Re: Vertigo??? Is it a Symptom of TC

[Guest guest]

Have you been scanned to rule out a Chiari malformation?

Kathy

Vertigo??? Is it a Symptom of TC

> Hey guys I have just realized something. It took 9 weeks but hey when my

other symptoms before surgery were so bad you don't think of something you

have been living with for 7 years. & years ago I had my first experience

with Vertigo. It's something to do with your inner ear at least that is what

I was told. I was put on motion sickness medicine and in a few weeks it

settled down at least to an acceptible level I still couldn't watch a video

game or tv or even my daughter on a merry go round. Otherwise my world

started spinning. Over the last 2 years as my other symptoms of TC got worse

so did the Vertigo. I had ask the neurologist about it and she said it

wasn't connected. I am not so sure. It was so bad before surgery that just

going from standing to sitting made the room tilt. Laying down had to be

done very slowly and I had to look at a focal point with eyes wide open to

keep things from spinning. Rolling from one side to another in bed was not

done without the whole room spinning and me having to lift my head to make

it stop. Now here is what has just struck me it is gone!!! I have had no

trouble since surgery. Is it possible that my cord being tethered so tight

set everything in my head off balance? The Docs words were as tight as a

piano string. He didn't know how I was still walking. I know it felt like my

brain was being pulled out of the back of my neck all the time . The tension

was constant in the last year not even position would relieve the pulling up

my spine. So my other question would be have any of you experienced Vertigo?

> On another note can someone tell me what are some of the symptoms of

spinal cord shock? I keep having strange pains up my spine. I was wondering

if it is just things coming back to life? Thanks any input would help. Chris

>

>

[Guest guest]

before my surgery I couldn't walk a straight line my Vertigo was so

bad. If I closed my eyes I would fall over. The room was always spinning.

Since my surgery it has all gone....my world has stop spinning..hahah

Vertigo??? Is it a Symptom of TC

> Hey guys I have just realized something. It took 9 weeks but hey when my

other symptoms before surgery were so bad you don't think of something you

have been living with for 7 years. & years ago I had my first experience

with Vertigo. It's something to do with your inner ear at least that is what

I was told. I was put on motion sickness medicine and in a few weeks it

settled down at least to an acceptible level I still couldn't watch a video

game or tv or even my daughter on a merry go round. Otherwise my world

started spinning. Over the last 2 years as my other symptoms of TC got worse

so did the Vertigo. I had ask the neurologist about it and she said it

wasn't connected. I am not so sure. It was so bad before surgery that just

going from standing to sitting made the room tilt. Laying down had to be

done very slowly and I had to look at a focal point with eyes wide open to

keep things from spinning. Rolling from one side to another in bed was not

done without the whole room spinning and me having to lift my head to make

it stop. Now here is what has just struck me it is gone!!! I have had no

trouble since surgery. Is it possible that my cord being tethered so tight

set everything in my head off balance? The Docs words were as tight as a

piano string. He didn't know how I was still walking. I know it felt like my

brain was being pulled out of the back of my neck all the time . The tension

was constant in the last year not even position would relieve the pulling up

my spine. So my other question would be have any of you experienced Vertigo?

> On another note can someone tell me what are some of the symptoms of

spinal cord shock? I keep having strange pains up my spine. I was wondering

if it is just things coming back to life? Thanks any input would help. Chris

>

>

[Guest guest]

I did have a scan from the neck down right before surgery. I think that is what

they were looking for. They said the scans of my upper spine looked fine. Which

to them meant that it was the tether causing all my problems. Surgery seems to

have decreased my symptoms greatly. I haven't read about this condition what

exactly is it? I know there are others on the list that suffer from it. Does tc

cause this? Chris

Vertigo??? Is it a Symptom of TC

> Hey guys I have just realized something. It took 9 weeks but hey when my

other symptoms before surgery were so bad you don't think of something you

have been living with for 7 years. & years ago I had my first experience

with Vertigo. It's something to do with your inner ear at least that is what

I was told. I was put on motion sickness medicine and in a few weeks it

settled down at least to an acceptible level I still couldn't watch a video

game or tv or even my daughter on a merry go round. Otherwise my world

started spinning. Over the last 2 years as my other symptoms of TC got worse

so did the Vertigo. I had ask the neurologist about it and she said it

wasn't connected. I am not so sure. It was so bad before surgery that just

going from standing to sitting made the room tilt. Laying down had to be

done very slowly and I had to look at a focal point with eyes wide open to

keep things from spinning. Rolling from one side to another in bed was not

done without the whole room spinning and me having to lift my head to make

it stop. Now here is what has just struck me it is gone!!! I have had no

trouble since surgery. Is it possible that my cord being tethered so tight

set everything in my head off balance? The Docs words were as tight as a

piano string. He didn't know how I was still walking. I know it felt like my

brain was being pulled out of the back of my neck all the time . The tension

was constant in the last year not even position would relieve the pulling up

my spine. So my other question would be have any of you experienced Vertigo?

> On another note can someone tell me what are some of the symptoms of

spinal cord shock? I keep having strange pains up my spine. I was wondering

if it is just things coming back to life? Thanks any input would help. Chris

>

>

[Guest guest]

Thanks , I was told this had nothing to do with the TC but I think they were

wrong. I tell you I would walk down my hall and feel like I was on a tilting

ship. I think we may have hit on another symptom of TC that the docs just don't

realize. Chris

Vertigo??? Is it a Symptom of TC

> Hey guys I have just realized something. It took 9 weeks but hey when my

other symptoms before surgery were so bad you don't think of something you

have been living with for 7 years. & years ago I had my first experience

with Vertigo. It's something to do with your inner ear at least that is what

I was told. I was put on motion sickness medicine and in a few weeks it

settled down at least to an acceptible level I still couldn't watch a video

game or tv or even my daughter on a merry go round. Otherwise my world

started spinning. Over the last 2 years as my other symptoms of TC got worse

so did the Vertigo. I had ask the neurologist about it and she said it

wasn't connected. I am not so sure. It was so bad before surgery that just

going from standing to sitting made the room tilt. Laying down had to be

done very slowly and I had to look at a focal point with eyes wide open to

keep things from spinning. Rolling from one side to another in bed was not

done without the whole room spinning and me having to lift my head to make

it stop. Now here is what has just struck me it is gone!!! I have had no

trouble since surgery. Is it possible that my cord being tethered so tight

set everything in my head off balance? The Docs words were as tight as a

piano string. He didn't know how I was still walking. I know it felt like my

brain was being pulled out of the back of my neck all the time . The tension

was constant in the last year not even position would relieve the pulling up

my spine. So my other question would be have any of you experienced Vertigo?

> On another note can someone tell me what are some of the symptoms of

spinal cord shock? I keep having strange pains up my spine. I was wondering

if it is just things coming back to life? Thanks any input would help. Chris

>

>

[Guest guest]

Brande,

I had a cervical spine mri right before my surgery. My original problems were

thought to be from there. They found the syrinx and immediately did a full mri

of the rest of my spine because they thought the problem may be something in my

neck but they never told me exactly what it was called. I think I get it now and

although my lower half is better since surgery over the last few weeks my neck

and shoulders and right arm are getting worse. The nsg group I am with has ten

nsg's at first I went to see the one that specializes in the syrinx neck area

problem but after looking at the MRI's he decided my problems were from the

tethered cord not the syrinx or in my neck area but at that time I was more

concentrating on what my left foot and leg were doing which wasn't good. Do you

think I should call my nsg and speak with him about my neck symptoms? I don't

have another appointment with him till November because when I was there three

weeks ago The neck thing wasn't going on. I'm not having the headaches like

before surgery but my neck and shoulders are real tight. Could this be part of

the spinal cord shock? Or maybe it is something else and now that the tether is

fixed it is rearing it's ugly head. Thanks Chris

Arnold Chiari Malformation.

I do not want to go out on a Limb and actually say that Tethered Cord does

cause Chiari, but I will say that this is something they are looking into.

We all know it does cause quite a bit of pull on Structures above, Tethered

Cord that is.........but is that enough to cause an actual Chiari

Malformation? I don't know for sure.

Just some Information from Brande. I hope it helps.

Me

Nebraska, USA

mymocha@...

> I did have a scan from the neck down right before surgery. I think that is

what they were looking for. They said the scans of my upper spine looked

fine. Which to them meant that it was the tether causing all my problems.

Surgery seems to have decreased my symptoms greatly. I haven't read about

this condition what exactly is it? I know there are others on the list that

suffer from it. Does tc cause this?

[Guest guest]

Brande,

I had a cervical spine mri right before my surgery. My original problems were

thought to be from there. They found the syrinx and immediately did a full mri

of the rest of my spine because they thought the problem may be something in my

neck but they never told me exactly what it was called. I think I get it now and

although my lower half is better since surgery over the last few weeks my neck

and shoulders and right arm are getting worse. The nsg group I am with has ten

nsg's at first I went to see the one that specializes in the syrinx neck area

problem but after looking at the MRI's he decided my problems were from the

tethered cord not the syrinx or in my neck area but at that time I was more

concentrating on what my left foot and leg were doing which wasn't good. Do you

think I should call my nsg and speak with him about my neck symptoms? I don't

have another appointment with him till November because when I was there three

weeks ago The neck thing wasn't going on. I'm not having the headaches like

before surgery but my neck and shoulders are real tight. Could this be part of

the spinal cord shock? Or maybe it is something else and now that the tether is

fixed it is rearing it's ugly head. Thanks Chris

Arnold Chiari Malformation.

I do not want to go out on a Limb and actually say that Tethered Cord does

cause Chiari, but I will say that this is something they are looking into.

We all know it does cause quite a bit of pull on Structures above, Tethered

Cord that is.........but is that enough to cause an actual Chiari

Malformation? I don't know for sure.

Just some Information from Brande. I hope it helps.

Me

Nebraska, USA

mymocha@...

> I did have a scan from the neck down right before surgery. I think that is

what they were looking for. They said the scans of my upper spine looked

fine. Which to them meant that it was the tether causing all my problems.

Surgery seems to have decreased my symptoms greatly. I haven't read about

this condition what exactly is it? I know there are others on the list that

suffer from it. Does tc cause this?

[Guest guest]

Brande,

I had a cervical spine mri right before my surgery. My original problems were

thought to be from there. They found the syrinx and immediately did a full mri

of the rest of my spine because they thought the problem may be something in my

neck but they never told me exactly what it was called. I think I get it now and

although my lower half is better since surgery over the last few weeks my neck

and shoulders and right arm are getting worse. The nsg group I am with has ten

nsg's at first I went to see the one that specializes in the syrinx neck area

problem but after looking at the MRI's he decided my problems were from the

tethered cord not the syrinx or in my neck area but at that time I was more

concentrating on what my left foot and leg were doing which wasn't good. Do you

think I should call my nsg and speak with him about my neck symptoms? I don't

have another appointment with him till November because when I was there three

weeks ago The neck thing wasn't going on. I'm not having the headaches like

before surgery but my neck and shoulders are real tight. Could this be part of

the spinal cord shock? Or maybe it is something else and now that the tether is

fixed it is rearing it's ugly head. Thanks Chris

Arnold Chiari Malformation.

I do not want to go out on a Limb and actually say that Tethered Cord does

cause Chiari, but I will say that this is something they are looking into.

We all know it does cause quite a bit of pull on Structures above, Tethered

Cord that is.........but is that enough to cause an actual Chiari

Malformation? I don't know for sure.

Just some Information from Brande. I hope it helps.

Me

Nebraska, USA

mymocha@...

> I did have a scan from the neck down right before surgery. I think that is

what they were looking for. They said the scans of my upper spine looked

fine. Which to them meant that it was the tether causing all my problems.

Surgery seems to have decreased my symptoms greatly. I haven't read about

this condition what exactly is it? I know there are others on the list that

suffer from it. Does tc cause this?

[Guest guest]

They key is have you had a Brain MRI along with the Cervical one you had?

You said you have had a Cervical MRI, and a Full Spine MRI, but you didn't

mention the Brain.

I didn't realize that you had a Syrinx, that sure could be a possible reason

for your Symptoms.

Also when asking about the results from these MRI's.........it might be a

good idea to ask if your CSF Flow is in some way, maybe not completely,

blocked. Especially in the Cervical and Brain views. Instead of just having

them look for Chiari, as some of us have suggested. By asking them to look

at the Flow it may make them see things differently.

Yes, if these Symptoms are causing you problems, and you want to get a

handle on what is going on, and you feel in your Heart that you know there

is something wrong and something out there that can help you, then if I were

you, I would definately bring it up to your Neurosurgeon.

I really don't know what the Symptoms of Spinal Shock are. I just know you

can have it after this Surgery. And yes, it could be something else.

Hope this helps in some way.

Me

Nebraska, USA

mymocha@...

> I had a cervical spine mri right before my surgery. My original problems

were thought to be from there. They found the syrinx and immediately did a

full mri of the rest of my spine because they thought the problem may be

something in my neck but they never told me exactly what it was called. I

think I get it now and although my lower half is better since surgery over

the last few weeks my neck and shoulders and right arm are getting worse.

The nsg group I am with has ten nsg's at first I went to see the one that

specializes in the syrinx neck area problem but after looking at the MRI's

he decided my problems were from the tethered cord not the syrinx or in my

neck area but at that time I was more concentrating on what my left foot and

leg were doing which wasn't good. Do you think I should call my nsg and

speak with him about my neck symptoms? I don't have another appointment with

him till November because when I was there three weeks ago The neck thing

wasn't going on. I'm not having the headaches like before surgery but my

neck and shoulders are real tight. Could this be part of the spinal cord

shock? Or maybe it is something else and now that the tether is fixed it is

rearing it's ugly head.