Re: Fwd: Living Donor

[Guest guest]

,

Thanks for the information. It was good news. Good luck to

you. Happy Holidays.

At 03:21 PM 12/21/99 -0500, you wrote:

Judy,

I have psc and am in the process of considering a living donor...Kate, my

angel, has gone through the first part of the eval, and her primary care

doc has given her stamp of approval. Now, it will be up to New

England Med to tell us what other tests and procedures she'll have to go

through on their end. As I understand it, they will take a portion

of Kate's bile duct as well as half of her liver, then they'll attach my

intestines to the bile duct she donated with the liver. We'll see

where it goes from here. Kate is a marriage and family therapist

and a former student of mine. She and another former student,

Wendell, have both offered to consider being living donors. Others

also offered, but were not good matches. I'll keep you and the list

informed about the process.

Gracie and Ed have also talked to New England Med about the living donor

option. (Ed has PSC, and Gracie is his wife). Perhaps they

can share their experience with you also.

in NH (dx '85 listed 3/98)

Judy Short wrote:

>Date: Tue, 21 Dec 1999 08:56:46 -0600

>To: -helpegroups

>

>Subject: Living Donor

>

>Hi,

>

>My husband Ron was diagnosed 9 years ago with PSC. In Sunday's

paper (our

>local paper) there was an article about a man who donated part of his

liver

>to his wife (she has pbc). I did not know this could be done

for people

>with pbc. It was done at -Jewish Hospital in St.

Louis. She was near

>death and it was plain to see that she was not going to get a liver

in time.

> I was wondering if any of you have ever heard of a living donor for

someone

>with psc. Since the bile ducts are involved I have a hard time

imagining

>how this could be done. I sure hope it can be done....

especially since it

>seems to be getting more and more difficult to get organs. I

told by

>husband about the article and said that I could always donate part of

my

>liver for him when it is needed if we can't get an organ in

time. Ofcourse

>he didn't want to hear me saying that. So far my husband is

doing fine....

>takes lots of medicine but nothing significant has happened.

He's not even

>close to being put on a list. It scares me that so many people

are dieing

>because there are not enough donors. Oh, by the way..... the

couple are

>doing " great " . It took the husband (the donor) a

little longer to recover

>but he is doing real well now and his wife is doing very well.

>

>Judy

*****************************************************

Judy Short, Admissions Secretary

Department of Philosophy

105 Hall

810 South Street

Urbana, IL 61801

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