don't ignore fever and pain

October 25, 1999

Quantell was hospitalized last Thursday. He's stable now but still seriously

ill and expected to remain several more days. I've been living there, and

just dashed home after the day's last blood draw to bring in the mail and

newspapers -- and get a shower and clean clothes.

They're treating him for cholangitis, but because he has a VERY complicated

medical history apart from the PSC, (and because all of the hepatologists

were at some conference in Denver and just returned today) they're still

doing rule-outs as well. IBD is a leading contender in the differential

diagnoses. They're doing an MRCP tomorrow morning (on a brand new machine

being installed this week) and anticipate following it up with an ERCP to

dilate the ducts.

Just wanted to take a minute to express my thanks for everyone who's shared

their cholangitis tales and repeat the warnings I've read often on this

list -- DO NOT IGNORE HIGH FEVERS AND ABDOMINAL PAIN.

I waited until the second day. Next time I won't.

This is serious stuff.

Pam (the very tired and even dirtier mom of Quantell, 9, dx 1996)

October 29, 1999

Pam..

I sure hope that by the time you have to read this that Quantell will be

feeling so much better and you won't be soooo tired....Tests, tests and more

tests...what these poor kids go thru...

Keep him smiling because that is one think that I think gets these kids thru

all they have to endure....

Luanne Ty's mom:)

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