Guest guest Posted October 7, 2003 Report Share Posted October 7, 2003 Hi... I saw my rheumy today, as I'm off antibiotics and can talk about treatment for the ra/psa, etc. He is suggesting we try kineret and resume mtx. We've tried almost everything else. I was hoping to hold off longer as the ra/psa has not been too terrible, but it has reared it's ugly head to the point of my rheumy not wanting to wait. I can't make a fist with my left hand - swollen, reddened fingers, can't open pill bottles with either hand, there is quite extensive swelling of my wrists and shoulders, more pain, etc. My right knee is bad, and my big toes. I don't have as good of an attitude as I should have - I'm pretty bah humbug. He is worried about oa now as well, and is very encouraging of me having bariatric surgery as soon as I can to take the pressure off my knees, and for my general health as well. I'm not sure if I need a kick in the fanny or just a big hug. Maybe both? Love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Tess, Hopefully, when you go back on the meds, you'll start feeling better. Here's a hug((((Tess))) to help. I'm not good at boots to the butt. I still think the weight loss you've already had is a great start. Think very hard before you do the surgery thing. It's such a drastic step. Noreen [ ] rheumy visit Hi... I saw my rheumy today, as I'm off antibiotics and can talk about treatment for the ra/psa, etc. He is suggesting we try kineret and resume mtx. We've tried almost everything else. I was hoping to hold off longer as the ra/psa has not been too terrible, but it has reared it's ugly head to the point of my rheumy not wanting to wait. I can't make a fist with my left hand - swollen, reddened fingers, can't open pill bottles with either hand, there is quite extensive swelling of my wrists and shoulders, more pain, etc. My right knee is bad, and my big toes. I don't have as good of an attitude as I should have - I'm pretty bah humbug. He is worried about oa now as well, and is very encouraging of me having bariatric surgery as soon as I can to take the pressure off my knees, and for my general health as well. I'm not sure if I need a kick in the fanny or just a big hug. Maybe both? Love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Hard to have a good attitude when you hurt. At least your hysterectomy is behind you now and you've healed nicely. I just wish the RA was behaving. Hopefully when you start back on the mtx and whatever else you decide to add, you'll feel better. I prefer to give hugs rather than kicks! Kicks will hurt me to much a > Hi... I saw my rheumy today, as I'm off antibiotics and can talk about > treatment for the ra/psa, etc. He is suggesting we try kineret and > resume mtx. We've tried almost everything else. I was hoping to hold > off longer as the ra/psa has not been too terrible, but it has reared > it's ugly head to the point of my rheumy not wanting to wait. I can't > make a fist with my left hand - swollen, reddened fingers, can't open > pill bottles with either hand, there is quite extensive swelling of my > wrists and shoulders, more pain, etc. My right knee is bad, and my big > toes. I don't have as good of an attitude as I should have - I'm pretty > bah humbug. He is worried about oa now as well, and is very encouraging > of me having bariatric surgery as soon as I can to take the pressure off > my knees, and for my general health as well. > > I'm not sure if I need a kick in the fanny or just a big hug. Maybe > both? > > Love... > > Tess > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Thank you for the hugs (and the kick, Judi). I'm sorry if I am being whiney, I know others here are facing greater battles than I. I love you all dearly, and pray God's best for you all. Hugs of Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 In a message dated 16/02/2004 18:28:44 Central Standard Time, marysue@... writes: > Then he mentioned the > possibility of sending me to a hemetologist/oncologist who could do a > bone marrow aspiration. (Is that the correct word?) That didn't sound > like a whole lot of fun, but he said it wasn't so bad if the patient > was sedated sufficiently. This is true. I have assisted with bone marrow aspirations in the hospital. It is a very quick procedure, basically some novocaine-type drug is injected so you feel only the first poke, then a longer needle to get the marrow. The only problem is some doctors do not sedate the patient!!!!! Don't ask me why. When not sedated, it is painful but over quickly. So if I had to have this procedure done, I would clearly ask ahead of time how I was going to be sedated. If the hem/onc said I didn't need sedation, I would find a different doctor who cares about patient comfort. Hope this helps. The whole procedure takes maybe 5 minutes. Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 LOL, Sue! Glad that you are keeping those guys on their toes. I hope you can relax now and enjoy your Enbrel. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Rheumy visit > It snowed here in piedmont NC last night, and I was worried that I > might not be able to keep my rheumy appointment today. We live an hour > away. Since my appointment was in the afternoon, the roads were all > clear, so we made it without incident. > > First I saw the rheumy Fellow that is working with the rheumy. I > expressed my concern about the low white blood cell count. He noted > that it was relatively stable and not going lower and lower. When I > asked him if he thought the radiation treatments I had two years ago > could be a factor, he agreed that they could. Then he mentioned the > possibility of sending me to a hemetologist/oncologist who could do a > bone marrow aspiration. (Is that the correct word?) That didn't sound > like a whole lot of fun, but he said it wasn't so bad if the patient > was sedated sufficiently. I asked him if he had had one, and he laughed > and said no, but he had done some. But, anyway, he said he'd discuss > the low WBC count with the rheumy and see what he thought. > > When the rheumy came in, he said that he was not concerned about the > WBC count at this point and reassured me that I shouldn't worry about > it. I said that I was worried about it because I'm a worry wart, and he > laughed and kidded, " I've already told him that. " He was very pleased > at the good results that I've gotten from the Enbrel and said he wished > all his patients could get such good results. > > I wish they could too, and I wish the same for all of you on the list. > > Sue Quote Link to comment Share on other sites More sharing options...
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