Re: Chronic Gastroenteritis

[Guest guest]

Hi.. I am a huge fan of VSL3 (I think we were the first to try it

for oxalate issues when Owens brought it to our attention) BUT

it is not guaranteed casein free (like some others like Culturelle

which many use but wanted to be sure that was clear). It has been

incredible for my son but it was NOT created for ASD children and

thus has additives in it that some do not tolerate. That said, other

than Primal Defense in HUGE doses, it is the best thing that ever

happened to my gut kid-along with the low oxalate diet that is.

As with all things I'd just go low and slow.. at higher doses it can

trigger diarrhea in some folks. It is VERY potent.. 450,000 vs

25,000 for instance with I think Klaire's Ther Biotic Complete (high

quality product also). It takes a TINY amt in most cases.. my son

whose gut is almost healed I hope takes 1/4 t BID now and more than

that creates diarrhea... less creates diarrhea.. it's a matter of

finding the right dose but it will likely be a very low dose for our

kids.

Best of luck!

> >

> > Hello,

> > My 26 month old son (dx'd HF ASD at 24 mos) has had chronic

acute

> > gastroenteritis since he was about 6 months old. His ASD

started

> with severe reaction

> > to Dipt at 2 months followed by wild chicken pox at 4 mos - then

> neurological

> > symptoms (Sandifer's syndrome) began. In spite of his severely

> aversive

> > feeding pattern he has maintained excellent weight and growth

patterns

> > throughout his life.

> >

> > The gastroenteritis has occured numerous times and is almost

always

> > activated by a stressfull event. Most recently the introduction

of

> a Multvitamin

> > activated the gastroenterits (can I call this GE?, don't like

> writing it out...)

> > He has been hospitalised for dehydration from the GE on several

> occasions,

> > the only treatment being IV fluids, IV nutrition and

suppositories

> to control

> > fever. His paed insists that his infections are from wild

exposure

> and are

> > not unusual. (ARGH!!!) He is on a high dose of a PPI and

Gaviscon

> for GERD.

> > He drinks about 8 bottles of infant formula a day. (Yes, we are

> working on

> > this, believe me.)

> >

> > We are scheduled to see a DAN practitioner in Sept but wondering

if

> I may

> > look into Oral Immunoglobulin given that it is indicated for the

> recovery of

> > acute GE (as noted in the CSB). Would this be putting the cart

> before the

> > horse? I understand that we need to get his diet,

supplementation,

> etc sorted

> > out first and perhaps the immunity concerns might abate but we

are

> tired of

> > catching the GE from him and this last round of it was pretty

> awful. His

> > regression was fierce. There are times when all 3 of us have

fever,

> vomiting and

> > diahrreah. It's a pretty dire situation!

> >

> > He's been on Bio-Kult for about a month. I just transitioned

him to

> > Ther-Biotics complete two days ago. His stools definitely showed

> signs of

> > improvement with the probiotics.

> >

> > Any advice welcome.

> >

> > Many thanks,

> > Darla

> > London

> > DH Boban

> > DS 2 years and 1 month

> >

> >

> >

[Guest guest]

Our Therbiotic says 25 + billion CFU?

> > >

> > > Hello,

> > > My 26 month old son (dx'd HF ASD at 24 mos) has had chronic

> acute

> > > gastroenteritis since he was about 6 months old. His ASD

> started

> > with severe reaction

> > > to Dipt at 2 months followed by wild chicken pox at 4 mos -

then

> > neurological

> > > symptoms (Sandifer's syndrome) began. In spite of his

severely

> > aversive

> > > feeding pattern he has maintained excellent weight and growth

> patterns

> > > throughout his life.

> > >

> > > The gastroenteritis has occured numerous times and is almost

> always

> > > activated by a stressfull event. Most recently the

introduction

> of

> > a Multvitamin

> > > activated the gastroenterits (can I call this GE?, don't like

> > writing it out...)

> > > He has been hospitalised for dehydration from the GE on

several

> > occasions,

> > > the only treatment being IV fluids, IV nutrition and

> suppositories

> > to control

> > > fever. His paed insists that his infections are from wild

> exposure

> > and are

> > > not unusual. (ARGH!!!) He is on a high dose of a PPI and

> Gaviscon

> > for GERD.

> > > He drinks about 8 bottles of infant formula a day. (Yes, we

are

> > working on

> > > this, believe me.)

> > >

> > > We are scheduled to see a DAN practitioner in Sept but

wondering

> if

> > I may

> > > look into Oral Immunoglobulin given that it is indicated for

the

> > recovery of

> > > acute GE (as noted in the CSB). Would this be putting the cart

> > before the

> > > horse? I understand that we need to get his diet,

> supplementation,

> > etc sorted

> > > out first and perhaps the immunity concerns might abate but we

> are

> > tired of

> > > catching the GE from him and this last round of it was pretty

> > awful. His

> > > regression was fierce. There are times when all 3 of us have

> fever,

> > vomiting and

> > > diahrreah. It's a pretty dire situation!

> > >

> > > He's been on Bio-Kult for about a month. I just transitioned

> him to

> > > Ther-Biotics complete two days ago. His stools definitely

showed

> > signs of

> > > improvement with the probiotics.

> > >

> > > Any advice welcome.

> > >

> > > Many thanks,

> > > Darla

> > > London

> > > DH Boban

> > > DS 2 years and 1 month

> > >

> > >

> > >

[Guest guest]

Doesn't Gaviscon have aluminum? You might want to check.

HTH,

Marie

>

> Hello,

> My 26 month old son (dx'd HF ASD at 24 mos) has had chronic acute

> gastroenteritis since he was about 6 months old. His ASD started

with severe reaction

> to Dipt at 2 months followed by wild chicken pox at 4 mos - then

neurological

> symptoms (Sandifer's syndrome) began. In spite of his severely

aversive

> feeding pattern he has maintained excellent weight and growth

patterns

> throughout his life.

>

> The gastroenteritis has occured numerous times and is almost

always

> activated by a stressfull event. Most recently the introduction

of a Multvitamin

> activated the gastroenterits (can I call this GE?, don't like

writing it out...)

> He has been hospitalised for dehydration from the GE on several

occasions,

> the only treatment being IV fluids, IV nutrition and

suppositories to control

> fever. His paed insists that his infections are from wild

exposure and are

> not unusual. (ARGH!!!) He is on a high dose of a PPI and Gaviscon

for GERD.

> He drinks about 8 bottles of infant formula a day. (Yes, we are

working on

> this, believe me.)

>

> We are scheduled to see a DAN practitioner in Sept but wondering

if I may

> look into Oral Immunoglobulin given that it is indicated for the

recovery of

> acute GE (as noted in the CSB). Would this be putting the cart

before the

> horse? I understand that we need to get his diet,

supplementation, etc sorted

> out first and perhaps the immunity concerns might abate but we are

tired of

> catching the GE from him and this last round of it was pretty

awful. His

> regression was fierce. There are times when all 3 of us have

fever, vomiting and

> diahrreah. It's a pretty dire situation!

>

> He's been on Bio-Kult for about a month. I just transitioned him

to

> Ther-Biotics complete two days ago. His stools definitely showed

signs of

> improvement with the probiotics.

>

> Any advice welcome.

>

> Many thanks,

> Darla

> London

> DH Boban

> DS 2 years and 1 month

>

>

>

[Guest guest]

that's what I thought-VSL3 is 450 billion.

> > > >

> > > > Hello,

> > > > My 26 month old son (dx'd HF ASD at 24 mos) has had chronic

> > acute

> > > > gastroenteritis since he was about 6 months old. His ASD

> > started

> > > with severe reaction

> > > > to Dipt at 2 months followed by wild chicken pox at 4 mos -

> then

> > > neurological

> > > > symptoms (Sandifer's syndrome) began. In spite of his

> severely

> > > aversive

> > > > feeding pattern he has maintained excellent weight and

growth

> > patterns

> > > > throughout his life.

> > > >

> > > > The gastroenteritis has occured numerous times and is

almost

> > always

> > > > activated by a stressfull event. Most recently the

> introduction

> > of

> > > a Multvitamin

> > > > activated the gastroenterits (can I call this GE?, don't

like

> > > writing it out...)

> > > > He has been hospitalised for dehydration from the GE on

> several

> > > occasions,

> > > > the only treatment being IV fluids, IV nutrition and

> > suppositories

> > > to control

> > > > fever. His paed insists that his infections are from wild

> > exposure

> > > and are

> > > > not unusual. (ARGH!!!) He is on a high dose of a PPI and

> > Gaviscon

> > > for GERD.

> > > > He drinks about 8 bottles of infant formula a day. (Yes,

we

> are

> > > working on

> > > > this, believe me.)

> > > >

> > > > We are scheduled to see a DAN practitioner in Sept but

> wondering

> > if

> > > I may

> > > > look into Oral Immunoglobulin given that it is indicated for

> the

> > > recovery of

> > > > acute GE (as noted in the CSB). Would this be putting the

cart

> > > before the

> > > > horse? I understand that we need to get his diet,

> > supplementation,

> > > etc sorted

> > > > out first and perhaps the immunity concerns might abate but

we

> > are

> > > tired of

> > > > catching the GE from him and this last round of it was

pretty

> > > awful. His

> > > > regression was fierce. There are times when all 3 of us

have

> > fever,

> > > vomiting and

> > > > diahrreah. It's a pretty dire situation!

> > > >

> > > > He's been on Bio-Kult for about a month. I just

transitioned

> > him to

> > > > Ther-Biotics complete two days ago. His stools definitely

> showed

> > > signs of

> > > > improvement with the probiotics.

> > > >

> > > > Any advice welcome.

> > > >

> > > > Many thanks,

> > > > Darla

> > > > London

> > > > DH Boban

> > > > DS 2 years and 1 month

> > > >

> > > >

> > > >

[Guest guest]

In a message dated 30/07/2006 06:43:57 GMT Standard Time,

adoptinggrace@... writes:

that's what I thought-VSL3 is 450 billion.

>

> Our Therbiotic says 25 + billion CFU?

That really is a big difference - 18 times as potent. I guess that's the

answer to my question - I wouldn't want to be giving him 18 therbiotic capsules

a day! We'd have to take out a second mortgage to afford it anyway. ;-)

Darla

[Guest guest]

In a message dated 30/07/2006 06:43:57 GMT Standard Time,

adoptinggrace@... writes:

that's what I thought-VSL3 is 450 billion.

>

> Our Therbiotic says 25 + billion CFU?

That really is a big difference - 18 times as potent. I guess that's the

answer to my question - I wouldn't want to be giving him 18 therbiotic capsules

a day! We'd have to take out a second mortgage to afford it anyway. ;-)

Darla

[Guest guest]

Darla.. BID is twice a day. My son's gut healed with gf/cf/sf/cf/

and then Low Oxalate Diet.. we now ahve added back in small amts of

gluten and casein. VSL3 btw was not developed for use with our

population and it is not necessarily casein free.

All the best,

>

>

> In a message dated 29/07/2006 16:59:05 GMT Standard Time,

> adoptinggrace@... writes:

>

> It takes a TINY amt in most cases.. my son

> whose gut is almost healed I hope takes 1/4 t BID now and more

than

> that creates diarrhea... less creates diarrhea.. it's a matter of

> finding the right dose but it will likely be a very low dose for

our

> kids.

> Best of luck!

>

>

>

> thanks, adoptinggrace, for the info. I'll try to get the VSL as

I already

> wrote to . Can you tell me what BID is? They don't use

the rx

> abbreviations here like they do in the states. I used to know

but it was a long

> time ago....

>

> Right now I'm giving 1 capsule Klaire TherBiotic complete in the

mornings

> and 1 Bio-Kult at lunchtime. Unfortunately the only way I can get

him to take

> them is in a bite of yoghurt. It's good to hear that you've

healed your

> kid's chronic diahhreah. Do you think the probiotic will help

with the recurrent

> GE as well?

>

> Darla

>

>

>

[Guest guest]

Darla.. BID is twice a day. My son's gut healed with gf/cf/sf/cf/

and then Low Oxalate Diet.. we now ahve added back in small amts of

gluten and casein. VSL3 btw was not developed for use with our

population and it is not necessarily casein free.

All the best,

>

>

> In a message dated 29/07/2006 16:59:05 GMT Standard Time,

> adoptinggrace@... writes:

>

> It takes a TINY amt in most cases.. my son

> whose gut is almost healed I hope takes 1/4 t BID now and more

than

> that creates diarrhea... less creates diarrhea.. it's a matter of

> finding the right dose but it will likely be a very low dose for

our

> kids.

> Best of luck!

>

>

>

> thanks, adoptinggrace, for the info. I'll try to get the VSL as

I already

> wrote to . Can you tell me what BID is? They don't use

the rx

> abbreviations here like they do in the states. I used to know

but it was a long

> time ago....

>

> Right now I'm giving 1 capsule Klaire TherBiotic complete in the

mornings

> and 1 Bio-Kult at lunchtime. Unfortunately the only way I can get

him to take

> them is in a bite of yoghurt. It's good to hear that you've

healed your

> kid's chronic diahhreah. Do you think the probiotic will help

with the recurrent

> GE as well?

>

> Darla

>

>

>