RE: Pruritis.... and fatigue...a question

[Guest guest]

Hi everyone,

I have a few questions about itching a fatigue. My doctors have been fairly

good, but I feel that other people who have " been there, done that " can

better answer these. If my questions are redundant, my apologies.

I have noticed increased itching since it has cooled off. I'm thinking the

sun this summer kept it at bay. At what " stage " did most of you start

experiencing this? I am wondering if it is all in my head -- now that I've

been diagnosed -- or if it is real. Note: I did wake myself up scratching at

about 3 AM the other night. It seems like a traveling itch -- mostly my

legs, bum, feet and shoulders.

Fatigue: I can't tell if it is PSC or lifestyle related. I feel positively

exhausted when my alarm goes off and it takes all my determination to get

out of bed. Once I'm up, I seem to be OK. I am finding that my stamina ain't

what it used to be. Scary thing: I'm only 32. Here are the lifestyle

circumstances: My sister-in-law has been in the hospital since Aug 3. She

had her 12th operation the other day and I'm the closest blood relative that

my brother has. I've been house and dog sitting for him and go over to his

home about 4 times a week to fedd and walk his 2 dogs. It's kind of

humorous: He has a Chesapeake Bay Retriever and a German Shorthaired

Pointer. They weigh about the same I do and when I walk them, it is a bit

like being dragged by a team of wild horses! His neighbors must get a good

laugh when they see me.

The thing is that this feels different from circumstantial tiredness. Even

when I get 8 hours of sleep, I still feel like I need more. Is it in my

head? Am I a hypochondriac? Does the fatigue happen at all stages of the

disease?

thanks for putting up with me;-)

Colleen

[Guest guest]

>Does the fatigue happen at all stages of the disease?

the best I've seen on fatigue is at http://www.liverdisease.com/Fatigue.html

DenverD

I have found that nothing seems to work out the way I usually think it will.

Its always different and usually better.

[Guest guest]

Hmmm - three years ago (before diagnosis) I started having itching in the

fall (shins, shoulders, arms). After about a month I gave up and finally

found a dermatologist that recognized the condition as eczema (extensive

" rough " areas and some open sores). After topical steroid treatment, I was

finally able to control it with lotion/cream (usually). I still have a

mild topical steroid I can apply on " hot " spots.

My itching is typically worse in the winter and better in the summer (seems

to go with humidity). I try to get some sun early in the spring to head it

off. I have not had to go back to the dermatologist since the first

episode.

Note that I do not have the type of itching many of you describe as " under

the skin " - I don't know if it's just not as advanced or if it really is

eczema. At any rate, I am able to control it with lotion and occasionally,

a mild topical steroid.

I do not (yet) have the fatigue many describe (except when I know I've

overdone it). Hope this helps some.

Arne

49 - UC 1977 - PSC 2000

Alive and (mostly) well in Minnesota

-----Original Message-----

From: Garvey, Colleen [sMTP:cgarvey@...]

" I have a few questions about itching a fatigue "

[Guest guest]

If you are itching you are probably in a later stage of the disease and

fatigue seems to be the most common complaint of EVERYONE in the group - at

any stage. What you are experiencing sounds very common in our group.

Peg, wife of Phil(57), UC 30 yrs, dx PSC 12/98, listed 2/2000-status 3, live

in So. Calif.

RE: Pruritis.... and fatigue...a question

>

> Hi everyone,

>

> I have a few questions about itching a fatigue. My doctors have been

fairly

> good, but I feel that other people who have " been there, done that " can

> better answer these. If my questions are redundant, my apologies.

>

> I have noticed increased itching since it has cooled off. I'm thinking the

> sun this summer kept it at bay. At what " stage " did most of you start

> experiencing this? I am wondering if it is all in my head -- now that I've

> been diagnosed -- or if it is real. Note: I did wake myself up scratching

at

> about 3 AM the other night. It seems like a traveling itch -- mostly my

> legs, bum, feet and shoulders.

>

> Fatigue: I can't tell if it is PSC or lifestyle related. I feel positively

> exhausted when my alarm goes off and it takes all my determination to get

> out of bed. Once I'm up, I seem to be OK. I am finding that my stamina

ain't

> what it used to be. Scary thing: I'm only 32. Here are the lifestyle

> circumstances: My sister-in-law has been in the hospital since Aug 3. She

> had her 12th operation the other day and I'm the closest blood relative

that

> my brother has. I've been house and dog sitting for him and go over to his

> home about 4 times a week to fedd and walk his 2 dogs. It's kind of

> humorous: He has a Chesapeake Bay Retriever and a German Shorthaired

> Pointer. They weigh about the same I do and when I walk them, it is a bit

> like being dragged by a team of wild horses! His neighbors must get a good

> laugh when they see me.

>

> The thing is that this feels different from circumstantial tiredness. Even

> when I get 8 hours of sleep, I still feel like I need more. Is it in my

> head? Am I a hypochondriac? Does the fatigue happen at all stages of the

> disease?

>

> thanks for putting up with me;-)

>

> Colleen

>

>

>

>

>

[Guest guest]

>

> The thing is that this feels different from circumstantial tiredness. Even

> when I get 8 hours of sleep, I still feel like I need more. Is it in my

> head? Am I a hypochondriac? Does the fatigue happen at all stages of the

> disease?

No you aren't a hypochondriac. That sounds a lot like how my fatigue

is. In fact I'd say that what determines how tired I am generally has

more to do with how long it's been since I slept than it does with how

much I slept... Of course there are also times when I'm tired not long

after I wake up.

Monday I mentioned to my boss that I was tired even though I got 10

hours of sleep the night before and he said " Too much sleep! " He's

really a nice guy so I didn't get angry with him, but that kind of

attitude is hard to deal with. He knows I have a liver problem, but

he'd rather try to suggest that I'm tired because I slept too much!

That afternoon I fell asleep at my desk several times I was so tired...

probably should have gone home!

athan

[Guest guest]

Denver wrote:

the best I've seen on fatigue is at http://www.liverdisease.com/Fatigue.html

Denver,

Thanks very much for the link. I'll be sure to check it out. I hope that

Mette is doing better today and my thoughts and prayers are with you both.

Regards,

Colleen

[Guest guest]

>He knows I have a liver problem, but

>he'd rather try to suggest that I'm tired because I slept too much!

and athan, I have to guess that he maybe has not read as much about liver

disease as you or I..

maybe you should print out that one pager on fatigue and liver disease and give

him a

copy..

DenverD: husband of Mette (44), UC '73, dx PSC 6/2000

alive in Denmark <www.Texan.dk> Email: OrdSmed@...

[Guest guest]

>He knows I have a liver problem, but

>he'd rather try to suggest that I'm tired because I slept too much!

and athan, I have to guess that he maybe has not read as much about liver

disease as you or I..

maybe you should print out that one pager on fatigue and liver disease and give

him a

copy..

DenverD: husband of Mette (44), UC '73, dx PSC 6/2000

alive in Denmark <www.Texan.dk> Email: OrdSmed@...