Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 I'm VERY frustrated as I just purchased calcium and Magnesium from Kirkmans and expected it to be the best for my son as this company makes products specifically for our kids. I now find out that the type of calcium and magnesium are not the best choices for the source they came from. Im trying so hard! I am trying to keep it all straight in my head. Which types of mag. are good ,wich types of calcium are good, how much zinc, to B or not to B etc. Im feeling overwhelmed. I feel like I will never know as much as some of yu guys know and understand it as well. Sorry for sounding down, thanks for listening. Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 I read your post and others concerning why we use particular types of calcium and magnesium in our different products. There are a lot confusion on the best type of products for absorption. What type of forms of the minerals to take are somewhat complicated. The following may be helpful.... The bottom line... we use the forms of calcium and magnesium we do since they work the best for children with autism (also ground as a fine talc powder for absorption and certified as lead free). We are always happy to have anyone call us directly and talk with our formulting chemist (Larry Newman - 30 years in vitamin manufacturing) or our in house doctor (Dr. Hoener) to ask any question. We can also send you clinical studies that support the blends that we use for calcium or magnesium). In addition we see hundreds of before and after blood tests on children with autism using our calcium and magnesium that confirm its effectiveness. I had posted the following information about calcium earlier (why we use a blend of carbonate and citrate (note - other forms may have higher absorption rates but you would need 5-6 times the volume to equal the same elemental calcium as citrate or carbonate (carbonate is about twice as concentrated as citrate) You bring up a very important question of exactly what type of calcium supplementation is absorbed the best. The National Institutes of Health (NIH) held a conference and published a document (about 31 pages and available on Medline) entitled Consensus Development Conference on Optimal Calcium Intake. The following is part of the report. How is Calcium Absorbed in the Body? Facts about calcium absorption include: Only elemental calcium is available for absorption. Calcium carbonate contains 40% of calcium in elemental form; tribasic calcium phosphate, 39%; calcium citrate, 24%; calcium lactate, 13%; and, calcium gluconate, 9%. In clinical terms, the availability of calcium from these sources does not differ significantly, but some researchers have suggested that calcium citrate is more bio available than calcium carbonate. Generic calcium supplements are not always bio available. The disintegration and dissolution times of calcium supplements are critical to calcium absorption and can be tested by placing the tablet in white vinegar. The tablet should dissolve within 30 minutes. ------------------------------ In addition there are a number of studies comparing the absorption of calcium carbonate and calcium citrate. In a published report that summerises a number of studies, calcium citrate is absorbed about 25% better but since calcium carbonate has almost twice as much elemental calcium by volume (40% vs. 24%), calcium carbonate is more efficient by volume. The following abstract summarizes the studies. 1: Am J Ther 1999 Nov;6(6):313-21 Related Articles, Books Meta-analysis of calcium bioavailability: a comparison of calcium citrate with calcium carbonate. Sakhaee K, Bhuket T, -Huet B, Rao DS. University of Texas Southwestern Medical School, Center for Mineral Metabolism and Clinical Research, Dallas, TX 75235-8891, USA. OBJECTIVE: To perform a meta-analysis of data from available published trials comparing the bioavailability of calcium carbonate with that of calcium citrate. DATA SOURCES: The whole set was comprised of 15 studies involving 184 subjects who underwent measurement of calcium absorption from calcium carbonate and calcium citrate. Category A excluded four studies for lack of physiological relevance, use of a mixed preparation with low content of calcium carbonate, or wide variability in results. Category B was comprised of five studies (from Category A) involving 71 subjects who took calcium supplements on an empty stomach. Category C was comprised of six studies (from Category A) involving 65 subjects who took calcium preparations with meals. METHOD: The meta-analysis of calcium absorption data from calcium carbonate and calcium citrate, with calculation of effect size and 95% confidence intervals. RESULTS: Calcium absorption from calcium citrate was consistently significantly higher than that from calcium carbonate by 20.0% in the whole set, by 24.0% in Category A, by 27.2% on an empty stomach, and by 21.6% with meals. CONCLUSION: Calcium citrate is better absorbed than calcium carbonate by approximately 22% to 27%, either on an empty stomach or co-administered with meals. Also note that some calcium can contain lead. This is not random but a decision made of what grade of calcium to use by the manufacturer. Thanks Humphrey > I'm VERY frustrated as I just purchased calcium and Magnesium from > Kirkmans and expected it to be the best for my son as this company > makes products specifically for our kids. I now find out that the type > of calcium and magnesium are not the best choices for the source they > came from. Im trying so hard! I am trying to keep it all straight in > my head. Which types of mag. are good ,wich types of calcium are good, > how much zinc, to B or not to B etc. Im feeling overwhelmed. I feel > like I will never know as much as some of yu guys know and understand > it as well. Sorry for sounding down, thanks for listening. Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi everyone: I am so frustrated I feel like crying. I feel like there is no one that can relate to my situation fully of where my son is at. has XYY and verbal apraxia and apraxia of the fine and gross motor skills. I don't understand how a child with serve speech delays can read and spell with not that much trouble. has had a really hard time with writing and the reading and spelling. I just get mad when I think of how long it took before I knew he had the apraxia and got him the help he needed. When I was told about the XYY I was told that a learing disabilities is usually common and so was the speech delay. So I accepted that and thought it was the answer for what was wrong. Like I said there wasn't much information. I did fight to have him tested for everything. Until I finally found out through the school about the apraxia. I joined the XYY group and just read the intro. and forget it. Basically they say the boys are more aggressive because of the extra male chrom. they have. And they always relate it to this study that was done on XYY boys that have criminal records and the XYY is the result. Sorry, I don't even buy that maybe a nice excuse for their actions but that's it. My son of course has been frustrated due to the fact that he could not be understood. Can you image if we as adults could not be understood on a regular basis? I'm sorry, of course everyone has been or felt like this before. I tried to get him reading therapy? but the school said it was getting pulled out too much already for the s/t, special p.e., and o/t that the teacher needed to have time with him. But it's not working the progress is not coming. Just like the speech wasn't until I demaned to have him tested for apraxia after reading about it on a site. You really have to fight to get the services they need. Is anyone else receiving the reading therapy? And what is the listening theerapy? I just don't think him being in a group of kids taking turns reading is what he needs. I think he needs one on one. Thank you for listening. I hope a didn't offend anyone because I know how personal and different everyone's situation is. And thank god for any areas of strength our children have and for all of you parents out there that work so hard to make it happen. Linette, mother to 7 XYY, apraxia, 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi linette, If the school doesn't want him pulled out more perhaps they will approve a tutor after school. Curious as to whether he has been tested for dyslexia. It is a common thread with apraxic kids. I may be wrong but I thought Listening therapy was for CAPD and sensory issues re: sound. I haven't heard that it helps reading. denise >I tried to get him reading therapy? but the school said it was getting pulled out too much already for the s/t, special p.e., and o/t that the teacher needed to have time with him. But it's not working the progress is not coming. Just like the speech wasn't until I demaned to have him tested for apraxia after reading about it on a site. You really have to fight to get the services they need. Is anyone else receiving the reading therapy? And what is the listening theerapy? Linette, mother to 7 XYY, apraxia, 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 , Is Dyslexia when you say the word backwards? was only tested my the s/t at his school. I really had to fight with the doctors and the shcool to get what he needed. Do you know if the children are usually tested by a doctor? I know when it comes to doing his reading or writing I usually have to cover up the rest of the page so only the sentence were working on or word will show. He is a visual learner for sure. The xyy web site turned out to be fine. I talked to some other mom's that have the fine and gross motor skill problems and I recommended them to this site. Thank you so much for your help. Linette " DMon98 <dmharrison98@...> " <dmharrison98@...> wrote:Hi linette, If the school doesn't want him pulled out more perhaps they will approve a tutor after school. Curious as to whether he has been tested for dyslexia. It is a common thread with apraxic kids. I may be wrong but I thought Listening therapy was for CAPD and sensory issues re: sound. I haven't heard that it helps reading. denise >I tried to get him reading therapy? but the school said it was getting pulled out too much already for the s/t, special p.e., and o/t that the teacher needed to have time with him. But it's not working the progress is not coming. Just like the speech wasn't until I demaned to have him tested for apraxia after reading about it on a site. You really have to fight to get the services they need. Is anyone else receiving the reading therapy? And what is the listening theerapy? Linette, mother to 7 XYY, apraxia, 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Linette - A specialist is usually recommended to diagnose dyslexia. There are tests given by school psychs or guidance counselors, but most areas have independent evaluators. In my well versed, yet unprofessional opinion, I would say that the covering of the rest of the page sounds like an indicator. Dyslexia can come in many forms. Suffice it to say that the word is written right, the child can see it right, but in the transference to the brain there is a " misread " . Sometimes it appears backwards, upside down, with missing letters, or the child may jump all over the page. Have your son try covering just one eye (first one, then the other) and see if that helps. Good luck - Marina > >I tried to get him reading therapy? but the school said it was > getting pulled out too much already for the s/t, special p.e., and > o/t that the teacher needed to have time with him. But it's not > working the progress is not coming. Just like the speech wasn't > until I demaned to have him tested for apraxia after reading about it > on a site. You really have to fight to get the services they need. > Is anyone else receiving the reading therapy? And what is the > listening theerapy? > > Linette, mother to 7 XYY, apraxia, 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 marina since you are giving advice on dyslexia, any advice for this one... my 3 y/o son has just started lining letters up backwards., instead of anthony it's ynohtna also, he is limited verbally but starts counting from 10, 9, 8, can't say 7 or 6 so i fill in those, he continues with 5,4, i say 3, 2 and 1 also, with the alphabet he starts at z and works his way to a, even without looking at the flashcards he knows what comes next backwards. he is lefty, don't know if that makes difference. he does do it forward also. the school told me not to worry as 3 y/o's don't know the difference from left to right. but he also calls the number 9, the letter P. it does look like it backwards. any advice? thanks lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 The other thing you might want to have tested is eye problems (tracking problems) due to motor issues. The OT at the school said that may have tracking problems since she has motor problems. The OT said that we might have to cover up everything except for the word she is reading. They put a piece of paper with a window on it. You move the window to uncover the word that is being read. I've decided to have tested by an pediatric opthamologist after reading this board. My doctor didn't recommend it, but I want to see if she is tracking okay and her eyes are doing other things okay. Good luck. Suzi > , > Is Dyslexia when you say the word backwards? was only tested my the s/t at his school. I really had to fight with the doctors and the shcool to get what he needed. Do you know if the children are usually tested by a doctor? I know when it comes to doing his reading or writing I usually have to cover up the rest of the page so only the sentence were working on or word will show. He is a visual learner for sure. The xyy web site turned out to be fine. I talked to some other mom's that have the fine and gross motor skill problems and I recommended them to this site. Thank you so much for your help. > Linette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Suzi, Many people choose to go to a developmental optometrist, not opthamologist. The prior will work on vision therapy, and many opthalmolgists think it is bogus. I would ask your OT if she has any recommendations. [ ] Re: very frustrated > The other thing you might want to have tested is eye problems > (tracking problems) due to motor issues. The OT at the school said > that may have tracking problems since she has motor problems. > The OT said that we might have to cover up everything except for the > word she is reading. They put a piece of paper with a window on > it. You move the window to uncover the word that is being read. > > I've decided to have tested by an pediatric opthamologist > after reading this board. My doctor didn't recommend it, but I want > to see if she is tracking okay and her eyes are doing other things > okay. > > Good luck. > > Suzi > > > > > , > > Is Dyslexia when you say the word backwards? was only > tested my the s/t at his school. I really had to fight with the > doctors and the shcool to get what he needed. Do you know if the > children are usually tested by a doctor? I know when it comes to > doing his reading or writing I usually have to cover up the rest of > the page so only the sentence were working on or word will show. He > is a visual learner for sure. The xyy web site turned out to be > fine. I talked to some other mom's that have the fine and gross > motor skill problems and I recommended them to this site. Thank > you so much for your help. > > Linette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Suzi, Thanks so much for the info. I will have my son tested also and let you know the outcome. Take Care, Linette " luckygmstwife <suzi_knowles@...> " <suzi_knowles@...> wrote:The other thing you might want to have tested is eye problems (tracking problems) due to motor issues. The OT at the school said that may have tracking problems since she has motor problems. The OT said that we might have to cover up everything except for the word she is reading. They put a piece of paper with a window on it. You move the window to uncover the word that is being read. I've decided to have tested by an pediatric opthamologist after reading this board. My doctor didn't recommend it, but I want to see if she is tracking okay and her eyes are doing other things okay. Good luck. Suzi > , > Is Dyslexia when you say the word backwards? was only tested my the s/t at his school. I really had to fight with the doctors and the shcool to get what he needed. Do you know if the children are usually tested by a doctor? I know when it comes to doing his reading or writing I usually have to cover up the rest of the page so only the sentence were working on or word will show. He is a visual learner for sure. The xyy web site turned out to be fine. I talked to some other mom's that have the fine and gross motor skill problems and I recommended them to this site. Thank you so much for your help. > Linette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Marina, Thanks for the info. I have not tried covering one eye yet but will. And I will have him tested at school and set a new meeting if I have to. I will post the results. Take Care, Linette " marina3029 <philipmary@...> " <philipmary@...> wrote:Linette - A specialist is usually recommended to diagnose dyslexia. There are tests given by school psychs or guidance counselors, but most areas have independent evaluators. In my well versed, yet unprofessional opinion, I would say that the covering of the rest of the page sounds like an indicator. Dyslexia can come in many forms. Suffice it to say that the word is written right, the child can see it right, but in the transference to the brain there is a " misread " . Sometimes it appears backwards, upside down, with missing letters, or the child may jump all over the page. Have your son try covering just one eye (first one, then the other) and see if that helps. Good luck - Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 marina thanks for your reply. you seem to have a great sense of humor. i only wish i could belong to , " my kid is so normal board " . i was concerned that he was showing early signs of dyslexia. and was wondering whether or not a 3 y/o could display early traits of it? my son does have alot of other things going on. has hydrocephalus and a v-p shunt that will be in for the rest of his life, 2 brain surgeries, sensory problems, motor planning problems and was completely non-verbal until 2 weeks ago. thank God he has started coming around and starting to say the first syllable of the word, like " o " for open. he has about 15 words at 3.2. if i get his " guys " out, his are " little people " from fisher-price, he'll line them up. and i'm trying to keep some of the " bad " behaviors limited. we counted rice cakes today, but i'm just starting to count them. i think adding and subtracting are way to advanced for him. he's in a preschool 5x a week for speech and p/t. he is making great strides and has just learned to nod yes and say " hi. " and has started pretend playing more. i think the pro-efa has helped. he's been on it since sept. and just had a big surge in speech. even his teachers are surprised. his teacher said it seems like he's made some connections and seems re-wired, more alert and more responsive. it seemed to happen on the winter vacation. but i understand what you are saying by not looking for , " what's wrong " . it's very hard to do that when things have gone wrong in the past, but i'll try and be more positive. and i know i'm going to be opening a can of worms with this one... my son's preschool will not put him in a full day program if he is not autistic, is apraxia under the autistic spectrum? they said no, yet online on some websites it lists it under the spectrum. please advise. thanks lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 First, in my former life, I was a highly degreed HS English teacher. Now I'm just " mom " - so it's just an opinion... Now, let me ask a perspective question: Would you be worried if the only board you belonged to was the " my kid is so normal I can't stand it " board?? No - seriously, I'd say that he's QUITE clever. Has a good zeitgeist (is that the word?) of both the alphabet and the numbers 1-10. I would think he was just playing with the letters and numbers to see what he can do with them. As long as he can do them in the " right " direction, I wouldn't worry. If it turns into something that's not just playing, then you can consult someone. In the interim, why don't you show him all the words you can make out of the letters in " anthony " so he learns a different (more productive??) way to play with the letters. As for the numbers, see if you can introduce REALLY basic addition or subtraction. Put some toy " guys " (that means Rescue Heroes in my house) out and have him count them. Then put the number out (say 5). Then ask him " What would happen if Ben Choppen (makes me laugh every time) were there, too?? " (there would be 6) and take out the number 6. Keep going - or start taking some away. It will give him a better understanding of the " number line " . One final note (because I generally like to reply over 100 words to such a brief question!): when you see your child doing something " odd " or out of the ordinary, don't think " WHAT'S WRONG?!? " (unless it's really obviously scary or he's setting the cat on fire) Ask how you can WORK it to their advantage. My son Riley does alot of babbling (echolelia). I'm glad he's vocalizing, but it's a bit worrisome. I WORK it and pick out " phrases " he's using and repeat them to him. He repeats them back and we work on it. Now we've got lots of phrases that actually have meaning. Another example (long enough yet?): My older son (apraxic) was totally non-verbal but I wanted him to begin learning so I started teaching him his ABCs - but not with the song because he obviously couldn't sing. So instead, we worked with flashcards identifying the letters (which, according to Glynda's great list, is a marker for Kindergarten readiness). When he was finally able to learn the song, it was kind of cool to him to already know the letters. So, we did it backwards, but we did it... Kiss your son. Give him numbers 1 - 20 and go count some Rescue Heroes!! Hope this helps!! Marina > marina > since you are giving advice on dyslexia, any advice for this one... > my 3 y/o son has just started lining letters up backwards., instead of > anthony it's ynohtna > also, he is limited verbally but starts counting from 10, 9, 8, can't say 7 > or 6 so i fill in those, he continues with 5,4, i say 3, 2 and 1 > also, with the alphabet he starts at z and works his way to a, even without > looking at the flashcards he knows what comes next backwards. he is lefty, > don't know if that makes difference. > he does do it forward also. the school told me not to worry as 3 y/o's > don't know the difference from left to right. but he also calls the number > 9, the letter P. it does look like it backwards. any advice? > thanks lori > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 I know my 6 year old left-handed daughter, , also spells things reversely lots of times. I've heard that it is very common until about age 6 or 7. only has some articulation problems, and is reading quite well for a kindegardener. with the apraxia spells everything in the correct order. He's young, and I think it's amazing he knows his numbers and letters so well. Take care! Suzi > marina > since you are giving advice on dyslexia, any advice for this one... > my 3 y/o son has just started lining letters up backwards., instead of > anthony it's ynohtna > also, he is limited verbally but starts counting from 10, 9, 8, can't say 7 > or 6 so i fill in those, he continues with 5,4, i say 3, 2 and 1 > also, with the alphabet he starts at z and works his way to a, even without > looking at the flashcards he knows what comes next backwards. he is lefty, > don't know if that makes difference. > he does do it forward also. the school told me not to worry as 3 y/o's > don't know the difference from left to right. but he also calls the number > 9, the letter P. it does look like it backwards. any advice? > thanks lori > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2003 Report Share Posted January 11, 2003 You've certainly got your very own can of worms...Glad that (despite everything) your son is making progress. I hope the ProEFA helps. If it makes you feel better, my son Riley is also 3.2 and just started to be verbal. It's really hard. I know that you're seeing the beginnings of things (O for Open, etc.) so work on that. It also sounds like he's perhaps found a strength in working with numbers and letters - just because he's weak in something else does NOT mean he's not capable of making progress in other areas. Good luck! (by the way, the natural transition is from Fisher Price little people to the Rescue Heroes. It's well documented. ) As for the apraxia vs. autism thing, it really depends on with whom you speak... They share many of the same traits and complications (is that the right way to put it?) - often have sensory issues, lack of communication abilities. My 4 year old is CLASSICALLY apraxic (I believe it runs heartily in my husband's family). He didn't speak until he was 2.2 or so and then took off running. He called everything " Da " - me, dad, cup, food, juice, horse - all " Da " . He's got some sensory issues (but he does seem to be outgrowing them), etc.. Here's the difference (from my non-professional opinion): an apraxic child's speech is affected, but the child will attempt to communicate in other ways - bring you to the refridgerator to show you he wants juice or point or create an elaborate gesturing system to talk to you. It's not exactly a conversation, but they are working with you. If you were told you couldn't speak or write for a week but had to continue in life, you would do something similar. An autistic child has problems in the development of interaction and socialization - these compensating skills may be impared. Someone with an autistic child jump in and help me here... There's lots in the archives on it. Also, the two can (and I think many believe often do) CO-EXIST - making it diagnosis difficult. Is the child not talking because they're severely autistic or because they're apraxic. Makes it difficult. You have, as I said, a different can of worms. Have you been to see a developmental pediatrician? They could really help you I would imagine. Where are you (if you don't mind my asking)? Not sure I've helped - email me privately if you wish - I'm not full of knowledge, but I know that between my two boys I've had so many sleepless nights, had stress induced hairloss, a case of shingles, and the feeling that my life is not what I wished it to be - nor the lives of my children. Focusing on the positive often feels like a frivolous escape (and seems shallow) but I know it's the best thing for my kids. This is not to say that I'm not fully prepared to rip someone a new one for asking " What's WRONG with him? " > marina > thanks for your reply. you seem to have a great sense of humor. i only wish > i could belong to , " my kid is so normal board " . i was concerned that he was > showing early signs of dyslexia. and was wondering whether or not a 3 y/o > could display early traits of it? my son does have alot of other things > going on. has hydrocephalus and a v-p shunt that will be in for the rest of > his life, 2 brain surgeries, sensory problems, motor planning problems and > was completely non-verbal until 2 weeks ago. thank God he has started coming > around and starting to say the first syllable of the word, like " o " for open. > he has about 15 words at 3.2. if i get his " guys " out, his are " little > people " from fisher-price, he'll line them up. and i'm trying to keep some > of the " bad " behaviors limited. we counted rice cakes today, but i'm just > starting to count them. i think adding and subtracting are way to advanced > for him. he's in a preschool 5x a week for speech and p/t. he is making > great strides and has just learned to nod yes and say " hi. " and has started > pretend playing more. i think the pro-efa has helped. he's been on it since > sept. and just had a big surge in speech. even his teachers are surprised. > his teacher said it seems like he's made some connections and seems re-wired, > more alert and more responsive. it seemed to happen on the winter vacation. > but i understand what you are saying by not looking for , " what's wrong " . > it's very hard to do that when things have gone wrong in the past, but i'll > try and be more positive. > > and i know i'm going to be opening a can of worms with this one... > my son's preschool will not put him in a full day program if he is not > autistic, is apraxia under the autistic spectrum? they said no, yet online > on some websites it lists it under the spectrum. please advise. > thanks > lori > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Hi Marina, I have been reading all your emails and you seem quite knowledgeable on the Apraxia subject. My daughter is 3 and has been seeing a speech therapist since about August. We are from Canada, so we don't pay for any of these services, but as a result, our healthcare is cut back and there is only 1 SLP that covers our Northern area (about 100 mile radius - about 20 towns or so). She is now currently seeing the SLP about 1-2 times a month and each session is only about 15 min. I don't exactly call 1/2 hour a month " therapy " , would you?! They referred her to a special centre in Saskatoon, Saskatchewan (about 300 miles from us) where they work with children who have all kinds of disorders and conditions. I was sent a letter back basically saying that she wasn't " bad enough " for their program. I was totally disgusted. I've been thinking that she was maybe dyslexic, but this week, the SLP told me that she is sure she has Apraxia. That is the first I'd ever heard of it. All I have done this past week is scour the internet for info on this disorder and am thrilled by all the info I've found. Kaylin understands absolutely everything,(sometimes too much - if you know what I mean) and yet it's like when her thoughts try to go from her brain to her mouth - there's no connection. I just read a couple days ago about the effects of EFA's and so I've started her on a formula of that this week - only time will tell, I guess! The most recent frustration I have is regarding Preschool. I desperately want to put her in right now, but we have had an awful time potty training her (as I've heard some other parents of apraxic kids have) and I was told by another lady this week, that they won't accept kids who aren't potty trained. She desperately needs the interaction with other kids, so now I feel like I'm at my wits end. She is probably 80% trained in the fact that she can get out of bed in the morning and go pee without telling us and she has been getting really good at going " poop " on her own because that was one of her new words this month! It's the inconsistency that frustrates me and I wonder if that is from the apraxia or what. I work out of the home and I don't think my babysitter is really strict with the potty issue, so that also doesn't help. Did you have trouble with potty training? Do you have advice regarding the Preschool. It's only for 2 hours, so if I tell them that she is almost completely trained, but that she just needs to be taken and reminded and if she wears a Pull-up there, at least her clothes wouldn't need changing. I just don't know. I really want her to be in Preschool with the kids that she'll go to Kindergarten with, so they get to know each other. Thanks again for any advice and just for the listening ear. This support site is a god-send to me. (As you can see, I like to use a minimum of 100 words or so as well!! :-) (Mom of Kaylin (3) and Samara (19 mo.) >From: " marina3029 <philipmary@...> " <philipmary@...> >Reply- > >Subject: [ ] Re: very frustrated >Date: Sat, 11 Jan 2003 14:34:15 -0000 > >You've certainly got your very own can of worms...Glad that (despite >everything) your son is making progress. I hope the ProEFA helps. >If it makes you feel better, my son Riley is also 3.2 and just >started to be verbal. It's really hard. I know that you're seeing >the beginnings of things (O for Open, etc.) so work on that. It also >sounds like he's perhaps found a strength in working with numbers and >letters - just because he's weak in something else does NOT mean he's >not capable of making progress in other areas. Good luck! (by the >way, the natural transition is from Fisher Price little people to the >Rescue Heroes. It's well documented. ) > >As for the apraxia vs. autism thing, it really depends on with whom >you speak... They share many of the same traits and complications >(is that the right way to put it?) - often have sensory issues, lack >of communication abilities. My 4 year old is CLASSICALLY apraxic (I >believe it runs heartily in my husband's family). He didn't speak >until he was 2.2 or so and then took off running. He called >everything " Da " - me, dad, cup, food, juice, horse - all " Da " . He's >got some sensory issues (but he does seem to be outgrowing them), >etc.. Here's the difference (from my non-professional opinion): an >apraxic child's speech is affected, but the child will attempt to >communicate in other ways - bring you to the refridgerator to show >you he wants juice or point or create an elaborate gesturing system >to talk to you. It's not exactly a conversation, but they are >working with you. If you were told you couldn't speak or write for a >week but had to continue in life, you would do something similar. An >autistic child has problems in the development of interaction and >socialization - these compensating skills may be impared. Someone >with an autistic child jump in and help me here... There's lots in >the archives on it. > >Also, the two can (and I think many believe often do) CO-EXIST - >making it diagnosis difficult. Is the child not talking because >they're severely autistic or because they're apraxic. Makes it >difficult. You have, as I said, a different can of worms. Have you >been to see a developmental pediatrician? They could really help you >I would imagine. Where are you (if you don't mind my asking)? > >Not sure I've helped - email me privately if you wish - I'm not full >of knowledge, but I know that between my two boys I've had so many >sleepless nights, had stress induced hairloss, a case of shingles, >and the feeling that my life is not what I wished it to be - nor the >lives of my children. Focusing on the positive often feels like a >frivolous escape (and seems shallow) but I know it's the best thing >for my kids. This is not to say that I'm not fully prepared to rip >someone a new one for asking " What's WRONG with him? " _________________________________________________________________ MSN 8 with e-mail virus protection service: 2 months FREE* http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Hi If your daughter is 80% potty trained, I'd say to go for it and put her in preschool. Seeing all the other potty trained kids would probably help her to achieve that other 20%. I would tell the school that she is potty trained but " sometimes " still has an accident here and there. Some schools can be really funny about the " almost " potty trained kids so you should choose your words carefully. Be careful though of putting pull ups on her for school because this gives her an easy out and you don't want her to regress. Just make sure she tries right before school and right when she gets home. She may have an accident in the beginning but I'm sure they're used to that if they deal with 3 year olds. I really think that if she is 80%, the preschool setting will be great for her. Best of luck! in NJ kdr@... Quote Link to comment Share on other sites More sharing options...
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