Guest guest Posted November 22, 1999 Report Share Posted November 22, 1999 Hi Rosie :-) It's so nice to hear from you. I'm Peg another spouse of a PSCer. We have our own set of needs and this group definately addresses them. If you want information to understand what is going on with Dan you'll get more here than you'll ever get from the doctors. (Course Dan is one of our more knowlegeable people). If you need emotional support and love this is the place. If you want to know where to get Yankee candles you can find that here and there are many of the members that enlist outsiders in prayers and candles and other means of support. Glad you have decided to join us. Peg (54) wife of PSCer Phil (56) working toward getting listed. Rosie Bertles wrote: > Hi, to all of you. I am Rosie (Dan Bertles' wife). I have heard great things about you all, and decided it was time to join the family. Any advice to the new kid on the block? > __________________________________________ > NetZero - Defenders of the Free World > Get your FREE Internet Access and Email at > http://www.netzero.net/download/index.html > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > http://clickhere./click/1702 > > -- Create a poll/survey for your group! > -- /vote?listnameÿc-support & mÿ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 1999 Report Share Posted November 22, 1999 Thanks Peg for the warm words. What are Yankee candles? I saw them listed somewhere on the website and have not heard of them. I think at this point in time I am wondering about the day to day effects of the disease in its early stages and trying to separate regular life from liver disease impact. Any ideas? ---------- From: Peggy Alfeld Sent: Monday, November 22, 1999 8:20 AM To: egroups Subject: Re: Hi Rosie Hi Rosie :-) It's so nice to hear from you. I'm Peg another spouse of a PSCer. We have our own set of needs and this group definately addresses them. If you want information to understand what is going on with Dan you'll get more here than you'll ever get from the doctors. (Course Dan is one of our more knowlegeable people). If you need emotional support and love this is the place. If you want to know where to get Yankee candles you can find that here and there are many of the members that enlist outsiders in prayers and candles and other means of support. Glad you have decided to join us. Peg (54) wife of PSCer Phil (56) working toward getting listed. Rosie Bertles wrote: > Hi, to all of you. I am Rosie (Dan Bertles' wife). I have heard great things about you all, and decided it was time to join the family. Any advice to the new kid on the block? > __________________________________________ > NetZero - Defenders of the Free World > Get your FREE Internet Access and Email at > http://www.netzero.net/download/index.html > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > http://clickhere./click/1702 > > -- Create a poll/survey for your group! > -- /vote?listnameÿc-support & mÿ ------------------------------------------------------------------------ Accurate impartial advice on everything from laptops to tablesaws. http://clickhere./click/1701 -- Check out your group's private Chat room -- /ChatPage?listName= & m=1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 1999 Report Share Posted November 23, 1999 Thanks for catching me up on what life has been like for you this year. I am hoping we are far from transplant time, but trust the Lord for that time. I remember when Dan was diagnosed with UC, my daughter was only two and I thought for sure I was going to lose him. I have learned a lot of faith since then. Rosie ---------- From: Peggy Alfeld Sent: Tuesday, November 23, 1999 8:49 AM To: egroups Subject: Re: Hi Rosie Rosie, Yankee candles are candles that are in a glass jar and come in a new scent each month. Our people on the east coast light them for people having troubles or for the whole group in general. We have found out that they have stores everywhere, infact there is one in Northridge. I've found that having a lot of knowledge about this disease has helped me and talking with the others in the group have helped. I always go with Phil to his liver doctor and next Tuesday we find out if Phil has been recommended by the Kaiser tx group to be forwarded to UCLA to get on the transplant list. We are not ready to go through the transplant process yet but hope that he can get on the list so that if he gets bad enough to need a transplant he'll have served his time. We spendt most of the Christmas and New Years holidays in the hospital last year and that was when Phil was diagnosed. He's had UC for about 30 years. He had lost his job just before Thanksgiving so finding one at 56 years old and with this illness was not very likely so he went on disability. He has just about exhausted his state disability but got ss disability that started in May, you have to be disabled for 5 months. Since my salary and his ss disability is not enough for us to live on we are starting a business where he can control the time he works. His main symptom is fatique. He also gets pain between his shoulders that runs up his neck and has to take pain pills for that. He had 3 more cholangitis attacks within the first 3 months of last year but has been infection free for 8 months today. You will find that you'll probably click with someone in the group and form a real special relationship as I have with Jacquelyn and Penny. Penny is my kitty friend. As far as coping. Our relationship with God and the support of our friends and church family and of course this group have helped us cope and live with some peace about it. We try to take one day at a time and Phil is very involved in volunteer service. We square dance so that helps to keep us physically active and we are up for President of our square dance association (we're V.P.) now. I worry that Phil is taking on too much but he's an intelligent man that needs the mental stimulation (taking care of the house, cooking and shopping doesn't fill that need - don't we know that). I am the family worrier Phil is gracious enough to leave that up to me. Well I guess I've blabbed on enough. Oh by the way, we live in the Santa Clarita Valley just north of the San Valley. Maybe the 4 of us could get together sometime. We definately will contact you the next time we go up to Big Bear (which is usually only about once a year). Prayer, this support group, opening talking about how you feel are the best advice I can give you. Peg wife of Phil Rosie Bertles wrote: > Thanks Peg for the warm words. What are Yankee candles? I saw them listed somewhere on the website and have not heard of them. I think at this point in time I am wondering about the day to day effects of the disease in its early stages and trying to separate regular life from liver disease impact. Any ideas? > ---------- > From: Peggy Alfeld > Sent: Monday, November 22, 1999 8:20 AM > To: egroups > Subject: Re: Hi Rosie > > Hi Rosie :-) It's so nice to hear from you. I'm Peg another spouse of a PSCer. We have our own set of needs and this group definately addresses them. If you want information to > understand what is going on with Dan you'll get more here than you'll ever get from the doctors. (Course Dan is one of our more knowlegeable people). If you need emotional support > and love this is the place. If you want to know where to get Yankee candles you can find that here and there are many of the members that enlist outsiders in prayers and candles and > other means of support. Glad you have decided to join us. > Peg (54) wife of PSCer Phil (56) working toward getting listed. > > Rosie Bertles wrote: > > > Hi, to all of you. I am Rosie (Dan Bertles' wife). I have heard great things about you all, and decided it was time to join the family. Any advice to the new kid on the block? > > __________________________________________ > > NetZero - Defenders of the Free World > > Get your FREE Internet Access and Email at > > http://www.netzero.net/download/index.html > > > > ------------------------------------------------------------------------ > > Was the salesman clueless? Productopia has the answers. > > http://clickhere./click/1702 > > > > -- Create a poll/survey for your group! > > -- /vote?listnameÿc-support & mÿ > > ------------------------------------------------------------------------ > Accurate impartial advice on everything from laptops to tablesaws. > http://clickhere./click/1701 > > -- Check out your group's private Chat room > -- /ChatPage?listName= & m=1 > > ------------------------------------------------------------------------ > A shopper's dream come true! Find practically anything on earth at eBay! > Come and browse the more than 2 million items up for bid at any time. > You never know what you might find at eBay! > http://clickhere./click/1140 > > -- 20 megs of disk space in your group's Document Vault > -- /docvault//?m=1 > > ------------------------------------------------------------------------ > > Part 1.2 Type: application/ms-tnef > Encoding: base64 ------------------------------------------------------------------------ A shopper's dream come true! Find practically anything on earth at eBay! Come and browse the more than 2 million items up for bid at any time. You never know what you might find at eBay! http://clickhere./click/1140 -- Create a poll/survey for your group! -- /vote?listname= & m=1 Quote Link to comment Share on other sites More sharing options...
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