Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 WOW! Another country heard from. Welcome ! I've been in the group for a couple of months and have learned SO much! I want to know as much as possible about this disease and what may come of it. My (almost)10 year old son, , was diagnosed last June and so far his only symptoms have been fatigue and occassional " tummy aches " so we are also in the early stages. Wishing you the best, Jodi, 's Mom , (9) dx 6-99 From: jaehne@... Reply-To: egroups To: eGroups Subject: Another new member Date: Tue, 05 Oct 1999 14:30:11 -0700 Hi everybody, I found the support group a couple of weeks ago and after seeing Dawn's intro message and the many responses I thought I should drop a few lines, too. This really looks like a very supporting group. I was diagnosed with PSC in 95. In addition there is also a very infrequent UC (which led to the discovery of the PSC). My condition so far is good with no PSC symptoms and almost normal liver blood levels. I'm taking 750mg Ursofalk daily. I'm working in Switzerland right now but have another home in Germany where my wife is living. I'm 29 years old and I'm German. Right now, as I am lucky enough not to be confronted with the illness's symptoms, I go over this e-group maybe every other week (which then can take quite some time...). If one knows a good liver specialist in Germany or Switzerland I would be interested. But I understand that you all live very far away... Best wishes to everyone again. Quote Link to comment Share on other sites More sharing options...
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