Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Dear PSC group, I have just joined the group and thought I should introduce myself. Obviously this is a group I would rather not be a member of, but am VERY happy there are some other people with PSC I can talk to. I am 41 years old, was diagnosed with ulcerative colitis in 1978 and with PSC in 1996 (although I had elevated liver enzymes as far back as about 1990). I think I have actually done pretty well considering, and so far it has not had a major impact on my lifestyle...I started on URSO in 1996, and went to the high dose in 1999. About 1 1/2 years ago I had some sludge/stones and blockage that was fixed with dilation of the major strictures, and for about the last year have had the occasional infection that has resolved with antibiotics. Thankfully, I have not had itching or any amount of pain except during blockage or infection. However, over the last few months, fatigue seems to be creeping up and infections are a bit more frequent although there are still no other signs such as jaundice or other signs of liver failure. I guess my " dilemma " at this point is accepting that things may be progressing, and that before too long I will need to head over to Seattle and begin the process of getting listed for transplant...I have made a real effort to keep a positive outlook and " ignore " the problem except as needed - so getting to this stage is a real emotional downer! In any case, I was wondering at what stage or level of symptoms others were at when they got listed. Oaks ----------------------------------------------------------------------------- J. Oaks Department of Veterinary Microbiology and Pathology Washington State University Pullman, WA 99164-7040 Quote Link to comment Share on other sites More sharing options...
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