Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 > PSC Survey >Age at dx and now:20 at Dx, 22 now >What year was dx?1998 >>Area of world you live in: USA, Ohio >>What PSC symptoms have you had? Frequent Cholangitis infections, fatigue, severe nausea, arthritic symptoms, vericose veins covering body. >Had you had any symptoms prior to diagnosis or was dx found due to being >treated for another problem?Jaundice prompted me to have bloodwork drawn, I thought that it was Epstein-barre again (I had turned jaundice 2 years prior, and was dx with epstein-barre, and mono.) > >Have you in the past or do you now have any bowel disorder? It's believed that I have IBD. >Any other autoimmune disorders? No >What medicines are you taking currently? 250mg Cipro QD, Temazepam (for sleep) QD, multi vitamin. >What medicines have you taken in the past but not now? Several different antibiotics, Phenergan, Zofran, Compezine, Propulsid, Reglan, URSO, Actigall. Why were they discontinued? Mainly because of side effects. >Are you now or have you been in a clinical trial? What is the trial? No >How do you feel about being part of a trial? Side effects would need to be minimal. > Are you on a liver transplant list? How long? Status? Not on the list, being evaluated through the University of Cincinnati, due to frequent Cholangitis infections. Quote Link to comment Share on other sites More sharing options...
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