Re: New member/

[Guest guest]

Hi ,

my husband was pretty negative when I first brought up researching

the whole vaccine thing, he is very logical- he's a civil engineer,

and was 3 yrs a pre-med student, and his brother is a Dr., my whole

approach was to stay calm, even though I felt upset inside and knew I

couldn't ever vaccinate my kids again, I kept these thoughts to

myself and tried very hard not to make him feel left out of the

decision or that I was making all the important decisions about our

children. I prayed alot about the situation, and I began to print up

some of the more thought provoking articles I came across,and

ecspecially anything scientific- a M.D. author was always a boost. I

gave these to him to take to work with him and read through, or I

just gave him a summary of what I was reading. I avoided any

showdown of me vs. him, although by this point I felt strongly about

never vaxing again. I think what really turned the situation around

were a few articles linking autistic children from vaccine reactions

to background checks of family members with autioimmune diseases,

this caught his attention as I began to list the members( most in his

family,) with severe asthma (most of his brothers and sisters, his

mother to the point of hospitalization often) diabetes,night

blindness and lupus on my side of the family. This seemed logical to

him, that there appeared to be a link, and that our son was at risk

because of our family background. He agreed to wait untill our son

was 2yrs, and then to discuss it again. (i thought to myself, " over my

dead body! " ) I have continued to share what I am reading, my husband

has begun to bring home newspaper articles he finds, and then met

someone at work who's 6 month old son had autism from a vaccine

reaction that was confirmed by his Dr. My husband seems to be whole-

heartedly anti-vax now. I think it really helps to be gentle and

fair with your husband, and not to make him feel like he was left out

of the decision. I think because I am always willing to go half way

and work out a compromise, that he was initially willing to delay for

my sake, till 2yrs, more because he saw how strongly I felt, not

because he was totally convinced, and because he loved me and honored

my strong feelings and was willing to try to work out a compromise.

I hope this helped,

R.

no more vax's in Ca.

mom to 6yr girl, 4 yr girl-no longer vaxed, 16 mo. boy no vax since 9

months!!

> Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

I'm so sorry I overlooked your post....I do not

get on line often enough <br><br>First..drink the

water! Don't drink a gallon in one sitting, it will

disturb your electrolytes, but DO drink water! Water is

one of the best things you can do for your

body.<br><br>Secondly, I am wondering what your Doctor was thinking when

he discontinued your thyroid meds. I'd like to give

the Doc the benefit of the doubt here, but I have had

a few bad docs....more bad than good I should

say...so I would question that particular move quite

vocally.<br><br>Welcome to our club and keep us posted on how you are

doing!<br>Bev

[Guest guest]

like i told the other lady, the doc took me off

EVERYTHING medication wise, until i've finished a heparin

treatment round, and the thromb in my leg is under control.

It was pretty scary, and just happened last night.

He'd taken me off about a week before this happened,

because he noticied my BP starting to climb, and i was

getting dizzy, and seeing floaties in front of my eyes.

[Guest guest]

If my posts seem a little choppy, i'm typing in

between doctors and nurses coming in, since i'm supposed

to resting, not surfing the internet. I had to go

into the hospital late last night, when i developed

the thrombosis(i think that's what they called it)

I'll be here until at least Monday, which is killing

me, because i have SO many things to do. I also have

to stay off my feet until sunday, so i'm stuck in

bed. I " m using my brother's laptop, hooked into the

hospital's internet(i work at the hospital, so my fellow

ward-clerk cuts me a break ;-) ) Hopefuly, i can get this

resolved and get back on the thyroid meds, because they

were starting to work.

[Guest guest]

I often see floaters in my eyes, anyone else have that problem? I know my mom

has a history of floaters and I just figure that I get them because of bad

vision.<br><br>Janine

[Guest guest]

Hi <waving to> and welcome from Mississippi..Pull up a chair and join

in where ya want. Its a great group here.

Pam

[Guest guest]

Hi ,

So glad to have you on . I hope you answers, support, and

friendship here with us.

Your hearing history sounds very much like my families except that we

never had aproblem wearing hearing aids.

We have profound bilateral sensorineural hearing loss which started

in our early 20's and seemed to accelerate more with each pregnancy.

We do have 4 members in our family with cochlear implants now though

and have many more affected by hearing loss.

Please ask any questions you can think of.

You are most welcome to email me privately or ask away on the forum

here.

This is a great place indeed and Glad you've shared your story.

Looking forward to hearing more from you.

cheers,

Silly in MI

[Guest guest]

mtx scared me for awhile too, but after 2 years i decided to try it. i did

the injections since my stomach can't take too much else. the first 6 weeks i

was a little sick when i took it, but once that was over it is not that bad. i

am a little more tired on the weekends and actually sleep most of the night.

after almost 3 years of being home on disability, watching the world go by out

of my window. i am back out there again!! i've been working part time since

march, walking the dog farther, and dating again. besides doing all the

household chores (since my son moved out) including mowing the lawn. i still

have my

bouts of flare sometimes. but life is MUCH better. i hope you find what works

for you too. kathy in il

[Guest guest]

Hi ,

Welcome to the group! Everyone here is great! The site offers many

wonderful emails (about everything you can think of) and group chat (there is

one

today) and more. Best of all the people here understand. And, everyone I have

ever had contact with is willing to help in some way. I think you will be happy

you are here!

I too suffered through pregnancy and one of my worst flares when I had my

son. I have the same feelings and concerns as you. And, as you say there are

always others who are worse off than ourselves. That being said in itself does

not stop the pain (physical), social, psychological and emotional destruction

of this disease. Combine that with the caring of others (being a Mom, Dad,

spouse, or significant other) and the inability to maintain somewhat of a

" normal " life and we are guaranteed problems.

So, what do we do? We seek counseling, we come here (where friends,

relatives and others afflicted with this disease " live " ), we talk to friends,

spouses

or anyone who might care to listen, we try to make some sense of " why me " just

as many others do for many other things which happen in life, we make plans

that we can actually try to keep-plans within our range of abilities and at

night we pray...asking for some peace from the pain, solution for the disease

and

some resolution to the suffering.

And...we wait, with hope. Don't give up on trying new ideas or starting a

new " plan of attack " on the limitations P and PA put on you. Having hope is all

that keeps me going sometimes. But...without it we are giving up and that

just can't be an option. Seeing and hearing about others who are having a

rougher time of it is hard but also inspirational...if they can hang in there we

can, too....you know?

Good Luck and enjoy all the companionship and information this site has to

offer. The people are great and the understanding and compassion for others is

unmatched. (Va.)

[Guest guest]

In a message dated 10/21/2008 11:58:06 P.M. Eastern Daylight Time, seraphimtoo@... writes:

So while I'm not following a program right now

Yes Dear you are following a program. It is called the G program. When I say program I don't mean it by meaning a paid program OR exact program. Many gals on this list do WW, sugarbusters, Count points, and many create there own. I need to learn to love exercise. I am still working at that.

N.H.Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out!

[Guest guest]

You know, that thought did flit through my mind.... I was very good about ignoring it though in my effort to tell my story. I guess I don't like the idea of "following a program". I kind of wanted to "call " or "join WW" or be part of a group doing this together. But I have never had as much luck following another's path on this subject. I just had to make this my own journey and do it my own way for it to work. As to loving the exercising, I do have some strength (muscles I thought I'd let go way too long to still be there) and can lift weights so that made me love it.... at least until my wonderful trainer said enough of this we need to challenge you and now everything is hard. But I can see and feel the muscles forming, so that is part of what makes it really good. The cardio being fun was more of a challenge. On the treadmill at home I had certain programs that motivated me or at least distracted me so that was how I got through them. Once I moved to the elliptical I had to do it all at the gym so I went and got myself an iPod, put all my music on it and I kind of dance to my favorite music on the machine. I am hugely motivated by special music, not the gym canned crap, and I used to be able to dance which I miss terribly. So that was what got me to fall in love with the cardio. It even works for me on the bike, the right music has me soaring, pedaling faster than I thought I could and time flies. I do have to moderate how many fast songs I play during my cardio hour though so I don't burn out my leg muscles but I can pretty much gauge that now. I just ride the music, ignore everyone, close my eyes sometimes to listen better, even mouth the words when they are really good, and dance my private dance in tempo. I know I am probably the strangest person there but I think of the episode on Friends where Phoebe runs through the park in the most gawky, strange manner so it will be fun for her no matter what it looks like to anyone else. The fact that I am enjoying myself and getting results is all that matters really. I hope you can find that because it really is key I think. G "It came to me that every time I lose a dog they take a piece of my heart with them. And every new dog who comes into my life gifts me with a piece of their heart. If I live long enough, all the components of my heart will be dog, and I will become as generous and loving as they are."~Cheryl Zuccaro On Oct 22, 2008, at 6:04 PM, Jase0157@... wrote: In a message dated 10/21/2008 11:58:06 P.M. Eastern Daylight Time, seraphimtoo@... writes: So while I'm not following a program right now Yes Dear you are following a program. It is called the G program. When I say program I don't mean it by meaning a paid program OR exact program. Many gals on this list do WW, sugarbusters, Count points, and many create there own. I need to learn to love exercise. I am still working at that. N.H.Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out!

[Guest guest]

Hi, , Please ask your General Practioner (GP) and/or your scoli doctor for

a referral to a neurologist for an EMG and nerve conduction tests.  There may be

more going on with your muscles, joints, bones and scoli that meets the eye.

 

lj CMT2