Guest guest Posted January 12, 2000 Report Share Posted January 12, 2000 Dear Irene, You are so very sweet. Thank you so much for your encouragement!!! The best thing that anyone can do to help me right now is to pray. I just found out that the Head of Tx wants to meet with me on Monday, the 17th. If you will be in prayer that we come to a conclusion and that it is the right way to go....we would appreciate it sooo much!!! Take care and much love, Jacquelyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2000 Report Share Posted January 12, 2000 Dear Irene, You are so very sweet. Thank you so much for your encouragement!!! The best thing that anyone can do to help me right now is to pray. I just found out that the Head of Tx wants to meet with me on Monday, the 17th. If you will be in prayer that we come to a conclusion and that it is the right way to go....we would appreciate it sooo much!!! Take care and much love, Jacquelyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2000 Report Share Posted January 12, 2000 Jacquelyn, I'm so sorry you had such an experience with that awful doctor and those awful people at Baylor but in a way I'm glad becuase I didn't feel good about you going back to Dr. Hamilton and that hospital and was hoping you'd go to your doctor in OK city (where you mother is and can help you with the kids). I tried to call you last night and there was no answer so I called Baylor and when she said you weren't listed there I said good and hung up. I've gotten so paranoid. I wish there was more I could do for you. And now poor Luke he's been through so much. I hope he gets better soon and that you and the kids don't come down with it. I'll write more tonight I really have to get to work. Love, Peg JQS2@... wrote: > Dear Tim and Precious Group Family, > Hello there!! Thank you so much for your compassion. And by the > way...MOM...Peg...has given me a many of lectures about not getting any rest. > I went to Baylor today and was so thoroughly discouraged. I saw a > transplant intern that said there are no absesses and that the pain is from > the stitches. I saw my GI who by the way has 0 personality and he said that > when you have surgery.... " it just hurts. " The bottom line of both of the > appts is that none of them have a clue as to what is going on. My GI said > that if they try to put a stent in it would definitely poke through the gore > tex, puncture the heart and then I would need open heart surgery. He said > that with such an incredible amt of pressure in there that it's impossible to > keep that vena cava open. But then on the other hand he said that he > couldn't see the tx team retransplanting on a liver that is perfectly > healthy. He said that there are great risks with anything that we might do > and on top of that....they don't know WHAT to do. > The minute I got home and walked in the door today, I made an appt with > my old GI in OKC. Dr. . He was the only one that could dx my > PSC and hopefully will have an answer for me. I told my GI today that if > they don't have any better answers by next Tues when I see him that I'm going > to Mayo or somewhere. > I'm so sorry to sound so negative. I just need a sounding board. My > sweet husband is still so sick with the flu and I told him all of this, but > he's soooo tired he can't even think about it right now. > The visit today went so poorly that my best friend actually yelled > at my Dr. b/c he was saying that I was causing my blood pressure and pulse to > be so high by worrying about everything. She said, " You tell her that she > may need a 2nd liver tx, another tx doc tells her she will die if she doesn't > keep her feet elevated, she's had major surgery twice in 7 months and you > think that SHE is causing the bp to be up??!! " All he had to say was, " well > she's been through a lot " . And then prescribed more Valium!!! > Again I am so sorry to you all to sound so negative....I'll be better > after a good night's sleep...I'm just sooo tired of being so sick and > everyone at Baylor acting like it's all par for the course. I'll bet their > dreams would come true if I went to another hospital. But all I have to say > is that I know my body and I KNOW there's something wrong and they KNOW > there's something wrong with the vena cava and I want that fixed. I told him > that I wanted to live to see my children grow up and live to 100 and he said > that he can guarantee that won't happen....what a jerk!!! > Well, I need to go read my Bible and get back into perspective that God > is in complete control and I just need to allow Him to be in control and I > need to really pray for my anger and ask forgiveness for having such hatred > (what a terrible word) today about Dr. Hamilton (the GI). > I've already prayed for you all tonight and hope that you are all feeling > well!!!!! Please forgive me for such a negative message!!! > Thank you for listening!!!! You all mean the world to me!!! > Love you all!!! > Jacquelyn > > ------------------------------------------------------------------------ > For the fastest and easiest way to backup your files and, access them from > anywhere. Try @backup Free for 30 days. Click here for a chance to win a > digital camera. > http://click./1/337/4/_/24674/_/947655105/ > > -- Talk to your group with your own voice! > -- /VoiceChatPage?listName= & m=1 Quote Link to comment Share on other sites More sharing options...
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