Re: Re: Update on Hubby... Barby

[Guest guest]

Ha ha ha ha ha LOVE IT!!!!

Subject: Re: Update on Hubby... Barby

To: livercirrhosissupport

Date: Thursday, February 25, 2010, 4:58 PM

 

we appear to be twins toots,watch out gang i have been clonedddddddd hahahahaha

> > >

> > >

> > > Oh Kerri,Kerri. ..I am so sorry. Do you feel like you're sitting there in

the docs office and   suddenly realize. " oh my gosh..he's

talking about us " . It's like you are looking down on you and your hubby and can

hear everything the doc is saying,but you don't feel like you're in your body

and then it hits you that he''s really talking about your hubby's life

here.  I do think that's it' so important that you go to

Disney and make memories! Odds are he will get his transplant and be fine...But

like you,I am intent on making good memories...and we have not reached to part

of the journey you are on yet......but you never know..it could happen

tomorrow.  You know we are here for you...anytime you need to

talk...we will listen.. I feel so awful for you. I'm giving you a big hug!!

> > >

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    Love,Jill

> > >  

> > > We don't remember days, we remember moments.

> > > Life is not measured by the breaths we take,but by the moments that take

our breath away.

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: Kerri <kerriazscraps@ ...>

> > > To: Liver C Support <livercirrhosissupp o rtyahoogroups (DOT) com>

> > > Sent: Wed, February 24, 2010 8:55:56 PM

> > > Subject: Update on Hubby... (Long, but gotta get

it all out...)

> > >

> > >  

> > > had a colonoscopy last week. Thankfully it was clear - no

hemorrhoids.

> > >  

> > > But...

> > >  

> > > We went in to the Liver Disease Center appt today. I don't even know where

to begin. I can't wrap my head around any of this at all... My thoughts are all

jumbled and I go back and forth between crying and just sitting starign into

space and not really comprehending what's going on around me...

So forgive my lack or grammar or prooper paragraph/sentence

structure... I will kind of beak it up so that it isn't one long run on

paragraph so that it's easier to read.

> > >  

> > > Um.... Okay. So  is getting worse - fast. His

liver enzymes are way elevated and they keep rising. Both his

AST and ALT  " into the latter 400s " (She didn't give me an

exact numer). He has a new prescription that he has to take -

can't recall the name of it (and the pharmacy was out so I have to wait til

tomorrow to pick it up), not that it matters! LOL - because he has a blockage in

his bile ducts and he has gallstones and this is suuposed to help break all

those down. He has to go in for an MRI on Friday to see just how big the

blockage is to see if they might need to increase that new med.

> > >  

> > > Then,  asked her if it would be okay for us to go

to Disneyland (basically if it would be okay for him to ride the rides). She

asked when were we thinking. told her that we didn't know for sure, but

within the next few months, if we even go. (Since we really SHOULD be putting

the money towards bills! LOL) Then she said, " The one in Cali, right? " We said

" yes " . She said, " Before June? " We timidly said " yeah, we were thinking May. "

She said, It was fine, but we really should go before June. We looked at each

other.... Huh? She said that things are progressing and after June or July he

might not feel up to it, but when we go, make sure he takes PLENTY of water and

NO eating park food as there would be WAY too much sodium in it.

> > >  

> > > She also confirmed that, seeing how young he is (he'll be 37 in June) and

how bad this all is, he more than likely DID get the Hep C when he had heart

surgery when he as 4 and had a blood transfusion - as in '77 they didn't check

for Hep C... Although, of course, they can never prove it.

> > >  

> > > Then she dropped another bomb. Insurance was not yet approving for things

to go forward for the transplant. Why? There is a $250,000 lifetime cap on what

his insurance will pay for any one individual. Well, he already has quite the

rack up of medical bills, as I'm sure you all know. We don't know what dollar

amount he is at at the moment. The hospital is working on getting at least the

preliminary approval to get him the testing to get him on the list. That is the

foremost thing. HOW IN THE FLIPPIN' HECK do you pay for a transplant with how

much it all costs??????? ? She said that they have a specific department that

handles JUST fund raisers to help families to pay for the costs.... But in these

economic times, how many people can you really get to donate? Also, he will

never be able to get insurance again, so how in the heck do we pay for the meds

he's gonna need?

> > >  

> > > Then asked her - said he just had to know - what he was looking at

time frame-wise if he doesn't get a transplant.. . She grimly said, " Less than 3

years. "  

> > >  

> > > This is all just blowing my mind! WHY US?

> > >  

> > > I'm putting the kids to bes early and I'm just going to bury my head and

try to sleep and not have to think anymore!

> > >  

> > > We, for sure now, are going to go on a famiy trip - whether to Disney or

where. We seriously need to get a vacation, something fun, where we can get our

minds off of as much as we can and just enjoy each other as a family and make

some memories... In case. (I hate to think that way, but, well, I'm jus tnot in

a very positive mood right now.)

> > >  

> > > I cna't think anymore. I just dont have any more words....... ......... .

> > >

> > >