LDN/Strep/PANDAs?? HELP!!!!!!!!

[Guest guest]

Hi Everyone,

My dd started LDN in September. Did great with it from the get go. Started at

one line and slowly moved her up to 5 lines by the beginning of Jan. Much

improved stools (almost entirely eliminated diarrhea) and reduced anxiety. Just

generally happy & content.

She got strep in early December and was treated with antibiotics. I don't have

the info here, but I want to say it was Keflex?? Something like that. Little

bit of diarrhea, but not too bad. OK behaviorally.

Then she got strep again 2 weeks ago. Treated with the same antibiotic. Lots

of diarrhea this time. Much worse over past 3-4 days, so I was thinking yeast.

But at the same time puzzled since we are on a major yeast protocol and have

been since November.

Then weird behaviors & very out of sorts yesterday. Moody and on edge in a way

that we haven't seen in forever. Today she completely lost it. Raging, totally

" stuck " on the fact that she didn't want to take a bath, which she usually loves

to do. Screaming 500 times " I DON'T WANT TO TAKE A BATH!!!!!! " She also kept

trying to claw at her face, which we used to see long ago. Kept going even as I

tried to calm her. Just could not reach her. She was totally irrational.

Called my neighbor where dd spent 1/2 hour this afternoon. Asked her if she

noticed anything different, but I did not lead her. First word she used to

describe dd today - obsessive.

So, I just finished reading all of my saved PANDAs posts and I'll be calling our

DAN! tomorrow to get the necessary testing done. Dr. JM, you posted to the LDN

list in the fall about the importance of shoring up the immune system, beyond

any of the more common PANDAs medications like Zithromax or Bicillin Injections.

Would you suggest adding Actos on top of LDN, especially given the

anti-inflammatory properties of Actos? Any other ideas? One parent posted and

suggested IV Glutathione. We have recently bought an HBOT and we were planning

on starting next week. Good idea or not?

Also, we have not chelated yet. I have been on the fence because she is so

close to NT behaviorally/on the surface. I am now thinking I need to get over

my concerns and just get the metals out before her health takes any more blows.

Do we need to wait on that until we get the PANDAs under control, if that's what

we're looking at?

Sorry if I am jumping the gun before we have lab results. I am under the

impression that it is best to jump on PANDAs ASAP.

Thanks in advance for any help,

Dawn

dd - 7 years old

150% GF/CF/Egg Free + Feingold

LDN

MB-12 Injections

TD-NAC

Loads of Supps from a good DAN!