Relationships

[Guest guest]

Oh how messed up they can become. Wanting to love and be loved are ultimate

goals as humans. Yet wanting and needing are two separate things. Why are

these goals so difficult to obtain? Over the past two years I have watched my

partner struggle with this disease. I've fully accepted the highs and lows

apparently all for naught. I have used this group to educate myself and

become aware of the many issues. I came into this relationship aware of the

disease. I've tried desperatly to be a companion, a source of support and yet

I have not been accepted within the circle as an equal provider for strength

and compassion. It's tough to be in a relationship sworn to secrecy wanting

so much to break down societal barriers.

I came to this relationship with four children. Not an easy task for any

single person to adjust to I admit. It's just as hard to claim the baggage of

PSC or any disease. Obviously two very complicated and difficult scenerios.

When I needed help through a tough situation I was helped. Why then is it so

difficult to accept help in return? All I asked was to be there for you, with

you. Obviously I will never understand. Yes, I've always looked at life

through rose colored glasses saving the fears and worrying for another life.

This disease does not have to be the end of the road just a fork. And yes it

hurts. Bull to the saying 'It's better to give then receive' unless it comes

from both sides. Now is the time when every member of this group NEEDS to

receive. Accept it! Don't allow those who want to give be banished. It's not

just the giving of organs but of love, hope and compassion and it comes in

many forms. Love is blind or are we blind to love?

I hope that everyone here has better tomorrows. I must resign from the group

now but will always have pleasant thoughts of all.

Thanks for time we've shared.

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[Guest guest]

Why do you have to resign? I am not sure I have seen

any other posts from you, but from what I read, you

have incredible insight!! If your partner is not

allowing you to support and be compassionate he is

losing out!

I know I get frustrated easily now, maybe it's because

of the PSC or maybe not...but I do know that I never

give enough CREDIT to my husband who has been by my

side through all of this, and cried when I cried, and

breathed sighs of relief with me when good news came

and encouraged me to stay with this site because it

was a link that I could share that he could not share

with me because he wasn't going through the phsical

part of it.

I don't even know your name and now you are resigning?

Hey, come on let me know your name so I can say

thankyou for this beautiful note!

in Michigan