Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Beth, The Rebif has not given me any flu symptoms. When I was on Avonex, I couldn’t shake the fever, chills and headache. Rebif is easier to give and with Tylenol I never have any problems. The only drawback to Rebif is it sometimes leaves my skin irritated and red. I rotate spots—thighs, arms, hips and stomach but the skin sometimes still doesn’t have a chance to bounce back. I have not any new symptoms since starting Rebif which is the best part for me…. Hope this helps, Connie From: MSersLife [mailto:MSersLife ] On Behalf Of Westie Sent: Friday, December 02, 2005 9:57 PM To: MSersLife Subject: RE: Who I am Connie, Noted that you take Rebif. Doc is talking about me starting it. I looked over their website. Interested in how others have done – real accounts, not the endorsed type. Did you get the flu symptoms when you started? How has it worked out for you? Any input would be appreciated. Beth - Westieluv From: MSersLife [mailto:MSersLife ] On Behalf Of connie buran Sent: Friday, December 02, 2005 8:20 PM To: MSersLife Subject: RE: Who I am NAME Connie MARRIAGE STATUS married to the same patient man for 23 years FAMILY twin 22year old sons and , a 19 yr.old son Adam and a 14 yr.old daughter Hannah SUPPORT SYSTEM my husband , children and lots of great friends AGE 40 something…. STATE Texas DXed with MS yes IF YES – WHEN September 2003 MEDS Rebif OTHER ILLINESSES None HOW DO YOU THINK THESE EFFECT YOUR MS JOB STATUS Work in Elementary School Special Ed PROFESSION Teaching Assistant HOBBIES Reading, gardening ANY OTHER IMFORMATION YOU WOULD CARE TO SHARE In school currently working on teacher’s certificate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Thanks Connie! I go back to the Neuro on the 9th and want to be prepared. He wanted to put me on the Rebif back in October, but I was waiting for one other test that the consulting Neuro had taken to come back. It came back negative for other non-specified autoimmune disorders, so we are back to the MS. My deductibles/co-insurances and all have been met this year, so I am going to try to get them to do another MRI before the end of December. Last one was in August and was negative. I don’t know why, but I can’t believe that this is MS until I see something with my own two eyes on the MRI film. I know that some people don’t get visible lesions early in the disease, but I shudder to think what will be happening to me symptom wise when the elusive boogers do pop up on the films. It scares me. What do people do when they travel? Doesn’t the stuff have to be refrigerated? I am planning a trip to sunny place south in February. If you are taking a plane, will they let you get on with a small cooler filled with syringes? Beth From: MSersLife [mailto:MSersLife ] On Behalf Of connie buran Sent: Saturday, December 03, 2005 10:08 AM To: MSersLife Subject: RE: Who I am Beth, The Rebif has not given me any flu symptoms. When I was on Avonex, I couldn’t shake the fever, chills and headache. Rebif is easier to give and with Tylenol I never have any problems. The only drawback to Rebif is it sometimes leaves my skin irritated and red. I rotate spots—thighs, arms, hips and stomach but the skin sometimes still doesn’t have a chance to bounce back. I have not any new symptoms since starting Rebif which is the best part for me…. Hope this helps, Connie From: MSersLife [mailto:MSersLife ] On Behalf Of Westie Sent: Friday, December 02, 2005 9:57 PM To: MSersLife Subject: RE: Who I am Connie, Noted that you take Rebif. Doc is talking about me starting it. I looked over their website. Interested in how others have done – real accounts, not the endorsed type. Did you get the flu symptoms when you started? How has it worked out for you? Any input would be appreciated. Beth - Westieluv From: MSersLife [mailto:MSersLife ] On Behalf Of connie buran Sent: Friday, December 02, 2005 8:20 PM To: MSersLife Subject: RE: Who I am NAME Connie MARRIAGE STATUS married to the same patient man for 23 years FAMILY twin 22year old sons and , a 19 yr.old son Adam and a 14 yr.old daughter Hannah SUPPORT SYSTEM my husband , children and lots of great friends AGE 40 something…. STATE Texas DXed with MS yes IF YES – WHEN September 2003 MEDS Rebif OTHER ILLINESSES None HOW DO YOU THINK THESE EFFECT YOUR MS JOB STATUS Work in Elementary School Special Ed PROFESSION Teaching Assistant HOBBIES Reading, gardening ANY OTHER IMFORMATION YOU WOULD CARE TO SHARE In school currently working on teacher’s certificate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Thanks Connie! I go back to the Neuro on the 9th and want to be prepared. He wanted to put me on the Rebif back in October, but I was waiting for one other test that the consulting Neuro had taken to come back. It came back negative for other non-specified autoimmune disorders, so we are back to the MS. My deductibles/co-insurances and all have been met this year, so I am going to try to get them to do another MRI before the end of December. Last one was in August and was negative. I don’t know why, but I can’t believe that this is MS until I see something with my own two eyes on the MRI film. I know that some people don’t get visible lesions early in the disease, but I shudder to think what will be happening to me symptom wise when the elusive boogers do pop up on the films. It scares me. What do people do when they travel? Doesn’t the stuff have to be refrigerated? I am planning a trip to sunny place south in February. If you are taking a plane, will they let you get on with a small cooler filled with syringes? Beth From: MSersLife [mailto:MSersLife ] On Behalf Of connie buran Sent: Saturday, December 03, 2005 10:08 AM To: MSersLife Subject: RE: Who I am Beth, The Rebif has not given me any flu symptoms. When I was on Avonex, I couldn’t shake the fever, chills and headache. Rebif is easier to give and with Tylenol I never have any problems. The only drawback to Rebif is it sometimes leaves my skin irritated and red. I rotate spots—thighs, arms, hips and stomach but the skin sometimes still doesn’t have a chance to bounce back. I have not any new symptoms since starting Rebif which is the best part for me…. Hope this helps, Connie From: MSersLife [mailto:MSersLife ] On Behalf Of Westie Sent: Friday, December 02, 2005 9:57 PM To: MSersLife Subject: RE: Who I am Connie, Noted that you take Rebif. Doc is talking about me starting it. I looked over their website. Interested in how others have done – real accounts, not the endorsed type. Did you get the flu symptoms when you started? How has it worked out for you? Any input would be appreciated. Beth - Westieluv From: MSersLife [mailto:MSersLife ] On Behalf Of connie buran Sent: Friday, December 02, 2005 8:20 PM To: MSersLife Subject: RE: Who I am NAME Connie MARRIAGE STATUS married to the same patient man for 23 years FAMILY twin 22year old sons and , a 19 yr.old son Adam and a 14 yr.old daughter Hannah SUPPORT SYSTEM my husband , children and lots of great friends AGE 40 something…. STATE Texas DXed with MS yes IF YES – WHEN September 2003 MEDS Rebif OTHER ILLINESSES None HOW DO YOU THINK THESE EFFECT YOUR MS JOB STATUS Work in Elementary School Special Ed PROFESSION Teaching Assistant HOBBIES Reading, gardening ANY OTHER IMFORMATION YOU WOULD CARE TO SHARE In school currently working on teacher’s certificate Quote Link to comment Share on other sites More sharing options...
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