Re: zyme prime/peptizyde -- devin and others?

[Guest guest]

A 1/2 capsule with dinner doesn't seem like enough to cause that

reaction, but I would err on the side of caution and stop it for a

few days, then try again. Has she ever done this behavior before and

when? Also, I am hearing of so many sick kids right now, maybe she

really does just have a headache, but I would still be cautious with

the enzymes because I simply could not stand to see my child hitting

his head. If you don't want to stop for a day or two, I would try

even a smaller dose of 1/4 capsule. Maybe someone else can offer you

more advice.

--- In @y..., DeEtte Person <annarebecca85259@y...>

wrote:

> Hello. Haven't posted in awhile, but I'm still around

> and have been reading messages at the site.

>

> At the advice of our DAN doc, we began slowly working

> up on HN Zyme Prime until we're now at 1 capsule/meal.

> We saw an initial wonderful phase with no seizures.

> Some stimming, but not too bad. The " honeymoon phase "

> passed and she began having nightime seizures with

> severe stomach rumbling again. She's been relatively

> stable, so I decided to start the Peptizyde. Devin

> had advised that, since she's on the ketogenic (high

> fat) diet, I might not need the Peptizyde -- but I

> wanted to give it a try since it had been recommended

> by our DAN doc.

>

> She's only had 1/2 capsule with dinner for the past

> two days -- but she's hitting her head a lot and seems

> to have a headache. Am I correct in assuming that if

> there seems to be a regression, than perhaps the

> enzyme is working at clearing stuff out and then maybe

> she does actually need to Peptizyde?

>

> Also, with an extremely high fat diet, should I go up

> more on the Zyme Prime?

>

> I have a gut feeling that the ultimate problem here is

> in her gut/bowels, so I feel that the enzymes could be

> an answer. . .just confused by what I'm seeing here.

>

> Any thoughts?--D

>

> =====

> DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures

greatly reduced) and (, 4), sdale, AZ

>

> " I know God would never give me more than I can handle. . .I just

wish he didn't trust me so much. " -- Mother Theresa

>

> __________________________________________________

>

[Guest guest]

In a message dated 10/23/2001 3:34:13 PM Central Daylight Time,

danaatty@... writes:

> I understand that the more fat in the meal, the more Pep is required.

>

I've been thinking it was ZymePrime that handles fats...

n

[Guest guest]

> She's only had 1/2 capsule with dinner for the past

> two days -- but she's hitting her head a lot and seems

> to have a headache. Am I correct in assuming that if

> there seems to be a regression, than perhaps the

> enzyme is working at clearing stuff out and then maybe

> she does actually need to Peptizyde?

Could be that, or could be a nasty reaction to a low level of gluten

in her diet. I have this sort of reaction with miniscule amounts of

gluten when I also use Pep.

>

> Also, with an extremely high fat diet, should I go up

> more on the Zyme Prime?

I understand that the more fat in the meal, the more Pep is required.

Dana

[Guest guest]

For high fat meals, 2 or 3 Zyme Prime may be needed to handle the

additional triglyderides. I'm also wondering if such a small dose of

Peptizyde would really have that much of an effect? you may want to

try 1 cap with 2 meals per day, see if some resolution occurs.

Devin

--- In @y..., DeEtte Person <annarebecca85259@y...>

wrote:

> Hello. Haven't posted in awhile, but I'm still around

> and have been reading messages at the site.

>

> At the advice of our DAN doc, we began slowly working

> up on HN Zyme Prime until we're now at 1 capsule/meal.

> We saw an initial wonderful phase with no seizures.

> Some stimming, but not too bad. The " honeymoon phase "

> passed and she began having nightime seizures with

> severe stomach rumbling again. She's been relatively

> stable, so I decided to start the Peptizyde. Devin

> had advised that, since she's on the ketogenic (high

> fat) diet, I might not need the Peptizyde -- but I

> wanted to give it a try since it had been recommended

> by our DAN doc.

>

> She's only had 1/2 capsule with dinner for the past

> two days -- but she's hitting her head a lot and seems

> to have a headache. Am I correct in assuming that if

> there seems to be a regression, than perhaps the

> enzyme is working at clearing stuff out and then maybe

> she does actually need to Peptizyde?

>

> Also, with an extremely high fat diet, should I go up

> more on the Zyme Prime?

>

> I have a gut feeling that the ultimate problem here is

> in her gut/bowels, so I feel that the enzymes could be

> an answer. . .just confused by what I'm seeing here.

>

> Any thoughts?--D

>

> =====

> DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures

greatly reduced) and (, 4), sdale, AZ

>

> " I know God would never give me more than I can handle. . .I just

wish he didn't trust me so much. " -- Mother Theresa

>

> __________________________________________________

>

[Guest guest]

Dana -- but on the ketogenic diet, I really don't think gets

much, if any gluten. She basically eats, eggs, chicken, fish,

butter, mayonnaise (made with canola oil), cream, celery, zucchini,

cucumbers, carrots, strawberries, peanut butter and madedemia nuts.

Do any of these sound like gluten culprits?--D

***

Could be that, or could be a nasty reaction to a low level of gluten

in her diet. I have this sort of reaction with miniscule amounts of

gluten when I also use Pep.

[Guest guest]

Devin -- Thanks. I was understanding you to say it was the Zyme

Prime, too. I also remember you saying that perhaps the Peptizyde

wasn't needed. I just wanted to try it because our doc had suggested

it and we see him next week, so I wanted to " report back. " It seems

odd that that small a dose of Peptizyde would induce that reaction --

but is an extremely sensitive child.

When you say 1 cap of Peptizyde with 2 meals per day -- do you mean

split 1/2 with one meal and 1/2 with another -- or 1 cap with 1 meal

and 1 with another?

Since I posted, I've had good news and bad news. . . had a great

day at school (head hitting/headache seems resolved -- and she's

learning cursive!). . .but we also seem headed toward a bad seizure

night. So -- I'm not sure what's happening -- as usual.

Devin -- What would you recommend? Should I drop the Peptizyde for

now and ramp up the Zyme Prime (she's currently taking 1 with each

meal) or go with the above plan to up the Peptizyde?

Appreciate your thoughts!-D

> > Hello. Haven't posted in awhile, but I'm still around

> > and have been reading messages at the site.

> >

> > At the advice of our DAN doc, we began slowly working

> > up on HN Zyme Prime until we're now at 1 capsule/meal.

> > We saw an initial wonderful phase with no seizures.

> > Some stimming, but not too bad. The " honeymoon phase "

> > passed and she began having nightime seizures with

> > severe stomach rumbling again. She's been relatively

> > stable, so I decided to start the Peptizyde. Devin

> > had advised that, since she's on the ketogenic (high

> > fat) diet, I might not need the Peptizyde -- but I

> > wanted to give it a try since it had been recommended

> > by our DAN doc.

> >

> > She's only had 1/2 capsule with dinner for the past

> > two days -- but she's hitting her head a lot and seems

> > to have a headache. Am I correct in assuming that if

> > there seems to be a regression, than perhaps the

> > enzyme is working at clearing stuff out and then maybe

> > she does actually need to Peptizyde?

> >

> > Also, with an extremely high fat diet, should I go up

> > more on the Zyme Prime?

> >

> > I have a gut feeling that the ultimate problem here is

> > in her gut/bowels, so I feel that the enzymes could be

> > an answer. . .just confused by what I'm seeing here.

> >

> > Any thoughts?--D

> >

> > =====

> > DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free,

seizures

> greatly reduced) and (, 4), sdale, AZ

> >

> > " I know God would never give me more than I can handle. . .I just

> wish he didn't trust me so much. " -- Mother Theresa

> >

> > __________________________________________________

> >

[Guest guest]

> Dana -- but on the ketogenic diet, I really don't think gets

> much, if any gluten. She basically eats, eggs, chicken, fish,

> butter, mayonnaise (made with canola oil), cream, celery, zucchini,

> cucumbers, carrots, strawberries, peanut butter and madedemia nuts.

> Do any of these sound like gluten culprits?--D

>

Look at the labels of the mayonnaise and peanut butter items, because

they occasionally do contain gluten products, depending on the

manufacturer.

Also consider any medications, even OTC ones, that you give her.

The cucumbers, strawberries, peanut butter, and nuts would set me off,

in addition to the milk, because of phenol issues. The enzymes help

some kids with phenol issues, but some kids are not helped with

enzymes for their phenol issues.

http://home.pacbell.net/cscomp/phenol.htm

Someone on another message board just posted yesterday that she

believed her child had seizures from casein/milk products.

Dana

[Guest guest]

I was thinking 1 whole cap with a meal, twice a day, say breakfast

and supper.

This is just a suggestion, you should trust your instincts on this.

Devin

> > > Hello. Haven't posted in awhile, but I'm still around

> > > and have been reading messages at the site.

> > >

> > > At the advice of our DAN doc, we began slowly working

> > > up on HN Zyme Prime until we're now at 1 capsule/meal.

> > > We saw an initial wonderful phase with no seizures.

> > > Some stimming, but not too bad. The " honeymoon phase "

> > > passed and she began having nightime seizures with

> > > severe stomach rumbling again. She's been relatively

> > > stable, so I decided to start the Peptizyde. Devin

> > > had advised that, since she's on the ketogenic (high

> > > fat) diet, I might not need the Peptizyde -- but I

> > > wanted to give it a try since it had been recommended

> > > by our DAN doc.

> > >

> > > She's only had 1/2 capsule with dinner for the past

> > > two days -- but she's hitting her head a lot and seems

> > > to have a headache. Am I correct in assuming that if

> > > there seems to be a regression, than perhaps the

> > > enzyme is working at clearing stuff out and then maybe

> > > she does actually need to Peptizyde?

> > >

> > > Also, with an extremely high fat diet, should I go up

> > > more on the Zyme Prime?

> > >

> > > I have a gut feeling that the ultimate problem here is

> > > in her gut/bowels, so I feel that the enzymes could be

> > > an answer. . .just confused by what I'm seeing here.

> > >

> > > Any thoughts?--D

> > >

> > > =====

> > > DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free,

> seizures

> > greatly reduced) and (, 4), sdale, AZ

> > >

> > > " I know God would never give me more than I can handle. . .I

just

> > wish he didn't trust me so much. " -- Mother Theresa

> > >

> > > __________________________________________________

> > >