Re: Meeting with tx team/living donor option

[Guest guest]

,

I'm so glad that the donors are working out. It is so good to have that option.

I

hope that you can get a cadaver liver but since you would have to get much

sicker to

get it I have mixed feelings. It is special to have such friends.

Peg

Walderich wrote:

> Hi, all,

>

> I am behind on reading posts. Give me a bit to catch up.

>

> Friday I met with the transplant team at New England Med. Dr. Freeman talked

to

> the three who have said they wanted to consider the living donor option. He

> gave a balanced, well-informed talk about the option, and he also answered any

> questions we had.

>

> I have asked one of the candidates to drop out of consideration because she

has

> health problems that only recently surfaced. Of the two remaining candidates,

> one just e-mailed me, and she's feeling that she can commit to going to the

> second step (getting the okay from her pcp to continue with the process). I

> have yet to hear from the third potential candidate (since the meeting),

> although he was going on to Connecticut to visit his son & daughter-in-law and

> is probably only now returning home.

>

> If either of the two remaining potential donors work out, the earliest the

> transplant would be considered is mid-February because New England Med wants

the

> donors to have time to think over their decision before the surgical

procedure.

>

> I have to say I was impressed by the ethics of New England Med, and with their

> respect for the donors. It was a good experience, and I am much more settled

> about the process. I know I continue to get closer to the top of the list,

but

> who knows when I will get there. Meanwhile, it seems okay to continue to

pursue

> this option. I cannot believe how grateful I am for the love of these amazing

> people. That they would put themselves through this ordeal for me is truly a

> blessing.

>

> Well, I just had to share the experience. I'll post more on it as I go

through

> the process.

>

> Take care,

>

> in NH (dx.'85; listed 3/98)

>

> ------------------------------------------------------------------------

> A shopper’s dream come true! Find practically anything on earth at eBay!

> Come and browse the more than 2 million items up for bid at any time.

> You never know what you might find at eBay!

> http://clickhere./click/1140

>

> -- Easily schedule meetings and events using the group calendar!

> -- /cal?listname= & m=1

[Guest guest]

Thanks so much, Gracie, and good luck with the living donor option. I hope

Ed can be open minded about the possibility of it. Keep in touch, and let

me know what you find out as you go through this process.

Dr. Lee called me on Monday. She missed the meeting because she had to do

procedures at the endoscopy suite. She thought it was a good idea that I

had both options to consider (cadavorous & living donor). Meanwhile, I get

blood tests next week and go in for an ERCP on 12/8. That's my next NEMC

visit.

Are you planning to go to the pre-tx support group meeting in Dec.? If so,

maybe I can see you there.

krooner1@... wrote:

> Hi !

>

> We have spoken with Dr. Freeman also, and, in January we'll meet with

> him to talk about considering me as a donor for Ed. I like him, he

> seems very patient and easy to talk to.

>

> I'm so happy that your meeting went well and that there's a date

> somewhere soon. I'll be praying everything goes well.

>

> Gracie

>

> ------------------------------------------------------------------------

> A shopper’s dream come true! Find practically anything on earth at eBay!

> Come and browse the more than 2 million items up for bid at any time.

> You never know what you might find at eBay!

> http://clickhere./click/1140

>

> -- 20 megs of disk space in your group's Document Vault

> -- /docvault//?m=1

[Guest guest]

Thanks so much, Gracie, and good luck with the living donor option. I hope

Ed can be open minded about the possibility of it. Keep in touch, and let

me know what you find out as you go through this process.

Dr. Lee called me on Monday. She missed the meeting because she had to do

procedures at the endoscopy suite. She thought it was a good idea that I

had both options to consider (cadavorous & living donor). Meanwhile, I get

blood tests next week and go in for an ERCP on 12/8. That's my next NEMC

visit.

Are you planning to go to the pre-tx support group meeting in Dec.? If so,

maybe I can see you there.

krooner1@... wrote:

> Hi !

>

> We have spoken with Dr. Freeman also, and, in January we'll meet with

> him to talk about considering me as a donor for Ed. I like him, he

> seems very patient and easy to talk to.

>

> I'm so happy that your meeting went well and that there's a date

> somewhere soon. I'll be praying everything goes well.

>

> Gracie

>

> ------------------------------------------------------------------------

> A shopper’s dream come true! Find practically anything on earth at eBay!

> Come and browse the more than 2 million items up for bid at any time.

> You never know what you might find at eBay!

> http://clickhere./click/1140

>

> -- 20 megs of disk space in your group's Document Vault

> -- /docvault//?m=1

[Guest guest]

,

I didn't know about the meeting but I'd love to meet you. Let me know

when and where.

Gracie

[Guest guest]

,

I didn't know about the meeting but I'd love to meet you. Let me know

when and where.

Gracie

[Guest guest]

Gracie,

Check with DiNapoli. He's the MSW on the transplant team. The

meetings are held on the first Tuesday of each month at 6 p.m. If you and

Ed are meeting with Dr. Freeman, I'm sure will invite you to this

meeting.

Gracie and Ed Reynolds wrote:

> ,

>

> I didn't know about the meeting but I'd love to meet you. Let me know

> when and where.

>

> Gracie

>

> ------------------------------------------------------------------------

> A shopper’s dream come true! Find practically anything on earth at eBay!

> Come and browse the more than 2 million items up for bid at any time.

> You never know what you might find at eBay!

> http://clickhere./click/1140

>

> -- 20 megs of disk space in your group's Document Vault

> -- /docvault//?m=1

[Guest guest]

Gracie,

Check with DiNapoli. He's the MSW on the transplant team. The

meetings are held on the first Tuesday of each month at 6 p.m. If you and

Ed are meeting with Dr. Freeman, I'm sure will invite you to this

meeting.

Gracie and Ed Reynolds wrote:

> ,

>

> I didn't know about the meeting but I'd love to meet you. Let me know

> when and where.

>

> Gracie

>

> ------------------------------------------------------------------------

> A shopper’s dream come true! Find practically anything on earth at eBay!

> Come and browse the more than 2 million items up for bid at any time.

> You never know what you might find at eBay!

> http://clickhere./click/1140

>

> -- 20 megs of disk space in your group's Document Vault

> -- /docvault//?m=1

[Guest guest]

Hi !

I am always so delighted when someone else is behind in email. I haven't

logged on in a couple weeks (my, how time flies!) and I can't get my email

program (Outlook Express) to retrieve mail from my server. I called the

server to see if they could fix the problem and they said that it might be

because I have over 2600 emails sitting on the server! So, I may end up

having to ask the server to dump all of them just to see if my mail program

will work. So I'm diligently trying to weed through the last two weeks of

mail that I haven't read yet and then I'll do the dump and start all over.

Apologies to anybody who doesn't hear from me when they expected to. I tend

to talk in circles anyway so I suppose it will all come out in the end.

Anyway, it sounds like you are moving forward one step at a time and feeling

pretty good about it. I have to commend you on your positive attitude. I

am going through such a depression lately, and I'm not even sick.

I have some questions about the whole living donor transplant thing. On the

insurance end of things, does insurance always or ever pay for all the

testing and qualifying of the donor? Is it the recipient's insurance that

has to cover or the donor's? And last but not least, - this is a wild one -

theoretically, if I want to donate part of my liver now, will it regenerate

to the point that I can donate part of it again in ten to 15 years? If my

health is good and I qualify as a donor, is my recovery relatively short and

sweet?

Don't answer me for a few days yet. I want to make sure I get my email

retrieving sorted out and working before you reply. Otherwise I may not get

it and I'll wind up repeating myself!

Now of course, I'm not the one suffering through all the symptoms and

complications, but February doesn't sound so far off. Can you almost feel

excited about the up coming event??? I can't imagine what you are

thinking...nervous? scared? excited? relieved? Oh, I just want so much

for everything to fall into place for you. It's so uplifting to hear from

you and see how at peace you seem with the whole thing. What about if you

don't do a live donor tx - can the doctors give you any kind of idea at all

how soon you might be able to receive a tx? I know it depends on a lot of

stuff, but do they get a general notion for the timing of things in their

hospital area? Is there such a thing a an average waiting time or is it

just way too dependent on individual circumstances?

I see Biddy has found it necessary to leave the list. Is anybody keeping in

touch with her or her husband? I hope we won't lose contact with her. My

candles are lit and I'm praying for her and for you and for everyone here.

Take care, .

Hugs,

Meeting with tx team/living donor option

> Hi, all,

>

> I am behind on reading posts. Give me a bit to catch up.

>

> Friday I met with the transplant team at New England Med. Dr. Freeman

talked to

> the three who have said they wanted to consider the living donor option.

He

> gave a balanced, well-informed talk about the option, and he also answered

any

> questions we had.

>

> I have asked one of the candidates to drop out of consideration because

she has

> health problems that only recently surfaced. Of the two remaining

candidates,

> one just e-mailed me, and she's feeling that she can commit to going to

the

> second step (getting the okay from her pcp to continue with the process).

I

> have yet to hear from the third potential candidate (since the meeting),

> although he was going on to Connecticut to visit his son & daughter-in-law

and

> is probably only now returning home.

>

> If either of the two remaining potential donors work out, the earliest the

> transplant would be considered is mid-February because New England Med

wants the

> donors to have time to think over their decision before the surgical

procedure.

>

> I have to say I was impressed by the ethics of New England Med, and with

their

> respect for the donors. It was a good experience, and I am much more

settled

> about the process. I know I continue to get closer to the top of the

list, but

> who knows when I will get there. Meanwhile, it seems okay to continue to

pursue

> this option. I cannot believe how grateful I am for the love of these

amazing

> people. That they would put themselves through this ordeal for me is

truly a

> blessing.

>

> Well, I just had to share the experience. I'll post more on it as I go

through

> the process.

>

> Take care,

>

> in NH (dx.'85; listed 3/98)

>

>

>

>

>

> ------------------------------------------------------------------------

> A shopper's dream come true! Find practically anything on earth at eBay!

> Come and browse the more than 2 million items up for bid at any time.

> You never know what you might find at eBay!

> http://clickhere./click/1140

>

> -- Easily schedule meetings and events using the group calendar!

> -- /cal?listname= & m=1

>

>