Guest guest Posted December 22, 2011 Report Share Posted December 22, 2011 Hellow everyone. I'd like to introduce myself. I'm Gins Spencer. I have a 29 yo daughter who has been diagnosed with AOSD for approx. 5 years. The first time they gave her a diagnosis of Lupus. Her ANA kept coming back alternating between pos. & neg. I suffer from other auto-immune disorders. I'm here to learn more about Still's to support her. Learn more about my illness, (which is very similar), and to help support others if I can. I am a 54 yo single Mom living with my almost 11 yo Brindle Boxer, Lucy. I've been to the Still's disease International Converence in Las Vegas in 2008. So I have had the opportunity to meet several of you. My daughter and I share the diagnosis of fibromyalgia. We also share Asthma and Allergies. I have osteoarthritis, osteoporosis (using Forteo), degenerative disc disease, herniated C5-6, degenerated L-4. I have a left leg neuropothy. My daughter and I share a diagnosis of horrific migraines. I have had several injections of either Synvisc, and more recently Euflexxa in my knees and shoulders. My daughter has had gastroparisis, heart involvement, kidney involvement, skin ulcers (mostly on her face), skin rashes, joint pain, swollen lymph nodes all over, neuropathy all over her body. Her treatment is Kineret for 2 years. She has tried MTX for a brief time. Her weight is currently down very low with many flare ups from stress of moving to a new condo, from Northern California so she is close to me now. Her fiance is staying up there, but visits quit often. I am not convinced that I or my daughter have the correct diagnosis, but it is as close as it gets I think. I have Celiac, adrenal insufficiency and I have taken and take daily Cortisol injecitons which has caused many side effects. We both are loving and caring people with kind hearts and would give you the shirt off our back. One small problem, we need the energy! Fatigue and shortness of endurance is a huge problem. I will stop for now, but I hope this summary helps to initiate dialogue and forming new relationships/friendships that will lead to a positive experience for all parties. My daughter does not currently use the internet for social networking, but I hope she will soon. In the mean time, nice to meet all of you! Sincerely, ginabomp@... Quote Link to comment Share on other sites More sharing options...
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