Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 In a message dated 12/29/1999 10:16:42 AM Eastern Standard Time, aubcar@... writes: << Your body is recognising your liver tissue as foreign and attacking it. Theoretically, if you boost your immune system you worsen your PSC. >> Hi Aubrey: (by the way, I work with someone named Aubrey!) I am new here as you know, but I have a question. If the body is attacking the liver because it looks at it as being foreign, then how would getting a new liver make a difference? Wouldn't the body attack the new liver too? Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 In a message dated 12/29/1999 10:16:42 AM Eastern Standard Time, aubcar@... writes: << Your body is recognising your liver tissue as foreign and attacking it. Theoretically, if you boost your immune system you worsen your PSC. >> Hi Aubrey: (by the way, I work with someone named Aubrey!) I am new here as you know, but I have a question. If the body is attacking the liver because it looks at it as being foreign, then how would getting a new liver make a difference? Wouldn't the body attack the new liver too? Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 In a message dated 12/29/1999 10:16:42 AM Eastern Standard Time, aubcar@... writes: << Your body is recognising your liver tissue as foreign and attacking it. Theoretically, if you boost your immune system you worsen your PSC. >> Hi Aubrey: (by the way, I work with someone named Aubrey!) I am new here as you know, but I have a question. If the body is attacking the liver because it looks at it as being foreign, then how would getting a new liver make a difference? Wouldn't the body attack the new liver too? Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 You may want to reconsider doing anything that increases or is said to increase the activity of your immune system if you have PSC. The reason behind this is the hypothesis that PSC is due to an over active immune system. Your body is recognising your liver tissue as foreign and attacking it. Theoretically, if you boost your immune system you worsen your PSC. I found that I rarely was sick with colds/flus or other problems other than my autoimmune conditions. This continues to be the case despite being on immunosuppressants. Your condition may be different, but I would urge caution in this matter. Aubrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 In a message dated 12/29/1999 2:38:26 PM Eastern Standard Time, aubcar@... writes: << Hi Judy, One of the theories about PSC is that continued ascending infections from the bowel causes the immune system to start to recognise the liver tissue as foreign. In approximately 5% of tx for PSC the condition returns. The reason is unclear. We don't think it's directly related to the previous attack on the native liver. But no one knows for sure why this happens or how. Aubrey >> Aubrey: Thanks for the explanation. Another question..........What is the difference between PSC and PBS? Thanks Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 Hi Judy, One of the theories about PSC is that continued ascending infections from the bowel causes the immune system to start to recognise the liver tissue as foreign. In approximately 5% of tx for PSC the condition returns. The reason is unclear. We don't think it's directly related to the previous attack on the native liver. But no one knows for sure why this happens or how. Aubrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 Hi Judy, One of the theories about PSC is that continued ascending infections from the bowel causes the immune system to start to recognise the liver tissue as foreign. In approximately 5% of tx for PSC the condition returns. The reason is unclear. We don't think it's directly related to the previous attack on the native liver. But no one knows for sure why this happens or how. Aubrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 Hi Judy, One of the theories about PSC is that continued ascending infections from the bowel causes the immune system to start to recognise the liver tissue as foreign. In approximately 5% of tx for PSC the condition returns. The reason is unclear. We don't think it's directly related to the previous attack on the native liver. But no one knows for sure why this happens or how. Aubrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 Aubrey.....You make a great point. I appreciate your knowledgeable input. Lynn Re: Immune system >You may want to reconsider doing anything that increases or is said to >increase the activity of your immune system if you have PSC. The reason >behind this is the hypothesis that PSC is due to an over active immune >system. Your body is recognising your liver tissue as foreign and >attacking it. Theoretically, if you boost your immune system you worsen >your PSC. >I found that I rarely was sick with colds/flus or other problems other >than my autoimmune conditions. This continues to be the case despite >being on immunosuppressants. >Your condition may be different, but I would urge caution in this >matter. > >Aubrey > > >------------------------------------------------------------------------ >Sneezing, wheezing, trouble breathing? If you have allergies or asthma, or >want to breathe happier and healthier, we can help. Visit gazoontite.com >for the products, information and services you need to breathe easier. >http://click./1/396/4/_/24674/_/946479980 > >-- 20 megs of disk space in your group's Document Vault >-- /docvault//?m=1 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 I have a question about that theory because I was wondering the same thing about boosting the immune system.....If PSC is an autoimmune disorder, why isn't the same treatment given as for AIH? Also, I have a question about Goldenseal, it is claimed to be excellent for the congestion of the liver and spleen, however (I'm not being negative here, because I believe in herbals), I read an excellent book at the drugstore, it is like a pharmeceutical drug book only on herbals, all interactions, body reactions etc, and it said that goldenseal increased coronary blood flow...if this is true, wouldn't that put extra pressure on an already enlarged liver and spleen that is having trouble pushing blood through anyway? Just a little pondering I've been doing, so I didn't get the goldenseal (yet....). You know, I wonder if you could put billing in on all these questions....lol, Thanks, Patti Aubrey Goldstein wrote: You may want to reconsider doing anything that increases or is said to increase the activity of your immune system if you have PSC. The reason behind this is the hypothesis that PSC is due to an over active immune system. Your body is recognising your liver tissue as foreign and attacking it. Theoretically, if you boost your immune system you worsen your PSC. I found that I rarely was sick with colds/flus or other problems other than my autoimmune conditions. This continues to be the case despite being on immunosuppressants. Your condition may be different, but I would urge caution in this matter. Aubrey ------------------------------------------------------------------------ Sneezing, wheezing, trouble breathing? If you have allergies or asthma, or want to breathe happier and healthier, we can help. Visit gazoontite.com for the products, information and services you need to breathe easier. http://click./1/396/4/_/24674/_/946479980 -- 20 megs of disk space in your group's Document Vault -- /docvault//?m=1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 Hi Lynn; I know some of you will think I'm a typical California granola cruncher, but I believe in the following. Maybe it's just the placebo effect, but it has worked for me. I went from getting BAD colds every time I travelled by air when we were newly weds, kidless and stress-free, to rarely a cold while travelling more, running a floundering company, and with 2 kids 3 and under. 1. Accupuncture and herbs from a GOOD accupuncturist 2. 15 minutes of Tai Chi each morning 3. Yoga at least once a week- I swear it stretches and squishes the liver, pushing the bile through. Aubrey- I can't wait for your comments on this. 4. Diet- reduced caffeine: 2 cups of tea in my case, no alcohol, reduced fat, fish instead of meat where possible, and yes, an apple every day. Chinese medicine believes the mild acid in apples helps thin down bile. 5. Excercise- hopefully some form every day. Dirk, dx 1984, Oakland CA " vizas " wrote: original article:/group//?start=7364 > How and what can one do to bolster your immune system? > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 1999 Report Share Posted December 30, 1999 In a message dated 12/30/1999 10:47:28 AM Eastern Standard Time, aubcar@... writes: << udy: PSC is a disease of the bile ducts; they get narrowed and cause back up of bile in the liver (and therefore throughout the body) leading to destruction of the liver. It is most common in men over 40; about 30% have UC and a smaller percentage have other autoimmune diseases. PBC is a similar disease of the bile ducts but with a different type of lesion. >> Aubrey: Thanks so much for your explanation. I printed it out and will keep it handy. I have had some confusion as to the difference, but now it is clear to me. Thanks again. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 1999 Report Share Posted December 30, 1999 Dirk: Exercise is great for you and everyone. All the other things you mentioned are good ideas as well. If you've ever seen a liver, human or otherwise (perhaps, if you've bought one to cook) you'll have noticed that it has a tough outer layer called the capsule. This is what the doctors go throught with a needle to do a biopsy. It really prevents the liver from being stretched or compacted or massaged by any reasonable movements you could voluntarily do. In addition, your liver, when normal is size, " hides " behind your lower ribs. In a motor vehicle accident, for example, you might be able to compress it between you and say the steering wheel. Not the kind of thing you want to happen on a regular basis to help push out bile! Judy: PSC is a disease of the bile ducts; they get narrowed and cause back up of bile in the liver (and therefore throughout the body) leading to destruction of the liver. It is most common in men over 40; about 30% have UC and a smaller percentage have other autoimmune diseases. PBC is a similar disease of the bile ducts but with a different type of lesion. It is more common in women between the ages of 30 and 50. It is seen with other autoimmune diseases and tends to follow a slightly less dramatic course than PSC. The diagnosis of both tends to be difficult and depends on the results of blood tests, ERCP and liver biopsy. PBC patients tend (90 to 95%) have a positive antimitochondrial antibody test. This is usuually negative in PSC. Ursofalk/Actigall: the contents of the tablets/capsules are in fact the same chemical. Because of the way they are manufactured they may have slightly different affects as they progress through your intestines. None of this drug is absorbed. AIH: This is Autoimmune Hepatitis and is diagnosed by blood tests and biopsies that show an over active immune system; positive antibodies, liver tissue distruction. An ERCP in this condition shows normal bile ducts. Corticosteroids seem to help this disease by reducing the inflammation. In PSC prednisone and other immunosuppressants have not been shown to decrease the inflammation but we have no idea why this is the case. SAM-e: I've just received the following info about this product. This chemical was first tested as a treatment for schizophrenia, it proved ineffective. Some clinical trials in the 1970s in Italy, Germany and other European countries suggested that it might be an effective treatment for depression. Some research has shown that it might provide relief for arthritis pain, perhaps joint repair. However, these studies were small and brief. The problem with this product is threefold: first of all, the possible benefits and risks of SAM-e remain unclear. In Europe it is sold as a prescription drug for arthritis, depression and liver disease. At least that means a doctor is overseeing the treatment. Here (the US), where SAM-e can be bought as easily as a multivitamin,people can simply dose themselves- which may be unwise when so much remains to be discovered. Secondly, its promoters, particularly Brown, the author of Stop Depression Now, say SAM-e has no side effects, but anything that works like a drug has side effects of some kind, and may interact with medications or foods. But the most important potential problem: SAM is converted to homocysteine in the body. High levels of homocyteine may raise the risk of heart disease. SAM-e is likely to promote higher levels, though no one knows how high. Marketors of SAM-e genrally say a " dose " is 400 mg daily, but there is no way to find a standardized dose in the current market. In addition, raw SAM-e is said to degrade quickly unless stored at proper temperatures, and you have no guarantee that the pills you buy have been properly handled. If you decide to take it, make certain that your diet is rich in fruits and vegetables, and take a multivitamin. A high intake of three B vitamins (folic acid, B6, and B12) can lower homocysteine levels, in case SAM-e raises them. (Source University of California Wellness Letter) Ginkgo Biloba: Many people take this supplement/herbal in hope of improving their memory. Recent studies have shown that ginkgo has anti-clotting effects that can cause your gums to bleed, particularly if you take aspirin. In patients with PSC and other liver diseases, taking this herbal may not be smart as we already have clotting problems due to our liver's increasing inability of make clotting factors. (Source: as above). Aubrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 1999 Report Share Posted December 30, 1999 Dirk: Exercise is great for you and everyone. All the other things you mentioned are good ideas as well. If you've ever seen a liver, human or otherwise (perhaps, if you've bought one to cook) you'll have noticed that it has a tough outer layer called the capsule. This is what the doctors go throught with a needle to do a biopsy. It really prevents the liver from being stretched or compacted or massaged by any reasonable movements you could voluntarily do. In addition, your liver, when normal is size, " hides " behind your lower ribs. In a motor vehicle accident, for example, you might be able to compress it between you and say the steering wheel. Not the kind of thing you want to happen on a regular basis to help push out bile! Judy: PSC is a disease of the bile ducts; they get narrowed and cause back up of bile in the liver (and therefore throughout the body) leading to destruction of the liver. It is most common in men over 40; about 30% have UC and a smaller percentage have other autoimmune diseases. PBC is a similar disease of the bile ducts but with a different type of lesion. It is more common in women between the ages of 30 and 50. It is seen with other autoimmune diseases and tends to follow a slightly less dramatic course than PSC. The diagnosis of both tends to be difficult and depends on the results of blood tests, ERCP and liver biopsy. PBC patients tend (90 to 95%) have a positive antimitochondrial antibody test. This is usuually negative in PSC. Ursofalk/Actigall: the contents of the tablets/capsules are in fact the same chemical. Because of the way they are manufactured they may have slightly different affects as they progress through your intestines. None of this drug is absorbed. AIH: This is Autoimmune Hepatitis and is diagnosed by blood tests and biopsies that show an over active immune system; positive antibodies, liver tissue distruction. An ERCP in this condition shows normal bile ducts. Corticosteroids seem to help this disease by reducing the inflammation. In PSC prednisone and other immunosuppressants have not been shown to decrease the inflammation but we have no idea why this is the case. SAM-e: I've just received the following info about this product. This chemical was first tested as a treatment for schizophrenia, it proved ineffective. Some clinical trials in the 1970s in Italy, Germany and other European countries suggested that it might be an effective treatment for depression. Some research has shown that it might provide relief for arthritis pain, perhaps joint repair. However, these studies were small and brief. The problem with this product is threefold: first of all, the possible benefits and risks of SAM-e remain unclear. In Europe it is sold as a prescription drug for arthritis, depression and liver disease. At least that means a doctor is overseeing the treatment. Here (the US), where SAM-e can be bought as easily as a multivitamin,people can simply dose themselves- which may be unwise when so much remains to be discovered. Secondly, its promoters, particularly Brown, the author of Stop Depression Now, say SAM-e has no side effects, but anything that works like a drug has side effects of some kind, and may interact with medications or foods. But the most important potential problem: SAM is converted to homocysteine in the body. High levels of homocyteine may raise the risk of heart disease. SAM-e is likely to promote higher levels, though no one knows how high. Marketors of SAM-e genrally say a " dose " is 400 mg daily, but there is no way to find a standardized dose in the current market. In addition, raw SAM-e is said to degrade quickly unless stored at proper temperatures, and you have no guarantee that the pills you buy have been properly handled. If you decide to take it, make certain that your diet is rich in fruits and vegetables, and take a multivitamin. A high intake of three B vitamins (folic acid, B6, and B12) can lower homocysteine levels, in case SAM-e raises them. (Source University of California Wellness Letter) Ginkgo Biloba: Many people take this supplement/herbal in hope of improving their memory. Recent studies have shown that ginkgo has anti-clotting effects that can cause your gums to bleed, particularly if you take aspirin. In patients with PSC and other liver diseases, taking this herbal may not be smart as we already have clotting problems due to our liver's increasing inability of make clotting factors. (Source: as above). Aubrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 1999 Report Share Posted December 30, 1999 Do we really know what an auto-immune disease is, or how to treat it? It seems to me that medicine is characterizing a lot of mysterious diseases this way, from HIV to Multiple Schelosis to PSC. Are they similar, are treatments similar, do we even know 10% of what there is to know about any of them- probably not. Aubrey was careful to say that PSC being an auto-immune disease is a medical theory at this point. So, even with all that our doctors do know, we are dealing with the unknown here and we are the pioneers. Each of us needs to educate ourselves, think critically, and make our own choices. Noone can tell us the best treatments for us as individuals for we all respond slightly differently. Personally, I think working to increase the bodies' immune system, taking sufficient doses of Urso/actigall, and reducing stress are good for my PSC. I wrote how I deal with that the other day. I believe these are working for me, just as faith are working for others. The important message I want to broadcast is that we can be pro-active in our disease, and not solely re-active or victems. Pro-active is reading, changing our life styles, belonging to this group, grilling our doctors with questions and sharing what we find with this group. But still I have no hard, cold, medically proven facts to hang my treatment on, no one does. I am just trying to hedge my bets the best way I can. I also makes me feel I am fighting this disease along with all the rest of you. P.S. Aubrey, as a well informed MD, and having had a transplant you know a lot about this disease. I also greatly appreciate your information and thoughts to the group, and I respect your medical opinion. I am not critisizing modern medicine, only saying there are a lot of unknows, and that I don't want to sit on my thumbs until those unknowns are figured out. I want to be a partner with my doctor/accupuncturist/yoga teacher in figuring out the best treatment for me. I hope you read and respond as a PSC patient, not a doctor. " vizas " wrote: original article:/group//?start=7406 > Hi Dirk > > Mike's shrink wants him to start Yoga and I've wanted him to try > acupuncture. I don't know if he'll go for the latter. BUT he is seriously > thinking about having a sample of his hair taken and tested for deficiency > in > his system. Apparently my daughters boss has a liver problem and has had > this done and followed the given advice and so far her blood work has > greatly improved. > > Also Larry had input about the immune system which I thought was very > helpful then Aubrey voiced his opinion..now I'm questioning just about > everything. When I originally asked the doctors about herbs, vitamins and > diet, all they said was: 1. eat a well balanced meal with less fat and red > meat 2. yes people do take herbs but their effects are questionable 3. and > you could take a good multi vitamin , but through routine testing they'll > know whether you'll need supplements. > > Now there are studies that say Vitamin C helps prevent Cancer...so what is a > person to do????????? > > Larry: how are you feeling having taken all your supplements as opposed to > having not taken them. > > Also I thought the jury was out on whether this disease was {{{{{{{ auto > immune or not.}}}}}}} ? > > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1999 Report Share Posted December 31, 1999 Aubrey (and everyone else), I consulted a complementary medicine-oriented doctor recently who suggested I look into a desensitization therapy approach -- which would be aimed at lessening one's immune system's attack on the bile ducts. Have you heard anything about this? Do you have any idea regarding where to turn for information? My rough understanding is that this approach is being tried in rheumatoid arthritis and/or multiple sclerosis patients. Erwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2000 Report Share Posted January 4, 2000 Michele, I agree with you 100%.......Mike (and I) feel that modern medicine is doing nothing, they have found Urso and although I've been looking and looking, I see nothing else on the horizon for PSC. I see lots of advancements in hepatitis though. We are looking into 'healing touch' right now, which I was surprised to see is actually recognized by the Canadian Medical Society. It will take a LONG time for the total acceptance of alternative methods. Of course pharmeceutical companies don't want us to be able to help ourselves, and never in my life was I as shocked at the pessimistic, close minded attitudes of the medical doctors as when my dad was diagnosed with lung cancer. They just wouldn't hear of anything alternative, the man was dying, had 'no hope' as they put it, but yet, didn't feel that he should have false hope or waste his money....HELLO!!!! The power of the mind, faith and hope are often what has gotten people through things they never should have, there are many miracle stories and I can't believe that people are willing to just accept that this is all there is, when there are documented proven cases of people getting better, with all kinds of diseases.....I often think of the story of a man who had stomach cancer, the Dr. had to deliver the news, the man who chose not to have the total gastrectomy and certain death said that he couldn't have the surgery right now as he had a garden to tend. A couple of years passed and the Dr. not hearing from him assumed he had met his demise....well, in walks the patient...to ask, if with this condition, could he eat anything he wanted???????? Tests then revealed no sign of cancer. We, at this point, do not accept that Urso and transplant are the only things to stop or cure this disease.....comments have been made that NOTHING will slow down the progression of this disease, an attitude of defeat and hopelessness I think, and it angers me. We have people right on this forum that have explored alternatives (safe ones), have altered their diets, have turned to measures that give them hope and peace and they have seen the progression slowed or stopped. I applaud them for their courage to think outside the realm of modern medicine and it's limited options and I encourage Mike every day to fight and we will keep looking. We have also agreed in our house to have a 'liver free' day once a week. It seems that we have been so consumed by this disease, watching diets, watching urine and stool, skin colour etc, that we talk of nothing but that....so yesterday was our first 'liver free' day and it was great. Have a great day and keep thinking positive. I have learned so much here and as we learn and keep sharing we will all benefit. Patti MishBruno@... wrote: I believe 100% with Dirk. I tsee a homeopath and practice relaxation, massage therapy and participate in herbal therapy. My philosophy is that mentally and I feel physically it helps me to feel better. Why I respect my allopathic MDs and follow their advice. I do know my body better than them sometimes. I always attend appointments educated and verbal. If they suggest an invasive procedure, I require them to present me a valid case. Sometimes I think they see me as a lawyer and not an audiologist. What everyone needs to realize is that modern medicine is not providing us with any hope other than transplant right now so why not open your minds to alternative remedies??????????????????? Michele ------------------------------------------------------------------------ -- Check out your group's private Chat room -- /ChatPage?listName= & m=1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2000 Report Share Posted January 4, 2000 PEG I GO TO THE CHIROPRATOR TO GET ADJUSTED WHEN MY NECK HURTS. IT REALLY HELPS. I SAYS NEVER USE HEAT JUST ICE TEN MINUTES ON 10 MINUTES OFF. MARSHA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2000 Report Share Posted January 4, 2000 Mine puts heat on me first. I hate to use ice but I did find with my elbow (tennis without the tennis) the ice does work better. I've never tried ice except mineral ice and that feels good. Peg DP101a@... wrote: > PEG I GO TO THE CHIROPRATOR TO GET ADJUSTED WHEN MY NECK HURTS. IT REALLY > HELPS. I SAYS NEVER USE HEAT JUST ICE TEN MINUTES ON 10 MINUTES OFF. MARSHA > > ------------------------------------------------------------------------ > Toys, Books, Software. Save $10 on any order of $25 or more at > > SmarterKids.com. Hurry, offer expires 1/15/00. > http://click./1/646/4/_/24674/_/947051878 > > eGroups.com Home: /group// > - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2000 Report Share Posted January 4, 2000 Mine puts heat on me first. I hate to use ice but I did find with my elbow (tennis without the tennis) the ice does work better. I've never tried ice except mineral ice and that feels good. Peg DP101a@... wrote: > PEG I GO TO THE CHIROPRATOR TO GET ADJUSTED WHEN MY NECK HURTS. IT REALLY > HELPS. I SAYS NEVER USE HEAT JUST ICE TEN MINUTES ON 10 MINUTES OFF. MARSHA > > ------------------------------------------------------------------------ > Toys, Books, Software. Save $10 on any order of $25 or more at > > SmarterKids.com. Hurry, offer expires 1/15/00. > http://click./1/646/4/_/24674/_/947051878 > > eGroups.com Home: /group// > - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2000 Report Share Posted January 5, 2000 Thanks Dwight. I take the same med (5-ASA) for my UC. What I've learned over the past few years about my diseases has come with a lot of trial and error and a lot of frustration. I hear similar feelings of exasperation in the messages posted by others. Interestingly, I too was exposed to a lot of chemicals over the years prior to my liver problems beginning. I did a Masters in Biochemistry before becoming a physician. During my undergraduate years I worked in a lab doing Analytical chemistry and during my Masters I worked in a hospital lab. In all of those situations I was exposed, despite precautions, to some fumes and of course some skin contact. Because most of the information regarding chemical exposure is neccessarily retrospective (by its very nature, looking back on the past) it is difficult to nail this down in a way that most science people would be satisfied labeling the exposure as the cause of our illness. The reason for this is the vast majority of chemical exposures not causing PSC. Perhaps it requires a certain sensitivity or a certain genetic predisposition or something we haven't considered as yet. Hopefully whatever it is will eventually be found so that it can be prevented. Aubrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 " It would be interesting to find out what all of us in the group did for a living prior to the dx. One of the Dr.s that I saw though it may have been caused by the chemicals I was exposed to. I was in the electronics industry and we worked with a lot of solvents and epoxies. Another Dr. said it was probably caused by the azulfadine I was on for the UC. Who Knows? Since I was dx (1991) and switched to Dipentum for the UC and Actigall I have been stable. Dwight " Dwight, What is Dipentum and how does it compare to Azulfidine? Rosie __________________________________________ NetZero - Defenders of the Free World Get your FREE Internet Access and Email at http://www.netzero.net/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 " It would be interesting to find out what all of us in the group did for a living prior to the dx. One of the Dr.s that I saw though it may have been caused by the chemicals I was exposed to. I was in the electronics industry and we worked with a lot of solvents and epoxies. Another Dr. said it was probably caused by the azulfadine I was on for the UC. Who Knows? Since I was dx (1991) and switched to Dipentum for the UC and Actigall I have been stable. Dwight " Dwight, What is Dipentum and how does it compare to Azulfidine? Rosie __________________________________________ NetZero - Defenders of the Free World Get your FREE Internet Access and Email at http://www.netzero.net/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 " It would be interesting to find out what all of us in the group did for a living prior to the dx. One of the Dr.s that I saw though it may have been caused by the chemicals I was exposed to. I was in the electronics industry and we worked with a lot of solvents and epoxies. Another Dr. said it was probably caused by the azulfadine I was on for the UC. Who Knows? Since I was dx (1991) and switched to Dipentum for the UC and Actigall I have been stable. Dwight " Dwight, What is Dipentum and how does it compare to Azulfidine? Rosie __________________________________________ NetZero - Defenders of the Free World Get your FREE Internet Access and Email at http://www.netzero.net/download/index.html Quote Link to comment Share on other sites More sharing options...
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