Guest guest Posted July 10, 2003 Report Share Posted July 10, 2003 From what I have heard Muscle Spasms are pretty common after this Surgery. I also got them after my lat Detethering.........however, for me, they did not stop. For myself, I have found that stretching does not help, it can make it worse. That is just me though, it might well be different for you and others. I don't know, maybe there is a certain kind of Stretching you should do to relieve the Spasms, maybe I just wasn't aware of it. My Legs, especially one of them, often Spasms real hard for a bit after I lay down. My Left Hip hurt me after Surgery, not constantly. I really don't know what it was caused by or if it was connected or just coincidence. It eventually stopped. Putting a Pillow underneath my Knee helped. I am sorry you got suprised by the Chiari. Here is some information for you, if you are interested. There is a real good Email List for Chiari. To Subscribe, send a Blank Email to: chiari-subscribe They also have a Website: http://www.wacma.com It is a fairly busy List, but worth it in my opinion. Also, you may want to check out the Links to Chiari information on my Site: http://www.mybookmarks.com/public/SB_Parents Then go under the Subject: Arnold Chiari Malformation. I don't think it goes away to the point where you can say you don't have Chiari Malformation. But there are Cases in which a Detethering may relieve atleast some Chiari Symptoms. This doesn't happen to everybody though. Hope this helps. Me Nebraska, USA mymocha@... .. I spoke with the PA and she told me yes the muscle spasms I was going through are normal because at this time is when the nerves are just starting to heal. She gave me some suggestions about gentle stretches I can do and told me to lay flat at least 3 times a day for 30 minutes and just try to relax. ( It must not be in my record that I have children) LOL She couldn't give me a reason why my hip is hurting so bad or for the constant lower back ache. Then I ask about my neck and arm. Here is what she told me. I do have a syrinx (knew that) and a chiari (sp) I had no clue!!! I did know the first nsg that I seen was looking for one but told me that there was nothing there and my problems were from the tethered cord. She told me that they are hoping that it will go away now that I have been detethered. Does that happen? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2003 Report Share Posted July 10, 2003 From what I have heard Muscle Spasms are pretty common after this Surgery. I also got them after my lat Detethering.........however, for me, they did not stop. For myself, I have found that stretching does not help, it can make it worse. That is just me though, it might well be different for you and others. I don't know, maybe there is a certain kind of Stretching you should do to relieve the Spasms, maybe I just wasn't aware of it. My Legs, especially one of them, often Spasms real hard for a bit after I lay down. My Left Hip hurt me after Surgery, not constantly. I really don't know what it was caused by or if it was connected or just coincidence. It eventually stopped. Putting a Pillow underneath my Knee helped. I am sorry you got suprised by the Chiari. Here is some information for you, if you are interested. There is a real good Email List for Chiari. To Subscribe, send a Blank Email to: chiari-subscribe They also have a Website: http://www.wacma.com It is a fairly busy List, but worth it in my opinion. Also, you may want to check out the Links to Chiari information on my Site: http://www.mybookmarks.com/public/SB_Parents Then go under the Subject: Arnold Chiari Malformation. I don't think it goes away to the point where you can say you don't have Chiari Malformation. But there are Cases in which a Detethering may relieve atleast some Chiari Symptoms. This doesn't happen to everybody though. Hope this helps. Me Nebraska, USA mymocha@... .. I spoke with the PA and she told me yes the muscle spasms I was going through are normal because at this time is when the nerves are just starting to heal. She gave me some suggestions about gentle stretches I can do and told me to lay flat at least 3 times a day for 30 minutes and just try to relax. ( It must not be in my record that I have children) LOL She couldn't give me a reason why my hip is hurting so bad or for the constant lower back ache. Then I ask about my neck and arm. Here is what she told me. I do have a syrinx (knew that) and a chiari (sp) I had no clue!!! I did know the first nsg that I seen was looking for one but told me that there was nothing there and my problems were from the tethered cord. She told me that they are hoping that it will go away now that I have been detethered. Does that happen? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Thanks Brande I will check these site out. Sorry to be so late getting back but been kind of busy with my son and forgetting about my self. I am feeling it now that he is better though. She did give me specifics on the stretching and it did help some. With being sick I haven't had time to do stretching or laying down so for the last two nights now that I can lay down the spasms have been horrible so I would have to agree with her that I have just been pushing myself to hard. She also told me putting the pillow under my knees to relieve the back and hip pain is also why my muscle spasms are worse she said it strains the leg muscles and it is best to lay flat. I was suppose to go for xrays of my hips because my GP thinks it's just wear and tear from an uneven gait. I had to cancel that because had to go get his blood pressure done and that is more important right now. I also got a call to go pee in a cup for a recheck because of a urinary track infection but haven't had time for that either. I really don't think the med had a chance to work because the kidney is still burning. I really need to just lie down so my body can take care of it . Thanks for the info! Chris Arnold Chiari Malformation. I don't think it goes away to the point where you can say you don't have Chiari Malformation. But there are Cases in which a Detethering may relieve atleast some Chiari Symptoms. This doesn't happen to everybody though. Hope this helps. Me Nebraska, USA mymocha@... . I spoke with the PA and she told me yes the muscle spasms I was going through are normal because at this time is when the nerves are just starting to heal. She gave me some suggestions about gentle stretches I can do and told me to lay flat at least 3 times a day for 30 minutes and just try to relax. ( It must not be in my record that I have children) LOL She couldn't give me a reason why my hip is hurting so bad or for the constant lower back ache. Then I ask about my neck and arm. Here is what she told me. I do have a syrinx (knew that) and a chiari (sp) I had no clue!!! I did know the first nsg that I seen was looking for one but told me that there was nothing there and my problems were from the tethered cord. She told me that they are hoping that it will go away now that I have been detethered. Does that happen? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2003 Report Share Posted July 16, 2003 I'm headed out today to do the pee in a cup because I was up all night. So no I know I can't ignore it . It just won't allow that. LOL Thanks for the support . Chris Arnold Chiari Malformation. I don't think it goes away to the point where you can say you don't have Chiari Malformation. But there are Cases in which a Detethering may relieve atleast some Chiari Symptoms. This doesn't happen to everybody though. Hope this helps. Me Nebraska, USA mymocha@... . I spoke with the PA and she told me yes the muscle spasms I was going through are normal because at this time is when the nerves are just starting to heal. She gave me some suggestions about gentle stretches I can do and told me to lay flat at least 3 times a day for 30 minutes and just try to relax. ( It must not be in my record that I have children) LOL She couldn't give me a reason why my hip is hurting so bad or for the constant lower back ache. Then I ask about my neck and arm. Here is what she told me. I do have a syrinx (knew that) and a chiari (sp) I had no clue!!! I did know the first nsg that I seen was looking for one but told me that there was nothing there and my problems were from the tethered cord. She told me that they are hoping that it will go away now that I have been detethered. Does that happen? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2003 Report Share Posted July 16, 2003 I'm headed out today to do the pee in a cup because I was up all night. So no I know I can't ignore it . It just won't allow that. LOL Thanks for the support . Chris Arnold Chiari Malformation. I don't think it goes away to the point where you can say you don't have Chiari Malformation. But there are Cases in which a Detethering may relieve atleast some Chiari Symptoms. This doesn't happen to everybody though. Hope this helps. Me Nebraska, USA mymocha@... . I spoke with the PA and she told me yes the muscle spasms I was going through are normal because at this time is when the nerves are just starting to heal. She gave me some suggestions about gentle stretches I can do and told me to lay flat at least 3 times a day for 30 minutes and just try to relax. ( It must not be in my record that I have children) LOL She couldn't give me a reason why my hip is hurting so bad or for the constant lower back ache. Then I ask about my neck and arm. Here is what she told me. I do have a syrinx (knew that) and a chiari (sp) I had no clue!!! I did know the first nsg that I seen was looking for one but told me that there was nothing there and my problems were from the tethered cord. She told me that they are hoping that it will go away now that I have been detethered. Does that happen? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hello Di, The filum (everybody has one of these) is the membrane that goes from the end of the spinal cord to the end of the dural sac -- (anyone know where exactly it attaches to?). It should be kind of stretchy with some " give " to it. If it is short or thick or both it causes excessive tension on the spinal cord. I think the fatty tumor is a different form of tethered cord. 's mom Re: Normal things after Surgery.......Spasms, stretching....etc! In a message dated 7/11/2003 11:42:08 PM Eastern Standard Time, Elleyshay@... writes: > she had thickened filum also is a filum the same thing as a fatty tumor or am i way off here? God help me Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hello Di, The filum (everybody has one of these) is the membrane that goes from the end of the spinal cord to the end of the dural sac -- (anyone know where exactly it attaches to?). It should be kind of stretchy with some " give " to it. If it is short or thick or both it causes excessive tension on the spinal cord. I think the fatty tumor is a different form of tethered cord. 's mom Re: Normal things after Surgery.......Spasms, stretching....etc! In a message dated 7/11/2003 11:42:08 PM Eastern Standard Time, Elleyshay@... writes: > she had thickened filum also is a filum the same thing as a fatty tumor or am i way off here? God help me Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hello Di, The filum (everybody has one of these) is the membrane that goes from the end of the spinal cord to the end of the dural sac -- (anyone know where exactly it attaches to?). It should be kind of stretchy with some " give " to it. If it is short or thick or both it causes excessive tension on the spinal cord. I think the fatty tumor is a different form of tethered cord. 's mom Re: Normal things after Surgery.......Spasms, stretching....etc! In a message dated 7/11/2003 11:42:08 PM Eastern Standard Time, Elleyshay@... writes: > she had thickened filum also is a filum the same thing as a fatty tumor or am i way off here? God help me Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hi, just recently V posted a " translated into English " interpretation of Gray's Anatomy on the filum. Perhaps she could post it again as it was so good and straightforward Nina Quoting Hays : > Hello Di, > > The filum (everybody has one of these) is the membrane that goes from > the end of the spinal cord to the end of the dural sac -- (anyone > know where exactly it attaches to?). > > It should be kind of stretchy with some " give " to it. If it is short > or thick or both it causes excessive tension on the spinal cord. > > I think the fatty tumor is a different form of tethered cord. > > > 's mom > Re: Normal things after Surgery.......Spasms, > stretching....etc! > > > In a message dated 7/11/2003 11:42:08 PM Eastern Standard Time, > Elleyshay@... writes: > > > she had thickened filum also > > is a filum the same thing as a fatty tumor or am i way off here? > God help me > > Di > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hi, just recently V posted a " translated into English " interpretation of Gray's Anatomy on the filum. Perhaps she could post it again as it was so good and straightforward Nina Quoting Hays : > Hello Di, > > The filum (everybody has one of these) is the membrane that goes from > the end of the spinal cord to the end of the dural sac -- (anyone > know where exactly it attaches to?). > > It should be kind of stretchy with some " give " to it. If it is short > or thick or both it causes excessive tension on the spinal cord. > > I think the fatty tumor is a different form of tethered cord. > > > 's mom > Re: Normal things after Surgery.......Spasms, > stretching....etc! > > > In a message dated 7/11/2003 11:42:08 PM Eastern Standard Time, > Elleyshay@... writes: > > > she had thickened filum also > > is a filum the same thing as a fatty tumor or am i way off here? > God help me > > Di > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hi, just recently V posted a " translated into English " interpretation of Gray's Anatomy on the filum. Perhaps she could post it again as it was so good and straightforward Nina Quoting Hays : > Hello Di, > > The filum (everybody has one of these) is the membrane that goes from > the end of the spinal cord to the end of the dural sac -- (anyone > know where exactly it attaches to?). > > It should be kind of stretchy with some " give " to it. If it is short > or thick or both it causes excessive tension on the spinal cord. > > I think the fatty tumor is a different form of tethered cord. > > > 's mom > Re: Normal things after Surgery.......Spasms, > stretching....etc! > > > In a message dated 7/11/2003 11:42:08 PM Eastern Standard Time, > Elleyshay@... writes: > > > she had thickened filum also > > is a filum the same thing as a fatty tumor or am i way off here? > God help me > > Di > > > Quote Link to comment Share on other sites More sharing options...
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