Re: Dr. visit & Rx Questions

[Guest guest]

I also use All Free and Clear. I haven't noticed any difference from when

I was using Cheer Free (which my doc originally recommended) or even from

my previous scented detergent, for that matter!

At 11:54 PM 3/30/99 -0500, you wrote:

>From: KGGRY@...

>

>The detergent I use is All Free Clear which is hypoallergenic. It has no

dyes

>or perfumes but perhaps I should be using Ivory. Anyone else have any

ideas?

>Kathy

>

>------------------------------------------------------------------------

>

[Guest guest]

Hi Sandi,

You have been on my mind and I was wondering how yesterday went.

Your new physician seems like he's on the ball. Now relax and try to let

nature takes it's course. Your body has really been through a rough time

not to mention your mind. Just don't give up hope and remember you will

probably have good and bad days, but hopefully you will start having more

better days.

I have a problem with constipation all the time. Drink plenty of water and

you could try Metamucil or Perdium. Also as you start feeling better and

can be more active this will help also. Roughage in your diet and fruits

and vegetables can help, but I don't know if you are staying on your special

diets.

Good Luck and God Bless,

Judy C.

CONGRADULATIONS TO UCONN IT WAS A GREAT GAME.

Dr. visit & Rx Questions

>From: SandiSharp@...

>

>Hi everyone,

>

>I just wanted to let you know about my doctor visit yesterday. I switched

mds

>because my last one just kept treating the yeast and/or bacteria, never

>addressed my pain problem which has been unbearable, and never discussed my

>emotional situation. I like my new md, Dr. Gibbons in Hartford. He

>seems more compassionate.

>

>He feels that the flora will normalize in time but that all these yeast

>medicines have caused/contributed to the vulvodynia. He will monitor the

>flora via cultures like I asked him to, but he will not treat the problem

with

>drugs. He prescribed disipramine and Depakote fo the vv and vvs. I will

>phase off the neurontin which has given me no relief.

>

>He says that I also have cutaneous dysesthesia ( stinging skin elsewhere)

and

>pelvic muscle problems. He thinks I will need biofeedback in the future

once

>we get the vv under control.

>

>He also wants me to do 3 sets of 10 kegel exercises each day. He said I

must

>wear white cotton underwear and wash it only in ivory snow. No detergent.

I

>had been wearing cotton panties with a few flowers and washing in a

fragrance

>and dye free detergent. I don't know if changing the underwear rules will

>make a difference but I thought its worth a try.

>

>I tried the disipramine last night along with the Depakote and neurontin

which

>I'm phasing off of. I didn't sleep at all. Not one minute! I am a big

UCONN

>fan and was so excited about the game. I also had the dr visit thoughts in

my

>head plus the new drugs.

>

>Has anyone ever had sleep problems with Disipramine or Depakote?

>Also, when I tried Elavil last summer I had severe constipation, a complete

>intestinal blockage that almost required hospitalization. Has anyone had

>problems with constipation on disipramine?

>

>Thanks.

>

>Sandi

>

>------------------------------------------------------------------------

>

[Guest guest]

Hi Sandi,

You have been on my mind and I was wondering how yesterday went.

Your new physician seems like he's on the ball. Now relax and try to let

nature takes it's course. Your body has really been through a rough time

not to mention your mind. Just don't give up hope and remember you will

probably have good and bad days, but hopefully you will start having more

better days.

I have a problem with constipation all the time. Drink plenty of water and

you could try Metamucil or Perdium. Also as you start feeling better and

can be more active this will help also. Roughage in your diet and fruits

and vegetables can help, but I don't know if you are staying on your special

diets.

Good Luck and God Bless,

Judy C.

CONGRADULATIONS TO UCONN IT WAS A GREAT GAME.

Dr. visit & Rx Questions

>From: SandiSharp@...

>

>Hi everyone,

>

>I just wanted to let you know about my doctor visit yesterday. I switched

mds

>because my last one just kept treating the yeast and/or bacteria, never

>addressed my pain problem which has been unbearable, and never discussed my

>emotional situation. I like my new md, Dr. Gibbons in Hartford. He

>seems more compassionate.

>

>He feels that the flora will normalize in time but that all these yeast

>medicines have caused/contributed to the vulvodynia. He will monitor the

>flora via cultures like I asked him to, but he will not treat the problem

with

>drugs. He prescribed disipramine and Depakote fo the vv and vvs. I will

>phase off the neurontin which has given me no relief.

>

>He says that I also have cutaneous dysesthesia ( stinging skin elsewhere)

and

>pelvic muscle problems. He thinks I will need biofeedback in the future

once

>we get the vv under control.

>

>He also wants me to do 3 sets of 10 kegel exercises each day. He said I

must

>wear white cotton underwear and wash it only in ivory snow. No detergent.

I

>had been wearing cotton panties with a few flowers and washing in a

fragrance

>and dye free detergent. I don't know if changing the underwear rules will

>make a difference but I thought its worth a try.

>

>I tried the disipramine last night along with the Depakote and neurontin

which

>I'm phasing off of. I didn't sleep at all. Not one minute! I am a big

UCONN

>fan and was so excited about the game. I also had the dr visit thoughts in

my

>head plus the new drugs.

>

>Has anyone ever had sleep problems with Disipramine or Depakote?

>Also, when I tried Elavil last summer I had severe constipation, a complete

>intestinal blockage that almost required hospitalization. Has anyone had

>problems with constipation on disipramine?

>

>Thanks.

>

>Sandi

>

>------------------------------------------------------------------------

>

[Guest guest]

SandiSharp@... wrote:

> From: SandiSharp@...

>

> Hi everyone,

>

> I just wanted to let you know about my doctor visit yesterday. I switched mds

> because my last one just kept treating the yeast and/or bacteria, never

> addressed my pain problem which has been unbearable, and never discussed my

> emotional situation. I like my new md, Dr. Gibbons in Hartford. He

> seems more compassionate.

>

> He feels that the flora will normalize in time but that all these yeast

> medicines have caused/contributed to the vulvodynia. He will monitor the

> flora via cultures like I asked him to, but he will not treat the problem with

> drugs. He prescribed disipramine and Depakote fo the vv and vvs. I will

> phase off the neurontin which has given me no relief.

>

> He says that I also have cutaneous dysesthesia ( stinging skin elsewhere) and

> pelvic muscle problems. He thinks I will need biofeedback in the future once

> we get the vv under control.

>

> He also wants me to do 3 sets of 10 kegel exercises each day. He said I must

> wear white cotton underwear and wash it only in ivory snow. No detergent. I

> had been wearing cotton panties with a few flowers and washing in a fragrance

> and dye free detergent. I don't know if changing the underwear rules will

> make a difference but I thought its worth a try.

>

> I tried the disipramine last night along with the Depakote and neurontin which

> I'm phasing off of. I didn't sleep at all. Not one minute! I am a big UCONN

> fan and was so excited about the game. I also had the dr visit thoughts in my

> head plus the new drugs.

>

> Has anyone ever had sleep problems with Disipramine or Depakote?

> Also, when I tried Elavil last summer I had severe constipation, a complete

> intestinal blockage that almost required hospitalization. Has anyone had

> problems with constipation on disipramine?

>

> Thanks.

>

> Sandi

>

> ------------------------------------------------------------------------

>

[Guest guest]

SandiSharp@... wrote:

> From: SandiSharp@...

>

> Hi everyone,

>

> I just wanted to let you know about my doctor visit yesterday. I switched mds

> because my last one just kept treating the yeast and/or bacteria, never

> addressed my pain problem which has been unbearable, and never discussed my

> emotional situation. I like my new md, Dr. Gibbons in Hartford. He

> seems more compassionate.

>

> He feels that the flora will normalize in time but that all these yeast

> medicines have caused/contributed to the vulvodynia. He will monitor the

> flora via cultures like I asked him to, but he will not treat the problem with

> drugs. He prescribed disipramine and Depakote fo the vv and vvs. I will

> phase off the neurontin which has given me no relief.

>

> He says that I also have cutaneous dysesthesia ( stinging skin elsewhere) and

> pelvic muscle problems. He thinks I will need biofeedback in the future once

> we get the vv under control.

>

> He also wants me to do 3 sets of 10 kegel exercises each day. He said I must

> wear white cotton underwear and wash it only in ivory snow. No detergent. I

> had been wearing cotton panties with a few flowers and washing in a fragrance

> and dye free detergent. I don't know if changing the underwear rules will

> make a difference but I thought its worth a try.

>

> I tried the disipramine last night along with the Depakote and neurontin which

> I'm phasing off of. I didn't sleep at all. Not one minute! I am a big UCONN

> fan and was so excited about the game. I also had the dr visit thoughts in my

> head plus the new drugs.

>

> Has anyone ever had sleep problems with Disipramine or Depakote?

> Also, when I tried Elavil last summer I had severe constipation, a complete

> intestinal blockage that almost required hospitalization. Has anyone had

> problems with constipation on disipramine?

>

> Thanks.

>

> Sandi

>

> ------------------------------------------------------------------------

>

[Guest guest]

>From: Lainey9911@...

>

>I use Cheer Free on my clothes. Anyone else? I also nuke my underwear.

Lainey

I've used that, and I use Planet laundry soap (unscented), and no

fabric softeners. I always double-rinse anything that would come in contact

with the vulva (including bed sheets and towels). I haven't heard that

nuking undies really helps anything, but who knows! I also only use organic

cotton menstrual pads, and sometimes natural tampons, but not while treating

a yeast problem [the tampons]. I'm glad we have our own washing machine and

dryer! I'd hate to have to go to a laundromat and wonder what kind of

soap/softener residues are lurking in the machines.

My two cents!

Gail R.

[Guest guest]

The detergent I use is All Free Clear which is hypoallergenic. It has no dyes

or perfumes but perhaps I should be using Ivory. Anyone else have any ideas?

Kathy

[Guest guest]

The detergent I use is All Free Clear which is hypoallergenic. It has no dyes

or perfumes but perhaps I should be using Ivory. Anyone else have any ideas?

Kathy

[Guest guest]

The detergent I use is All Free Clear which is hypoallergenic. It has no dyes

or perfumes but perhaps I should be using Ivory. Anyone else have any ideas?

Kathy

[Guest guest]

Thanks Gail. I have to use the washer/dryer at my apt. complex and I do worry

about other people's scented things being left over. I can't double rinse, I

wish I could. If anyone out there is in my position, let me know what you do.

I use Cheer Free, no Downy etc. and I nuke the undies because I use a

washer/dryer used by the entire complex. I like the idea of double rinsing

sheets and undies. I never use " scented " anything. I wondered about the Planet

soap. I'll check it out. Although I like Cheer Free. Lainey

[Guest guest]

Thanks Gail. I have to use the washer/dryer at my apt. complex and I do worry

about other people's scented things being left over. I can't double rinse, I

wish I could. If anyone out there is in my position, let me know what you do.

I use Cheer Free, no Downy etc. and I nuke the undies because I use a

washer/dryer used by the entire complex. I like the idea of double rinsing

sheets and undies. I never use " scented " anything. I wondered about the Planet

soap. I'll check it out. Although I like Cheer Free. Lainey

[Guest guest]

Thanks Gail. I have to use the washer/dryer at my apt. complex and I do worry

about other people's scented things being left over. I can't double rinse, I

wish I could. If anyone out there is in my position, let me know what you do.

I use Cheer Free, no Downy etc. and I nuke the undies because I use a

washer/dryer used by the entire complex. I like the idea of double rinsing

sheets and undies. I never use " scented " anything. I wondered about the Planet

soap. I'll check it out. Although I like Cheer Free. Lainey

[Guest guest]

Hi!

I do use tampons as my doctor has said pads and pantiliners do not let

that area to breath creating a warm moist area that yeast thrive in.

Michele D

[Guest guest]

Hi!

I do use tampons as my doctor has said pads and pantiliners do not let

that area to breath creating a warm moist area that yeast thrive in.

Michele D

[Guest guest]

I use seventh generation laundry detergent. It says no petro chemicals and

the clothes even feel different. Put a little bit of vinegar in your rinse

water. That helps get the soap out.

>

>

>I also use All Free and Clear. I haven't noticed any difference from when

>I was using Cheer Free (which my doc originally recommended) or even from

>my previous scented detergent, for that matter!

>

>

>

>

>At 11:54 PM 3/30/99 -0500, you wrote:

>>From: KGGRY@...

>>

>>The detergent I use is All Free Clear which is hypoallergenic. It has no

>dyes

>>or perfumes but perhaps I should be using Ivory. Anyone else have any

>ideas?

>>Kathy

[Guest guest]

I use seventh generation laundry detergent. It says no petro chemicals and

the clothes even feel different. Put a little bit of vinegar in your rinse

water. That helps get the soap out.

>

>

>I also use All Free and Clear. I haven't noticed any difference from when

>I was using Cheer Free (which my doc originally recommended) or even from

>my previous scented detergent, for that matter!

>

>

>

>

>At 11:54 PM 3/30/99 -0500, you wrote:

>>From: KGGRY@...

>>

>>The detergent I use is All Free Clear which is hypoallergenic. It has no

>dyes

>>or perfumes but perhaps I should be using Ivory. Anyone else have any

>ideas?

>>Kathy

[Guest guest]

I use seventh generation laundry detergent. It says no petro chemicals and

the clothes even feel different. Put a little bit of vinegar in your rinse

water. That helps get the soap out.

>

>

>I also use All Free and Clear. I haven't noticed any difference from when

>I was using Cheer Free (which my doc originally recommended) or even from

>my previous scented detergent, for that matter!

>

>

>

>

>At 11:54 PM 3/30/99 -0500, you wrote:

>>From: KGGRY@...

>>

>>The detergent I use is All Free Clear which is hypoallergenic. It has no

>dyes

>>or perfumes but perhaps I should be using Ivory. Anyone else have any

>ideas?

>>Kathy

[Guest guest]

Hi everyone,

I took the disipramine for 2 nights in a row and the same thing happened. I

woke up 2 hours later all sweaty and couldn't sleep for the rest of the night.

I thought it was supposed to make me sleepy. I am only taking 10 mg but I am

very sensitive to the side effects of tricyclics.

I also started taking depakote at the same time but don't think that is my

problem since I have taken it before. I am weaning off of the neurontin also

and have been taking that at night. You would think I would sleep like a rock

with all those drugs.

Has anyone had any sleep problems with these drugs? Perhaps it is the

interaction of all the drugs?

Thanks

Sandi

[Guest guest]

When I was on Doxepin or the other name is Sinequan, I ended up with insomina.

I got very hyper at night as well. I know Darlene does very well on it and yet

I can't seem to handle any of the anti dep. Doxepin was the one that really

kept me up at night and the next day I felt so drugged. So you're not alone!

Lainey

[Guest guest]

I agree with you Darlene. I can't use bleach and Ivory does have a scent to

it so I never go near it. I use Cheer Free with no dyes, no perfumes and no

smells. I also never use softeners. I agree it doesn't " cure " us, but it sure

makes things worse when you do use them. Gosh, sometimes just going into a

laundry room filled with others using Tide about does me in. Lainey

[Guest guest]

Thanks Jeannette, I'm so glad Doxopin works for you. However, I was on it for

over 5 yrs and took it at night. It didn't ever make me sleepy, in fact,

quite the opposite. Everyone is different and I was one of them that couldn't

get the benefits. Too bad as I know it's a great drug. Glad you are

tolerating it! Lainey

[Guest guest]

DEAR LAINEY I am on doxepin and the DR. told me to take it at 7 0clock

at night so that all the side effects would be when I sleep ,, I haven't slept

this well in years .. im on 30 mg per day ,, I tried elivail and had all

kinds of side effects i couldn't take it so i went off it .. This DR. told me

that doxepin is in the same family as elival .. and so far if i have

any i dont seem to have many .. my mouth is a little dry but not to bad

and i takr a teaspoon of medumical for the constapation..

SO FAR SO GOOD If i were you I would try taking it at night ..

Hope this works for you....

(((((((((((HUGS))))))))))))))))

Jeannette

Lainey9911@... wrote:

> From: Lainey9911@...

>

> When I was on Doxepin or the other name is Sinequan, I ended up with insomina.

> I got very hyper at night as well. I know Darlene does very well on it and yet

> I can't seem to handle any of the anti dep. Doxepin was the one that really

> kept me up at night and the next day I felt so drugged. So you're not alone!

> Lainey

>

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