Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 I was on 80mg for the first year and tapered the second. I have a list of illness I got from this Autoimmune Disease ( Cronic Illness ) , like many other here have. I was hospitalized after the 2nd year with a Acute Stills attach with Renal failure and was on life support and my family was told I would not make it through the night but I came out of it after a week with diliases and a 2,000 mg Pred shot. Yes 2,000 . I was dieing . Long story . 5 day black out with amnesia and than ICU. This disease can kill in many way's. We just got to be tuff and hang in there . I have heard of people going into remmision and great stories of recovery. >________________________________ > >To: Stillsdisease >Sent: Wednesday, December 28, 2011 1:52 PM >Subject: RE: Eyes & Diabeties > > > >What dose of Pred do you feel does this? > >I've been on 4mg now for about 12 months and have been dropping about .5 per year. Last blood sugar measurement was normal and was always told under 5mg per day is classed as 'side effect free'? > >From: Stillsdisease [mailto:Stillsdisease ] On Behalf Of Palmer >Sent: 28 December 2011 18:43 >To: Stillsdisease >Subject: Re: Eyes & Diabeties > >I got Diabetes after a year off Pred. > > >>________________________________ >>From: " sanford@... <mailto:sanford%40core.com> " <sanford@... <mailto:sanford%40core.com> > >>To: Stillsdisease <mailto:Stillsdisease%40yahoogroups.com> >>Sent: Wednesday, December 28, 2011 7:11 AM >>Subject: Eyes & Diabeties >> >> >> >> >> >>When I was on Pred. I also got Diabetes-type 2. What a life changer that >>was. I also started to develop Cataract in both eyes. This all stopped >>once I was weened off Pred. My Diabetes went bye bye and my Cataract >>stopped developing. I still have it-which doesn't go away. However, it did >>stay in check. Soon I will need surgery to remove it. >>In short, >>Stills didn't cause these problems, just the drugs we take to control it >>have various side affects. >>Sanford >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 I feel I've perhaps been one of the lucky ones. I was very bad at onset, was in intensive care, white blood count up in the 45,000+ and went from about 11 stones to 7.5 in about a week. I'm from the UK but was in Florida at the time and they didn't have a clue what was wrong with. 2 weeks in Manchester and they sorted me out and put me on high doses of Aspirin.. didn't work so 40mg daily (never been higher) and was on them for about 2 years weaning down before going into remission. Then it came back and I was on 40mg for a couple of weeks before weaning down again... lasted about 9 months, then back into remission. 2003 it came back and has been with me ever since, but it's nowhere near as bad. 12.5mx MTX weekly, Sulfasazaline and 4mg Pred per day and most days I'm symptom free. Alcohol can cause flares and so can stress, where I can be pretty bad, but that's once maybe twice a year. Compared to some I think I've been fortunate in that it certainly seems to have been 'hammered down'. One downside is I have a weakening of the spine. The stage between normal and Osteoporosis - no doubt due to the months I was on doses of 20-40mg. From: Stillsdisease [mailto:Stillsdisease ] On Behalf Of Palmer Sent: 29 December 2011 01:15 To: Stillsdisease Subject: Re: Diabeties I was on 80mg for the first year and tapered the second. I have a list of illness I got from this Autoimmune Disease ( Cronic Illness ) , like many other here have. I was hospitalized after the 2nd year with a Acute Stills attach with Renal failure and was on life support and my family was told I would not make it through the night but I came out of it after a week with diliases and a 2,000 mg Pred shot. Yes 2,000 . I was dieing . Long story . 5 day black out with amnesia and than ICU. This disease can kill in many way's. We just got to be tuff and hang in there . I have heard of people going into remmision and great stories of recovery. >________________________________ >From: <stephenclark@... <mailto:stephenclark%40realearners.com> > >To: Stillsdisease <mailto:Stillsdisease%40yahoogroups.com> >Sent: Wednesday, December 28, 2011 1:52 PM >Subject: RE: Eyes & Diabeties > > > >What dose of Pred do you feel does this? > >I've been on 4mg now for about 12 months and have been dropping about .5 per year. Last blood sugar measurement was normal and was always told under 5mg per day is classed as 'side effect free'? > >From: Stillsdisease <mailto:Stillsdisease%40yahoogroups.com> [mailto:Stillsdisease <mailto:Stillsdisease%40yahoogroups.com> ] On Behalf Of Palmer >Sent: 28 December 2011 18:43 >To: Stillsdisease <mailto:Stillsdisease%40yahoogroups.com> >Subject: Re: Eyes & Diabeties > >I got Diabetes after a year off Pred. > > >>________________________________ >>From: " sanford@... <mailto:sanford%40core.com> <mailto:sanford%40core.com> " <sanford@... <mailto:sanford%40core.com> <mailto:sanford%40core.com> > >>To: Stillsdisease <mailto:Stillsdisease%40yahoogroups.com> <mailto:Stillsdisease%40yahoogroups.com> >>Sent: Wednesday, December 28, 2011 7:11 AM >>Subject: Eyes & Diabeties >> >> >> >> >> >>When I was on Pred. I also got Diabetes-type 2. What a life changer that >>was. I also started to develop Cataract in both eyes. This all stopped >>once I was weened off Pred. My Diabetes went bye bye and my Cataract >>stopped developing. I still have it-which doesn't go away. However, it did >>stay in check. Soon I will need surgery to remove it. >>In short, >>Stills didn't cause these problems, just the drugs we take to control it >>have various side affects. >>Sanford >> >> Quote Link to comment Share on other sites More sharing options...
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