Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 On facebook search " International Stills Disease Foundation Site " it shows 107 members currently. & nbsp; -- Sent from my Palm Pixi On Mar 14, 2012 9:37 AM, raincoin@... & lt;raincoin@... & gt; wrote: & nbsp; Which Facebook page is being referred to? I looked and found three. None of them really seemed like they were associated with the foundation. Anything I found looked like personal blogs... April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 On facebook search " International Stills Disease Foundation Site " it shows 107 members currently. & nbsp; -- Sent from my Palm Pixi On Mar 14, 2012 9:37 AM, raincoin@... & lt;raincoin@... & gt; wrote: & nbsp; Which Facebook page is being referred to? I looked and found three. None of them really seemed like they were associated with the foundation. Anything I found looked like personal blogs... April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 When I put that in, I come up with " no sites found. " April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 When I put that in, I come up with " no sites found. " April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 When I put that in, I come up with " no sites found. " April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Try just international stills and see if it comes up that way. I'm a member on that page and there is a post about pericarditis so I think it's the right one. I can't copy and paste the link from my phone, or I would do that. -- Sent from my Palm Pixi On Mar 14, 2012 9:55 AM, raincoin@... & lt;raincoin@... & gt; wrote: & nbsp; When I put that in, I come up with " no sites found. " April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Try just international stills and see if it comes up that way. I'm a member on that page and there is a post about pericarditis so I think it's the right one. I can't copy and paste the link from my phone, or I would do that. -- Sent from my Palm Pixi On Mar 14, 2012 9:55 AM, raincoin@... & lt;raincoin@... & gt; wrote: & nbsp; When I put that in, I come up with " no sites found. " April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 I have tried every combination I can think of. I even tried just " disease " ...still nothing. I will try again this evening when my hubby gets home with his computer. Maybe it's because I am using my phone? But I think I have tried on the computer, not sure. Thank you for your help, though. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 I have tried every combination I can think of. I even tried just " disease " ...still nothing. I will try again this evening when my hubby gets home with his computer. Maybe it's because I am using my phone? But I think I have tried on the computer, not sure. Thank you for your help, though. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 I have tried every combination I can think of. I even tried just " disease " ...still nothing. I will try again this evening when my hubby gets home with his computer. Maybe it's because I am using my phone? But I think I have tried on the computer, not sure. Thank you for your help, though. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Remember when you search to look under groups, here is the link that might help you. http://www.facebook.com/#!/groups/72767579641/  Good luck, ________________________________ To: Stillsdisease Sent: Wednesday, March 14, 2012 10:26 AM Subject: Re: Facebook page???  I have tried every combination I can think of. I even tried just " disease " ...still nothing. I will try again this evening when my hubby gets home with his computer. Maybe it's because I am using my phone? But I think I have tried on the computer, not sure. Thank you for your help, though. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Remember when you search to look under groups, here is the link that might help you. http://www.facebook.com/#!/groups/72767579641/  Good luck, ________________________________ To: Stillsdisease Sent: Wednesday, March 14, 2012 10:26 AM Subject: Re: Facebook page???  I have tried every combination I can think of. I even tried just " disease " ...still nothing. I will try again this evening when my hubby gets home with his computer. Maybe it's because I am using my phone? But I think I have tried on the computer, not sure. Thank you for your help, though. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Remember when you search to look under groups, here is the link that might help you. http://www.facebook.com/#!/groups/72767579641/  Good luck, ________________________________ To: Stillsdisease Sent: Wednesday, March 14, 2012 10:26 AM Subject: Re: Facebook page???  I have tried every combination I can think of. I even tried just " disease " ...still nothing. I will try again this evening when my hubby gets home with his computer. Maybe it's because I am using my phone? But I think I have tried on the computer, not sure. Thank you for your help, though. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 That must be the problem! Facebook mobile wont't let me search for " groups. " I can search " friends " and " pages " but not " groups. " I can only see the groups I am already a member of. Even when I click on your link. I will just have to try when I have access to a computer. Thank you again. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 That must be the problem! Facebook mobile wont't let me search for " groups. " I can search " friends " and " pages " but not " groups. " I can only see the groups I am already a member of. Even when I click on your link. I will just have to try when I have access to a computer. Thank you again. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 That must be the problem! Facebook mobile wont't let me search for " groups. " I can search " friends " and " pages " but not " groups. " I can only see the groups I am already a member of. Even when I click on your link. I will just have to try when I have access to a computer. Thank you again. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Nope, doesn't work. I can't search for the group. I went to the desktop site. I even put the address into the address bar and it redirected me right back to my homescreen for facebook. The last part of your link is not a hyperlink, meaning it can't be clicked on. My guess is that the group is invitation only. I can't join unless someone sends me an invite. Thanks anyway. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Nope, doesn't work. I can't search for the group. I went to the desktop site. I even put the address into the address bar and it redirected me right back to my homescreen for facebook. The last part of your link is not a hyperlink, meaning it can't be clicked on. My guess is that the group is invitation only. I can't join unless someone sends me an invite. Thanks anyway. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Did you try to copy and paste? it was part of the link in my browser but for some reason didn't paste that way. I didn't have an invite not sure how to send you one. Maybe someone else on here knows how to do that part of it. & nbsp; -- Sent from my Palm Pixi On Mar 14, 2012 12:28 PM, raincoin@... & lt;raincoin@... & gt; wrote: & nbsp; Nope, doesn't work. I can't search for the group. I went to the desktop site. I even put the address into the address bar and it redirected me right back to my homescreen for facebook. The last part of your link is not a hyperlink, meaning it can't be clicked on. My guess is that the group is invitation only. I can't join unless someone sends me an invite. Thanks anyway. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Did you try to copy and paste? it was part of the link in my browser but for some reason didn't paste that way. I didn't have an invite not sure how to send you one. Maybe someone else on here knows how to do that part of it. & nbsp; -- Sent from my Palm Pixi On Mar 14, 2012 12:28 PM, raincoin@... & lt;raincoin@... & gt; wrote: & nbsp; Nope, doesn't work. I can't search for the group. I went to the desktop site. I even put the address into the address bar and it redirected me right back to my homescreen for facebook. The last part of your link is not a hyperlink, meaning it can't be clicked on. My guess is that the group is invitation only. I can't join unless someone sends me an invite. Thanks anyway. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Did you try to copy and paste? it was part of the link in my browser but for some reason didn't paste that way. I didn't have an invite not sure how to send you one. Maybe someone else on here knows how to do that part of it. & nbsp; -- Sent from my Palm Pixi On Mar 14, 2012 12:28 PM, raincoin@... & lt;raincoin@... & gt; wrote: & nbsp; Nope, doesn't work. I can't search for the group. I went to the desktop site. I even put the address into the address bar and it redirected me right back to my homescreen for facebook. The last part of your link is not a hyperlink, meaning it can't be clicked on. My guess is that the group is invitation only. I can't join unless someone sends me an invite. Thanks anyway. April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 The only part I could get to copy on my phone was the number part, the reast was facebook and a couple of symbols. The only part I typed in was the #!. Idk April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 The only part I could get to copy on my phone was the number part, the reast was facebook and a couple of symbols. The only part I typed in was the #!. Idk April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Hi, Try this link. It came right up for me when I searched. Do not put the “ in Still’s, either try link, or search capitol International Stills . . . . . . https://www.facebook.com/groups/72767579641/ From: raincoin@... Sent: Wednesday, March 14, 2012 9:36 AM To: Stillsdisease Subject: Re: Facebook page??? The only part I could get to copy on my phone was the number part, the reast was facebook and a couple of symbols. The only part I typed in was the #!. Idk April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Hi, Try this link. It came right up for me when I searched. Do not put the “ in Still’s, either try link, or search capitol International Stills . . . . . . https://www.facebook.com/groups/72767579641/ From: raincoin@... Sent: Wednesday, March 14, 2012 9:36 AM To: Stillsdisease Subject: Re: Facebook page??? The only part I could get to copy on my phone was the number part, the reast was facebook and a couple of symbols. The only part I typed in was the #!. Idk April Sent from my Verizon Wireless Phone pericarditis I have been posting in the Facebook page,but I do not want my family to read everything. was diagnosed with pericarditis last month. Went to ER, family doc, then sent to Cardiologist, which scheduled a echo... Cardiologist gave Rx for Colys for reoccurring pericarditis went to pick it up it was $500...I have no RX coverage.Needless to say I did not get it. Went to Rheumy she was on vacation when this started. She ordered blood work RX 20 mg prednisone. I waited for blood work it was normal...still have that chest feeling started prednisone today. Hard to start that again... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.