Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Omega-3 fatty acids are shown to be very important and effective in a treatment program for many people with neurological conditions. There are studies where it made significant differences in ADD, depression, bipolar, epilepsy, etc. So why not autism? It is being tried with good results in some. Most people on the traditional American diet are quite low in omega-3 fatty acids, if not outright deficient. DHA is not proving to be a key element. EPA is the key element. EPA. Hands-down, use OmegaBrite for school age kids and adults. If a younger child will not take it, use Coromega because it is good quality and tastes decent. Coromega does contain vanillin which is an artificial flavor, if this is a concern. [My note: people with phenol intolerance very often have problems with artificial additives.] Flax seed was " okay " but not as good with some side- effects which may be a concern. Skip the algae, seaweed, kelp, etc because humans don't metabolize it well and there are contamination concerns. Consume the fish/ fish oil because the fish metabolizes it right, and then humans can metabolize it from the fish [know your place on the food chain]. EPA – OmegaBrite. www.omegabrite.com. This is the recommendation of the presenter, but you probably want to look into this yourself. ------------------------------- The metallothionein research by Pfieffer. Good, exciting stuff. Basically, it shows too much copper via some pathways I will specify in another post on this presentation, with too low of zinc. So, add more zinc. A lot more zinc. They said like 150-200 mg of zinc. I have always been told not to go over 100 mg of zinc for an adult, but these are the numbers said more than once. Please look into this more before buying a truckload of zinc. How to correct the metallothionein problem? It will vary for each individual and isn't completely worked out at this time. It does involve cleaning up the gut for starters. And add more zinc. Drs. Holmes and El-Dahl will be updating their protocol to incorporate new metallothionein/mercury information. This will be on their site shortly. ---------------------------- There was some significantly positive new developments and statements on the mercury/vaccine issue that several of the doctors testified this summer for. Sorry, I did not understand them entirely except that it was a significant victory for the home team. Please refer to the web sites of Dr. Amy Holmes, Dr. Jeff Bradstreet, Dr. Wakefield or ARI for more information. Basically, they concluded that someone approving mercury in thimerasol in vaccines made a big mistake, there was a bit of a cover-up, and research on the matter is valid and needs to be funded. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 In a message dated 10/9/01 11:27:04 AM Pacific Daylight Time, kjorn@... writes: > > Basically, it shows too much copper via some pathways I will specify > in another post on this presentation, with too low of zinc. So, add > more zinc. A lot more zinc Hi all.. Not to contradict what has to say, but....alot more zinc is a great idea for those kids whose copper is not too high. The copper is the big issue. The low zinc is just the clue. According to Dr. Walsh (the guy who is spearheading the whole mettalothionein thing, he told me personally and specifically NOT to mega dose on zinc until I find out if the copper is high, as this can cause serious problems. He said that he is interested in treating my son (because he is so young and the young ones really seem to respond well and quickly) and gave me kind of a gme plan for supplementing and said to start at 15 mg and go up to no more than 30 mg. unitl after he sees Spencer. He also said that there should be absolutely zero copper in his diet, even the supplemts should have none. This was my personal experience and I would hate to have anyone o.d. on zinc unless they know for sure it is safe. Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 In a message dated 10/9/2001 4:09:20 PM Pacific Daylight Time, veggieme@... writes: > (because he is so young and the young ones really seem to respond well > and quickly) and gave me kind of a gme plan for supplementing and said to > start at 15 mg and go up to no more than 30 mg. unitl after he sees > Spencer. > He also said that there should be absolutely zero copper in his diet, even > the supplemts should have none. This was my personal experience and I would > > hate to have anyone o.d. on zinc unless they know for sure it is safe Amber, What in the diet has Copper? Another question, does anyone know of a awesome, totally informative book/ guide to nutrition? Donna, Kingwood, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Most multi vitamins, although SNT is exempt, contain copper. I don't know what other foods do. Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 Just a quick note requiring all of you who read this to give us a rowdy round of congratulations.... I got a confirmation from Pfeiffer Treatment Center (Dr. Walsh's clinic) that Dr. Walsh will be treating Spencer!!!!! It was a litlle iffy in that there are apparently far more people seeking treatment than Dr. Walsh is able to accomodate. He actually presented at the DAN conference hoping to attract doctors to embrace and include his treatment in the DAN protocol...he told me that he WAS NOT there to solicit for patients, as he already had more than he could handle and was turning patients away...This post was not meant to gloat, only to bouy us all up in our confidence that the squeaky wheel really does get the oil and I am a squeaky wheel every where I go. This is my focus: Not that my two year old isn't performing at the level of his NT twin sister. Not that my two year old isn't verbal the way he should be. Not that my two year old spaces out when he should be available to me. Not that my two year old makes typical excursions a nightmare. Not that my two year old doesn't understand much of his life. But rather that My 20 year old WILL not live in a group home My 20 year old WILL be capable of going to college My 20 year old WILL choose whether to marry My 20 year old WILL live a NT life, with the help of GOD and his squeaky wheel mom. God helps those who help themselves and my efforts may mean nothing, but they may mean everything. Only I can and want to help my son rise above the hand he drew to create a destiny that he will earn, not fall into. There is no place in my mind for the possibility that Spencer won't have all of the opportunities that his siblings have. Whether I think I can, or think I can't, I am probably right. God has blessed you little one witha squeaky wheel mom. Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 I talked to Dr. Walsh, too. In frustration, we had started supplementing our son with zinc because we KNEW his copper levels were high. We gave him 30 mg/day of zinc picolonate based on a suggestion by a DAN! person... fell apart. A lot more stimmy. Hyper. Wetting his pants for the first time in a year. Dr. Walsh looked at his labs and said that the zinc was probably working, but it wasn't good for his body to get rid of the copper so fast...And to do it under the care of a physician. We've got an appointment with a metabolic clinic November 7...I don't really know if anyone knows what they're doing in this area... , Mom to (5, autistic), and (6, NT), who really would like to find any physician who knows about how the whole person works and what to do when they're not working right Re: [ ] ExtraDAN: Omega-3/ Metallathionein (Pfeiffer)/Vaccines In a message dated 10/9/01 11:27:04 AM Pacific Daylight Time, kjorn@... writes: Basically, it shows too much copper via some pathways I will specify in another post on this presentation, with too low of zinc. So, add more zinc. A lot more zinc Hi all.. Not to contradict what has to say, but....alot more zinc is a great idea for those kids whose copper is not too high. The copper is the big issue. The low zinc is just the clue. According to Dr. Walsh (the guy who is spearheading the whole mettalothionein thing, he told me personally and specifically NOT to mega dose on zinc until I find out if the copper is high, as this can cause serious problems. He said that he is interested in treating my son (because he is so young and the young ones really seem to respond well and quickly) and gave me kind of a gme plan for supplementing and said to start at 15 mg and go up to no more than 30 mg. unitl after he sees Spencer. He also said that there should be absolutely zero copper in his diet, even the supplemts should have none. This was my personal experience and I would hate to have anyone o.d. on zinc unless they know for sure it is safe. Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 I love this Amber. My goal is for my DSI 3.4 yo to go to the same Christian School as her NT sister. Which mean no IEP, aid, ect. We are working hard with a home Neurodevelopmental program. Although she seems miles away from her NT counterparts, I'm learning to celebrate the little things. Last night I was playing " balloon catch " with her (part of her program) and she actually was catching instead of trapping it. Yeah! It's hard to trust in God's plan for her, but he has never let us down. Blessings- Not that my two year old isn't performing at the level of his NT twin sister. Not that my two year old isn't verbal the way he should be. Not that my two year old spaces out when he should be available to me. Not that my two year old makes typical excursions a nightmare. Not that my two year old doesn't understand much of his life. But rather that My 20 year old WILL not live in a group home My 20 year old WILL be capable of going to college My 20 year old WILL choose whether to marry My 20 year old WILL live a NT life, with the help of GOD and his squeaky wheel mom. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 CELEBRATE THE LITTLE THINGS! It makes the journey so much easier... , Mom to (5, autistic), and (6, NT), who went out to dinner with both children and their tired dad and ordered CHAMPAGNE after 's fairly successful IEP on Friday... Re: [ ] ExtraDAN: Omega-3/ Metallathionein (Pfeiffer)/Vaccines I love this Amber. My goal is for my DSI 3.4 yo to go to the same Christian School as her NT sister. Which mean no IEP, aid, ect. We are working hard with a home Neurodevelopmental program. Although she seems miles away from her NT counterparts, I'm learning to celebrate the little things. Last night I was playing " balloon catch " with her (part of her program) and she actually was catching instead of trapping it. Yeah! It's hard to trust in God's plan for her, but he has never let us down. Blessings- Not that my two year old isn't performing at the level of his NT twin sister. Not that my two year old isn't verbal the way he should be. Not that my two year old spaces out when he should be available to me. Not that my two year old makes typical excursions a nightmare. Not that my two year old doesn't understand much of his life. But rather that My 20 year old WILL not live in a group home My 20 year old WILL be capable of going to college My 20 year old WILL choose whether to marry My 20 year old WILL live a NT life, with the help of GOD and his squeaky wheel mom. Quote Link to comment Share on other sites More sharing options...
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