Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Hi Tim, Thanks for your input. I have a prescription for Levoquin, I think. Maybe I will go and have it filled. I took his temp a little while ago and it was down to 99.8. He had some toast and ginger ale and is feeling a little better. We have had a little bug in the house, but it was more of a cough type thing. I am hoping he starts coughing real soon, so we can rule out a PSC problem! I appreciate your help. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Liz, Jim's symptoms are more severe than mine when I had cholangitis attacks. Mine usually evidenced as severe fatigue, with fever and chills lasting about 12 hours followed by cold sweats and the fever dropped. My doctor, as yours has, had a standing order of antibiotics to be started when an attack occurred - This was after I had a series of them, each getting more severe as I ignored the quickly resolving fevers. I had the prescriptions filled and ready for the next attack, even though it might not come for 6 to 9 months. Tim ltx 4/4/98 --- Rnurse987@... wrote: > > Hi Group, > > I thought a few of you who have " been there " may be able to > give me some > advice. My husband Jim, who has been asymptomatic so far (dx > 1998) became > sick at work last night, vomited only once, had cold sweats, > was feeling > nauseous afterwards. Took his temp this morning, it was 100.3 > No evidence > of jaundice, no chills or RUQ pain. He is feeling a little > better now. His > doctor had given me a prescription for antibiotic, and told me > to fill it at > any time he gets a fever and chills, and to call him. I don't > want to over > react, as he does not really have all the symtoms that would > indicate a > cholangitis attack. My instincts are to wait and see what > happens. > > As a nurse, I am used to giving others advice about medical > concerns. In > this case, I would rather defer to the " experts " who have > lived with this > scenario themselves. I would appreciate your input. Since we > will be living > with this disease for a long time to come, I don't want to > panic > unnecessarily. > > Thanks to you all, > > Liz > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Hi Lynn, Thanks for your input. I spoke to the doctor, and started him on the levaquin this afternoon. He is feeling much better, and temp is down to 99. I will call the doctors office in the morning, as he mentioned he might like to see him to draw some blood. I appreciate your answer! Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Liz.......I'm certainly not a nurse but maybe your doctor should have some blood tests run to verify the possibility of a Cholangitis attack. From what I gather from the others, having the proper antibiotic on hand is a good thing. I don't think you need to appear jaundice to diagnose Cholangitis. Lynn Some Advice Please >Hi Group, > >I thought a few of you who have " been there " may be able to give me some >advice. My husband Jim, who has been asymptomatic so far (dx 1998) became >sick at work last night, vomited only once, had cold sweats, was feeling >nauseous afterwards. Took his temp this morning, it was 100.3 No evidence >of jaundice, no chills or RUQ pain. He is feeling a little better now. His >doctor had given me a prescription for antibiotic, and told me to fill it at >any time he gets a fever and chills, and to call him. I don't want to over >react, as he does not really have all the symtoms that would indicate a >cholangitis attack. My instincts are to wait and see what happens. > >As a nurse, I am used to giving others advice about medical concerns. In >this case, I would rather defer to the " experts " who have lived with this >scenario themselves. I would appreciate your input. Since we will be living >with this disease for a long time to come, I don't want to panic >unnecessarily. > >Thanks to you all, > >Liz > >------------------------------------------------------------------------ >Sneezing, wheezing, trouble breathing? If you have allergies or asthma, or >want to breathe happier and healthier, we can help. Visit gazoontite.com >for the products, information and services you need to breathe easier. >http://click./1/396/4/_/24674/_/946828705 > >-- 20 megs of disk space in your group's Document Vault >-- /docvault//?m=1 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Liz.......I'm certainly not a nurse but maybe your doctor should have some blood tests run to verify the possibility of a Cholangitis attack. From what I gather from the others, having the proper antibiotic on hand is a good thing. I don't think you need to appear jaundice to diagnose Cholangitis. Lynn Some Advice Please >Hi Group, > >I thought a few of you who have " been there " may be able to give me some >advice. My husband Jim, who has been asymptomatic so far (dx 1998) became >sick at work last night, vomited only once, had cold sweats, was feeling >nauseous afterwards. Took his temp this morning, it was 100.3 No evidence >of jaundice, no chills or RUQ pain. He is feeling a little better now. His >doctor had given me a prescription for antibiotic, and told me to fill it at >any time he gets a fever and chills, and to call him. I don't want to over >react, as he does not really have all the symtoms that would indicate a >cholangitis attack. My instincts are to wait and see what happens. > >As a nurse, I am used to giving others advice about medical concerns. In >this case, I would rather defer to the " experts " who have lived with this >scenario themselves. I would appreciate your input. Since we will be living >with this disease for a long time to come, I don't want to panic >unnecessarily. > >Thanks to you all, > >Liz > >------------------------------------------------------------------------ >Sneezing, wheezing, trouble breathing? If you have allergies or asthma, or >want to breathe happier and healthier, we can help. Visit gazoontite.com >for the products, information and services you need to breathe easier. >http://click./1/396/4/_/24674/_/946828705 > >-- 20 megs of disk space in your group's Document Vault >-- /docvault//?m=1 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Liz, Our standard as to whether or not to go to the ER is 101 temp. I think you should at least go to your internist who can take blood tests. Phil has always run a fever, and I think gotten jaundiced (whites of eyes) when he has gotten cholangitis. The last time he didn't have the juandice until we went to the doctor. He put him through a lot of tests and I don't think his LFTs were elevated at first but something else was haywire so we ended up there from 9:00 a.m. until 5:00 while we were there we watched his eyes turn yellow. He is usually sick for a day before we end up at the doctor or ER. The first time he was diagnosed he had pain in the gallbladder area and fever and on and off chills for at least a couple of weeks. The doctor said it was flu and sent him home with pain pills. I had a fit! I wanted to know why they didn't treat the fever. But at least the doctor took blood tests because of his UC. That weekend he felt better and we went square dancing and a friend said he looked jaundiced. We didn't know what that meant so we waited until his appointment with his regular doctor on Wed. (Dec 23rd) he called me on the way home and said that we weren't going up to San for Christmas we were going to check into the hospital. His liver tests were terrible and he was still jaundiced. They thought it was gall bladder but suspected PSC. Since he really wasn't sick at that time they sent him home for Christmas on 3 days of Cipro IV that we took home with us. On Monday the 28th they did an ERCP which confirmed the PSC. He got infected and spendt 10 days in the hospital. He had 2 more attacks before having his gallbladder out and one after all within a period of 4 months. We realized that if he ran a fever over 101 he needed to be admitted to the hospital and put on IV meds. We found that quick response usually only ended him up there for 2 or the most 3 days and he never got real sick. The internist wouldn't give him oral Cipro cause he wanted him to come in to be checked. But the liver doctor gave them to him so that he would start on it right away but of course go right to the doctor. He said that little bit of time could make a difference. I hope you find out soon what is the cause but once he's had it you can just feel that it's an attack from then on. Peg Rnurse987@... wrote: > Hi Group, > > I thought a few of you who have " been there " may be able to give me some > advice. My husband Jim, who has been asymptomatic so far (dx 1998) became > sick at work last night, vomited only once, had cold sweats, was feeling > nauseous afterwards. Took his temp this morning, it was 100.3 No evidence > of jaundice, no chills or RUQ pain. He is feeling a little better now. His > doctor had given me a prescription for antibiotic, and told me to fill it at > any time he gets a fever and chills, and to call him. I don't want to over > react, as he does not really have all the symtoms that would indicate a > cholangitis attack. My instincts are to wait and see what happens. > > As a nurse, I am used to giving others advice about medical concerns. In > this case, I would rather defer to the " experts " who have lived with this > scenario themselves. I would appreciate your input. Since we will be living > with this disease for a long time to come, I don't want to panic > unnecessarily. > > Thanks to you all, > > Liz > > ------------------------------------------------------------------------ > Sneezing, wheezing, trouble breathing? If you have allergies or asthma, or > > want to breathe happier and healthier, we can help. Visit gazoontite.com > > for the products, information and services you need to breathe easier. > http://click./1/396/4/_/24674/_/946828705 > > -- 20 megs of disk space in your group's Document Vault > -- /docvault//?m=1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Liz, Our standard as to whether or not to go to the ER is 101 temp. I think you should at least go to your internist who can take blood tests. Phil has always run a fever, and I think gotten jaundiced (whites of eyes) when he has gotten cholangitis. The last time he didn't have the juandice until we went to the doctor. He put him through a lot of tests and I don't think his LFTs were elevated at first but something else was haywire so we ended up there from 9:00 a.m. until 5:00 while we were there we watched his eyes turn yellow. He is usually sick for a day before we end up at the doctor or ER. The first time he was diagnosed he had pain in the gallbladder area and fever and on and off chills for at least a couple of weeks. The doctor said it was flu and sent him home with pain pills. I had a fit! I wanted to know why they didn't treat the fever. But at least the doctor took blood tests because of his UC. That weekend he felt better and we went square dancing and a friend said he looked jaundiced. We didn't know what that meant so we waited until his appointment with his regular doctor on Wed. (Dec 23rd) he called me on the way home and said that we weren't going up to San for Christmas we were going to check into the hospital. His liver tests were terrible and he was still jaundiced. They thought it was gall bladder but suspected PSC. Since he really wasn't sick at that time they sent him home for Christmas on 3 days of Cipro IV that we took home with us. On Monday the 28th they did an ERCP which confirmed the PSC. He got infected and spendt 10 days in the hospital. He had 2 more attacks before having his gallbladder out and one after all within a period of 4 months. We realized that if he ran a fever over 101 he needed to be admitted to the hospital and put on IV meds. We found that quick response usually only ended him up there for 2 or the most 3 days and he never got real sick. The internist wouldn't give him oral Cipro cause he wanted him to come in to be checked. But the liver doctor gave them to him so that he would start on it right away but of course go right to the doctor. He said that little bit of time could make a difference. I hope you find out soon what is the cause but once he's had it you can just feel that it's an attack from then on. Peg Rnurse987@... wrote: > Hi Group, > > I thought a few of you who have " been there " may be able to give me some > advice. My husband Jim, who has been asymptomatic so far (dx 1998) became > sick at work last night, vomited only once, had cold sweats, was feeling > nauseous afterwards. Took his temp this morning, it was 100.3 No evidence > of jaundice, no chills or RUQ pain. He is feeling a little better now. His > doctor had given me a prescription for antibiotic, and told me to fill it at > any time he gets a fever and chills, and to call him. I don't want to over > react, as he does not really have all the symtoms that would indicate a > cholangitis attack. My instincts are to wait and see what happens. > > As a nurse, I am used to giving others advice about medical concerns. In > this case, I would rather defer to the " experts " who have lived with this > scenario themselves. I would appreciate your input. Since we will be living > with this disease for a long time to come, I don't want to panic > unnecessarily. > > Thanks to you all, > > Liz > > ------------------------------------------------------------------------ > Sneezing, wheezing, trouble breathing? If you have allergies or asthma, or > > want to breathe happier and healthier, we can help. Visit gazoontite.com > > for the products, information and services you need to breathe easier. > http://click./1/396/4/_/24674/_/946828705 > > -- 20 megs of disk space in your group's Document Vault > -- /docvault//?m=1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2000 Report Share Posted January 5, 2000 Hi Aubrey, We are going for a MRCP today, which he was due to get soon anyway. He continues to feel well. Thanks for your help with this situation. It is very much appreciated. Liz Quote Link to comment Share on other sites More sharing options...
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