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Re: Startup Questions

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Since you asked, I say go for it on the enzymes. My son didn't have

diarrhea as an older child, just softer, light-colored stools and I

don't recall him ever having a vomiting spell except a few times as a

baby. He has Asperger's and shares many of the other behaviors you

mentioned. Since starting enzymes, he is dramatically better.

It's my understanding that sometimes the allergy tests can be

inaccurate, but it's up to you of course on how you want to interpret

the tests.

The fact that your son is a picky eater and seemed to withdrawal from

the Feingold diet tells me there are some food issues and the enzymes

could help in spite of the testing.

> I've just joined the group and have some real basic questions:

> My son is diagnosed Asperger's (6yo) and has all the behavioral

> symptoms (hyper, stimming, tics, mood lability, poor eye contact,

> etc). He has never had apparent problems with diarrhea or stomach

> upset, though, and he had a blood test for allergies that showed no

> allergic reactions. Does that mean that enzymes aren't likely to

> help

> him?

>

> He is a picky eater and gets very difficult to deal with when he

gets

> hungry so I've never really tried the GFCF diet. I did try the

> Feingold diet though and he immediately became almost unbearable

> because he wasn't eating anything I gave him and was hungry all the

> time.

>

> Thanks

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Not at all. Lack of allergies, diarrhea, constipation, etc. does not

mean that he won't benefit from a good enzyme product.

Best way to determine if they will help is to try them. If they are

going to help, you should notice within a few days to a couple of

weeks any change. The great thing is you don't have to keep

purchasing month after month hoping that they will start working.

Enzymes do not need to accumulate to a critical level in the body,

they go to work with the first dose to break down foods.

Devin

> I've just joined the group and have some real basic questions:

> My son is diagnosed Asperger's (6yo) and has all the behavioral

> symptoms (hyper, stimming, tics, mood lability, poor eye contact,

> etc). He has never had apparent problems with diarrhea or stomach

> upset, though, and he had a blood test for allergies that showed no

> allergic reactions. Does that mean that enzymes aren't likely to

> help

> him?

>

> He is a picky eater and gets very difficult to deal with when he

gets

> hungry so I've never really tried the GFCF diet. I did try the

> Feingold diet though and he immediately became almost unbearable

> because he wasn't eating anything I gave him and was hungry all the

> time.

>

> Thanks

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Hello,

My 6yo Asperger ds has benefitted greatly from pep. and zyme. He

also never had the classic diarrhea/constipation, so I was shocked

when he obviously reacted to milk (after we had removed it from his

diet for 5 days). We have been on enzymes with all food for 5 mo.

and have seen wonderful progress - we never were GFCF. We have never

done food allergy testing, though.

HTH.

God Bless,

Sally

> > My son is diagnosed Asperger's (6yo) and has all the behavioral

> symptoms (hyper, stimming, tics, mood lability, poor eye contact,

> etc). He has never had apparent problems with diarrhea or stomach

> upset, though, and he had a blood test for allergies that showed no

> allergic reactions. Does that mean that enzymes aren't likely to

> help

> him?

>

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  • 7 years later...
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Hi Crystal,

Thanks once again for your thoughtful reply. I will follow the protocol you

outlined. I have seen benefits and want to stay on this therapy. I'm in it for

the long run. I was suprised that my Neurologist Rxd the LDN.. he had previously

refused. He did have to add, to no benefit but his own, that it will do nothing

for me. He offererd me no instructions as to dosage, time of day, etc.. I

clearly did not want to go back to him for advice.

I was also dismayed that my Wellness doctor refused to write the Rx. She gave me

some BS that she was concerned about being " flagged " by the FDA for writing the

Rx. No regard at all for the medical implications or any improvement in my

status. She just wanted to cover her ass. Very disappointing.

Thanks again!

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I'm on LDN 3mg cream i've only been on it since 3-9-09 and nothing bad has happen to me yet! I do have sleeping problems but that's MS!

From: jwwisdom26 <jwwisdom26@...>Subject: [low dose naltrexone] Startup questionslow dose naltrexone Date: Friday, March 27, 2009, 8:08 PM

Hello!I have been following posts for a while and see varied responses to this question.What do people with MS experience when starting LDN? My Neuro "tossed" me a 4,5mg scrip with no instructions except to add that it will do nothing for me. I started by dividing the dose to roughly 2.25mg so I can ramp up. I did experience dreams the first few nights, some sleep disturbances, but mostly a killer afternoon fatigue, leg weakness plus a reoccurence of depression that I formerly had under control. Is this temporary, eg: an increase of MS symptoms for a while? If I press on to 4,5mg my sleep goes all to he'll; I'll stick with 2.25mg for a while. I would like to consult my Neurologist, by as I indicated above, he is not enthusiastic about LDN. Can you kind folks offer some insights from your experiences? Thank you,

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Guest guest

,

How are you dividing the dose? Given 4.5mg is only a few grains most

methods are inaccurate and could result in you getting say 0.5mg one

night and 4.0mg the next in a bad scenario. Not sure about the

depression flare-up but many MSers experience a return of old symptoms

before the same symptom improves (I don't have MS).

jwwisdom26 wrote:

> Hello!

> I have been following posts for a while and see varied responses to this

question.

> What do people with MS experience when starting LDN? My Neuro " tossed " me a

4,5mg scrip with no instructions except to add that it will do nothing for me. I

started by dividing the dose to roughly 2.25mg so I can ramp up. I did

experience dreams the first few nights, some sleep disturbances, but mostly a

killer afternoon fatigue, leg weakness plus a reoccurence of depression that I

formerly had under control. Is this temporary, eg: an increase of MS symptoms

for a while? If I press on to 4,5mg my sleep goes all to he'll; I'll stick with

2.25mg for a while. I would like to consult my Neurologist, by as I indicated

above, he is not enthusiastic about LDN. Can you kind folks offer some insights

from your experiences? Thank you,

>

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