Re: hi <fwd>

June 4, 2003

I agree with Brande. My TC was stable between age 12 (last foot

operation) and age 33, when the cord actually deteriorated *really*

quickly. It was due to everyday wear and tear, overstretching, etc etc.

So it is always possible that anyone with a previously stable TC can go

downhill easily, even though they have stopped growing.

I am only 5ft tall, and the cord rose 2 cm after detethering, so lord

knows what dreadful symptoms would have come along if my spine had

grown longer.

Nina

--- Begin Forwarded Message ---

Date: Tue, 3 Jun 2003 21:59:56 -0500

Subject: Re: hi

Sender: Brande

To: tetheredspinalcord <tetheredspinalcord >

Message-ID: <041c01c32a45$61d67320$6501a8c0@Brande>

Even though while a Child is still growing and Growth Spurts often can bring

on Symptoms of a Tethered Cord, that doesn't mean after the person is done

Growing that the problems are done with, in regards to Tethered Cord.

Unfortunately, they have come to realize that Tethered Cord can still, and

often does, show it's ugly Head even after a person is done Growing. So,

while the time around a Growth Spurt is important to watch, it isn't

everything, nor the end of the problem. That's not saying you will have

continued problems for sure, though, you may not. But this is really just to

let you know that there is a possiblity that your problems with Tethered

Cord may not be over with, even though you are done Growing. And then,

Growth Spurts don't bother everybody with Tethered Cord. I didn't have a

problem with them.

Just a cautionary note from Brande.

Me

Nebraska, USA

mymocha@...

The lucky part is that he has already quit growing so they don't expect any

problems post surgery.

Not Medical Advice. We Are Not Doctors.

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