Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 You will not be upset with yourself. Read some of those inspirational messages that were here. Red the one about the Ant and the Contact Lens. You are the Ant being asked to carry the Contact Lens.....why? Don't know, but it's for a good reason. ...."Without Him, I am nothing, but with HIm, I can do all things through Christ who strengthens me." Laurie, if you don't mind, I am going to start a prayer chain with my church and fellow churches across the United States. I'm sad that you are feeling down, and I am determined to try to get your spirits lifted. If this treatment you have to take tonight, if it doesn't interfere, get an aroma candle, draw a nice bath, turn down the lights and just relax and meditate in the tub. I use this technique when I am faced with big decisions or big bad blows and it helps me go within and draw up all my inner strength to face the next thing coming my way. I will be thinking of you and praying for a spiritual uplifting. [ Not a great way to start the weekend. Hope no one is brought "down" by my message. If so, I'll be really upset w/myself. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 You will not be upset with yourself. Read some of those inspirational messages that were here. Red the one about the Ant and the Contact Lens. You are the Ant being asked to carry the Contact Lens.....why? Don't know, but it's for a good reason. ...."Without Him, I am nothing, but with HIm, I can do all things through Christ who strengthens me." Laurie, if you don't mind, I am going to start a prayer chain with my church and fellow churches across the United States. I'm sad that you are feeling down, and I am determined to try to get your spirits lifted. If this treatment you have to take tonight, if it doesn't interfere, get an aroma candle, draw a nice bath, turn down the lights and just relax and meditate in the tub. I use this technique when I am faced with big decisions or big bad blows and it helps me go within and draw up all my inner strength to face the next thing coming my way. I will be thinking of you and praying for a spiritual uplifting. [ Not a great way to start the weekend. Hope no one is brought "down" by my message. If so, I'll be really upset w/myself. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 You will not be upset with yourself. Read some of those inspirational messages that were here. Red the one about the Ant and the Contact Lens. You are the Ant being asked to carry the Contact Lens.....why? Don't know, but it's for a good reason. ...."Without Him, I am nothing, but with HIm, I can do all things through Christ who strengthens me." Laurie, if you don't mind, I am going to start a prayer chain with my church and fellow churches across the United States. I'm sad that you are feeling down, and I am determined to try to get your spirits lifted. If this treatment you have to take tonight, if it doesn't interfere, get an aroma candle, draw a nice bath, turn down the lights and just relax and meditate in the tub. I use this technique when I am faced with big decisions or big bad blows and it helps me go within and draw up all my inner strength to face the next thing coming my way. I will be thinking of you and praying for a spiritual uplifting. [ Not a great way to start the weekend. Hope no one is brought "down" by my message. If so, I'll be really upset w/myself. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Darn it Laurie, don't worry about bringing anybody down by your post. How can we be a support group if we don't support you through this. The worst part is knowing what to do or say to help you. We all will definately pray that it turns out to be just fluid. Is Steve going with you for the ultrasound? If he isn't please ask to go with you, she is so upbeat and supportive, I'm so glad that she can help, please take her up on it. It's so hard to face these things alone and perhaps it would be helpful for Steve to have someone to wait with him, if he can't be in there with you. It was so hard to be alone when they were doing the ERCP when Phil was diagnosed and then have to cope with the diagnosis alone. (Please I'm not trying to indicate that the worst will happen for you). Just take advantage of any support you can. I got the impression that Steve isn't handling this very well, hope I'm wrong sure wish there was something I could do for him too. After Phil's ERCP disaster, I asked someone to go along to wait with me when he had his gallbladder out and she brought another lady from our Sunday School Class and then our teacher came with his wife. There was 5 of us sitting with Phil before he went into surgery and everything went great. I found out from my sister that the way to send a hug over the internet is like this: (Laurie) - consider yourself hugged. Love, Peg Abnormal findings on CT - Laurie Here we go again--not sure if I can (or want) to go through this again. Abnormal findings on my CT in pelvic region--"cystic appearing lesions...possible fluids, abscesses, neoplasm...." "need to follow-up with pelvic ultra sound...." My family dr called me w/these results today. I had heard it a little differently from my oncologist on Tues. She didn't mention the neoplasm possibility part. I asked my family dr what that word meant and he said cancer, but when I looked it up after I was off the phone w/him, it said tumor. At any rate, it all boils down to the fact that I have to have more tests to find out what this is. I'm a little (or a lot, maybe) distraught over this. Having fought UC since 1978 and PSC since before '87 and other liver problems in early 80s, transplant and cancer in 5/00, seizures as result of high dose of anti-rejec. med, I'm worn out from all of this and not sure I can (or want) to handle much more. I guess I need some words of wisdom.... anybody got any???? Also, anybody post tx using Pentamadine treatments? I hate those and have to have another tonight. Not a great way to start the weekend. Hope no one is brought "down" by my message. If so, I'll be really upset w/myself. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Darn it Laurie, don't worry about bringing anybody down by your post. How can we be a support group if we don't support you through this. The worst part is knowing what to do or say to help you. We all will definately pray that it turns out to be just fluid. Is Steve going with you for the ultrasound? If he isn't please ask to go with you, she is so upbeat and supportive, I'm so glad that she can help, please take her up on it. It's so hard to face these things alone and perhaps it would be helpful for Steve to have someone to wait with him, if he can't be in there with you. It was so hard to be alone when they were doing the ERCP when Phil was diagnosed and then have to cope with the diagnosis alone. (Please I'm not trying to indicate that the worst will happen for you). Just take advantage of any support you can. I got the impression that Steve isn't handling this very well, hope I'm wrong sure wish there was something I could do for him too. After Phil's ERCP disaster, I asked someone to go along to wait with me when he had his gallbladder out and she brought another lady from our Sunday School Class and then our teacher came with his wife. There was 5 of us sitting with Phil before he went into surgery and everything went great. I found out from my sister that the way to send a hug over the internet is like this: (Laurie) - consider yourself hugged. Love, Peg Abnormal findings on CT - Laurie Here we go again--not sure if I can (or want) to go through this again. Abnormal findings on my CT in pelvic region--"cystic appearing lesions...possible fluids, abscesses, neoplasm...." "need to follow-up with pelvic ultra sound...." My family dr called me w/these results today. I had heard it a little differently from my oncologist on Tues. She didn't mention the neoplasm possibility part. I asked my family dr what that word meant and he said cancer, but when I looked it up after I was off the phone w/him, it said tumor. At any rate, it all boils down to the fact that I have to have more tests to find out what this is. I'm a little (or a lot, maybe) distraught over this. Having fought UC since 1978 and PSC since before '87 and other liver problems in early 80s, transplant and cancer in 5/00, seizures as result of high dose of anti-rejec. med, I'm worn out from all of this and not sure I can (or want) to handle much more. I guess I need some words of wisdom.... anybody got any???? Also, anybody post tx using Pentamadine treatments? I hate those and have to have another tonight. Not a great way to start the weekend. Hope no one is brought "down" by my message. If so, I'll be really upset w/myself. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Darn it Laurie, don't worry about bringing anybody down by your post. How can we be a support group if we don't support you through this. The worst part is knowing what to do or say to help you. We all will definately pray that it turns out to be just fluid. Is Steve going with you for the ultrasound? If he isn't please ask to go with you, she is so upbeat and supportive, I'm so glad that she can help, please take her up on it. It's so hard to face these things alone and perhaps it would be helpful for Steve to have someone to wait with him, if he can't be in there with you. It was so hard to be alone when they were doing the ERCP when Phil was diagnosed and then have to cope with the diagnosis alone. (Please I'm not trying to indicate that the worst will happen for you). Just take advantage of any support you can. I got the impression that Steve isn't handling this very well, hope I'm wrong sure wish there was something I could do for him too. After Phil's ERCP disaster, I asked someone to go along to wait with me when he had his gallbladder out and she brought another lady from our Sunday School Class and then our teacher came with his wife. There was 5 of us sitting with Phil before he went into surgery and everything went great. I found out from my sister that the way to send a hug over the internet is like this: (Laurie) - consider yourself hugged. Love, Peg Abnormal findings on CT - Laurie Here we go again--not sure if I can (or want) to go through this again. Abnormal findings on my CT in pelvic region--"cystic appearing lesions...possible fluids, abscesses, neoplasm...." "need to follow-up with pelvic ultra sound...." My family dr called me w/these results today. I had heard it a little differently from my oncologist on Tues. She didn't mention the neoplasm possibility part. I asked my family dr what that word meant and he said cancer, but when I looked it up after I was off the phone w/him, it said tumor. At any rate, it all boils down to the fact that I have to have more tests to find out what this is. I'm a little (or a lot, maybe) distraught over this. Having fought UC since 1978 and PSC since before '87 and other liver problems in early 80s, transplant and cancer in 5/00, seizures as result of high dose of anti-rejec. med, I'm worn out from all of this and not sure I can (or want) to handle much more. I guess I need some words of wisdom.... anybody got any???? Also, anybody post tx using Pentamadine treatments? I hate those and have to have another tonight. Not a great way to start the weekend. Hope no one is brought "down" by my message. If so, I'll be really upset w/myself. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Laurie, Please tell Steve if he ever wants to talk to just e-mail me. So sorry you have to be going through this. Wish I could give you a hug in person. Barbs advice was good we all have to start dwelling on the good in our lives and enjoying what we have to the fullest. Peg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Peg-- Thanks for the hug. That is cute. I told Steve I thought he'd better go to this one and he is. Just found out today I have to go back to Omaha for it--thought I could do it here in Des Moines, but they want someone to read it who is familiar with transplants. I'll say more in a new post. Thanks again, Peg. Love & Prayers, Laurie Abnormal findings on CT - Laurie Here we go again--not sure if I can (or want) to go through this again. Abnormal findings on my CT in pelvic region--"cystic appearing lesions...possible fluids, abscesses, neoplasm...." "need to follow-up with pelvic ultra sound...." My family dr called me w/these results today. I had heard it a little differently from my oncologist on Tues. She didn't mention the neoplasm possibility part. I asked my family dr what that word meant and he said cancer, but when I looked it up after I was off the phone w/him, it said tumor. At any rate, it all boils down to the fact that I have to have more tests to find out what this is. I'm a little (or a lot, maybe) distraught over this. Having fought UC since 1978 and PSC since before '87 and other liver problems in early 80s, transplant and cancer in 5/00, seizures as result of high dose of anti-rejec. med, I'm worn out from all of this and not sure I can (or want) to handle much more. I guess I need some words of wisdom.... anybody got any???? Also, anybody post tx using Pentamadine treatments? I hate those and have to have another tonight. Not a great way to start the weekend. Hope no one is brought "down" by my message. If so, I'll be really upset w/myself. Laurie Quote Link to comment Share on other sites More sharing options...
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