Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 I agree with completely. , if you ever find any Information on the Web about what your Child's Neurosurgeon think in regards to Chiari and Thickened Filum, or if you are able to get more Information from him/her, I'd really apperciate it if you would pass it along Me Nebraska, USA mymocha@... > > If you are having symptoms, you will probably want to have a Chiari expert look at new films to know for certain. (A neurologist told me my daughter's herniation, 13mm, was only an anomaly and nothing that was causing her extreme symptoms -- wrong, wrong, wrong). > > There is even something called " Chiari 0 " , meaning no herniation, but symptoms because of crowding in the rear brain -- although this is still considered controversial by most neurosurgeons. > > The surgeon that released the thickened filum in my daughter feels strongly that most kids with an identified Chiari also have a thickened filum. I haven't really heard of any other doctors with this opinion though. > > Chiari and tethered cord -- with both it feels like a lot of doctors are the " blind men looking at the elephant " -- they all see part of the picture according to their experience and sub-specialties. Quote Link to comment Share on other sites More sharing options...
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