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Re: Another flare

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Hi All:

I'm sitting here in such pain. Back to the Uro I go to see if it's an UTI. My

entire lip area is red, raw, itching. I know I have no yeast etc. as I just

went to the gyno. The sad thing for me is that all I did was touch the area

that she burnt off the supposedly HPV (on the clitoris or all things) and I

knew as soon as I pulled back my finger I was in trouble. It was like pulling

a band aid off a wound not healed. I pray it's not a bladder infection since

it relapses me for months when I go on an anti. I have CFS. I can't handle

antibs. I just want to scream or cry, but instead I sit in silence hating

myself for touching that area. I had been pain free for about 2 months so

decided to check. LOL, I thought I was cured without any treatment. What was

I thinking??? The clitoris is so close to the urethra pain it's so hard for

me to tell.

Anyway, I had to vent. I realized as I was suffering in silence, that all of

you relate. Thanks for listening. I'm dropping off my urine tom. and starting

the estrace tom. night. I want to come on here in less than 4 months and tell

everyone I can touch that area and even have sex! Lainey

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> I just want to scream or cry, but instead I sit in silence hating

> myself for touching that area. I had been pain free for about 2 months so

> decided to check. LOL, I thought I was cured without any treatment. What was

> I thinking??? The clitoris is so close to the urethra pain it's so hard for

> me to tell.

Don't blame yourself for thinking you might be cured! Wouldn't we all

like this? Its doubtful you caused anything by touching it, it just

means you noticed now as opposed to later that its not healed.

>

> Anyway, I had to vent. I realized as I was suffering in silence, that all of

> you relate. Thanks for listening. I'm dropping off my urine tom. and starting

> the estrace tom. night. I want to come on here in less than 4 months and tell

> everyone I can touch that area and even have sex! Lainey

Wouldn't that be wonderful.

Take care.

====================

Thielke

NuMuse Music

Kensington, MD

ts@...

====================

" Klattu...Burata......Nikto

Klattu...Burata......Nikto

Klattu...Burata......Nikto "

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> I just want to scream or cry, but instead I sit in silence hating

> myself for touching that area. I had been pain free for about 2 months so

> decided to check. LOL, I thought I was cured without any treatment. What was

> I thinking??? The clitoris is so close to the urethra pain it's so hard for

> me to tell.

Don't blame yourself for thinking you might be cured! Wouldn't we all

like this? Its doubtful you caused anything by touching it, it just

means you noticed now as opposed to later that its not healed.

>

> Anyway, I had to vent. I realized as I was suffering in silence, that all of

> you relate. Thanks for listening. I'm dropping off my urine tom. and starting

> the estrace tom. night. I want to come on here in less than 4 months and tell

> everyone I can touch that area and even have sex! Lainey

Wouldn't that be wonderful.

Take care.

====================

Thielke

NuMuse Music

Kensington, MD

ts@...

====================

" Klattu...Burata......Nikto

Klattu...Burata......Nikto

Klattu...Burata......Nikto "

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Guest guest

Me too, A barest touch resulted in agony. Hours later I remembered the

aromatherapy massage oil I'd used hours before, I'd washed my hands but it

must've been that still on my hands even thought there was no smell.

I am in constant pain with Crohns and a bad back but NOTHING is like this

pain -cos of where it is - it totally dominates life.

All I want out of life is never to be in pain.

Re: Another flare

>From: Lainey9911@...

>

>Hi All:

>

>I'm sitting here in such pain. Back to the Uro I go to see if it's an UTI.

My

>entire lip area is red, raw, itching. I know I have no yeast etc. as I just

>went to the gyno. The sad thing for me is that all I did was touch the area

>that she burnt off the supposedly HPV (on the clitoris or all things) and I

>knew as soon as I pulled back my finger I was in trouble. It was like

pulling

>a band aid off a wound not healed. I pray it's not a bladder infection

since

>it relapses me for months when I go on an anti. I have CFS. I can't handle

>antibs. I just want to scream or cry, but instead I sit in silence hating

>myself for touching that area. I had been pain free for about 2 months so

>decided to check. LOL, I thought I was cured without any treatment. What

was

>I thinking??? The clitoris is so close to the urethra pain it's so hard for

>me to tell.

>

>Anyway, I had to vent. I realized as I was suffering in silence, that all

of

>you relate. Thanks for listening. I'm dropping off my urine tom. and

starting

>the estrace tom. night. I want to come on here in less than 4 months and

tell

>everyone I can touch that area and even have sex! Lainey

>

>------------------------------------------------------------------------

>Are you hogging all the fun?

>http://www.ONElist.com

>Friends tell friends about ONElist!

>------------------------------------------------------------------------

>

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Lainey -

So sorry you're having a flare! :( I know how frustrating it can be to

be in such total pain. Pamper yourself while you're going through this.

Have you tried soaking in a bath with just plain water or either hot or

cold compresses? Do you have some medication for the pain? Hopefully

you'll get relief soon!!

So your doctor thought you had a genital wart on your clitoris?? How

did she " burn it off " ? With a laser? YIKES! I can't even imagine

that.

I'm sorry if you already told us about this - I have such a terrible

memory (it's the fibro, they tell me!)

Anyway - you said you're getting checked for a UTI, but you also said

you had red/itchy/rawness around your labia. Do you have urinary

symptoms? I'm just wondering because I didn't think that a UTI would

cause redness, etc. in the labial area. I don't know much about that

area, though.

I'll be thinking about you and hoping to hear you found relief in the

morning!

Good luck and stay strong!!

Heidi

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Hi Lainey,

I hope that you don't have a bladder infection and that you will get back to

that pain free 2 months! I think we all understand and wouldn't want you to

suffer in silence.

Hugs,

Darlene

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Hi Lainey,

I hope that you don't have a bladder infection and that you will get back to

that pain free 2 months! I think we all understand and wouldn't want you to

suffer in silence.

Hugs,

Darlene

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Deep Green: (it that your name for on here?) I hope it doesn't sound rude to

call you that.

I'm sorry you are going through the same thing. I agree, because of the area,

it just makes it so hard. It's also so hard to talk to anyone about it.

That's why this list is so important. THANK YOU HEIDI. I read your post and I

didn't feel so alone, you know? I can relate to the touching after using some

sort of chemical. I wash my hands and am so careful with everything and just

some days, air just flares it. LOL.

Thanks for your post. I did take some Tums and it seemed to help, although

I'm still itchy. Lainey

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Heidi:

Thanks for your post. I took some Tums and they seemed to help the extreme

pain after about 2 or 3 hours. It didn't happen right away.

My gyno thought I had HPV on my clitoris because I was complaining of extreme

itching. I had been going through a real bad bout of yeast infections and

UTI's at the time. She burnt it off with acid, claiming I had white dots

under the vinegar wash. Ever since then I'm totally damaged. I mean there is

no way I can have sex or wear jeans. I went through a real hate period there

for a while. Then I wrote her, sent her all the VV stuff and spoke to her.

She did feel bad, but you know what? This is MY body and I'm left with it.

I'm hoping once the flare dies down and I apply the Estrace I'll improve. I

also got a name of a good Physical Therapist that I'm considering seeing. She

spoke at a VV convention here. Plus I ditched the gyno. I can't stress enough

on this list that if you are any way not happy with your gyno go to another.

I hung onto mine for 10 yrs just because of the comfort zone.

When I get a flare I get the IC symptoms and the VV so I don't know what is

what. I just know 2 different things are happening. The urethra or the

clitoris is killing me (can't tell which one is really hurting) and then I

get the raw/red which is the VV. I did get some relief, although I'm still in

pain and red as ever.

Lainey PS: Just a quick thank you for this list. I'd be so lost without it.

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Lainey (and others who have had negative experiences such as this):

Have you ever considered a malpractice suit?? I'm serious. This sounds

simply horrendous and not very medically sound. Did she do a biopsy on

the white spots she saw under the colposcope or did she just deem them

HPV and burn you? Also - is it normal to burn off HPV areas when there

are no visible genital warts? Wouldn't it have been more medically safe

to 1)biopsy the area, 2)if HPV was detected, consider interferon

injections first, and then 3)consider laser as final resort??

This kind of stuff really gets me angry.

Warmly,

Heidi

----------------------

Lainey wrote:

My gyno thought I had HPV on my clitoris because I was complaining of

extreme itching. I had been going through a real bad bout of yeast

infections and UTI's at the time. She burnt it off with acid, claiming I

had white dots under the vinegar wash. Ever since then I'm totally

damaged. I mean there is no way I can have sex or wear jeans. I went

through a real hate period there for a while. Then I wrote her, sent her

all the VV stuff and spoke to her. She did feel bad, but you know what?

This is MY body and I'm left with it.

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Lainey (and others who have had negative experiences such as this):

Have you ever considered a malpractice suit?? I'm serious. This sounds

simply horrendous and not very medically sound. Did she do a biopsy on

the white spots she saw under the colposcope or did she just deem them

HPV and burn you? Also - is it normal to burn off HPV areas when there

are no visible genital warts? Wouldn't it have been more medically safe

to 1)biopsy the area, 2)if HPV was detected, consider interferon

injections first, and then 3)consider laser as final resort??

This kind of stuff really gets me angry.

Warmly,

Heidi

----------------------

Lainey wrote:

My gyno thought I had HPV on my clitoris because I was complaining of

extreme itching. I had been going through a real bad bout of yeast

infections and UTI's at the time. She burnt it off with acid, claiming I

had white dots under the vinegar wash. Ever since then I'm totally

damaged. I mean there is no way I can have sex or wear jeans. I went

through a real hate period there for a while. Then I wrote her, sent her

all the VV stuff and spoke to her. She did feel bad, but you know what?

This is MY body and I'm left with it.

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Guest guest

Lainey (and others who have had negative experiences such as this):

Have you ever considered a malpractice suit?? I'm serious. This sounds

simply horrendous and not very medically sound. Did she do a biopsy on

the white spots she saw under the colposcope or did she just deem them

HPV and burn you? Also - is it normal to burn off HPV areas when there

are no visible genital warts? Wouldn't it have been more medically safe

to 1)biopsy the area, 2)if HPV was detected, consider interferon

injections first, and then 3)consider laser as final resort??

This kind of stuff really gets me angry.

Warmly,

Heidi

----------------------

Lainey wrote:

My gyno thought I had HPV on my clitoris because I was complaining of

extreme itching. I had been going through a real bad bout of yeast

infections and UTI's at the time. She burnt it off with acid, claiming I

had white dots under the vinegar wash. Ever since then I'm totally

damaged. I mean there is no way I can have sex or wear jeans. I went

through a real hate period there for a while. Then I wrote her, sent her

all the VV stuff and spoke to her. She did feel bad, but you know what?

This is MY body and I'm left with it.

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Sorry, I'm Carole

My pain has lifted today, the relief is beyond words.

Had to have a medical for insurance and the nurse who did it didn't even kow

what the Bartholin glands were or where they were!! When she left she

thanked me for all the help I'd given her - in other words, I filled in the

form for her!!!!! God help us. I KNOW the gynae in two weeks is just going

to fob me off - WHY do these people became doctors???OK, the money is good

but what they have to do for it isn't something I'd do for the salary!!!! My

GP who is a nasty bit of work has a docotr who is training with him for one

morning a week. She is kind and caring - she does whatever I ask, if you are

tactful enough we can self prescribe with a decent GP like her - but I fear

in a few years once in full time practice she will be like all the others.

CAROLE

Re: Another flare

>From: Lainey9911@...

>

>Deep Green: (it that your name for on here?) I hope it doesn't sound rude

to

>call you that.

>

>I'm sorry you are going through the same thing. I agree, because of the

area,

>it just makes it so hard. It's also so hard to talk to anyone about it.

>That's why this list is so important. THANK YOU HEIDI. I read your post and

I

>didn't feel so alone, you know? I can relate to the touching after using

some

>sort of chemical. I wash my hands and am so careful with everything and

just

>some days, air just flares it. LOL.

>

>Thanks for your post. I did take some Tums and it seemed to help, although

>I'm still itchy. Lainey

>

>------------------------------------------------------------------------

>New hobbies? New curiosities? New enthusiasms?

>http://www.ONElist.com

>Sign up for a new e-mail list today!

>------------------------------------------------------------------------

>

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Heidi:

Someone told me it's so hard to do a mal practice suit. Do you know anything

about this? Can you e-mail? I really, really want to sue this doctor as she

has ruined me and I've been suffering for a solid year on top of the VV I've

had for years. She's just made it worse. She saw the white spots, treated me

with the acid and then did a biopsy. Doesn't seem in the right order. Also

she was in a very rushed, witchy mood that day. Told me this would take all

the pain away and for me to make my decision. I was in tears telling her I

just had a cysto last week and I can't keep beating up my body. She didn't

care. She needed me to make my decision so she could get onto her next

patient. It was basically, do you want to have sex again or not. I had just

started a new relationship and I honestly believed she would fix me.If anyone

knows how to go about a mal practice suit let me know. It was a year ago in

May so I don't know if my time is running out?

Thanks for bringing this up Heidi! Lainey

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Heidi:

Someone told me it's so hard to do a mal practice suit. Do you know anything

about this? Can you e-mail? I really, really want to sue this doctor as she

has ruined me and I've been suffering for a solid year on top of the VV I've

had for years. She's just made it worse. She saw the white spots, treated me

with the acid and then did a biopsy. Doesn't seem in the right order. Also

she was in a very rushed, witchy mood that day. Told me this would take all

the pain away and for me to make my decision. I was in tears telling her I

just had a cysto last week and I can't keep beating up my body. She didn't

care. She needed me to make my decision so she could get onto her next

patient. It was basically, do you want to have sex again or not. I had just

started a new relationship and I honestly believed she would fix me.If anyone

knows how to go about a mal practice suit let me know. It was a year ago in

May so I don't know if my time is running out?

Thanks for bringing this up Heidi! Lainey

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Heidi:

Someone told me it's so hard to do a mal practice suit. Do you know anything

about this? Can you e-mail? I really, really want to sue this doctor as she

has ruined me and I've been suffering for a solid year on top of the VV I've

had for years. She's just made it worse. She saw the white spots, treated me

with the acid and then did a biopsy. Doesn't seem in the right order. Also

she was in a very rushed, witchy mood that day. Told me this would take all

the pain away and for me to make my decision. I was in tears telling her I

just had a cysto last week and I can't keep beating up my body. She didn't

care. She needed me to make my decision so she could get onto her next

patient. It was basically, do you want to have sex again or not. I had just

started a new relationship and I honestly believed she would fix me.If anyone

knows how to go about a mal practice suit let me know. It was a year ago in

May so I don't know if my time is running out?

Thanks for bringing this up Heidi! Lainey

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Lainey/all,

It's because of stories like yours that I stay on this list. Lainey, I'm so

sorry this happened to you. One quack I went to lasered me for HPV all

around my vaginal opening, injected my sore spots with alcohol, plus did a

hysterectomy at age 38 for vulvar pain. Since I'm now better, all I hope to

get from this list is the opportunity to steer other women clear of these

invasive, damaging procedures.

The white spots that showed up on you after the vinegar wash could very well

have been yeast. That's exactly what showed up on me after the vinegar wash

except for my problem had been untreated so long that the white spots

actually looked like white veins. Those white spots can be a sign of fungal

overgrowth. And I know what I'm talking about because that's exactly what

it says on my medical report from Dr. Gordon who successfully treated

me.

I used to be a legal secretary, though I didn't work in med mal. However,

the statute of limitations could very well vary from state to state so local

listmembers may be the best source of info for you.

Take care,

Robin

Re: Another flare

From: Lainey9911@...

Heidi:

Thanks for your post. I took some Tums and they seemed to help the extreme

pain after about 2 or 3 hours. It didn't happen right away.

My gyno thought I had HPV on my clitoris because I was complaining of

extreme

itching. I had been going through a real bad bout of yeast infections and

UTI's at the time. She burnt it off with acid, claiming I had white dots

under the vinegar wash. Ever since then I'm totally damaged. I mean there is

no way I can have sex or wear jeans. I went through a real hate period there

for a while. Then I wrote her, sent her all the VV stuff and spoke to her.

She did feel bad, but you know what? This is MY body and I'm left with it.

I'm hoping once the flare dies down and I apply the Estrace I'll improve. I

also got a name of a good Physical Therapist that I'm considering seeing.

She

spoke at a VV convention here. Plus I ditched the gyno. I can't stress

enough

on this list that if you are any way not happy with your gyno go to another.

I hung onto mine for 10 yrs just because of the comfort zone.

When I get a flare I get the IC symptoms and the VV so I don't know what is

what. I just know 2 different things are happening. The urethra or the

clitoris is killing me (can't tell which one is really hurting) and then I

get the raw/red which is the VV. I did get some relief, although I'm still

in

pain and red as ever.

Lainey PS: Just a quick thank you for this list. I'd be so lost without

it.

------------------------------------------------------------------------

Have you visited the new ONElist home page lately?

http://www.ONElist.com

ONElist: The Leading e-mail list and community service on the Internet!

------------------------------------------------------------------------

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Lainey/all,

It's because of stories like yours that I stay on this list. Lainey, I'm so

sorry this happened to you. One quack I went to lasered me for HPV all

around my vaginal opening, injected my sore spots with alcohol, plus did a

hysterectomy at age 38 for vulvar pain. Since I'm now better, all I hope to

get from this list is the opportunity to steer other women clear of these

invasive, damaging procedures.

The white spots that showed up on you after the vinegar wash could very well

have been yeast. That's exactly what showed up on me after the vinegar wash

except for my problem had been untreated so long that the white spots

actually looked like white veins. Those white spots can be a sign of fungal

overgrowth. And I know what I'm talking about because that's exactly what

it says on my medical report from Dr. Gordon who successfully treated

me.

I used to be a legal secretary, though I didn't work in med mal. However,

the statute of limitations could very well vary from state to state so local

listmembers may be the best source of info for you.

Take care,

Robin

Re: Another flare

From: Lainey9911@...

Heidi:

Thanks for your post. I took some Tums and they seemed to help the extreme

pain after about 2 or 3 hours. It didn't happen right away.

My gyno thought I had HPV on my clitoris because I was complaining of

extreme

itching. I had been going through a real bad bout of yeast infections and

UTI's at the time. She burnt it off with acid, claiming I had white dots

under the vinegar wash. Ever since then I'm totally damaged. I mean there is

no way I can have sex or wear jeans. I went through a real hate period there

for a while. Then I wrote her, sent her all the VV stuff and spoke to her.

She did feel bad, but you know what? This is MY body and I'm left with it.

I'm hoping once the flare dies down and I apply the Estrace I'll improve. I

also got a name of a good Physical Therapist that I'm considering seeing.

She

spoke at a VV convention here. Plus I ditched the gyno. I can't stress

enough

on this list that if you are any way not happy with your gyno go to another.

I hung onto mine for 10 yrs just because of the comfort zone.

When I get a flare I get the IC symptoms and the VV so I don't know what is

what. I just know 2 different things are happening. The urethra or the

clitoris is killing me (can't tell which one is really hurting) and then I

get the raw/red which is the VV. I did get some relief, although I'm still

in

pain and red as ever.

Lainey PS: Just a quick thank you for this list. I'd be so lost without

it.

------------------------------------------------------------------------

Have you visited the new ONElist home page lately?

http://www.ONElist.com

ONElist: The Leading e-mail list and community service on the Internet!

------------------------------------------------------------------------

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Lainey/all,

It's because of stories like yours that I stay on this list. Lainey, I'm so

sorry this happened to you. One quack I went to lasered me for HPV all

around my vaginal opening, injected my sore spots with alcohol, plus did a

hysterectomy at age 38 for vulvar pain. Since I'm now better, all I hope to

get from this list is the opportunity to steer other women clear of these

invasive, damaging procedures.

The white spots that showed up on you after the vinegar wash could very well

have been yeast. That's exactly what showed up on me after the vinegar wash

except for my problem had been untreated so long that the white spots

actually looked like white veins. Those white spots can be a sign of fungal

overgrowth. And I know what I'm talking about because that's exactly what

it says on my medical report from Dr. Gordon who successfully treated

me.

I used to be a legal secretary, though I didn't work in med mal. However,

the statute of limitations could very well vary from state to state so local

listmembers may be the best source of info for you.

Take care,

Robin

Re: Another flare

From: Lainey9911@...

Heidi:

Thanks for your post. I took some Tums and they seemed to help the extreme

pain after about 2 or 3 hours. It didn't happen right away.

My gyno thought I had HPV on my clitoris because I was complaining of

extreme

itching. I had been going through a real bad bout of yeast infections and

UTI's at the time. She burnt it off with acid, claiming I had white dots

under the vinegar wash. Ever since then I'm totally damaged. I mean there is

no way I can have sex or wear jeans. I went through a real hate period there

for a while. Then I wrote her, sent her all the VV stuff and spoke to her.

She did feel bad, but you know what? This is MY body and I'm left with it.

I'm hoping once the flare dies down and I apply the Estrace I'll improve. I

also got a name of a good Physical Therapist that I'm considering seeing.

She

spoke at a VV convention here. Plus I ditched the gyno. I can't stress

enough

on this list that if you are any way not happy with your gyno go to another.

I hung onto mine for 10 yrs just because of the comfort zone.

When I get a flare I get the IC symptoms and the VV so I don't know what is

what. I just know 2 different things are happening. The urethra or the

clitoris is killing me (can't tell which one is really hurting) and then I

get the raw/red which is the VV. I did get some relief, although I'm still

in

pain and red as ever.

Lainey PS: Just a quick thank you for this list. I'd be so lost without

it.

------------------------------------------------------------------------

Have you visited the new ONElist home page lately?

http://www.ONElist.com

ONElist: The Leading e-mail list and community service on the Internet!

------------------------------------------------------------------------

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Hi Robin:

I printed out what you said about the white spots and HPV/Yeast. Sometimes we

really do have to follow our gut feeling as women. I had a feeling it wasn't

HPV. I've suffered from yeast since the 80's. This would make sense and to be

left like I am now just breaks my heart.

However, since coming on the list, reading about Estrace and the success, I

have new hope. It's also so wonderful how we all can share and then we don't

feel alone. Knowledge is power as they say.

My next step is to see a Physical Therapist who is very much an advocate for

VV. I would never have learned about PT if it wasn't for people on here.

I told myself if I ever get cured I'd stay on here like you are to encourage

and educate women. I'm glad you're here. Lainey

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Hi Robin:

I printed out what you said about the white spots and HPV/Yeast. Sometimes we

really do have to follow our gut feeling as women. I had a feeling it wasn't

HPV. I've suffered from yeast since the 80's. This would make sense and to be

left like I am now just breaks my heart.

However, since coming on the list, reading about Estrace and the success, I

have new hope. It's also so wonderful how we all can share and then we don't

feel alone. Knowledge is power as they say.

My next step is to see a Physical Therapist who is very much an advocate for

VV. I would never have learned about PT if it wasn't for people on here.

I told myself if I ever get cured I'd stay on here like you are to encourage

and educate women. I'm glad you're here. Lainey

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  • 2 weeks later...
Guest guest

Hi Lainey,

Sorry it's taken me so long to get back to you. I've been really busy here

at work and I've had a lot of messages lately.

I know what you mean about following our gut feeling as women. If I would

have listened to mine, I never would have had my vulva burned with a laser

or had a hysterectomy. It never did make sense to me and I asked my doctor

twice how removing my uterus would help a burning pain in my vulva. It

still makes me angry when I think of what your doctor did to you. I'm

probably feeling some leftover anger about what happened to me also.

I really hope time and the Estrace helps you feel better. I still want to

thrash your doctor though!!!! :)

And I'm glad you're glad I'm here . . .

Take care,

Robin

Re: Another flare

From: Lainey9911@...

Hi Robin:

I printed out what you said about the white spots and HPV/Yeast. Sometimes

we

really do have to follow our gut feeling as women. I had a feeling it wasn't

HPV. I've suffered from yeast since the 80's. This would make sense and to

be

left like I am now just breaks my heart.

However, since coming on the list, reading about Estrace and the success, I

have new hope. It's also so wonderful how we all can share and then we don't

feel alone. Knowledge is power as they say.

My next step is to see a Physical Therapist who is very much an advocate for

VV. I would never have learned about PT if it wasn't for people on here.

I told myself if I ever get cured I'd stay on here like you are to encourage

and educate women. I'm glad you're here. Lainey

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