RE: Collapsed Lung

[Guest guest]

lt is good to hear about research into this maddening orphan disease. It is so frustrating ane the doctor I have been seeing this year (after my previous dr moved to a new area) seems to be in denial that I have any problems. My cough wears me out and I have very little energy. I know the American Lung Assoc. has feelers out for anyone who wants to do research too. Now the NIH is interested too. Maybe we will all benefit. Have a happy Thanksgiving.

Marilyn in St. , ILCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

lt is good to hear about research into this maddening orphan disease. It is so frustrating ane the doctor I have been seeing this year (after my previous dr moved to a new area) seems to be in denial that I have any problems. My cough wears me out and I have very little energy. I know the American Lung Assoc. has feelers out for anyone who wants to do research too. Now the NIH is interested too. Maybe we will all benefit. Have a happy Thanksgiving.

Marilyn in St. , ILCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

oh god, i have the same issue

first i had one doc say it was emphysema, then another saying is was mental.

finally i had a CT scan and was diagnosed with bronchiectasis but can't find a doctor that knows what to do to help me with the shortness of breath.

i'm glad there's some research. i read about a new drug called Bronchitol that is supposed to have a final phase III some time in 2008.

Happy Thanksgiving

Betty

lt is good to hear about research into this maddening orphan disease. It is so frustrating ane the doctor I have been seeing this year (after my previous dr moved to a new area) seems to be in denial that I have any problems. My cough wears me out and I have very little energy. I know the American Lung Assoc. has feelers out for anyone who wants to do research too. Now the NIH is interested too. Maybe we will all benefit. Have a happy Thanksgiving.

Marilyn in St. , IL

Check out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

oh god, i have the same issue

first i had one doc say it was emphysema, then another saying is was mental.

finally i had a CT scan and was diagnosed with bronchiectasis but can't find a doctor that knows what to do to help me with the shortness of breath.

i'm glad there's some research. i read about a new drug called Bronchitol that is supposed to have a final phase III some time in 2008.

Happy Thanksgiving

Betty

lt is good to hear about research into this maddening orphan disease. It is so frustrating ane the doctor I have been seeing this year (after my previous dr moved to a new area) seems to be in denial that I have any problems. My cough wears me out and I have very little energy. I know the American Lung Assoc. has feelers out for anyone who wants to do research too. Now the NIH is interested too. Maybe we will all benefit. Have a happy Thanksgiving.

Marilyn in St. , IL

Check out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

I would like the info and what is NIH? Joan

From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of JMP pendley

Sent: Wednesday, November 21, 2007

10:43 AM

To: bronchiectasis

Subject: RE:

Collapsed Lung

Hi all,

I forgot to mention, I was just accepted into a clinical trial at NIH for

Bronchiectasis, MAC and PCD. There is a lot of funding for

Brocnhiectasis now. Believe it or not, Bronchiectasis is classified as an

" Orphan Disease " and they study it in the Rare and Infectious Disease

Unit at NIH (which is where I attend for the clinical trial). I can

update everyone if they want of any new treatments and information that comes

out of this study.

- Janine

To: bronchiectasis

From: bcollistrebnet

Date: Wed, 21 Nov 2007 07:38:48 -0800

Subject: Re: Collapsed Lung

OMG Eileen what an ordeal you have been through and thanks

so much for sharing with us.

The coughing is horrific my whole body is involved and it is

so deep. Definitely not a normal cough. Thanks for the heads up on

what can happen! What type of this disease do you have? How long

have you known that you've had it? Has it gotten worse?

Thanks, Everyone

Oh I can taste your Turkey and stuffing

Our Thanksgiving is in October

Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was

given prednisone and Levaquin. A few days later on a Friday, Dr. ordered

a chest x-ray which showed walking pneumonia. Since I was on medication,

he said that if I got worse over the weekend I was to go to

emergency. My cough did get worse and the phlegm in the center of my

chest would not come up. I was having difficulty breathing (which never

happened before) and decided it was time to go to the emergency room. I

was x-rayed and diagnosed with a collapsed left lung in addition to the

pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the

procedure, however it wasn't as painful as I thought, but coughing with this

tube in your body is no picnic. Lots of morphine helped me through

this ordeal.

My sputum was cultured and they found that I have another aspergillus

infection. My infectious disease Dr. gave me a script for V-Fend which

has worked very well for me in the past. I had to wait 3 days for my

insurance company to pre-authorize this medication which costs $2,326.00

for one month's supply (without insurance), before I was able to get it

into my system.

Apparently the surgeon feels that the incessant coughing produced a

small hole in the lung, coupled with the pneumonia and fluid, it

collapsed. He stated that if I get one of those horrible coughing spells,

I need to take my codeine cough medicine to avoid any future problems. I

didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the

group has had a similar experience to share? I also understand that

after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

I would like the info and what is NIH? Joan

From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of JMP pendley

Sent: Wednesday, November 21, 2007

10:43 AM

To: bronchiectasis

Subject: RE:

Collapsed Lung

Hi all,

I forgot to mention, I was just accepted into a clinical trial at NIH for

Bronchiectasis, MAC and PCD. There is a lot of funding for

Brocnhiectasis now. Believe it or not, Bronchiectasis is classified as an

" Orphan Disease " and they study it in the Rare and Infectious Disease

Unit at NIH (which is where I attend for the clinical trial). I can

update everyone if they want of any new treatments and information that comes

out of this study.

- Janine

To: bronchiectasis

From: bcollistrebnet

Date: Wed, 21 Nov 2007 07:38:48 -0800

Subject: Re: Collapsed Lung

OMG Eileen what an ordeal you have been through and thanks

so much for sharing with us.

The coughing is horrific my whole body is involved and it is

so deep. Definitely not a normal cough. Thanks for the heads up on

what can happen! What type of this disease do you have? How long

have you known that you've had it? Has it gotten worse?

Thanks, Everyone

Oh I can taste your Turkey and stuffing

Our Thanksgiving is in October

Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was

given prednisone and Levaquin. A few days later on a Friday, Dr. ordered

a chest x-ray which showed walking pneumonia. Since I was on medication,

he said that if I got worse over the weekend I was to go to

emergency. My cough did get worse and the phlegm in the center of my

chest would not come up. I was having difficulty breathing (which never

happened before) and decided it was time to go to the emergency room. I

was x-rayed and diagnosed with a collapsed left lung in addition to the

pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the

procedure, however it wasn't as painful as I thought, but coughing with this

tube in your body is no picnic. Lots of morphine helped me through

this ordeal.

My sputum was cultured and they found that I have another aspergillus

infection. My infectious disease Dr. gave me a script for V-Fend which

has worked very well for me in the past. I had to wait 3 days for my

insurance company to pre-authorize this medication which costs $2,326.00

for one month's supply (without insurance), before I was able to get it

into my system.

Apparently the surgeon feels that the incessant coughing produced a

small hole in the lung, coupled with the pneumonia and fluid, it

collapsed. He stated that if I get one of those horrible coughing spells,

I need to take my codeine cough medicine to avoid any future problems. I

didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the

group has had a similar experience to share? I also understand that

after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

I too have MAC with my bronc and only

recently diagnosed. Diagnosis was from a sputum sample which sat for 6 weeks

developing.

From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of JMP pendley

Sent: Wednesday, November 21, 2007

10:39 AM

To: bronchiectasis

Subject: RE:

Collapsed Lung

Hi Eileen,

Thank you for sharing this. It is amazing what can happen so

quickly.

I was recently diagnosed with MAC and PCD disease. They are as a result

of Bronchiectasis (which I have had for 25 years). Crazy!....

- Janine

To: bronchiectasis

From: ecbauer954

Date: Wed, 21 Nov 2007 06:56:00 -0800

Subject: Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was

given prednisone and Levaquin. A few days later on a Friday, Dr. ordered

a chest x-ray which showed walking pneumonia. Since I was on medication,

he said that if I got worse over the weekend I was to go to

emergency. My cough did get worse and the phlegm in the center of my

chest would not come up. I was having difficulty breathing (which never

happened before) and decided it was time to go to the emergency room. I

was x-rayed and diagnosed with a collapsed left lung in addition to the

pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the

procedure, however it wasn't as painful as I thought, but coughing with this

tube in your body is no picnic. Lots of morphine helped me through

this ordeal.

My sputum was cultured and they found that I have another aspergillus

infection. My infectious disease Dr. gave me a script for V-Fend which

has worked very well for me in the past. I had to wait 3 days for my

insurance company to pre-authorize this medication which costs $2,326.00

for one month's supply (without insurance), before I was able to get it

into my system.

Apparently the surgeon feels that the incessant coughing produced a

small hole in the lung, coupled with the pneumonia and fluid, it

collapsed. He stated that if I get one of those horrible coughing spells,

I need to take my codeine cough medicine to avoid any future problems. I

didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the

group has had a similar experience to share? I also understand that

after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

I too have MAC with my bronc and only

recently diagnosed. Diagnosis was from a sputum sample which sat for 6 weeks

developing.

From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of JMP pendley

Sent: Wednesday, November 21, 2007

10:39 AM

To: bronchiectasis

Subject: RE:

Collapsed Lung

Hi Eileen,

Thank you for sharing this. It is amazing what can happen so

quickly.

I was recently diagnosed with MAC and PCD disease. They are as a result

of Bronchiectasis (which I have had for 25 years). Crazy!....

- Janine

To: bronchiectasis

From: ecbauer954

Date: Wed, 21 Nov 2007 06:56:00 -0800

Subject: Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was

given prednisone and Levaquin. A few days later on a Friday, Dr. ordered

a chest x-ray which showed walking pneumonia. Since I was on medication,

he said that if I got worse over the weekend I was to go to

emergency. My cough did get worse and the phlegm in the center of my

chest would not come up. I was having difficulty breathing (which never

happened before) and decided it was time to go to the emergency room. I

was x-rayed and diagnosed with a collapsed left lung in addition to the

pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the

procedure, however it wasn't as painful as I thought, but coughing with this

tube in your body is no picnic. Lots of morphine helped me through

this ordeal.

My sputum was cultured and they found that I have another aspergillus

infection. My infectious disease Dr. gave me a script for V-Fend which

has worked very well for me in the past. I had to wait 3 days for my

insurance company to pre-authorize this medication which costs $2,326.00

for one month's supply (without insurance), before I was able to get it

into my system.

Apparently the surgeon feels that the incessant coughing produced a

small hole in the lung, coupled with the pneumonia and fluid, it

collapsed. He stated that if I get one of those horrible coughing spells,

I need to take my codeine cough medicine to avoid any future problems. I

didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the

group has had a similar experience to share? I also understand that

after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

I too have MAC with my bronc and only

recently diagnosed. Diagnosis was from a sputum sample which sat for 6 weeks

developing.

From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of JMP pendley

Sent: Wednesday, November 21, 2007

10:39 AM

To: bronchiectasis

Subject: RE:

Collapsed Lung

Hi Eileen,

Thank you for sharing this. It is amazing what can happen so

quickly.

I was recently diagnosed with MAC and PCD disease. They are as a result

of Bronchiectasis (which I have had for 25 years). Crazy!....

- Janine

To: bronchiectasis

From: ecbauer954

Date: Wed, 21 Nov 2007 06:56:00 -0800

Subject: Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was

given prednisone and Levaquin. A few days later on a Friday, Dr. ordered

a chest x-ray which showed walking pneumonia. Since I was on medication,

he said that if I got worse over the weekend I was to go to

emergency. My cough did get worse and the phlegm in the center of my

chest would not come up. I was having difficulty breathing (which never

happened before) and decided it was time to go to the emergency room. I

was x-rayed and diagnosed with a collapsed left lung in addition to the

pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the

procedure, however it wasn't as painful as I thought, but coughing with this

tube in your body is no picnic. Lots of morphine helped me through

this ordeal.

My sputum was cultured and they found that I have another aspergillus

infection. My infectious disease Dr. gave me a script for V-Fend which

has worked very well for me in the past. I had to wait 3 days for my

insurance company to pre-authorize this medication which costs $2,326.00

for one month's supply (without insurance), before I was able to get it

into my system.

Apparently the surgeon feels that the incessant coughing produced a

small hole in the lung, coupled with the pneumonia and fluid, it

collapsed. He stated that if I get one of those horrible coughing spells,

I need to take my codeine cough medicine to avoid any future problems. I

didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the

group has had a similar experience to share? I also understand that

after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

I'm not too sure about MAC it is a type of infection, and PCD is another condition similar to bronchiectasis.. Perhaps someone else will explain these more thoroughly.

Best wishes,

Love Bunny

Here's a little info for you about MAC

http://www.maclungdisease.org/index.php?option=com_content & task=view & id=32 & Itemid=55

And....PCD

http://www.lungusa.org/site/pp.asp?c=dvLUK9O0E & b=35690

Sandie in land

Never look down on SomeoneUnless you're willing to help them UpCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

I'm not too sure about MAC it is a type of infection, and PCD is another condition similar to bronchiectasis.. Perhaps someone else will explain these more thoroughly.

Best wishes,

Love Bunny

Here's a little info for you about MAC

http://www.maclungdisease.org/index.php?option=com_content & task=view & id=32 & Itemid=55

And....PCD

http://www.lungusa.org/site/pp.asp?c=dvLUK9O0E & b=35690

Sandie in land

Never look down on SomeoneUnless you're willing to help them UpCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

Hi ,

Unfortunately, the coughing and sputum is part of the disease. You need to cough and expel the mucus in order the keep the lungs clear. I need to do drainage 2-3 times daily to expel all the mucus (as I have a lot) that needs to come up. I know others have a fairly dry cough and don't have to worry so much. To leave the mucus laying around in the lungs will only cause bacteria to breed.

I'm not too sure about MAC it is a type of infection, and PCD is another condition similar to bronchiectasis.. Perhaps someone else will explain these more thoroughly.

Best wishes,

Love Bunny

-----Original Message-----From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of CollisSent: Friday, 23 November 2007 6:06 PMTo: bronchiectasis Subject: Re: Collapsed Lung

Hi Can you tell me what Mac and PCD is ????

Or have they even explained it to you. Do any of you people ever get rid of the coughing and sputum? Does it go away ever? Is this what life is going to be like? This is a year now for me with no let up.......What can I expect?

Thanks

Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal.

My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system.

Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future problems. I didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi ,

Unfortunately, the coughing and sputum is part of the disease. You need to cough and expel the mucus in order the keep the lungs clear. I need to do drainage 2-3 times daily to expel all the mucus (as I have a lot) that needs to come up. I know others have a fairly dry cough and don't have to worry so much. To leave the mucus laying around in the lungs will only cause bacteria to breed.

I'm not too sure about MAC it is a type of infection, and PCD is another condition similar to bronchiectasis.. Perhaps someone else will explain these more thoroughly.

Best wishes,

Love Bunny

-----Original Message-----From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of CollisSent: Friday, 23 November 2007 6:06 PMTo: bronchiectasis Subject: Re: Collapsed Lung

Hi Can you tell me what Mac and PCD is ????

Or have they even explained it to you. Do any of you people ever get rid of the coughing and sputum? Does it go away ever? Is this what life is going to be like? This is a year now for me with no let up.......What can I expect?

Thanks

Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal.

My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system.

Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future problems. I didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi ,

Unfortunately, the coughing and sputum is part of the disease. You need to cough and expel the mucus in order the keep the lungs clear. I need to do drainage 2-3 times daily to expel all the mucus (as I have a lot) that needs to come up. I know others have a fairly dry cough and don't have to worry so much. To leave the mucus laying around in the lungs will only cause bacteria to breed.

I'm not too sure about MAC it is a type of infection, and PCD is another condition similar to bronchiectasis.. Perhaps someone else will explain these more thoroughly.

Best wishes,

Love Bunny

-----Original Message-----From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of CollisSent: Friday, 23 November 2007 6:06 PMTo: bronchiectasis Subject: Re: Collapsed Lung

Hi Can you tell me what Mac and PCD is ????

Or have they even explained it to you. Do any of you people ever get rid of the coughing and sputum? Does it go away ever? Is this what life is going to be like? This is a year now for me with no let up.......What can I expect?

Thanks

Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal.

My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system.

Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future problems. I didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi Can you tell me what Mac and PCD is ????

Or have they even explained it to you. Do any of you people ever get rid of the coughing and sputum? Does it go away ever? Is this what life is going to be like? This is a year now for me with no let up.......What can I expect?

Thanks

Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal.

My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system.

Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future problems. I didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi Can you tell me what Mac and PCD is ????

Or have they even explained it to you. Do any of you people ever get rid of the coughing and sputum? Does it go away ever? Is this what life is going to be like? This is a year now for me with no let up.......What can I expect?

Thanks

Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal.

My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system.

Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future problems. I didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi Can you tell me what Mac and PCD is ????

Or have they even explained it to you. Do any of you people ever get rid of the coughing and sputum? Does it go away ever? Is this what life is going to be like? This is a year now for me with no let up.......What can I expect?

Thanks

Collapsed Lung

Hi All,

I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock.

I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal.

My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system.

Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future problems. I didn't realize that heavy coughing spells could cause this to happen.

This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks.

Have a happy healthy Thanksgiving everyone,

Eileen-FL

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Dear ,

It takes time to cure MAI, however it is curable unlike bronch. With my MAI, I was on meds for 18 months and did quite well. I think the 18 months of 2000mg. of antibiotics compromised my immune system.

I wish you well, you will be fine.

On such high doses of anti's are you protecting your tract and taking probiotics?

Sandie

Never look down on SomeoneUnless you're willing to help them UpCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

Dear ,

It takes time to cure MAI, however it is curable unlike bronch. With my MAI, I was on meds for 18 months and did quite well. I think the 18 months of 2000mg. of antibiotics compromised my immune system.

I wish you well, you will be fine.

On such high doses of anti's are you protecting your tract and taking probiotics?

Sandie

Never look down on SomeoneUnless you're willing to help them UpCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

Dear ,

It takes time to cure MAI, however it is curable unlike bronch. With my MAI, I was on meds for 18 months and did quite well. I think the 18 months of 2000mg. of antibiotics compromised my immune system.

I wish you well, you will be fine.

On such high doses of anti's are you protecting your tract and taking probiotics?

Sandie

Never look down on SomeoneUnless you're willing to help them UpCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

Dear , I've had bronchiectasis for almost 3 years and when I start with the coughing spasms, it means I have an infection. When I am placed on meds, the cough and mucus goes away. I was cough free and mucus free at one time for a whole year. I was diagnosed with bronchiectasis a few months after I was cured of a MAI infection. I now know when the coughing starts, I need meds, but this is the way my body reacts. Everyone is different even though we have the same disease and it's important to be aware of your body signals. Eileen-FL Collis wrote: Hi Can you tell me what Mac and PCD is ???? Or have they even explained it to you. Do any of you people ever get rid of the coughing and sputum? Does it go away ever? Is this what life is going to be like? This is a year now for me with no let up.......What can I expect? Thanks Collapsed Lung Hi All, I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the

center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock. I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal. My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system. Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future

problems. I didn't realize that heavy coughing spells could cause this to happen. This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks. Have a happy healthy Thanksgiving everyone, Eileen-FL Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Dear , I've had bronchiectasis for almost 3 years and when I start with the coughing spasms, it means I have an infection. When I am placed on meds, the cough and mucus goes away. I was cough free and mucus free at one time for a whole year. I was diagnosed with bronchiectasis a few months after I was cured of a MAI infection. I now know when the coughing starts, I need meds, but this is the way my body reacts. Everyone is different even though we have the same disease and it's important to be aware of your body signals. Eileen-FL Collis wrote: Hi Can you tell me what Mac and PCD is ???? Or have they even explained it to you. Do any of you people ever get rid of the coughing and sputum? Does it go away ever? Is this what life is going to be like? This is a year now for me with no let up.......What can I expect? Thanks Collapsed Lung Hi All, I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the

center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock. I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal. My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system. Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future

problems. I didn't realize that heavy coughing spells could cause this to happen. This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks. Have a happy healthy Thanksgiving everyone, Eileen-FL Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Dear , I've had bronchiectasis for almost 3 years and when I start with the coughing spasms, it means I have an infection. When I am placed on meds, the cough and mucus goes away. I was cough free and mucus free at one time for a whole year. I was diagnosed with bronchiectasis a few months after I was cured of a MAI infection. I now know when the coughing starts, I need meds, but this is the way my body reacts. Everyone is different even though we have the same disease and it's important to be aware of your body signals. Eileen-FL Collis wrote: Hi Can you tell me what Mac and PCD is ???? Or have they even explained it to you. Do any of you people ever get rid of the coughing and sputum? Does it go away ever? Is this what life is going to be like? This is a year now for me with no let up.......What can I expect? Thanks Collapsed Lung Hi All, I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the

center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock. I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal. My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system. Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future

problems. I didn't realize that heavy coughing spells could cause this to happen. This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks. Have a happy healthy Thanksgiving everyone, Eileen-FL Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Dear , It takes time to cure MAI, however it is curable unlike bronch. With my MAI, I was on meds for 18 months and did quite well. I think the 18 months of 2000mg. of antibiotics compromised my immune system. I wish you well, you will be fine. Eileen-FLJoan wrote: I too have MAC with my bronc and only recently diagnosed. Diagnosis was from a sputum sample which sat for 6 weeks developing. From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of JMP pendleySent: Wednesday, November 21, 2007 10:39 AMTo: bronchiectasis Subject: RE: Collapsed Lung Hi Eileen,Thank you for sharing this. It is amazing what can happen so quickly. I was recently diagnosed with MAC and PCD disease. They are as a result of Bronchiectasis (which I have had for 25 years). Crazy!.... - Janine To: bronchiectasis From: ecbauer954Date: Wed, 21 Nov 2007 06:56:00 -0800Subject: Collapsed Lung Hi All, I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking

pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock. I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal. My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system. Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with

the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future problems. I didn't realize that heavy coughing spells could cause this to happen. This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks. Have a

happy healthy Thanksgiving everyone, Eileen-FL Never miss a thing. Make Yahoo your homepage.

Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now.

[Guest guest]

Dear , It takes time to cure MAI, however it is curable unlike bronch. With my MAI, I was on meds for 18 months and did quite well. I think the 18 months of 2000mg. of antibiotics compromised my immune system. I wish you well, you will be fine. Eileen-FLJoan wrote: I too have MAC with my bronc and only recently diagnosed. Diagnosis was from a sputum sample which sat for 6 weeks developing. From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of JMP pendleySent: Wednesday, November 21, 2007 10:39 AMTo: bronchiectasis Subject: RE: Collapsed Lung Hi Eileen,Thank you for sharing this. It is amazing what can happen so quickly. I was recently diagnosed with MAC and PCD disease. They are as a result of Bronchiectasis (which I have had for 25 years). Crazy!.... - Janine To: bronchiectasis From: ecbauer954Date: Wed, 21 Nov 2007 06:56:00 -0800Subject: Collapsed Lung Hi All, I had a non-productive cough for about a week, it got worse and I was given prednisone and Levaquin. A few days later on a Friday, Dr. ordered a chest x-ray which showed walking

pneumonia. Since I was on medication, he said that if I got worse over the weekend I was to go to emergency. My cough did get worse and the phlegm in the center of my chest would not come up. I was having difficulty breathing (which never happened before) and decided it was time to go to the emergency room. I was x-rayed and diagnosed with a collapsed left lung in addition to the pneumonia which was quite a shock. I needed a chest tube inserted and I was so frightened of the procedure, however it wasn't as painful as I thought, but coughing with this tube in your body is no picnic. Lots of morphine helped me through this ordeal. My sputum was cultured and they found that I have another aspergillus infection. My infectious disease Dr. gave me a script for V-Fend which has worked very well for me in the past. I had to wait 3 days for my insurance company to pre-authorize this medication which costs $2,326.00 for one month's supply (without insurance), before I was able to get it into my system. Apparently the surgeon feels that the incessant coughing produced a small hole in the lung, coupled with

the pneumonia and fluid, it collapsed. He stated that if I get one of those horrible coughing spells, I need to take my codeine cough medicine to avoid any future problems. I didn't realize that heavy coughing spells could cause this to happen. This is a totally new experience for me and wonder if anyone in the group has had a similar experience to share? I also understand that after a collapsed lung, one can not fly for 6 weeks. Have a

happy healthy Thanksgiving everyone, Eileen-FL Never miss a thing. Make Yahoo your homepage.

Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now.