Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi sorry I have absolutely no experience with ACM. Brande might be a good person to ask on this as she seems to have all the links to it. However, here are a few sites I have just found on google.com by putitng in Arnold Chiari Malformation, UK into the search engine http://cpmcnet.columbia.edu/dept/nsg/PNS/ChiariMalformation.html http://www.mic.ki.se/Diseases/C10.500.html http://www.domus.plus.com/ http://www.gpnotebook.co.uk/cache/-1758134271.htm http://www.ability.org.uk/Arnold_Chiari_Malformation.html http://www.cafamily.org.uk/Direct/s66.html http://www.knowdeep.org/syringomyelia/ regards Nina --- Begin Forwarded Message --- Date: Mon, 21 Jul 2003 05:47:28 -0400 Subject: Re: Retethering! <fwd> Sender: chris holcomb To: Nina Bunton Reply-To: chris holcomb Message-ID: Thank you for sending this to me Nina. Now if I could get back the other stuff I lost I'd be all set. LOL I don't even remember what was all in that folder but I do know all my links about TC and SB were in there although I did have a few on my favorites list that I didn't lose. What do you know about ACM? Mine is obviously going to not go away and I do believe I am going to have to deal with it at some point. This waking up and having my right side numb from the neck to my waist can not go on the way it is. I do have a couple great sites and I read a lot about it but I would like some personal views about surgery and what ever other treatments anyone has had ..Chris Re: Retethering! > > > > > > are there any good website explaining tcs? or ones with good > > pictures? > > > > di > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi sorry I have absolutely no experience with ACM. Brande might be a good person to ask on this as she seems to have all the links to it. However, here are a few sites I have just found on google.com by putitng in Arnold Chiari Malformation, UK into the search engine http://cpmcnet.columbia.edu/dept/nsg/PNS/ChiariMalformation.html http://www.mic.ki.se/Diseases/C10.500.html http://www.domus.plus.com/ http://www.gpnotebook.co.uk/cache/-1758134271.htm http://www.ability.org.uk/Arnold_Chiari_Malformation.html http://www.cafamily.org.uk/Direct/s66.html http://www.knowdeep.org/syringomyelia/ regards Nina --- Begin Forwarded Message --- Date: Mon, 21 Jul 2003 05:47:28 -0400 Subject: Re: Retethering! <fwd> Sender: chris holcomb To: Nina Bunton Reply-To: chris holcomb Message-ID: Thank you for sending this to me Nina. Now if I could get back the other stuff I lost I'd be all set. LOL I don't even remember what was all in that folder but I do know all my links about TC and SB were in there although I did have a few on my favorites list that I didn't lose. What do you know about ACM? Mine is obviously going to not go away and I do believe I am going to have to deal with it at some point. This waking up and having my right side numb from the neck to my waist can not go on the way it is. I do have a couple great sites and I read a lot about it but I would like some personal views about surgery and what ever other treatments anyone has had ..Chris Re: Retethering! > > > > > > are there any good website explaining tcs? or ones with good > > pictures? > > > > di > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi sorry I have absolutely no experience with ACM. Brande might be a good person to ask on this as she seems to have all the links to it. However, here are a few sites I have just found on google.com by putitng in Arnold Chiari Malformation, UK into the search engine http://cpmcnet.columbia.edu/dept/nsg/PNS/ChiariMalformation.html http://www.mic.ki.se/Diseases/C10.500.html http://www.domus.plus.com/ http://www.gpnotebook.co.uk/cache/-1758134271.htm http://www.ability.org.uk/Arnold_Chiari_Malformation.html http://www.cafamily.org.uk/Direct/s66.html http://www.knowdeep.org/syringomyelia/ regards Nina --- Begin Forwarded Message --- Date: Mon, 21 Jul 2003 05:47:28 -0400 Subject: Re: Retethering! <fwd> Sender: chris holcomb To: Nina Bunton Reply-To: chris holcomb Message-ID: Thank you for sending this to me Nina. Now if I could get back the other stuff I lost I'd be all set. LOL I don't even remember what was all in that folder but I do know all my links about TC and SB were in there although I did have a few on my favorites list that I didn't lose. What do you know about ACM? Mine is obviously going to not go away and I do believe I am going to have to deal with it at some point. This waking up and having my right side numb from the neck to my waist can not go on the way it is. I do have a couple great sites and I read a lot about it but I would like some personal views about surgery and what ever other treatments anyone has had ..Chris Re: Retethering! > > > > > > are there any good website explaining tcs? or ones with good > > pictures? > > > > di > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Thanks Nina I will check these out I was just looking for personal experience. Brande has already answered some of my questions. Maybe I can find some personal stories at some of these sites. I think this is scarring me more than my TC ever has. Maybe because of it's location I guess just seems it's in a more delicate spot than the TC. I'm just not looking forward to having surgery any where near my brain if that's what it comes to. Thanks for the sites. Chris Re: Retethering! > > > > > > are there any good website explaining tcs? or ones with good > > pictures? > > > > di > > > > > > Quote Link to comment Share on other sites More sharing options...
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