps, major bleeding and the passing of large clots

throughout my 4-year battle with these fibroids. I can relate!

I have had a myomectomy and now most recently UFE, hoping this time the

fibroids will shrink up and die! Best of luck to you and welcome

once again!

-Val-

Pamela Culp wrote:

Hello,

I am a new member (I joined yesterday) and just wanted to introduce

myself. My name is Pamm I am 46 years old, married with 2 grown boys.

I

found out around 2 months ago that I have fibroids, I had a pap test

(which I had not had done in 18 years) and when the doctor tried to

scrape for some cells I began to bleed really bad. She ordered an

Ultrasound and I was told I have fibroids along with the beginnings

of

cervical cancer. Due to spotting blood real bad and severe anemia I

was

put on Lupron shots I had one on the 8th of last month and am scheduled

for my second shot on the 6th.

Since I have fibroids the doctor has decided to do a hysterectomy

probably in Feb. if my iron count goes up enough so I am able to have

surgery. I also suffer from hepatitis C and fibromyaliga, and

osterarthritis which complicates things for me even more. I also have

severe back pain and am wondering if it is from the fibroids I also

get

just awful cramps but have noticed they seem to be getting better now.

Mabe from the Lupron? I have had problems for years but the last

4

years I have experienced more bleeding along with large blood clots

which the doctor said is from the fibroids so hopefully when I can

have

the surgery I will at least be rid of the pain from this. Guess if

I had

went and gotten a yearly exam many of my problems would not be so bad.

I just wanted to say hello and I am glad to be on the list.

Pamm

------------------------------------------------------------------------

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everything you need for holidays, birthdays or even just to say "hi".

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[Guest guest]

Hello again,

I am very glad to have found the group I am also on another group on

onelist so am glad for any information and support I can get. My pap

test showed severe dysplasia (not sure if it is spelled right) and a

small amount of cancer cells I then had a biopsy (glad I was not

expecting it or I may have chickened out) I was refered to a obgyn and

" thought " I was just there for counceling as far as what would be done

next but they did the biopsy right then boy was that awful!!! the biopsy

came back showing the same results my cervix is in such sorry shape that

when my doctor went to scrape for cells (when I had the pap test) she

barley touched it and I began to bleed really bad. She told me she felt

the fibroid while doint the exam so I had to get an ultrasound but they

did not tell me I needed to have a full bladder so they had to do a

vaginal probe the whole experience was awful.

I have a history of cancer in our family my mother had abnormal pap

tests so they did a hysterectomy but she was older probably in her 50's

then my sister who is only 31 had the same thing 2 years ago but due to

her age they just did a leep although she wanted a hysterectomy. So with

all of that I am glad to get the hysterectomy. I also have the anemia

and all the bleeding makes it worse so the doctors feel since I am 46

and have the anemia and dysplacia and fibroids and the beginnings of

cancer it is best to do surgery which is fine with me as I am sick of

cramps and bleeding and spotting blood everyday. Also hepatitis C makes

you anemic to (from what I understand from the hep C list I am on) I am

afraid I am falling apart but at least now I know why I have been going

down hill for the last 5 years as close as we can figure it out I have

had hepatitis C since I was 19 years old I contracted hepatitis while

working as a skilled aide in a nursing home back then they had no

universal precautions in place way back in 1972 I worked there in the

winter and my hands were always cracked and bleeding and back then they

did not have gloves for us to wear.

I do have respritory problems and asthma so am somewhat worried about

surgery as I have had problems with surgery before once I had an asthma

attack before surgery after that I was given breathing treatments prior

to surgery.

I guess that is about it for me sorry to ramble on hope you all have a

wonderful evening I am going back to my hobby horse type thing I am

making my grandson it is a reigndeer on a stick if I ever get the ears

on!!!

Pamm

[Guest guest]

Hi, Pamm. With your family history, I can see why you're willing to go with the

hysterectomy. I'd like to suggest that you speak with your doctor before the

surgery and find out if they plan on taking your ovaries as well. If so, you

might want to check on whether they will put you on hormones or not following

the surgery. Removal of the ovaries puts you into instant menopause, however,

with the presence of cancer, they may not want to put you on estrogen, since

that can feed the growth of cancer cells. Hopefully, other members can offer

further info on hormone choice, etc. Best, Leonie

______________________________________

This message, together with any attachments, is intended only for the

use of the individual or entity to which it is addressed and may contain

information that is legally privileged, confidential and exempt from

disclosure. If you are not the intended recipient, you are hereby

notified that any dissemination, distribution, or copying of this

message,or any attachment, is strictly prohibited. If you have received

this message in error, please notify the original sender (or the WSPR

Help Desk) immediately by telephone () or by return

E-mail and delete the message, along with any attachments, from

your computer. Thank you.

[Guest guest]

Yes they are also taking my overies. And due to the hepatitis I can't

take some hormone replacements I believe I will have to be put on the

patch form. I also have to have a mamogram every year they say due to my

family history of breast cancer the only one in my family who had breast

cancer is my Aunt Onie she is my mothers Aunt guess if you have one

family member in the family with cancer it is automatily considered

family history.

Pamm

[Guest guest]

Pam I had three shots of lupron also and I agree the first one hurt about

half an hour after I got it but the next two shots didn't bother me at

all. I hope it doesn't hurt you also. Your system must get used to it

after the first month. My nurse switched the size of my butt the shot was

to go into and I don't know if that mattered or not.

Good luck on your next one.

Robyn

P

> So far I had two periods in a two week span of time and that stopped

> along with the blood spotting but I am now having awful hot flashes and

> seem to be more tired then normal but with the fibro and hep C I tend to

> be run down all the time anyway. Thanks for the welcome. I do know that

> the Lupron shot did not hurt one bit then about 10 mins later my fanny

> began to hurt and burn where I got the shot and by the end of the day I

> could hardly ever sit then I got a bruise so I am not looking forward to

> that again but guess you have to take the pain it only lasted a day.

> Pamm

>

>

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[Guest guest]

Hi All!

I just wanted to take a moment and welcome our newest member, Becky.

Becky, I hope you will find as I do, that the people on this list are always

here for you, whenever you need them. Please feel free to discuss whatever

you need to here, no matter what. We are not here to judge you, and want you

to know that everything we'll do or say is for your benefit.

We have one rule, you aren't allowed to use the word " sorry " about your

feelings or your words. You did not wish this monster upon yourself and have

nothing to be sorry for.

Please take a moment to tell us a little bit about yourself, how you got your

RSD, your treatments, meds, family, etc. We've been working on getting

everyone's story into the files at the web site, and would like to be able to

add yours.

Again, welcome, I hope you enjoy being a part of our family.

Hugs,

Jo

Listowner

[Guest guest]

Hi Becky,

I want to welcome you to our group. My name is Deb and I am one of the people

that started this list. I am happy you sound us and I know you will love your

new family.

Please relax and say what you want. We only ask that people don't apologize.

We spend our lives saying sorry. We decided to try and break the habit. We

talk a point away if you say sorry, away from what, we haven't decided yet!

Lol

Try to write your story to us soon. Maybe we can help each other.

Hopefully we will meet at chat soon.

Hugs and a pain free minute,

Deb

RSD-CRPS

egroups

[Guest guest]

Hi Becky, welcome to the group. My name is Debbie,I am from CT-I sign my

name like that because there are other Debbie's. I have had RSD since

1992, so ask me about everything-I have probably seen it all. Would not

mind helping you if I can. Love, Debbie-CT

[Guest guest]

bruce

WELCOME!!!!!to our family here... I do understand what you are saying.....

about family and friends understaning... we all are going thru it.......i

have RSD full body,,,, feel like it is going into my kidney........you live

in South Australia.... wow i would love to get some

pictures,,,,,,somehow.anytime you would like to email me i would love for

you to at : areid@... my name is Anita Reid,,, there is alot of

anitas here so i have to use my initial on my last name ..i have had RSD

since 1995 from a work injury , had it in my left upper extrimity, then i

had a car wreck in 1997 and since then it has gone full body......i am

married to a wonderful understanding husband name kevin he is a firefighter

and i have 2 children a daughter age 25 , divorced with a child, my

grandson,,, yea!!!!! then i have a son age 22 he has a son , my 2nd

grandson,,,,,yea!!!!!!!! the boys are both 3 yrs old , 3 months

apart.......well so much about me ,,, very interested to hear from you ,,, i

am here anytime that you need to talk

MAY GOD BLESS YOU

ANITA R

New member

>

> Hi all, my name is Bruce and I live in South Australia.

> Am still trying to come to terms with the fact that I have RSD, which

> seems to have followed a work related accident (fractured ankle).

> It is now obvious that many of our local medical practitioners know

> little if anything about this disorder.

>

> Consider myself lucky that a Specialist listened to my complaints of

> swelling and pain well after my cast was removed. MRI and Bone Scans

> indicated severe RSD of lower leg and foot.

>

> Currently having nerve block injections and regular Hydro-pool

> activity. On advice, am also seeing a Psychologist for stress

> reduction, relaxation methods, pain management and general

> frustration release. (need heaps for the latter).

>

> Have joined the group out of curiosity and by virtue of the fact that

> very few people seem to understand what I am experiencing. This

> includes some family members, employer and mutual friends. This might

> sound crass, but had I been diagnosed with cancer, I am sure people

> would have responded with a little more empathy. Maybe I am just

> feeling a tad sorry for myself, hey!

>

> regards to all,

> Bruce from Oz.

>

>

>

[Guest guest]

Dear Bruce, Welcome to the group, I am sorry you have RSD, but I admit I

am excited to learn about living in South American-where abouts in SA?My

name is Debbie-CT, I put Connecticut after my name because there are a

lot of Debbie's. I have RSD, Fibromyalgia, and Myofascial Syndrome.

Hurting badly now as I have no doctor or meds. Mine started in 1992 in

right arm and has gone right ahead and taken over my body. I need a knee

transplant but I am scared of that and I figure I will have it done when

I cannot stand any longer. I hope you like it here, I sure do. Everyone

is very friendly, they get on your case if you say you are sorry. We are

all sick people and if we get crazy once in awhile we are forgiven. We

try never to hurt one another, it is like having a second family. Love,

Debbie-CT

anita reid wrote:

>

>

> bruce

> WELCOME!!!!!to our family here... I do understand what you are saying.....

> about family and friends understaning... we all are going thru it.......i

> have RSD full body,,,, feel like it is going into my kidney........you live

> in South Australia.... wow i would love to get some

> pictures,,,,,,somehow.anytime you would like to email me i would love for

> you to at : areid@... my name is Anita Reid,,, there is alot of

> anitas here so i have to use my initial on my last name ..i have had RSD

> since 1995 from a work injury , had it in my left upper extrimity, then i

> had a car wreck in 1997 and since then it has gone full body......i am

> married to a wonderful understanding husband name kevin he is a firefighter

> and i have 2 children a daughter age 25 , divorced with a child, my

> grandson,,, yea!!!!! then i have a son age 22 he has a son , my 2nd

> grandson,,,,,yea!!!!!!!! the boys are both 3 yrs old , 3 months

> apart.......well so much about me ,,, very interested to hear from you ,,, i

> am here anytime that you need to talk

> MAY GOD BLESS YOU

> ANITA R

> New member

>

> >

> > Hi all, my name is Bruce and I live in South Australia.

> > Am still trying to come to terms with the fact that I have RSD, which

> > seems to have followed a work related accident (fractured ankle).

> > It is now obvious that many of our local medical practitioners know

> > little if anything about this disorder.

> >

> > Consider myself lucky that a Specialist listened to my complaints of

> > swelling and pain well after my cast was removed. MRI and Bone Scans

> > indicated severe RSD of lower leg and foot.

> >

> > Currently having nerve block injections and regular Hydro-pool

> > activity. On advice, am also seeing a Psychologist for stress

> > reduction, relaxation methods, pain management and general

> > frustration release. (need heaps for the latter).

> >

> > Have joined the group out of curiosity and by virtue of the fact that

> > very few people seem to understand what I am experiencing. This

> > includes some family members, employer and mutual friends. This might

> > sound crass, but had I been diagnosed with cancer, I am sure people

> > would have responded with a little more empathy. Maybe I am just

> > feeling a tad sorry for myself, hey!

> >

> > regards to all,

> > Bruce from Oz.

> >

> >

> >

[Guest guest]

HI BRUCE

WELCOME TO THIS FINE GROUP OF PEOPLE THAT ARE SO CARING, I KNOW YOU WILL BE

HAPPY HERE...

I KNOW FROM PERSONAL EXPERIENCE THAT DEB-CT. LADY THAT IS TALKING TO YOU IS

LIKE MY TWIN, I LOVE HER WITH ALL MY SOUL, SO I HAD TO JUMP IN AND TELL YOU,

WELCCOME AND I KNOW YOU ARE GOING TO LOVE EACH AND EVERYONE HERE/

WITH GENTLE ((((((((((((HUGS)))))))))))

AND GOD SPEED JEANNE

MIKEY

&

SHAYLA

RSD_Haven Salutes it's site of the month:

RSDSA of N.J.: http://www.rsds.org/

RSDSA & CANADIAN RSD NET JOIN TOGETHER FOR A ITNTL

CONFERENCE in TORONTO JUL 27-29 2,000

___________________________________________________________

T O P I C A The Email You Want. http://www.topica.com/t/16

Newsletters, Tips and Discussions on Your Favorite Topics

http://www.bettermedicare.org/email/

New member

> >

> > >

> > > Hi all, my name is Bruce and I live in South Australia.

> > > Am still trying to come to terms with the fact that I have RSD, which

> > > seems to have followed a work related accident (fractured ankle).

> > > It is now obvious that many of our local medical practitioners know

> > > little if anything about this disorder.

> > >

> > > Consider myself lucky that a Specialist listened to my complaints of

> > > swelling and pain well after my cast was removed. MRI and Bone Scans

> > > indicated severe RSD of lower leg and foot.

> > >

> > > Currently having nerve block injections and regular Hydro-pool

> > > activity. On advice, am also seeing a Psychologist for stress

> > > reduction, relaxation methods, pain management and general

> > > frustration release. (need heaps for the latter).

> > >

> > > Have joined the group out of curiosity and by virtue of the fact that

> > > very few people seem to understand what I am experiencing. This

> > > includes some family members, employer and mutual friends. This might

> > > sound crass, but had I been diagnosed with cancer, I am sure people

> > > would have responded with a little more empathy. Maybe I am just

> > > feeling a tad sorry for myself, hey!

> > >

> > > regards to all,

> > > Bruce from Oz.

> > >

> > >

> > >

[Guest guest]

Hi Bruce,

my name is Dawn I am from Ga. I have had RSD for 19 mths I know what you are

talking about mine occured after I got hurt at work also(leftkneecartliage)

i am here to tell you that you are not alone in trying to except the fact

that you have RSD many of us went through the same thing me in fact I have

just begun to except the fact that I will be in a wheelchair for the rest of

my life I have the RSD and because of the stupid Dr's my RSD has spread to

my back,neck,right leg,both arms and my chest. I finally found a wonderful

pain Doctor that really understands the pain of RSD he is an angel from

heaven no matter what it is he is always there to listen and to know that I

need the helping hand if you ever want to talk just email me and maybe we

can go to a chat room if I can figure this out I just signed on with

bellsouth.net and I'm trying to get use to this I was with AOL.com and it

was wonderful I could understand everything but this is totaly different lol

lol

well anyway just email me if you want to talk

sending hus,

Dawn

New member

>

> Hi all, my name is Bruce and I live in South Australia.

> Am still trying to come to terms with the fact that I have RSD, which

> seems to have followed a work related accident (fractured ankle).

> It is now obvious that many of our local medical practitioners know

> little if anything about this disorder.

>

> Consider myself lucky that a Specialist listened to my complaints of

> swelling and pain well after my cast was removed. MRI and Bone Scans

> indicated severe RSD of lower leg and foot.

>

> Currently having nerve block injections and regular Hydro-pool

> activity. On advice, am also seeing a Psychologist for stress

> reduction, relaxation methods, pain management and general

> frustration release. (need heaps for the latter).

>

> Have joined the group out of curiosity and by virtue of the fact that

> very few people seem to understand what I am experiencing. This

> includes some family members, employer and mutual friends. This might

> sound crass, but had I been diagnosed with cancer, I am sure people

> would have responded with a little more empathy. Maybe I am just

> feeling a tad sorry for myself, hey!

>

> regards to all,

> Bruce from Oz.

>

>

>

[Guest guest]

Bruce from Oz

Welcome. I have several people from Oz that I talk to on different horse

lists but only one other woman that I talk to that has RSD. It is too bad

that we have to meet under these circumstances but you have joined a great

list.

We are a great list of talkers and sympathizers. I am the chat mother. We

have a chat every morning at 9 am US Eastern time and 9 PM Monday and

Thursday nights. I don't know how to translate that into your time but I

think it is early morning. I hope that you can make it. If you are many

like us you don't sleep too well.

From your description it sounds like they didn't get to you during the golden

time of the first six months. What medicines are you on? I take 4800 mgs of

Neurontin a day and for the burning I take . 4 mgs of Clonidine a day which

was a miracle for me. I also take 80 mgs 3 times a day of Oxycontin and 7.5

mgs of percocet 3 times a day. Plus a bunch of medicine for other problems.

I also have Fibromyalgia which most of us with RSD seem to develop.

If you have any questions all of us are here to help you.

Felice

[Guest guest]

Hi Bruce, welcome. I might have welcomed you already, but in case not,

welcome!! This is a great group of friends and I am glad you are anew friend

though wish it wasnt under these circumstances. (If wishes were horses,

beggars would ride). Glad to meet you and am looking forward to your posts. I

am 51, live in Indiana and was diagnosed in Feb of 2000 but had it probably

quite a while before then I have RSD in both legs, both feet and both hands.

In the process of changing pain docs. Mine is ok, but far away and with

winter coming, there is no way I can make that drive. Well again welcome!!

Love LORI

[Guest guest]

HI Felice,

thank you for your reply I know that when I was first digoused with this

horrible disease called RSD the Doctor's in my area did'nt know what to do

except give me pain meds but thiongs got worse and finally I found a

wonderful doctor that knew everything about RSD but it was too late for him

to do anything but we did try the SCS and also the eperdual cath for three

days then we did it again for two weeks but nothing helped cause the 3to 6

mths was gone. well I guess you know all about that the meds that I'm on now

is methadone60mgs,pheragan.25mgs,Dilodid4mgs but nothing is helping now so

they but in a portacath and we are about to start my pain meds through it

the pain level has gotten so bad that if I sleep for 30minutes that is doing

real good and I am in horrible pain 24hrs aday. well that is all for now

hope to hear from you soon

dawn

Re: New member

>

> Bruce from Oz

> Welcome. I have several people from Oz that I talk to on different horse

> lists but only one other woman that I talk to that has RSD. It is too bad

> that we have to meet under these circumstances but you have joined a great

> list.

> We are a great list of talkers and sympathizers. I am the chat mother.

We

> have a chat every morning at 9 am US Eastern time and 9 PM Monday and

> Thursday nights. I don't know how to translate that into your time but I

> think it is early morning. I hope that you can make it. If you are many

> like us you don't sleep too well.

> From your description it sounds like they didn't get to you during the

golden

> time of the first six months. What medicines are you on? I take 4800 mgs

of

> Neurontin a day and for the burning I take . 4 mgs of Clonidine a day

which

> was a miracle for me. I also take 80 mgs 3 times a day of Oxycontin and

7.5

> mgs of percocet 3 times a day. Plus a bunch of medicine for other

problems.

> I also have Fibromyalgia which most of us with RSD seem to develop.

> If you have any questions all of us are here to help you.

> Felice

>

>

[Guest guest]

Dawn,

I'm not surprised you are in constant pain. You aren't on anything for the

symptoms. Please ask your doctors about Neurontin and Clonidine. The

Clonidine got rid of 90% of the burning pain for me.

Felice

[Guest guest]

HI Felice I have been on both of them meds had a really hard time on both so

that is why I'm not on those kinds of meds but thanks for careing

sending big hugs,

Dawn

Re: New member

>

> Dawn,

> I'm not surprised you are in constant pain. You aren't on anything for

the

> symptoms. Please ask your doctors about Neurontin and Clonidine. The

> Clonidine got rid of 90% of the burning pain for me.

> Felice

>

>

[Guest guest]

HI Felice I have been on both of them meds had a really hard time on both so

that is why I'm not on those kinds of meds but thanks for careing

sending big hugs,

Dawn

Re: New member

>

> Dawn,

> I'm not surprised you are in constant pain. You aren't on anything for

the

> symptoms. Please ask your doctors about Neurontin and Clonidine. The

> Clonidine got rid of 90% of the burning pain for me.

> Felice

>

>

[Guest guest]

Dear ,

Take the meds, and soon your body will adjust and you will be able to drive

and do anything. At first you feel a bit out of it, but if you take it

regularly to control the pain, you will feel better on the medication.

I have been on Fentynal Patch .25 mgs. for almost 2 years. I have not gone up

on the dosage, It was given to for spinal disorders. I also take 4 Vicodin

for breakthrough pain.. Celebrex, ...now with the diagnosis of RSD I went

from 900 mg of Neurontin to 3,600 mgs., and Klonopin .05 3 times a day.

Those medications make me tired and I don't do anything after my second dose

of medications. Its just too much. And I too don't trust myself to drive.

But Your body can adjust to the meds and you won't feel anythng except the

relief of pain. Give it a try.

Jackie

[Guest guest]

Hi ,

Thank you for telling us a little about yourself. I'm Jo, one of the listowners

and I wanted to welcome you to our ever growing family.

It sounds as if you do have your hands full. How old are your children? Are you

working (other than the children which I know is a job in and of itself!).

I'll post your story at the main site in the morning, as I'm working on my

daughter's computer and unable to do everything that I can on mine!

I hope to see you at some of our chats, I see that you are in Canada, and I'm

not sure what time zone you're in. I did not do well in Geography, although I'm

learing more as I get older! LOL.

We only have one rule on this list, and that is you aren't allowed to say you're

sorry. We know that you didn't ask for this, and you have nothing to be sorry

for.

Hugs,

Jo

[Guest guest]

Welcome , I am still pretty new to the group also, but let me tell

you they have helped wondrously. My RSD also started in my left only in my

knee, twisted it on an ambulance call, in Feb 2000, than surgery, now PT,

lots of medication--Now severe depression. I just got back from my

psychologist and he thinks we should stop worrying about the pain and get me

out of this deep hole that I am in. He is suggesting something like out

patient intense therapy. You go the hospital for 4-6 hours a day, go

through group, personal and mind altering factors to try and regain me,

myself & I. I am not sure what I am going to do my pain specialist has been

gone all of September on a trip to Germany & I don't get top see him until

October 19th. I have a full patient evaluation scheduled for Monday the

9th. Starts at 7:45 a.me. goes until 5:00 up.me. This should be really

interesting, because I won't get to rest and it has been so long since I did

anything for that long, I am not sure if I can. But, anyway enough about me

welcome, get on-line whenever you need, it seems that it doesn't take long

and someone is answering back. I am from Northern Minnesota and we received

our 1st snow fall this early am, we got about 1 1/2 inches but it is melting

off this afternoon, More snow for the weekend and than it is to warm up

again, I hope so we still do not have all of our winterizing done yet. Kim

New Member

> Hello to all,

> Thank you for allowing me to join your group. I hope I am able to

> contribute, answer and ask questions to hopefully new found friends.

> I am 35 single mom of 2.( what a handle full on a good day)I went

> from being a very independant mom to OMG what is wrong with me. I

> injured my left ankle at work. They thought it was broke and treated

> it as such. A cast was placed on it and with in 3 days I was in so

> much pain because of the swelling it had to be removed. I went back

> to the Dr's and was the sent to PT in hope of improvements. I was

> there attending pt 5 times a week faithfully doing all exercises as

> instructed.only to see no progress only more pain....sever burning

> and increased swelling. My therapist at this time suggested to my Dr

> that it might be rsd and a bone scan was scheduled. Bingo....all the

> symptoms and now medical proof. If not for my therapist I might still

> be fighting with my dr that it wasnt in my mind, nor was the pain

> part of my imagination. I was scared and worried as my Dr didnt seem

> to understand what I was feeling, or the pain involved.

> Since the bone scan was done, I was given an appointment at a pain

> clinic that I attend this month on the 20th, in Toronto, Ontario.

> I am currently taking oxycodone and cellibrex. Taking the narrcotic

> works wonders but doesnt allow me to do anything, like drive or

> continue with PT....so I only take it when I cant bare the pain. I

> hope this helps to let you all now a little about me and I hope to

> get to know this group on a more personal level. Its nice to know I

> have somewhere to go...thank you for that

>

> Warmest wishes

>

>

>

>

[Guest guest]

,

Hi, I'm Tracey. I wanted to say hello and welcome

you to the support group. Please know everyone here

is just wonderful and the support and care given is

the best.

Hugs, Tracey

--- jomal1@... wrote:

> Hi ,

> Thank you for telling us a little about yourself.

> I'm Jo, one of the listowners and I wanted to

> welcome you to our ever growing family.

> It sounds as if you do have your hands full. How

> old are your children? Are you working (other than

> the children which I know is a job in and of

> itself!).

> I'll post your story at the main site in the

> morning, as I'm working on my daughter's computer

> and unable to do everything that I can on mine!

> I hope to see you at some of our chats, I see that

> you are in Canada, and I'm not sure what time zone

> you're in. I did not do well in Geography, although

> I'm learing more as I get older! LOL.

> We only have one rule on this list, and that is you

> aren't allowed to say you're sorry. We know that

> you didn't ask for this, and you have nothing to be

> sorry for.

> Hugs,

> Jo

>

>

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