Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 Betsy, was never evaluated specifically for cranial nerve dysfunction. We assume it is an issue due to the issues she has combined with it being a characteristic of CHARGE. She has poor swallow function but she has not been trached. I wish I could help here. We are working with therapy and hoping maturation will strengthen her swallow so that someday she will eat by mouth. Right now it is not an option. We have been doing oral motor therapy for about a year and a half. We have been more thorough in the past 6 mos. It has done wonders for her oral sensitivity but we have a ways to go. I posted a message a while back detailing her therapy the best I could on e-mail. I will try to find it if you are interested. E-mail me privately I will forward it to you. If you wanted to call me, again, e-mail me and I'll forward our phone no. Colleen wife to Phil, mom to , the wonder taking a few steps while holding on with only ONE hand!!, 28 mos,ChARGE Ardsley, PA pc1feather@... colleen@... ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
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