Re: PEG'S POLL UPDATE 11/7

[Guest guest]

Darnell & Allyson,

Here is what the poll looks like as of 7:40 p.m. PST.

Everyone,

If you want to give me your blood type I'll add it.Another thing I

thought of is UC let me know and I'll add it so we don't have to keep

asking. It will say UC(Y)or UC(N)

If you want to add Doctors and Hospital I'll add an extra line to each

name

Peg

THE =# IS NOT A LIST STATUS SEE THE CODE BELOW::

=1 Asymptomatic(No Symptoms) =2 symptoms(fatigue,jaundince,PSC related

pain,reoccuring fevers, etc.) =3 listed =4 transplanted

Please fill in the ?. Thanks Peg

PSCer's Name,Sex,Age,Blood type, see above, UC(Y)(N),City, State,

dx date spouse's name if they're the

poster

doctors(GI,HEP) Hospital/tx ctr

ADULT

Marsha ,F,47 dx 11/98 =2 Garden Grove,CA

?,M,29,dx 1995 =1 UC(Y)Germany (working in

Switzerland)

Phil Alfeld,M,56,O+,dx 12/98 =2 UC(Y),Santa Clarita,CA wife-Peg

GI-Sweiban,Hep-Kaun,Kaiser,UCLA

Dianne Arneill,F,49,dx 1996 =2 UC(N),Castle Rock,CO

Russ Askren,M,42,dx 12/26/96 =3 listed 12/98,status 3,UC(Y)

San Diego,CA,UC San Diego

Ben(Caseyspa),M,35,O+,dx 11/98 =2 Medford NJ

Dan Bertles,M,38,dx ? =2 Apple Valley, CA

Tom Black,M,46,dx ? =4 tx ?,Kettering,OH

Larry Bowers,M,50,A+,dx 1996 =2 UC(Y),Baltimore,MD

Michele Bruno,F,31,O+,dx 1996 =3 listed4/98,status3,UC(Y),Deptford,

NJ

,F,34,B+,dx 1997 =2 UC(Y),Mousup,CT

Teri Bullock,F,32,dx 2/96 =2 UC(Y),Hope Mills,NC

Rick Butchart,M,44,dx 1/93 =2 UC(N)Port Ludlow,WA

Jim C.,M,42,dx 2/99 =1 UC(N)Staten Island,NY wife-Liz

Jim Carroll,M,56 dx 9/98 =2 Northfield,MN

Laurie Coughennower F,44,A+,dx'87 =2 UC(Y)DesMoines,IA

Beth Ann Dalrymple,F,36,O-,dx'95 =3 listed10/99,UC(Y),Livonia, MI

Bill Dolan,M,59,dx 1988 =3 UC(Y)listed ?,Drexel Hill(Phili),PA

Doris Firnkes,F,55,dx 9/1998 =2 UC(Y),Belleville, IL

Vickie Fowler,F,38,dx 6/99 =2 Toledo,OH

Tina German,F,28,A+,dx 6/98 =1 UC(Y)Delphos,OH

athan ,M,29,dx '92 =2 Clinton,TN

Serge Gilbert,M,dx ? =? Edmonton,Alberta, Canada

Mitch Head,M,43,dx ? =? UC(Y),Atlanta,GA

Jim Heitkemper,M,56,dx 1991 =3 listed 6/99,Portland,OR wife-Kathy

Hilton,F,46 =1 Chrons, NH

Jim Hines,M,?dx ? =? Louisville,KY

Norm Hoffman,M,58,dx 9/93 =2 Bakersfield,CA

Diane Howell,F,55,A-,dx 1/92 =2 UC(N),Vancouver(Surrey),BC,Canada

Rene' ,F,50,dx =2 Farmington,NM

Ken Kosiorek,M,31 dx 10/99 =1 UC(Y)Baltimore,MD wife-Jackie

Ron Koestler,M,41 dx 12/95 =2 (mild),Batavia, IL

Lathrop,M,47,dx ? =2 Houston,TX

Dayna Lineberger,F,32,dx 1995 =2 UC(Y),Charlotte,NC

Debbie Lynch,F,34,dx 1989 =2 UC(Y),Ontario,Canada

Bill McCarthy,M,43,dx ? =2 ?,NY?

Mike McCormick,M,52,dx 9/99 =1 UC(Y)Nova Scotia,Canada

wife Patti

Peggy McGovern,F,52,dx ? =2 Billings,MT

Adam ,M,34,O+,dx 6/96 =2 Walnut Creek,CA

Erwin Pratt,M,33,dx ? =2 ? , ?

O'Brien,M,35 dx 3/99 =1 Dublin,Ireland

Ed Reynolds,M,49,A+,dx 1993 =3 UC(Y)Coventry,RI wife-Gracie

Tim Romlein,M,51,dx 1989 =4 tx 4/4/98,UC(N),Ann Arbor,MI

Dirk Rosen,M,40,dx 1985 =2 Oakland, CA

Biddy Santon,F,57,dx 1996 =2 Princeton,WV

Dawn Scala,F,29,dx 1998 =1 UC(Y)Glendale(Queens), NY

Tony Spehar,M,30,dx? =1 UC(Y)Melbourne,Australia

Jacquelyn Spencer,F,28,dx '90 =4 tx 4/99,UC(Y),Dallas,TX

Spiro?,M,?,dx ? =4 tx ?, ?, ?

> Carol Staples,F,57,O+,dx 8/88 =2 UC(Y)Gettysburg,PA

> Goran Stosic,M,32,dx ? =2 Yugoslavia

> Toutant,F,41,O?,dx'88 =4 lstd3/97,tx10/8/99,UC(Y)

> Louisville,KY husband-Roy

> Sharon Toebaert,F,51,dx 1/99 =2 Surrey,BC,Canada

> Mike Vizas,M,55,dx ? =3 status 3,UC(Y),Wakesville,MD

> wife-Lynn

> Walderich,F,54,A+,dx'85 =3 status 2B,UC(N),Manchester,NH

> Penny Weller,F,55,O-,dx12/96 =3 UC(Y)listed 4/97 status 3

> Rochester,NY

> Marilyn ,F,54 =3 ?,?

> Wysong,F,21,B+,dx 9/98 =2 UC(N),Piqua(Dayton),OH

>

> CHILD/TEEN

>

> Quantell,M,9,O+,dx1996 =2 Chicago,IL,4/29/90 mom-Pam

> Rhoades,M,9.85 dx6/99 =2 Eagle,CO,B/D 11/11/89 mom-Jodi

> e-mail: jjrhoades@...

> Crowley,M,12 =2 Buckfield,ME,B/D 2/18/87 mom-Marcy

> e-mail ericc.msad39@...

> ?,M,7,dx 8/99 =2 UC(N)Madison,WI,B/D? mom- (38)

> Ty Estler,M,17,B+,dx 1992 =2 Chrons,,NJ,B/D 10/12/82

> mom-Luanne e-mail: BBNLU@...

>

> Marielle Carroccio,F,6,dx 1993 Biliary Artesia =4 tx 1994

> Staten Island, NY mom- author of Biliary Tree,Children's

Liver

> Alliance http://livertx.org

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Darnell & Allyson,

Here is what the poll looks like as of 7:40 p.m. PST.

Everyone,

If you want to give me your blood type I'll add it.Another thing I

thought of is UC let me know and I'll add it so we don't have to keep

asking. It will say UC(Y)or UC(N)

If you want to add Doctors and Hospital I'll add an extra line to each

name

Peg

THE =# IS NOT A LIST STATUS SEE THE CODE BELOW::

=1 Asymptomatic(No Symptoms) =2 symptoms(fatigue,jaundince,PSC related

pain,reoccuring fevers, etc.) =3 listed =4 transplanted

Please fill in the ?. Thanks Peg

PSCer's Name,Sex,Age,Blood type, see above, UC(Y)(N),City, State,

dx date spouse's name if they're the

poster

doctors(GI,HEP) Hospital/tx ctr

ADULT

Marsha ,F,47 dx 11/98 =2 Garden Grove,CA

?,M,29,dx 1995 =1 UC(Y)Germany (working in

Switzerland)

Phil Alfeld,M,56,O+,dx 12/98 =2 UC(Y),Santa Clarita,CA wife-Peg

GI-Sweiban,Hep-Kaun,Kaiser,UCLA

Dianne Arneill,F,49,dx 1996 =2 UC(N),Castle Rock,CO

Russ Askren,M,42,dx 12/26/96 =3 listed 12/98,status 3,UC(Y)

San Diego,CA,UC San Diego

Ben(Caseyspa),M,35,O+,dx 11/98 =2 Medford NJ

Dan Bertles,M,38,dx ? =2 Apple Valley, CA

Tom Black,M,46,dx ? =4 tx ?,Kettering,OH

Larry Bowers,M,50,A+,dx 1996 =2 UC(Y),Baltimore,MD

Michele Bruno,F,31,O+,dx 1996 =3 listed4/98,status3,UC(Y),Deptford,

NJ

,F,34,B+,dx 1997 =2 UC(Y),Mousup,CT

Teri Bullock,F,32,dx 2/96 =2 UC(Y),Hope Mills,NC

Rick Butchart,M,44,dx 1/93 =2 UC(N)Port Ludlow,WA

Jim C.,M,42,dx 2/99 =1 UC(N)Staten Island,NY wife-Liz

Jim Carroll,M,56 dx 9/98 =2 Northfield,MN

Laurie Coughennower F,44,A+,dx'87 =2 UC(Y)DesMoines,IA

Beth Ann Dalrymple,F,36,O-,dx'95 =3 listed10/99,UC(Y),Livonia, MI

Bill Dolan,M,59,dx 1988 =3 UC(Y)listed ?,Drexel Hill(Phili),PA

Doris Firnkes,F,55,dx 9/1998 =2 UC(Y),Belleville, IL

Vickie Fowler,F,38,dx 6/99 =2 Toledo,OH

Tina German,F,28,A+,dx 6/98 =1 UC(Y)Delphos,OH

athan ,M,29,dx '92 =2 Clinton,TN

Serge Gilbert,M,dx ? =? Edmonton,Alberta, Canada

Mitch Head,M,43,dx ? =? UC(Y),Atlanta,GA

Jim Heitkemper,M,56,dx 1991 =3 listed 6/99,Portland,OR wife-Kathy

Hilton,F,46 =1 Chrons, NH

Jim Hines,M,?dx ? =? Louisville,KY

Norm Hoffman,M,58,dx 9/93 =2 Bakersfield,CA

Diane Howell,F,55,A-,dx 1/92 =2 UC(N),Vancouver(Surrey),BC,Canada

Rene' ,F,50,dx =2 Farmington,NM

Ken Kosiorek,M,31 dx 10/99 =1 UC(Y)Baltimore,MD wife-Jackie

Ron Koestler,M,41 dx 12/95 =2 (mild),Batavia, IL

Lathrop,M,47,dx ? =2 Houston,TX

Dayna Lineberger,F,32,dx 1995 =2 UC(Y),Charlotte,NC

Debbie Lynch,F,34,dx 1989 =2 UC(Y),Ontario,Canada

Bill McCarthy,M,43,dx ? =2 ?,NY?

Mike McCormick,M,52,dx 9/99 =1 UC(Y)Nova Scotia,Canada

wife Patti

Peggy McGovern,F,52,dx ? =2 Billings,MT

Adam ,M,34,O+,dx 6/96 =2 Walnut Creek,CA

Erwin Pratt,M,33,dx ? =2 ? , ?

O'Brien,M,35 dx 3/99 =1 Dublin,Ireland

Ed Reynolds,M,49,A+,dx 1993 =3 UC(Y)Coventry,RI wife-Gracie

Tim Romlein,M,51,dx 1989 =4 tx 4/4/98,UC(N),Ann Arbor,MI

Dirk Rosen,M,40,dx 1985 =2 Oakland, CA

Biddy Santon,F,57,dx 1996 =2 Princeton,WV

Dawn Scala,F,29,dx 1998 =1 UC(Y)Glendale(Queens), NY

Tony Spehar,M,30,dx? =1 UC(Y)Melbourne,Australia

Jacquelyn Spencer,F,28,dx '90 =4 tx 4/99,UC(Y),Dallas,TX

Spiro?,M,?,dx ? =4 tx ?, ?, ?

> Carol Staples,F,57,O+,dx 8/88 =2 UC(Y)Gettysburg,PA

> Goran Stosic,M,32,dx ? =2 Yugoslavia

> Toutant,F,41,O?,dx'88 =4 lstd3/97,tx10/8/99,UC(Y)

> Louisville,KY husband-Roy

> Sharon Toebaert,F,51,dx 1/99 =2 Surrey,BC,Canada

> Mike Vizas,M,55,dx ? =3 status 3,UC(Y),Wakesville,MD

> wife-Lynn

> Walderich,F,54,A+,dx'85 =3 status 2B,UC(N),Manchester,NH

> Penny Weller,F,55,O-,dx12/96 =3 UC(Y)listed 4/97 status 3

> Rochester,NY

> Marilyn ,F,54 =3 ?,?

> Wysong,F,21,B+,dx 9/98 =2 UC(N),Piqua(Dayton),OH

>

> CHILD/TEEN

>

> Quantell,M,9,O+,dx1996 =2 Chicago,IL,4/29/90 mom-Pam

> Rhoades,M,9.85 dx6/99 =2 Eagle,CO,B/D 11/11/89 mom-Jodi

> e-mail: jjrhoades@...

> Crowley,M,12 =2 Buckfield,ME,B/D 2/18/87 mom-Marcy

> e-mail ericc.msad39@...

> ?,M,7,dx 8/99 =2 UC(N)Madison,WI,B/D? mom- (38)

> Ty Estler,M,17,B+,dx 1992 =2 Chrons,,NJ,B/D 10/12/82

> mom-Luanne e-mail: BBNLU@...

>

> Marielle Carroccio,F,6,dx 1993 Biliary Artesia =4 tx 1994

> Staten Island, NY mom- author of Biliary Tree,Children's

Liver

> Alliance http://livertx.org

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Darnell & Allyson,

Here is what the poll looks like as of 7:40 p.m. PST.

Everyone,

If you want to give me your blood type I'll add it.Another thing I

thought of is UC let me know and I'll add it so we don't have to keep

asking. It will say UC(Y)or UC(N)

If you want to add Doctors and Hospital I'll add an extra line to each

name

Peg

THE =# IS NOT A LIST STATUS SEE THE CODE BELOW::

=1 Asymptomatic(No Symptoms) =2 symptoms(fatigue,jaundince,PSC related

pain,reoccuring fevers, etc.) =3 listed =4 transplanted

Please fill in the ?. Thanks Peg

PSCer's Name,Sex,Age,Blood type, see above, UC(Y)(N),City, State,

dx date spouse's name if they're the

poster

doctors(GI,HEP) Hospital/tx ctr

ADULT

Marsha ,F,47 dx 11/98 =2 Garden Grove,CA

?,M,29,dx 1995 =1 UC(Y)Germany (working in

Switzerland)

Phil Alfeld,M,56,O+,dx 12/98 =2 UC(Y),Santa Clarita,CA wife-Peg

GI-Sweiban,Hep-Kaun,Kaiser,UCLA

Dianne Arneill,F,49,dx 1996 =2 UC(N),Castle Rock,CO

Russ Askren,M,42,dx 12/26/96 =3 listed 12/98,status 3,UC(Y)

San Diego,CA,UC San Diego

Ben(Caseyspa),M,35,O+,dx 11/98 =2 Medford NJ

Dan Bertles,M,38,dx ? =2 Apple Valley, CA

Tom Black,M,46,dx ? =4 tx ?,Kettering,OH

Larry Bowers,M,50,A+,dx 1996 =2 UC(Y),Baltimore,MD

Michele Bruno,F,31,O+,dx 1996 =3 listed4/98,status3,UC(Y),Deptford,

NJ

,F,34,B+,dx 1997 =2 UC(Y),Mousup,CT

Teri Bullock,F,32,dx 2/96 =2 UC(Y),Hope Mills,NC

Rick Butchart,M,44,dx 1/93 =2 UC(N)Port Ludlow,WA

Jim C.,M,42,dx 2/99 =1 UC(N)Staten Island,NY wife-Liz

Jim Carroll,M,56 dx 9/98 =2 Northfield,MN

Laurie Coughennower F,44,A+,dx'87 =2 UC(Y)DesMoines,IA

Beth Ann Dalrymple,F,36,O-,dx'95 =3 listed10/99,UC(Y),Livonia, MI

Bill Dolan,M,59,dx 1988 =3 UC(Y)listed ?,Drexel Hill(Phili),PA

Doris Firnkes,F,55,dx 9/1998 =2 UC(Y),Belleville, IL

Vickie Fowler,F,38,dx 6/99 =2 Toledo,OH

Tina German,F,28,A+,dx 6/98 =1 UC(Y)Delphos,OH

athan ,M,29,dx '92 =2 Clinton,TN

Serge Gilbert,M,dx ? =? Edmonton,Alberta, Canada

Mitch Head,M,43,dx ? =? UC(Y),Atlanta,GA

Jim Heitkemper,M,56,dx 1991 =3 listed 6/99,Portland,OR wife-Kathy

Hilton,F,46 =1 Chrons, NH

Jim Hines,M,?dx ? =? Louisville,KY

Norm Hoffman,M,58,dx 9/93 =2 Bakersfield,CA

Diane Howell,F,55,A-,dx 1/92 =2 UC(N),Vancouver(Surrey),BC,Canada

Rene' ,F,50,dx =2 Farmington,NM

Ken Kosiorek,M,31 dx 10/99 =1 UC(Y)Baltimore,MD wife-Jackie

Ron Koestler,M,41 dx 12/95 =2 (mild),Batavia, IL

Lathrop,M,47,dx ? =2 Houston,TX

Dayna Lineberger,F,32,dx 1995 =2 UC(Y),Charlotte,NC

Debbie Lynch,F,34,dx 1989 =2 UC(Y),Ontario,Canada

Bill McCarthy,M,43,dx ? =2 ?,NY?

Mike McCormick,M,52,dx 9/99 =1 UC(Y)Nova Scotia,Canada

wife Patti

Peggy McGovern,F,52,dx ? =2 Billings,MT

Adam ,M,34,O+,dx 6/96 =2 Walnut Creek,CA

Erwin Pratt,M,33,dx ? =2 ? , ?

O'Brien,M,35 dx 3/99 =1 Dublin,Ireland

Ed Reynolds,M,49,A+,dx 1993 =3 UC(Y)Coventry,RI wife-Gracie

Tim Romlein,M,51,dx 1989 =4 tx 4/4/98,UC(N),Ann Arbor,MI

Dirk Rosen,M,40,dx 1985 =2 Oakland, CA

Biddy Santon,F,57,dx 1996 =2 Princeton,WV

Dawn Scala,F,29,dx 1998 =1 UC(Y)Glendale(Queens), NY

Tony Spehar,M,30,dx? =1 UC(Y)Melbourne,Australia

Jacquelyn Spencer,F,28,dx '90 =4 tx 4/99,UC(Y),Dallas,TX

Spiro?,M,?,dx ? =4 tx ?, ?, ?

> Carol Staples,F,57,O+,dx 8/88 =2 UC(Y)Gettysburg,PA

> Goran Stosic,M,32,dx ? =2 Yugoslavia

> Toutant,F,41,O?,dx'88 =4 lstd3/97,tx10/8/99,UC(Y)

> Louisville,KY husband-Roy

> Sharon Toebaert,F,51,dx 1/99 =2 Surrey,BC,Canada

> Mike Vizas,M,55,dx ? =3 status 3,UC(Y),Wakesville,MD

> wife-Lynn

> Walderich,F,54,A+,dx'85 =3 status 2B,UC(N),Manchester,NH

> Penny Weller,F,55,O-,dx12/96 =3 UC(Y)listed 4/97 status 3

> Rochester,NY

> Marilyn ,F,54 =3 ?,?

> Wysong,F,21,B+,dx 9/98 =2 UC(N),Piqua(Dayton),OH

>

> CHILD/TEEN

>

> Quantell,M,9,O+,dx1996 =2 Chicago,IL,4/29/90 mom-Pam

> Rhoades,M,9.85 dx6/99 =2 Eagle,CO,B/D 11/11/89 mom-Jodi

> e-mail: jjrhoades@...

> Crowley,M,12 =2 Buckfield,ME,B/D 2/18/87 mom-Marcy

> e-mail ericc.msad39@...

> ?,M,7,dx 8/99 =2 UC(N)Madison,WI,B/D? mom- (38)

> Ty Estler,M,17,B+,dx 1992 =2 Chrons,,NJ,B/D 10/12/82

> mom-Luanne e-mail: BBNLU@...

>

> Marielle Carroccio,F,6,dx 1993 Biliary Artesia =4 tx 1994

> Staten Island, NY mom- author of Biliary Tree,Children's

Liver

> Alliance http://livertx.org

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Whoops I hit the wrong button. I swear I'm getting senial.

Darnell & Allyson,

Here is what the poll looks like as of 7:40 p.m. PST.

Everyone,

If you want to give me your blood type I'll add it.Another thing I

thought of is UC let me know and I'll add it so we don't have to keep

asking. It will say UC(Y)or UC(N)

If you want to add Doctors and Hospital I'll add an extra line to each

name

Peg

THE =# IS NOT A LIST STATUS SEE THE CODE BELOW::

=1 Asymptomatic(No Symptoms) =2 symptoms(fatigue,jaundince,PSC related

pain,reoccuring fevers, etc.) =3 listed =4 transplanted

Please fill in the ?. Thanks Peg

(Poll info)

PSCer's Name,Sex,Age,Blood type, see above, UC(Y)(N),City, State,

dx date spouse's name if they're the poster

doctors(GI,HEP) Hospital/tx ctr

ADULT

Marsha ,F,47 dx 11/98 =2 Garden Grove,CA

?,M,29,dx 1995 =1 UC(Y)Germany (working in

Switzerland)

Phil Alfeld,M,56,O+,dx 12/98 =2 UC(Y),Santa Clarita,CA wife-Peg

GI-Sweiban,Hep-Kaun,Kaiser,UCLA

Dianne Arneill,F,49,dx 1996 =2 UC(N),Castle Rock,CO

Russ Askren,M,42,dx 12/26/96 =3 listed 12/98,status 3,UC(Y)

San Diego,CA,UC San Diego

Ben(Caseyspa),M,35,O+,dx 11/98 =2 Medford NJ

Dan Bertles,M,38,dx ? =2 Apple Valley, CA

Tom Black,M,46,dx ? =4 tx ?,Kettering,OH

Larry Bowers,M,50,A+,dx 1996 =2 UC(Y),Baltimore,MD

Michele Bruno,F,31,O+,dx 1996 =3 listed4/98,status3,UC(Y),Deptford,

NJ

,F,34,B+,dx 1997 =2 UC(Y),Mousup,CT

Teri Bullock,F,32,dx 2/96 =2 UC(Y),Hope Mills,NC

Rick Butchart,M,44,dx 1/93 =2 UC(N)Port Ludlow,WA

Jim C.,M,42,dx 2/99 =1 UC(N)Staten Island,NY wife-Liz

Jim Carroll,M,56 dx 9/98 =2 Northfield,MN

Laurie Coughennower F,44,A+,dx'87 =2 UC(Y)DesMoines,IA

Beth Ann Dalrymple,F,36,O-,dx'95 =3 listed10/99,UC(Y),Livonia, MI

Bill Dolan,M,59,dx 1988 =3 UC(Y)listed ?,Drexel Hill(Phili),PA

Doris Firnkes,F,55,dx 9/1998 =2 UC(Y),Belleville, IL

Vickie Fowler,F,38,dx 6/99 =2 Toledo,OH

Tina German,F,28,A+,dx 6/98 =1 UC(Y)Delphos,OH

athan ,M,29,dx '92 =2 Clinton,TN

Serge Gilbert,M,dx ? =? Edmonton,Alberta, Canada

Mitch Head,M,43,dx ? =? UC(Y),Atlanta,GA

Jim Heitkemper,M,56,dx 1991 =3 listed 6/99,Portland,OR wife-Kathy

Hilton,F,46 =1 Chrons, NH

Jim Hines,M,?dx ? =? Louisville,KY

Norm Hoffman,M,58,dx 9/93 =2 Bakersfield,CA

Diane Howell,F,55,A-,dx 1/92 =2 UC(N),Vancouver(Surrey),BC,Canada

Rene' ,F,50,dx =2 Farmington,NM

Ken Kosiorek,M,31 dx 10/99 =1 UC(Y)Baltimore,MD wife-Jackie

Ron Koestler,M,41 dx 12/95 =2 (mild),Batavia, IL

Lathrop,M,47,dx ? =2 Houston,TX

Dayna Lineberger,F,32,dx 1995 =2 UC(Y),Charlotte,NC

Debbie Lynch,F,34,dx 1989 =2 UC(Y),Ontario,Canada

Bill McCarthy,M,43,dx ? =2 ?,NY?

Mike McCormick,M,52,dx 9/99 =1 UC(Y)Nova Scotia,Canada

wife Patti

Peggy McGovern,F,52,dx ? =2 Billings,MT

Adam ,M,34,O+,dx 6/96 =2 Walnut Creek,CA

Erwin Pratt,M,33,dx ? =2 ? , ?

O'Brien,M,35 dx 3/99 =1 Dublin,Ireland

Ed Reynolds,M,49,A+,dx 1993 =3 UC(Y)Coventry,RI wife-Gracie

Tim Romlein,M,51,dx 1989 =4 tx 4/4/98,UC(N),Ann Arbor,MI

Dirk Rosen,M,40,dx 1985 =2 Oakland, CA

Biddy Santon,F,57,dx 1996 =2 Princeton,WV

Dawn Scala,F,29,dx 1998 =1 UC(Y)Glendale(Queens), NY

Tony Spehar,M,30,dx? =1 UC(Y)Melbourne,Australia

Jacquelyn Spencer,F,28,dx '90 =4 tx 4/99,UC(Y),Dallas,TX

Baylor Univ.

Spiro?,M,?,dx ? =4 tx ?, ?, ?

Carol Staples,F,57,O+,dx 8/88 =2 UC(Y)Gettysburg,PA

Goran Stosic,M,32,dx ? =2 Yugoslavia

Toutant,F,41,O?,dx'88 =4 lstd3/97,tx10/8/99,UC(Y)

Louisville,KY husband-Roy

Sharon Toebaert,F,51,dx 1/99 =2 Surrey,BC,Canada

Mike Vizas,M,55,dx ? =3 status 3,UC(Y),Wakesville,MD

wife-Lynn

Walderich,F,54,A+,dx'85 =3 status 2B,UC(N),Manchester,NH

Penny Weller,F,55,O-,dx12/96 =3 UC(Y)listed 4/97 status 3

Rochester,NY

Marilyn ,F,54 =3 ?,?

Wysong,F,21,B+,dx 9/98 =2 UC(N),Piqua(Dayton),OH

CHILD/TEEN

Quantell,M,9,O+,dx1996 =2 Chicago,IL,4/29/90 mom-Pam

Rhoades,M,9.85 dx6/99 =2 Eagle,CO,B/D 11/11/89 mom-Jodi

e-mail: jjrhoades@...

Crowley,M,12 =2 Buckfield,ME,B/D 2/18/87 mom-Marcy

e-mail ericc.msad39@...

?,M,7,dx 8/99 =2 UC(N)Madison,WI,B/D? mom- (38)

Ty Estler,M,17,B+,dx 1992 =2 Chrons,,NJ,B/D 10/12/82

mom-Luanne e-mail: BBNLU@...

Marielle Carroccio,F,6,dx 1993 Biliary Artesia =4 tx 1994

Staten Island, NY mom- author of Biliary Tree,Children's

Liver Alliance http://livertx.org

[Guest guest]

Darnell Waun, M, 44, A+, UC(N), =1, andria VA, dx 4/98, hosp: Walter

[Guest guest]

My Doctor is Dr. Batty

[Guest guest]

Jon Shapiro, M, 40, B+, =2 maybe 3 shortly, UC(Y), Palo Alto, CA, 1992,

Imperial (HEP), VA Palo Alto Stanford

[Guest guest]

Jon Shapiro, M, 40, B+, =2 maybe 3 shortly, UC(Y), Palo Alto, CA, 1992,

Imperial (HEP), VA Palo Alto Stanford

[Guest guest]

Jon Shapiro, M, 40, B+, =2 maybe 3 shortly, UC(Y), Palo Alto, CA, 1992,

Imperial (HEP), VA Palo Alto Stanford

[Guest guest]

Peg,

I think it is a great idea to include UC in the poll. It might also be good

to include other autoimmune disorders. the link is well established between

UC and PSC. I have also heard of research to see if there is a link between

UC and Asthma.

Adam UC(Y), Asthma(Y), Allergies(Y)

[Guest guest]

Hi Peg,

My husband's hepatologist is Dr. Tobias and he is affiliated with New York

University Medical Center (NYU) in NYC.

Liz

[Guest guest]

Hi Peg,

My husband's hepatologist is Dr. Tobias and he is affiliated with New York

University Medical Center (NYU) in NYC.

Liz

[Guest guest]

Hi Peg,

My husband's hepatologist is Dr. Tobias and he is affiliated with New York

University Medical Center (NYU) in NYC.

Liz

[Guest guest]

Peg,

My hepatologist is Young-Mee Lee, M.D. New England Medical Center Boston

[Guest guest]

Peg,

My hepatologist is Young-Mee Lee, M.D. New England Medical Center Boston

[Guest guest]

Peg,

My hepatologist is Young-Mee Lee, M.D. New England Medical Center Boston

[Guest guest]

Adam,

Biddy was putting together a poll with symptoms and common denominators. My

idea for the poll was to keep it simple. I think we should do the common

denominator in a separate poll. There is a place for polls in the e-groups web

list. But someone would probably have to give instructions on how to use it

because I think a lot of the group don't even realize or have forgotten about

the web list and it's capabilities.

Peg

AdamPSC96@... wrote:

> Peg,

>

> I think it is a great idea to include UC in the poll. It might also be good

> to include other autoimmune disorders. the link is well established between

> UC and PSC. I have also heard of research to see if there is a link between

> UC and Asthma.

>

> Adam UC(Y), Asthma(Y), Allergies(Y)

>

> ------------------------------------------------------------------------

> Click on Instant Credit Card Approval at

> http://clickhere./click/1271

>

> -- Talk to your group with your own voice!

> -- /VoiceChatPage?listName= & m=1

[Guest guest]

Adam,

Biddy was putting together a poll with symptoms and common denominators. My

idea for the poll was to keep it simple. I think we should do the common

denominator in a separate poll. There is a place for polls in the e-groups web

list. But someone would probably have to give instructions on how to use it

because I think a lot of the group don't even realize or have forgotten about

the web list and it's capabilities.

Peg

AdamPSC96@... wrote:

> Peg,

>

> I think it is a great idea to include UC in the poll. It might also be good

> to include other autoimmune disorders. the link is well established between

> UC and PSC. I have also heard of research to see if there is a link between

> UC and Asthma.

>

> Adam UC(Y), Asthma(Y), Allergies(Y)

>

> ------------------------------------------------------------------------

> Click on Instant Credit Card Approval at

> http://clickhere./click/1271

>

> -- Talk to your group with your own voice!

> -- /VoiceChatPage?listName= & m=1

[Guest guest]

My Hepatologist is Raiford at Vanderbilt University Med. Ctr. I

also see Sarkis Chobanian, who is a Gastroenterologist here in

Knoxville.

athan

[Guest guest]

I agree with you Peg. Simple is good. (But I do like Dr. &

Hospital/location for sharing purposes.)

's Mom

dx 8/99, asymptomatic except for some stomach pain; often but mild.

Re: PEG'S POLL UPDATE 11/7

> Adam,

> Biddy was putting together a poll with symptoms and common denominators.

My

> idea for the poll was to keep it simple. I think we should do the common

> denominator in a separate poll. There is a place for polls in the

e-groups web

> list. But someone would probably have to give instructions on how to use

it

> because I think a lot of the group don't even realize or have forgotten

about

> the web list and it's capabilities.

> Peg

>

> AdamPSC96@... wrote:

>

> > Peg,

> >

> > I think it is a great idea to include UC in the poll. It might also be

good

> > to include other autoimmune disorders. the link is well established

between

> > UC and PSC. I have also heard of research to see if there is a link

between

> > UC and Asthma.

> >

> > Adam UC(Y), Asthma(Y), Allergies(Y)

> >

> > ------------------------------------------------------------------------

> > Click on Instant Credit Card Approval at

> > http://clickhere./click/1271

> >

> > -- Talk to your group with your own voice!

> > -- /VoiceChatPage?listName= & m=1

>

>

>

>

> ------------------------------------------------------------------------

> Get A 0% Intro APR Visa with Instant Approval right now a

> GetSmart.com at http://clickhere./click/1270

>

>

> -- 20 megs of disk space in your eGroup's Document Vault

> -- /docvault//?m=1

>

>

[Guest guest]

Peggy,

This might have got lost in my " expertise " on the computer.

Here is what I found about common symptoms among this group:

1. URQ Pain

2. Severe Fatigue

3. No appetite -- weight loss

4. Diarrhea

5. Itching

6. Jaundice

7. Naseau

8. Arthritis

9. Chest pain

10. Bloated

11. Brown/dark urine

12. UC

13. Stomach pain

14. Infections

15. Chills

16. Legs cramping

17. Pain between shoulders

18. Fever

19. Rash

20. Low-grade temperature

21. Right hand shaking

22. Swelling

23. Dizziness

24. Depression

25. Trouble sleeping.

26. Bleeding

27. Brain Fog

28. Small skin-colored warts

This was about 2 months ago that I received most of this information.

Have not had anymore input since the last of September.

Re: PEG'S POLL UPDATE 11/7

>Adam,

>Biddy was putting together a poll with symptoms and common denominators.

My

>idea for the poll was to keep it simple. I think we should do the common

>denominator in a separate poll. There is a place for polls in the e-groups

web

>list. But someone would probably have to give instructions on how to use

it

>because I think a lot of the group don't even realize or have forgotten

about

>the web list and it's capabilities.

>Peg

>

>AdamPSC96@... wrote:

>

>> Peg,

>>

>> I think it is a great idea to include UC in the poll. It might also be

good

>> to include other autoimmune disorders. the link is well established

between

>> UC and PSC. I have also heard of research to see if there is a link

between

>> UC and Asthma.

>>

>> Adam UC(Y), Asthma(Y), Allergies(Y)

>>

>> ------------------------------------------------------------------------

>> Click on Instant Credit Card Approval at

>> http://clickhere./click/1271

>>

>> -- Talk to your group with your own voice!

>> -- /VoiceChatPage?listName= & m=1

>

>

>

>

>------------------------------------------------------------------------

>Get A 0% Intro APR Visa with Instant Approval right now a

>GetSmart.com at http://clickhere./click/1270

>

>

>-- 20 megs of disk space in your eGroup's Document Vault

>-- /docvault//?m=1

>

>

>