RE: Re: Great... now I'm bipolar???

[Guest guest]

Well it is really hard to admit to much less explain, then try to get someone to actually take you seriously. It's not appalling, it's humiliating. I probably wouldn't believe it either if I didn't have it. Not that I am whining here, just saying I think that's part of the reason why is its so freaking mysterious and hasn't really heard of til the days of anonymous message boards...To: Soundsensitivity Sent: Sun, February 13, 2011 7:57:36 PMSubject: Re: Great... now I'm bipolar???

Heidi, I am new here. That has disadvantages ... and advantages. The disadvantage is that I still have a thing or two to learn about your condition - but having literally spent hours upon hours reading through the threads, it gets very repetitious. More of the same heaped on more of the same.The advantage is that I am not in any way shape or form emotionally invested here - either in your condition or in any of you. So I can step back where you cannot. I can both see and say things from a different vantage point than any of you. And that would include Marsha, who incidentally deserves a special place in heaven for her devotion to you.So I hope you will not be offended if I say that it is no wonder that your doctors think you are a little crazy. It's because you sound crazy! You're not crazy, of course, but you sound crazy. I'll tell you what is crazy,

though. You keep repeating the same failed strategy over and over and over again, approaching doctor after doctor individually. And not only do you for some inexplicable reason expect that approach to be successful the next time ... you are "appalled" when it isn't!!!What is it that Einstein once said? "Insanity is doing the same thing over and over again and expecting different results."I think that 's website is a very good idea. Really.'s excellent project aside, I've been a physician for over almost 40 years now, and I've been around the advocacy and research-funding block a time or two. I told you how I thought you should consider going about it - with a coordinated letter-writing campaign (snail-mail, not e-mail) - three letters twice a year for each person in the US (one to his or her representative in Congress, and one to each of his or her senators) and an meaningful targeted

approach to NIH rather than throwing a bunch of stuff up on the wall and seeing what sticks.Or keep doing the same things you've been doing ... and keep being appalled when you don't get results.smn

> > >> > > > > > I find it appalling that professionals do not take the time to find information on the conditions they are treating. > > > Something is wrong here................................... > > > > > > > > > Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCP > > > > > > > > > Telephone 01488-685151/ 686881 > > > > > > > > > info@ > > > > > > www.lastingchanges.co.uk > > > > > > To: Soundsensitivity > > > From: loneleighheart@ > > > Date: Sat, 12 Feb 2011 23:59:36 -0500 > > > Subject: Great... now I'm bipolar??? > > > > > >  > > > > > > > > > I went to go see a new dr last > > > week. I have a major sensitivity to reverse alarms. Never occurred > > > to me that the dr's office was next to the hospital. Hindsight - wish it came a > > > littler earlier. > > > > > > So we're talking and the reverse alarms > > > start from the ambulances I suppose. I get upset. Panicky. Stressed. > > > Stumble over my words. Get confused, can't follow the conversation since I'm > > > being

audibly accosted by these reverse alarms. > > > > > > Dr. starts asking me these off the wall > > > questions - personal questions about my marriage and such - and this was an > > > internist - not a psychologist. I got snippy because 1) of the questions > > > and 2)trying to contend with the noises.... snippy and annoyed - not a good > > > combination apparently. > > > > > > She then suggests that I'm > > > bi-polar. I'm not bi-polar - I'm pretty confident that in the last few > > > decades of seeing people in the mental health community that at some point, I'd > > > have been diagnosed as bipolar if I was bipolar. Seeing me for 10 minutes > > > and diagnosing me as bipolar - um, no. > > > > > > Seems my demeanor and attitude changed > > > without warning when

I was being annoyed by reverse alarms. I could have > > > handled the dr's invasive, nosey questions but couple that with the reverse > > > alarms, I turned into, apparently, a crazy patient. > > > > > > > > > I'm torn between just not going back to > > > that dr (really even if she was a great dr, not sure I'd go back just because of > > > the location - but given that she's an unpleasant person anyway..., maybe it's > > > not a big loss) and 2) writing her a little note and 1)complaining about her > > > invasive questions and 2)suggesting if she has that much interest in psychology, > > > that maybe she should have chosen her specialty a little more wisely. I > > > left there in tears. Tears because of how I was treated and tears because of > > > just the stress of trying to act normal with those

noises but not being able to. > > > I tried to explain my issue (which I didn't feel like I should have had to do, I > > > was there for an issue that had nothing to do with my hearing/ears/mental > > > health. At one point she tilted her head at me the way a dog > > > tilts it's head at you when you say 'wanna go for a walk?'. It was an > > > embarrassing and humiliating experience. The dr's bedside manner was that > > > of an evil troll. It was so hard to talk about my sound issues anyway... with > > > anyone.... but especially while they're occurring and while I'm being > > > looked at like I'm a nut. The appointment just didn't go very well. At > > > all. > > > > > > Anyone else ever have a situation like > > > this - or feel that you get a subpar level of care when you have to fess up >

> > about your auditory issues? > > > > > > Pam> > >> >>

[Guest guest]

I have not. I am based in Australia Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Mon, 14 Feb 2011 02:50:18 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Great... now I'm bipolar??? Appalled, humiliated, call it what you will.The question - from my admittedly cold and totally objective viewpoint -is what are you going to do about it besides being appalled andhumiliated?By the way, I'm still waiting for an answer to an earlier question. Hasanybody here been evaluated by Dr. Jastreboff and - regardless of whathe called your condition - undergone fully whatever treatment protocolhe recommended including follow-up, etc?smn> > > >> > > >> > > > I find it appalling that professionals do not take the time tofind> >information on the conditions they are treating.> >> > > > Something is wrong here...................................> > > >> > > >> > > > Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCP> > > >> > > >> > > > Telephone 01488-685151/ 686881> > > >> > > >> > > > info@> > > >> > > > www.lastingchanges.co.uk> > > >> > > > To: Soundsensitivity > > > > From: loneleighheart@> > > > Date: Sat, 12 Feb 2011 23:59:36 -0500> > > > Subject: Great... now I'm bipolar???> > > >> > > > > > > >> > > >> > > > I went to go see a new dr last> > > > week. I have a major sensitivity to reverse alarms. Neveroccurred> > > > to me that the dr's office was next to the hospital. Hindsight -wish it> >came a> >> > > > littler earlier.> > > >> > > > So we're talking and the reverse alarms> > > > start from the ambulances I suppose. I get upset. Panicky.Stressed.> > > > Stumble over my words. Get confused, can't follow theconversation since> >I'm> >> > > > being audibly accosted by these reverse alarms.> > > >> > > > Dr. starts asking me these off the wall> > > > questions - personal questions about my marriage and such - andthis was an> >> > > > internist - not a psychologist. I got snippy because 1) of thequestions> > > > and 2)trying to contend with the noises.... snippy and annoyed -not a good> >> > > > combination apparently.> > > >> > > > She then suggests that I'm> > > > bi-polar. I'm not bi-polar - I'm pretty confident that in thelast few> > > > decades of seeing people in the mental health community that atsome point,> >I'd> >> > > > have been diagnosed as bipolar if I was bipolar. Seeing me for10 minutes> > > > and diagnosing me as bipolar - um, no.> > > >> > > > Seems my demeanor and attitude changed> > > > without warning when I was being annoyed by reverse alarms. Icould have> > > > handled the dr's invasive, nosey questions but couple that withthe reverse> >> > > > alarms, I turned into, apparently, a crazy patient.> > > >> > > >> > > > I'm torn between just not going back to> > > > that dr (really even if she was a great dr, not sure I'd go backjust> >because of> >> > > > the location - but given that she's an unpleasant personanyway..., maybe> >it's> >> > > > not a big loss) and 2) writing her a little note and1)complaining about> >her> >> > > > invasive questions and 2)suggesting if she has that muchinterest in> >psychology,> >> > > > that maybe she should have chosen her specialty a little morewisely. I> > > > left there in tears. Tears because of how I was treated andtears because> >of> >> > > > just the stress of trying to act normal with those noises butnot being> >able to.> >> > > > I tried to explain my issue (which I didn't feel like I shouldhave had to> >do, I> >> > > > was there for an issue that had nothing to do with myhearing/ears/mental> > > > health. At one point she tilted her head at me the way a dog> > > > tilts it's head at you when you say 'wanna go for a walk?'. Itwas an> > > > embarrassing and humiliating experience. The dr's bedside mannerwas that> > > > of an evil troll. It was so hard to talk about my sound issuesanyway...> >with> >> > > > anyone.... but especially while they're occurring and while I'mbeing> > > > looked at like I'm a nut. The appointment just didn't go verywell. At> > > > all.> > > >> > > > Anyone else ever have a situation like> > > > this - or feel that you get a subpar level of care when you haveto fess up> >> > > > about your auditory issues?> > > >> > > > Pam> > > >> > >> >>

[Guest guest]

I've never been evaluated by Dr. Jastreboff, just Dr. .

-Randall

Appalled, humiliated, call it what you will.

The question - from my admittedly cold and totally

objective viewpoint -

is what are you going to do about it besides being

appalled and

humiliated?

By the way, I'm still waiting for an answer to an earlier

question. Has

anybody here been evaluated by Dr. Jastreboff and -

regardless of what

he called your condition - undergone fully whatever

treatment protocol

he recommended including follow-up, etc?

[Guest guest]

Well my Dr. has died, so first order of business is to find a new one. I don't live anywhere near the Jastreboffs and I have to admit that music protocol did not inspire confidence, cold viewpoint on my part I realize, and what do I know about these things anyway. But I really think I need to continue to go to see a psychiatrist. Btw on a personal level, I do try to do all kinds of self-helpy things for my 4s every day.Love the idea of advocacy, but even getting people to use a public website has been difficult. Not trying to be a whiner here, just stating the facts. But let me just say, I sincerely appreciate your objective viewpoint, suggestions and wealth of information and experience, honestly. We are listening.Marmar is the only one here I have heard mention going to the

Jastreboffs.To: Soundsensitivity Sent: Sun, February 13, 2011 8:50:18 PMSubject: Re: Great... now I'm bipolar???

Appalled, humiliated, call it what you will.

The question - from my admittedly cold and totally objective viewpoint -

is what are you going to do about it besides being appalled and

humiliated?

By the way, I'm still waiting for an answer to an earlier question. Has

anybody here been evaluated by Dr. Jastreboff and - regardless of what

he called your condition - undergone fully whatever treatment protocol

he recommended including follow-up, etc?

smn

> > > >

> > > >

> > > > I find it appalling that professionals do not take the time to

find

> >information on the conditions they are treating.

> >

> > > > Something is wrong here...................................

> > > >

> > > >

> > > > Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCP

> > > >

> > > >

> > > > Telephone 01488-685151/ 686881

> > > >

> > > >

> > > > info@

> > > >

> > > > www.lastingchanges.co.uk

> > > >

> > > > To: Soundsensitivity

> > > > From: loneleighheart@

> > > > Date: Sat, 12 Feb 2011 23:59:36 -0500

> > > > Subject: Great... now I'm bipolar???

> > > >

> > > > 

> > > >

> > > >

> > > > I went to go see a new dr last

> > > > week. I have a major sensitivity to reverse alarms. Never

occurred

> > > > to me that the dr's office was next to the hospital. Hindsight -

wish it

> >came a

> >

> > > > littler earlier.

> > > >

> > > > So we're talking and the reverse alarms

> > > > start from the ambulances I suppose. I get upset. Panicky.

Stressed.

> > > > Stumble over my words. Get confused, can't follow the

conversation since

> >I'm

> >

> > > > being audibly accosted by these reverse alarms.

> > > >

> > > > Dr. starts asking me these off the wall

> > > > questions - personal questions about my marriage and such - and

this was an

> >

> > > > internist - not a psychologist. I got snippy because 1) of the

questions

> > > > and 2)trying to contend with the noises.... snippy and annoyed -

not a good

> >

> > > > combination apparently.

> > > >

> > > > She then suggests that I'm

> > > > bi-polar. I'm not bi-polar - I'm pretty confident that in the

last few

> > > > decades of seeing people in the mental health community that at

some point,

> >I'd

> >

> > > > have been diagnosed as bipolar if I was bipolar. Seeing me for

10 minutes

> > > > and diagnosing me as bipolar - um, no.

> > > >

> > > > Seems my demeanor and attitude changed

> > > > without warning when I was being annoyed by reverse alarms. I

could have

> > > > handled the dr's invasive, nosey questions but couple that with

the reverse

> >

> > > > alarms, I turned into, apparently, a crazy patient.

> > > >

> > > >

> > > > I'm torn between just not going back to

> > > > that dr (really even if she was a great dr, not sure I'd go back

just

> >because of

> >

> > > > the location - but given that she's an unpleasant person

anyway..., maybe

> >it's

> >

> > > > not a big loss) and 2) writing her a little note and

1)complaining about

> >her

> >

> > > > invasive questions and 2)suggesting if she has that much

interest in

> >psychology,

> >

> > > > that maybe she should have chosen her specialty a little more

wisely. I

> > > > left there in tears. Tears because of how I was treated and

tears because

> >of

> >

> > > > just the stress of trying to act normal with those noises but

not being

> >able to.

> >

> > > > I tried to explain my issue (which I didn't feel like I should

have had to

> >do, I

> >

> > > > was there for an issue that had nothing to do with my

hearing/ears/mental

> > > > health. At one point she tilted her head at me the way a dog

> > > > tilts it's head at you when you say 'wanna go for a walk?'. It

was an

> > > > embarrassing and humiliating experience. The dr's bedside manner

was that

> > > > of an evil troll. It was so hard to talk about my sound issues

anyway...

> >with

> >

> > > > anyone.... but especially while they're occurring and while I'm

being

> > > > looked at like I'm a nut. The appointment just didn't go very

well. At

> > > > all.

> > > >

> > > > Anyone else ever have a situation like

> > > > this - or feel that you get a subpar level of care when you have

to fess up

> >

> > > > about your auditory issues?

> > > >

> > > > Pam

> > > >

> > >

> >

>

No need to miss a message. Get email on-the-go with Yahoo! Mail for Mobile. Get started.

[Guest guest]

Where are the Jastreboffs at? I live in the middle of nowhere--medically speaking, anyway.†.:. Mae .:.†

You have not seen Christ, but still you love him. You cannot see him now, but you believe in him. So you are filled with a joy that cannot be explained, a joy full of glory. And you are receiving the goal of your faith -- the salvation of your souls. -1 1:8-9 (NCV)To: Soundsensitivity From: maikaefer38@...Date: Sun, 13 Feb 2011 19:23:10 -0800Subject: Re: Re: Great... now I'm bipolar???

Well my Dr. has died, so first order of business is to find a new one. I don't live anywhere near the Jastreboffs and I have to admit that music protocol did not inspire confidence, cold viewpoint on my part I realize, and what do I know about these things anyway. But I really think I need to continue to go to see a psychiatrist. Btw on a personal level, I do try to do all kinds of self-helpy things for my 4s every day.Love the idea of advocacy, but even getting people to use a public website has been difficult. Not trying to be a whiner here, just stating the facts. But let me just say, I sincerely appreciate your objective viewpoint, suggestions and wealth of information and experience, honestly. We are listening.Marmar is the only one here I have heard mention going to the

Jastreboffs.To: Soundsensitivity Sent: Sun, February 13, 2011 8:50:18 PMSubject: Re: Great... now I'm bipolar???

Appalled, humiliated, call it what you will.

The question - from my admittedly cold and totally objective viewpoint -

is what are you going to do about it besides being appalled and

humiliated?

By the way, I'm still waiting for an answer to an earlier question. Has

anybody here been evaluated by Dr. Jastreboff and - regardless of what

he called your condition - undergone fully whatever treatment protocol

he recommended including follow-up, etc?

smn

> > > >

> > > >

> > > > I find it appalling that professionals do not take the time to

find

> >information on the conditions they are treating.

> >

> > > > Something is wrong here...................................

> > > >

> > > >

> > > > Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCP

> > > >

> > > >

> > > > Telephone 01488-685151/ 686881

> > > >

> > > >

> > > > info@

> > > >

> > > > www.lastingchanges.co.uk

> > > >

> > > > To: Soundsensitivity

> > > > From: loneleighheart@

> > > > Date: Sat, 12 Feb 2011 23:59:36 -0500

> > > > Subject: Great... now I'm bipolar???

> > > >

> > > > 

> > > >

> > > >

> > > > I went to go see a new dr last

> > > > week. I have a major sensitivity to reverse alarms. Never

occurred

> > > > to me that the dr's office was next to the hospital. Hindsight -

wish it

> >came a

> >

> > > > littler earlier.

> > > >

> > > > So we're talking and the reverse alarms

> > > > start from the ambulances I suppose. I get upset. Panicky.

Stressed.

> > > > Stumble over my words. Get confused, can't follow the

conversation since

> >I'm

> >

> > > > being audibly accosted by these reverse alarms.

> > > >

> > > > Dr. starts asking me these off the wall

> > > > questions - personal questions about my marriage and such - and

this was an

> >

> > > > internist - not a psychologist. I got snippy because 1) of the

questions

> > > > and 2)trying to contend with the noises.... snippy and annoyed -

not a good

> >

> > > > combination apparently.

> > > >

> > > > She then suggests that I'm

> > > > bi-polar. I'm not bi-polar - I'm pretty confident that in the

last few

> > > > decades of seeing people in the mental health community that at

some point,

> >I'd

> >

> > > > have been diagnosed as bipolar if I was bipolar. Seeing me for

10 minutes

> > > > and diagnosing me as bipolar - um, no.

> > > >

> > > > Seems my demeanor and attitude changed

> > > > without warning when I was being annoyed by reverse alarms. I

could have

> > > > handled the dr's invasive, nosey questions but couple that with

the reverse

> >

> > > > alarms, I turned into, apparently, a crazy patient.

> > > >

> > > >

> > > > I'm torn between just not going back to

> > > > that dr (really even if she was a great dr, not sure I'd go back

just

> >because of

> >

> > > > the location - but given that she's an unpleasant person

anyway..., maybe

> >it's

> >

> > > > not a big loss) and 2) writing her a little note and

1)complaining about

> >her

> >

> > > > invasive questions and 2)suggesting if she has that much

interest in

> >psychology,

> >

> > > > that maybe she should have chosen her specialty a little more

wisely. I

> > > > left there in tears. Tears because of how I was treated and

tears because

> >of

> >

> > > > just the stress of trying to act normal with those noises but

not being

> >able to.

> >

> > > > I tried to explain my issue (which I didn't feel like I should

have had to

> >do, I

> >

> > > > was there for an issue that had nothing to do with my

hearing/ears/mental

> > > > health. At one point she tilted her head at me the way a dog

> > > > tilts it's head at you when you say 'wanna go for a walk?'. It

was an

> > > > embarrassing and humiliating experience. The dr's bedside manner

was that

> > > > of an evil troll. It was so hard to talk about my sound issues

anyway...

> >with

> >

> > > > anyone.... but especially while they're occurring and while I'm

being

> > > > looked at like I'm a nut. The appointment just didn't go very

well. At

> > > > all.

> > > >

> > > > Anyone else ever have a situation like

> > > > this - or feel that you get a subpar level of care when you have

to fess up

> >

> > > > about your auditory issues?

> > > >

> > > > Pam

> > > >

> > >

> >

>

No need to miss a message. Get email on-the-go with Yahoo! Mail for Mobile. Get started.