The Power Of Your Mind - a step towards a cure?

[Guest guest]

O should like to see this posted here, too, friend, for everyone.

>

> Hi All,

>

>

>

> I have posted a topic on the public forums here

> <http://www.soundsensitivity.info/Forum/viewtopic.php?f=19 & t=74> , it is a

> short post about my success with overcoming this condition for the past week

> and as I continue to work on it, into the future J I'll also post it under

> the private section in case anyone would like to respond but would rather

> not do so publicly.

>

>

>

> As many of you know I am serious about keeping user information as private

> as I can, as such to gain access to the private forum you will need to send

> an email to admin@... , just put in your user name for the

> forum on the public website, say you are from here and would like access and

> either Dr J or myself will give you access asap. I know this seems like a

> needless step but as they are two very different systems (yahoo groups vs

> php bb3) its not as simple as a straight import.

>

>

>

> If there are many who would rather not sign up to the forum but would like

> to know my short post, shout out and I can post it here too.

>

>

>

> Cheers

>

>

>

>

>

[Guest guest]

O should like to see this posted here, too, friend, for everyone.

>

> Hi All,

>

>

>

> I have posted a topic on the public forums here

> <http://www.soundsensitivity.info/Forum/viewtopic.php?f=19 & t=74> , it is a

> short post about my success with overcoming this condition for the past week

> and as I continue to work on it, into the future J I'll also post it under

> the private section in case anyone would like to respond but would rather

> not do so publicly.

>

>

>

> As many of you know I am serious about keeping user information as private

> as I can, as such to gain access to the private forum you will need to send

> an email to admin@... , just put in your user name for the

> forum on the public website, say you are from here and would like access and

> either Dr J or myself will give you access asap. I know this seems like a

> needless step but as they are two very different systems (yahoo groups vs

> php bb3) its not as simple as a straight import.

>

>

>

> If there are many who would rather not sign up to the forum but would like

> to know my short post, shout out and I can post it here too.

>

>

>

> Cheers

>

>

>

>

>

[Guest guest]

, I am so happy for you. The mind is very, very powerful. It’s great to know that there’s hope of my daughter harnessing this power to overcome her reaction when she is triggered. I’m not sure what causes the initial spark, but it’s encouraging to know that you are able to feel control over your reaction. Keep us posted! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of McKennaSent: Saturday, February 05, 2011 12:49 AMTo: Soundsensitivity Subject: The Power Of Your Mind - a step towards a cure? Hi All, I have posted a topic on the public forums here , it is a short post about my success with overcoming this condition for the past week and as I continue to work on it, into the future J I’ll also post it under the private section in case anyone would like to respond but would rather not do so publicly. As many of you know I am serious about keeping user information as private as I can, as such to gain access to the private forum you will need to send an email to admin@... , just put in your user name for the forum on the public website, say you are from here and would like access and either Dr J or myself will give you access asap. I know this seems like a needless step but as they are two very different systems (yahoo groups vs php bb3) its not as simple as a straight import. If there are many who would rather not sign up to the forum but would like to know my short post, shout out and I can post it here too. Cheers

[Guest guest]

Hi All, I have posted a topic on the public forums here , it is a short post about my success with overcoming this condition for the past week and as I continue to work on it, into the future J I’ll also post it under the private section in case anyone would like to respond but would rather not do so publicly. As many of you know I am serious about keeping user information as private as I can, as such to gain access to the private forum you will need to send an email to admin@... , just put in your user name for the forum on the public website, say you are from here and would like access and either Dr J or myself will give you access asap. I know this seems like a needless step but as they are two very different systems (yahoo groups vs php bb3) its not as simple as a straight import. If there are many who would rather not sign up to the forum but would like to know my short post, shout out and I can post it here too. Cheers

[Guest guest]

, that is totally awesome. This is what I have been saying for some time now... that positive thinking can do nothing but help. You said, "The initial surge of negative emotion that is sparked by the trigger sound will remain, but the additional building negative response that is often felt afterwards, such as rage and the need to escape is controllable. I now see it like this. The trigger noise is like a spark, it has the ability to cause a fire if unchecked but if properly monitored, like a spark with no more fuel, it will burn out harmlessly. "Excellent way of describing it. This is how it is for me now too. Not all the time, but a lot of the time which is better than nothing. I still feel that initial spark (haven't figured out how to control that as it seems natural to me), but I can prevent myself from becoming out of control, needing to flee. Its a step in the right direction at least. Keep up the good work! Don't worry about having bad days in the future because you know what it is like to have good days. Remember that feeling and know that you can get it again! :)Darlene > > Many of you know that I have been on both sides of the coin. I have had days> where I have found it very difficult to cope and then days where this> condition did not phase me at all.> > I have been searching the internet for an answer, for something that might> be able to shed some light on what we are dealing with or a way to reduce> the negative reactions we face.> > I read a post through the UK support group where a member mentioned he was> cured. As you might imagine, this held my interest and I went over there> right away to read how.> > The post detailed a changed in mind set and the member spoke about just by> willing it, he overcame. It had been 6 weeks and he had not used ear plugs> and had faced his fears head on....and won.> > I have read information on NLP, CBTand brainwave entrainment all talking> about the power of your mind and the ability to recondition. I have dabbled> with this in the past but never have I put my whole into it that is until> this week.> > After reading the post about will power I decide to throw myself at it full> force and see what happens.> > At first I thought it was going to be extremely difficult, we all know what> it is like being trapped in a room with triggers blasting around us and we> cant get out, but how many of you have noticed that when you subject> yourself to a trigger, often the negative response does not exist? I have,> many times when I tried to rid my self of this infliction by downloading and> listening to people chew apples and eat chip, I found I could listen to> these sounds for a very very long time, but have someone else make the> sounds that I cant control and it is a very different story.> > The first day I arrived at work, and as normal people were eating breakfast> at their desk, their crunchy , bowl smacking, slurping breakfast and> instinctively I reached for my Ipod to block out the noise as the all too> comon feelings of rage surfaced. Then I stopped, music in had....and I> realized I dont need to run anymore.> > Without a second though I dropped my Ipod on my desk, sat at my computer and> felt all of the anger wash away. It just switched off! As another spoon made> that nail on the chalk board sound I felt the negativity rise and with a> huge surge of willpower I forced it away. > > "I am able to do this, the sounds are not getting to me, I can do this" I> repeated to myself two more times before logging onto the network and> starting work.> > And the most amazing thing happened, as I continued to check my emotions and> willpower the negativity away I checked the time and it was 3pm....someone> behind me was just finishing an apple....and I didn't even notice they were> eating it in the first place. Description: :!: > > I sat back and realized as I drifted through my memory, that people had been> making trigger noises around me all day and I had not noticed and it has> lead me to the following conclusion> > The initial surge of negative emotion that is sparked by the trigger sound> will remain, but the additional building negative response that is often> felt afterwards, such as rage and the need to escape is controllable.> > I now see it like this. The trigger noise is like a spark, it has the> ability to cause a fire if unchecked but if properly monitored, like a spake> with no more fuel, it will burn out harmlessly. > > It has been one week so far, and for this entire week I have been able to> control my reactions, I have turned down every aspect of 4s and even found> myself able to sleep last night without ear plugs. > > At present, I do not believe I will be able to remove the initial reaction,> (yet) but if I can control the rest I think I might just get my life back. I> know I am going to have bad days, but if I force myself, I will have more> good than bad and as far as I am concerned, that is a win. >

[Guest guest]

In my own clinical, I have thought of that very moment in time as The Gap. If

we can widen the Gap, then the emotive surge, which often occurs

pre-consciously, then we might find progress.

Widening the Gap remains to be one investigative area in this malady, and to

date, using the therapist, the psychological therapist, might end being the best

venue for this exercise.

I have worked directly with psychiatrists and psychologist, all over the world,

interested in 4S and its larger category, misophonia, who have also attempted to

widen The Gap, or to create the venue thru which people feel as if THEY were in

control of the drivers' seat in the car, THEY steer the ship, THEY decide which

direction to go....

Another idea would be to pursue how to inhibit the 'trigger' that creates the

'spark' of reaction, in other words, impede the flow of neurological signals

that have unusual significance, to shift its pathway PRIOR to the sparking of

the response.

This could be both an internal or external invention or inhibition or filtering

or even a chemical agent which can taget specific over-excited neurons or

unusually strong neural connections.

The word you used, 'surge' is an excellent choice as often the 4S patient feels

engulfed by....their own self! So it is very similar to being caught up in a

tidal wave, a tsunami, of such strong primitive emotion, that it is hard to

breathe or even perceive the rest of the magnificent world...

Dr J

>

> >

> > Many of you know that I have been on both sides of the coin. I have had

> days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that might

> > be able to shed some light on what we are dealing with or a way to reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he was

> > cured. As you might imagine, this held my interest and I went over there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I have,

> > many times when I tried to rid my self of this infliction by downloading

> and

> > listening to people chew apples and eat chip, I found I could listen to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my computer

> and

> > felt all of the anger wash away. It just switched off! As another spoon

> made

> > that nail on the chalk board sound I felt the negativity rise and with a

> > huge surge of willpower I forced it away.

> >

> > " I am able to do this, the sounds are not getting to me, I can do this " I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my emotions

> and

> > willpower the negativity away I checked the time and it was 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people had

> been

> > making trigger noises around me all day and I had not noticed and it has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger sound

> > will remain, but the additional building negative response that is often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able to

> > control my reactions, I have turned down every aspect of 4s and even found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life back.

> I

> > know I am going to have bad days, but if I force myself, I will have more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

It (4s) has got to be physiological in origin. Mind games may help cope, but, in my opinion, as a fellow sufferer, the cause of 4s is an imbalance of the neurotransmitters, namely: serotonin, dopamine, endorphins, nor-epinephrine and others. Also known as the chemical soup in your brain. Don't expect medical people to be of any help. Most don't even know these exist, let alone, play together like a symphony. In 4s, one of the players in the symphony out of tune. There is no way to measure these neurotransmitters, unless you do a spinal tap. And there won't be many volunteers for that. Even if you could measure easily the amount and ratio between neurotransmitters, it still wouldn't help, because there is no way to measure receptor sights that these chemicals need to

work.For now, know it is not your fault or a parenting failure. In a generation or so, this issue will be visited by the scientific community and they will crack the code, and find sustainable and reliable relief. For now, coping is great. The condition, as you know, is uncomfortable, but not dangerous. Good luck to all.To: Soundsensitivity Sent: Sat, February 5, 2011 6:22:07 AMSubject:

Re: The Power Of Your Mind - a step towards a cure?

In my own clinical, I have thought of that very moment in time as The Gap. If we can widen the Gap, then the emotive surge, which often occurs pre-consciously, then we might find progress.

Widening the Gap remains to be one investigative area in this malady, and to date, using the therapist, the psychological therapist, might end being the best venue for this exercise.

I have worked directly with psychiatrists and psychologist, all over the world, interested in 4S and its larger category, misophonia, who have also attempted to widen The Gap, or to create the venue thru which people feel as if THEY were in control of the drivers' seat in the car, THEY steer the ship, THEY decide which direction to go....

Another idea would be to pursue how to inhibit the 'trigger' that creates the 'spark' of reaction, in other words, impede the flow of neurological signals that have unusual significance, to shift its pathway PRIOR to the sparking of the response.

This could be both an internal or external invention or inhibition or filtering or even a chemical agent which can taget specific over-excited neurons or unusually strong neural connections.

The word you used, 'surge' is an excellent choice as often the 4S patient feels engulfed by....their own self! So it is very similar to being caught up in a tidal wave, a tsunami, of such strong primitive emotion, that it is hard to breathe or even perceive the rest of the magnificent world...

Dr J

>

> >

> > Many of you know that I have been on both sides of the coin. I have had

> days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that might

> > be able to shed some light on what we are dealing with or a way to reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he was

> > cured. As you might imagine, this held my interest and I went over there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I have,

> > many times when I tried to rid my self of this infliction by downloading

> and

> > listening to people chew apples and eat chip, I found I could listen to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my computer

> and

> > felt all of the anger wash away. It just switched off! As another spoon

> made

> > that nail on the chalk board sound I felt the negativity rise and with a

> > huge surge of willpower I forced it away.

> >

> > "I am able to do this, the sounds are not getting to me, I can do this" I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my emotions

> and

> > willpower the negativity away I checked the time and it was 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people had

> been

> > making trigger noises around me all day and I had not noticed and it has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger sound

> > will remain, but the additional building negative response that is often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able to

> > control my reactions, I have turned down every aspect of 4s and even found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life back.

> I

> > know I am going to have bad days, but if I force myself, I will have more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

I've posted about 4S on the lowcarbfriends.com website in the thyroid section and one person believes we all should have our adrenals tested using the salvia test. Given that I have hypothyroid which usually occurs at puberty just like 4S, I'm gonna have the saliva test. My hypothyroid went untreated for over 20 years due to Drs only doing a TSH test which is worthless. I finally went to a naturopathy who did T3 free and T4 free testing and low and behold I need thyroid. I do know hypothyroid causes sound sensitivity, annoyance to loud sounds. So maybe the adrenals are a link to 4S. Gonna give it a try. HeidiSent from my iPhone

It (4s) has got to be physiological in origin. Mind games may help cope, but, in my opinion, as a fellow sufferer, the cause of 4s is an imbalance of the neurotransmitters, namely: serotonin, dopamine, endorphins, nor-epinephrine and others. Also known as the chemical soup in your brain. Don't expect medical people to be of any help. Most don't even know these exist, let alone, play together like a symphony. In 4s, one of the players in the symphony out of tune. There is no way to measure these neurotransmitters, unless you do a spinal tap. And there won't be many volunteers for that. Even if you could measure easily the amount and ratio between neurotransmitters, it still wouldn't help, because there is no way to measure receptor sights that these chemicals need to

work.For now, know it is not your fault or a parenting failure. In a generation or so, this issue will be visited by the scientific community and they will crack the code, and find sustainable and reliable relief. For now, coping is great. The condition, as you know, is uncomfortable, but not dangerous. Good luck to all.To: Soundsensitivity Sent: Sat, February 5, 2011 6:22:07 AMSubject:

Re: The Power Of Your Mind - a step towards a cure?

In my own clinical, I have thought of that very moment in time as The Gap. If we can widen the Gap, then the emotive surge, which often occurs pre-consciously, then we might find progress.

Widening the Gap remains to be one investigative area in this malady, and to date, using the therapist, the psychological therapist, might end being the best venue for this exercise.

I have worked directly with psychiatrists and psychologist, all over the world, interested in 4S and its larger category, misophonia, who have also attempted to widen The Gap, or to create the venue thru which people feel as if THEY were in control of the drivers' seat in the car, THEY steer the ship, THEY decide which direction to go....

Another idea would be to pursue how to inhibit the 'trigger' that creates the 'spark' of reaction, in other words, impede the flow of neurological signals that have unusual significance, to shift its pathway PRIOR to the sparking of the response.

This could be both an internal or external invention or inhibition or filtering or even a chemical agent which can taget specific over-excited neurons or unusually strong neural connections.

The word you used, 'surge' is an excellent choice as often the 4S patient feels engulfed by....their own self! So it is very similar to being caught up in a tidal wave, a tsunami, of such strong primitive emotion, that it is hard to breathe or even perceive the rest of the magnificent world...

Dr J

>

> >

> > Many of you know that I have been on both sides of the coin. I have had

> days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that might

> > be able to shed some light on what we are dealing with or a way to reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he was

> > cured. As you might imagine, this held my interest and I went over there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I have,

> > many times when I tried to rid my self of this infliction by downloading

> and

> > listening to people chew apples and eat chip, I found I could listen to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my computer

> and

> > felt all of the anger wash away. It just switched off! As another spoon

> made

> > that nail on the chalk board sound I felt the negativity rise and with a

> > huge surge of willpower I forced it away.

> >

> > "I am able to do this, the sounds are not getting to me, I can do this" I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my emotions

> and

> > willpower the negativity away I checked the time and it was 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people had

> been

> > making trigger noises around me all day and I had not noticed and it has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger sound

> > will remain, but the additional building negative response that is often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able to

> > control my reactions, I have turned down every aspect of 4s and even found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life back.

> I

> > know I am going to have bad days, but if I force myself, I will have more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

I've posted about 4S on the lowcarbfriends.com website in the thyroid section and one person believes we all should have our adrenals tested using the salvia test. Given that I have hypothyroid which usually occurs at puberty just like 4S, I'm gonna have the saliva test. My hypothyroid went untreated for over 20 years due to Drs only doing a TSH test which is worthless. I finally went to a naturopathy who did T3 free and T4 free testing and low and behold I need thyroid. I do know hypothyroid causes sound sensitivity, annoyance to loud sounds. So maybe the adrenals are a link to 4S. Gonna give it a try. HeidiSent from my iPhone

It (4s) has got to be physiological in origin. Mind games may help cope, but, in my opinion, as a fellow sufferer, the cause of 4s is an imbalance of the neurotransmitters, namely: serotonin, dopamine, endorphins, nor-epinephrine and others. Also known as the chemical soup in your brain. Don't expect medical people to be of any help. Most don't even know these exist, let alone, play together like a symphony. In 4s, one of the players in the symphony out of tune. There is no way to measure these neurotransmitters, unless you do a spinal tap. And there won't be many volunteers for that. Even if you could measure easily the amount and ratio between neurotransmitters, it still wouldn't help, because there is no way to measure receptor sights that these chemicals need to

work.For now, know it is not your fault or a parenting failure. In a generation or so, this issue will be visited by the scientific community and they will crack the code, and find sustainable and reliable relief. For now, coping is great. The condition, as you know, is uncomfortable, but not dangerous. Good luck to all.To: Soundsensitivity Sent: Sat, February 5, 2011 6:22:07 AMSubject:

Re: The Power Of Your Mind - a step towards a cure?

In my own clinical, I have thought of that very moment in time as The Gap. If we can widen the Gap, then the emotive surge, which often occurs pre-consciously, then we might find progress.

Widening the Gap remains to be one investigative area in this malady, and to date, using the therapist, the psychological therapist, might end being the best venue for this exercise.

I have worked directly with psychiatrists and psychologist, all over the world, interested in 4S and its larger category, misophonia, who have also attempted to widen The Gap, or to create the venue thru which people feel as if THEY were in control of the drivers' seat in the car, THEY steer the ship, THEY decide which direction to go....

Another idea would be to pursue how to inhibit the 'trigger' that creates the 'spark' of reaction, in other words, impede the flow of neurological signals that have unusual significance, to shift its pathway PRIOR to the sparking of the response.

This could be both an internal or external invention or inhibition or filtering or even a chemical agent which can taget specific over-excited neurons or unusually strong neural connections.

The word you used, 'surge' is an excellent choice as often the 4S patient feels engulfed by....their own self! So it is very similar to being caught up in a tidal wave, a tsunami, of such strong primitive emotion, that it is hard to breathe or even perceive the rest of the magnificent world...

Dr J

>

> >

> > Many of you know that I have been on both sides of the coin. I have had

> days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that might

> > be able to shed some light on what we are dealing with or a way to reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he was

> > cured. As you might imagine, this held my interest and I went over there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I have,

> > many times when I tried to rid my self of this infliction by downloading

> and

> > listening to people chew apples and eat chip, I found I could listen to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my computer

> and

> > felt all of the anger wash away. It just switched off! As another spoon

> made

> > that nail on the chalk board sound I felt the negativity rise and with a

> > huge surge of willpower I forced it away.

> >

> > "I am able to do this, the sounds are not getting to me, I can do this" I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my emotions

> and

> > willpower the negativity away I checked the time and it was 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people had

> been

> > making trigger noises around me all day and I had not noticed and it has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger sound

> > will remain, but the additional building negative response that is often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able to

> > control my reactions, I have turned down every aspect of 4s and even found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life back.

> I

> > know I am going to have bad days, but if I force myself, I will have more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

I've posted about 4S on the lowcarbfriends.com website in the thyroid section and one person believes we all should have our adrenals tested using the salvia test. Given that I have hypothyroid which usually occurs at puberty just like 4S, I'm gonna have the saliva test. My hypothyroid went untreated for over 20 years due to Drs only doing a TSH test which is worthless. I finally went to a naturopathy who did T3 free and T4 free testing and low and behold I need thyroid. I do know hypothyroid causes sound sensitivity, annoyance to loud sounds. So maybe the adrenals are a link to 4S. Gonna give it a try. HeidiSent from my iPhone

It (4s) has got to be physiological in origin. Mind games may help cope, but, in my opinion, as a fellow sufferer, the cause of 4s is an imbalance of the neurotransmitters, namely: serotonin, dopamine, endorphins, nor-epinephrine and others. Also known as the chemical soup in your brain. Don't expect medical people to be of any help. Most don't even know these exist, let alone, play together like a symphony. In 4s, one of the players in the symphony out of tune. There is no way to measure these neurotransmitters, unless you do a spinal tap. And there won't be many volunteers for that. Even if you could measure easily the amount and ratio between neurotransmitters, it still wouldn't help, because there is no way to measure receptor sights that these chemicals need to

work.For now, know it is not your fault or a parenting failure. In a generation or so, this issue will be visited by the scientific community and they will crack the code, and find sustainable and reliable relief. For now, coping is great. The condition, as you know, is uncomfortable, but not dangerous. Good luck to all.To: Soundsensitivity Sent: Sat, February 5, 2011 6:22:07 AMSubject:

Re: The Power Of Your Mind - a step towards a cure?

In my own clinical, I have thought of that very moment in time as The Gap. If we can widen the Gap, then the emotive surge, which often occurs pre-consciously, then we might find progress.

Widening the Gap remains to be one investigative area in this malady, and to date, using the therapist, the psychological therapist, might end being the best venue for this exercise.

I have worked directly with psychiatrists and psychologist, all over the world, interested in 4S and its larger category, misophonia, who have also attempted to widen The Gap, or to create the venue thru which people feel as if THEY were in control of the drivers' seat in the car, THEY steer the ship, THEY decide which direction to go....

Another idea would be to pursue how to inhibit the 'trigger' that creates the 'spark' of reaction, in other words, impede the flow of neurological signals that have unusual significance, to shift its pathway PRIOR to the sparking of the response.

This could be both an internal or external invention or inhibition or filtering or even a chemical agent which can taget specific over-excited neurons or unusually strong neural connections.

The word you used, 'surge' is an excellent choice as often the 4S patient feels engulfed by....their own self! So it is very similar to being caught up in a tidal wave, a tsunami, of such strong primitive emotion, that it is hard to breathe or even perceive the rest of the magnificent world...

Dr J

>

> >

> > Many of you know that I have been on both sides of the coin. I have had

> days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that might

> > be able to shed some light on what we are dealing with or a way to reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he was

> > cured. As you might imagine, this held my interest and I went over there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I have,

> > many times when I tried to rid my self of this infliction by downloading

> and

> > listening to people chew apples and eat chip, I found I could listen to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my computer

> and

> > felt all of the anger wash away. It just switched off! As another spoon

> made

> > that nail on the chalk board sound I felt the negativity rise and with a

> > huge surge of willpower I forced it away.

> >

> > "I am able to do this, the sounds are not getting to me, I can do this" I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my emotions

> and

> > willpower the negativity away I checked the time and it was 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people had

> been

> > making trigger noises around me all day and I had not noticed and it has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger sound

> > will remain, but the additional building negative response that is often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able to

> > control my reactions, I have turned down every aspect of 4s and even found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life back.

> I

> > know I am going to have bad days, but if I force myself, I will have more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

This is brilliant.

Sure, it's not a full cure, but it definitely helps! I've found a variation that

works for me: instead of seeing the initial trigger as a spark, I imagine that

I'm carrying around a snake in a purse. Every time I'm triggered the snake

shoots out, wanting to hurt the offending person. My job is to grab it and stuff

it back in the purse. (Then, just for fun, I ask the snake: " What is this

called? " And it answers: " SSSS! " . I don't think I could teach it to pronounce

" missssssophonia " quite that easily...Ok, I'm having way too much fun with my

imaginary snake).

Has anyone else done another variation of 's technique? Does it help?

Best wishes,

Kate

>

> >

> > Many of you know that I have been on both sides of the coin. I have

> had days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that

> might

> > be able to shed some light on what we are dealing with or a way to

> reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he

> was

> > cured. As you might imagine, this held my interest and I went over

> there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about

> just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear

> plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all

> talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is

> until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us

> and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I

> have,

> > many times when I tried to rid my self of this infliction by

> downloading and

> > listening to people chew apples and eat chip, I found I could listen

> to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all

> too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my

> computer and

> > felt all of the anger wash away. It just switched off! As another

> spoon made

> > that nail on the chalk board sound I felt the negativity rise and with

> a

> > huge surge of willpower I forced it away.

> >

> > " I am able to do this, the sounds are not getting to me, I can do

> this " I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my

> emotions and

> > willpower the negativity away I checked the time and it was

> 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people

> had been

> > making trigger noises around me all day and I had not noticed and it

> has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger

> sound

> > will remain, but the additional building negative response that is

> often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able

> to

> > control my reactions, I have turned down every aspect of 4s and even

> found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life

> back. I

> > know I am going to have bad days, but if I force myself, I will have

> more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

This is brilliant.

Sure, it's not a full cure, but it definitely helps! I've found a variation that

works for me: instead of seeing the initial trigger as a spark, I imagine that

I'm carrying around a snake in a purse. Every time I'm triggered the snake

shoots out, wanting to hurt the offending person. My job is to grab it and stuff

it back in the purse. (Then, just for fun, I ask the snake: " What is this

called? " And it answers: " SSSS! " . I don't think I could teach it to pronounce

" missssssophonia " quite that easily...Ok, I'm having way too much fun with my

imaginary snake).

Has anyone else done another variation of 's technique? Does it help?

Best wishes,

Kate

>

> >

> > Many of you know that I have been on both sides of the coin. I have

> had days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that

> might

> > be able to shed some light on what we are dealing with or a way to

> reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he

> was

> > cured. As you might imagine, this held my interest and I went over

> there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about

> just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear

> plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all

> talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is

> until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us

> and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I

> have,

> > many times when I tried to rid my self of this infliction by

> downloading and

> > listening to people chew apples and eat chip, I found I could listen

> to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all

> too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my

> computer and

> > felt all of the anger wash away. It just switched off! As another

> spoon made

> > that nail on the chalk board sound I felt the negativity rise and with

> a

> > huge surge of willpower I forced it away.

> >

> > " I am able to do this, the sounds are not getting to me, I can do

> this " I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my

> emotions and

> > willpower the negativity away I checked the time and it was

> 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people

> had been

> > making trigger noises around me all day and I had not noticed and it

> has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger

> sound

> > will remain, but the additional building negative response that is

> often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able

> to

> > control my reactions, I have turned down every aspect of 4s and even

> found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life

> back. I

> > know I am going to have bad days, but if I force myself, I will have

> more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

This is brilliant.

Sure, it's not a full cure, but it definitely helps! I've found a variation that

works for me: instead of seeing the initial trigger as a spark, I imagine that

I'm carrying around a snake in a purse. Every time I'm triggered the snake

shoots out, wanting to hurt the offending person. My job is to grab it and stuff

it back in the purse. (Then, just for fun, I ask the snake: " What is this

called? " And it answers: " SSSS! " . I don't think I could teach it to pronounce

" missssssophonia " quite that easily...Ok, I'm having way too much fun with my

imaginary snake).

Has anyone else done another variation of 's technique? Does it help?

Best wishes,

Kate

>

> >

> > Many of you know that I have been on both sides of the coin. I have

> had days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that

> might

> > be able to shed some light on what we are dealing with or a way to

> reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he

> was

> > cured. As you might imagine, this held my interest and I went over

> there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about

> just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear

> plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all

> talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is

> until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us

> and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I

> have,

> > many times when I tried to rid my self of this infliction by

> downloading and

> > listening to people chew apples and eat chip, I found I could listen

> to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all

> too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my

> computer and

> > felt all of the anger wash away. It just switched off! As another

> spoon made

> > that nail on the chalk board sound I felt the negativity rise and with

> a

> > huge surge of willpower I forced it away.

> >

> > " I am able to do this, the sounds are not getting to me, I can do

> this " I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my

> emotions and

> > willpower the negativity away I checked the time and it was

> 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people

> had been

> > making trigger noises around me all day and I had not noticed and it

> has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger

> sound

> > will remain, but the additional building negative response that is

> often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able

> to

> > control my reactions, I have turned down every aspect of 4s and even

> found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life

> back. I

> > know I am going to have bad days, but if I force myself, I will have

> more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

Of course sorry. I might add that the information from a few key people here have shared has really made a difference so thank you all for that, it’s the continued support and ticks and tips from others that help force you over the edge into action and aiming towards a better life, many here share their stories of success and how they have been able to reduce the symptoms by using similar methods as below, so to you all I am in your debt for sharing. Also information I have read from the UK support group helped too. I am not stating I am cured nor do I think that this will 100% work for everyone but the additional symptoms have defiantly reduced for me so I hope they do for you too! I have had about 3 hours sleep over two days so it will be interesting to see if the lack of sleep plays a part and makes this harder, only time will tell. Many of you know that I have been on both sides of the coin. I have had days where I have found it very difficult to cope and then days where this condition did not phase me at all.I have been searching the internet for an answer, for something that might be able to shed some light on what we are dealing with or a way to reduce the negative reactions we face.I read a post through the UK support group where a member mentioned he was cured. As you might imagine, this held my interest and I went over there right away to read how.The post detailed a changed in mind set and the member spoke about just by willing it, he overcame. It had been 6 weeks and he had not used ear plugs and had faced his fears head on....and won.I have read information on NLP, CBTand brainwave entrainment all talking about the power of your mind and the ability to recondition. I have dabbled with this in the past but never have I put my whole into it that is until this week.After reading the post about will power I decide to throw myself at it full force and see what happens.At first I thought it was going to be extremely difficult, we all know what it is like being trapped in a room with triggers blasting around us and we cant get out, but how many of you have noticed that when you subject yourself to a trigger, often the negative response does not exist? I have, many times when I tried to rid my self of this infliction by downloading and listening to people chew apples and eat chip, I found I could listen to these sounds for a very very long time, but have someone else make the sounds that I cant control and it is a very different story.The first day I arrived at work, and as normal people were eating breakfast at their desk, their crunchy , bowl smacking, slurping breakfast and instinctively I reached for my Ipod to block out the noise as the all too comon feelings of rage surfaced. Then I stopped, music in had....and I realized I dont need to run anymore.Without a second though I dropped my Ipod on my desk, sat at my computer and felt all of the anger wash away. It just switched off! As another spoon made that nail on the chalk board sound I felt the negativity rise and with a huge surge of willpower I forced it away. " I am able to do this, the sounds are not getting to me, I can do this " I repeated to myself two more times before logging onto the network and starting work.And the most amazing thing happened, as I continued to check my emotions and willpower the negativity away I checked the time and it was 3pm....someone behind me was just finishing an apple....and I didn't even notice they were eating it in the first place. I sat back and realized as I drifted through my memory, that people had been making trigger noises around me all day and I had not noticed and it has lead me to the following conclusionThe initial surge of negative emotion that is sparked by the trigger sound will remain, but the additional building negative response that is often felt afterwards, such as rage and the need to escape is controllable.I now see it like this. The trigger noise is like a spark, it has the ability to cause a fire if unchecked but if properly monitored, like a spake with no more fuel, it will burn out harmlessly. It has been one week so far, and for this entire week I have been able to control my reactions, I have turned down every aspect of 4s and even found myself able to sleep last night without ear plugs. At present, I do not believe I will be able to remove the initial reaction, (yet) but if I can control the rest I think I might just get my life back. I know I am going to have bad days, but if I force myself, I will have more good than bad and as far as I am concerned, that is a win. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Friday, February 04, 2011 8:11 AMTo: Soundsensitivity Subject: Re: The Power Of Your Mind - a step towards a cure? O should like to see this posted here, too, friend, for everyone.>> Hi All,> > > > I have posted a topic on the public forums here> <http://www.soundsensitivity.info/Forum/viewtopic.php?f=19 & t=74> , it is a> short post about my success with overcoming this condition for the past week> and as I continue to work on it, into the future J I'll also post it under> the private section in case anyone would like to respond but would rather> not do so publicly. > > > > As many of you know I am serious about keeping user information as private> as I can, as such to gain access to the private forum you will need to send> an email to admin@... , just put in your user name for the> forum on the public website, say you are from here and would like access and> either Dr J or myself will give you access asap. I know this seems like a> needless step but as they are two very different systems (yahoo groups vs> php bb3) its not as simple as a straight import. > > > > If there are many who would rather not sign up to the forum but would like> to know my short post, shout out and I can post it here too.> > > > Cheers > > > > >

[Guest guest]

My variation is instead of "that person is disgusting". I say to myself "Oh that poor lady, she needs self-soothing and has to chew her gum to make her feel better." and then try to forget about it. I know it's a bit condescending but its better than the alternative thoughts which just fuel my initial fight or flight response. HeidiSent from my iPhone

This is brilliant.

Sure, it's not a full cure, but it definitely helps! I've found a variation that works for me: instead of seeing the initial trigger as a spark, I imagine that I'm carrying around a snake in a purse. Every time I'm triggered the snake shoots out, wanting to hurt the offending person. My job is to grab it and stuff it back in the purse. (Then, just for fun, I ask the snake: "What is this called?" And it answers: "SSSS!". I don't think I could teach it to pronounce "missssssophonia" quite that easily...Ok, I'm having way too much fun with my imaginary snake).

Has anyone else done another variation of 's technique? Does it help?

Best wishes,

Kate

>

> >

> > Many of you know that I have been on both sides of the coin. I have

> had days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that

> might

> > be able to shed some light on what we are dealing with or a way to

> reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he

> was

> > cured. As you might imagine, this held my interest and I went over

> there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about

> just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear

> plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all

> talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is

> until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us

> and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I

> have,

> > many times when I tried to rid my self of this infliction by

> downloading and

> > listening to people chew apples and eat chip, I found I could listen

> to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all

> too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my

> computer and

> > felt all of the anger wash away. It just switched off! As another

> spoon made

> > that nail on the chalk board sound I felt the negativity rise and with

> a

> > huge surge of willpower I forced it away.

> >

> > "I am able to do this, the sounds are not getting to me, I can do

> this" I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my

> emotions and

> > willpower the negativity away I checked the time and it was

> 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people

> had been

> > making trigger noises around me all day and I had not noticed and it

> has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger

> sound

> > will remain, but the additional building negative response that is

> often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able

> to

> > control my reactions, I have turned down every aspect of 4s and even

> found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life

> back. I

> > know I am going to have bad days, but if I force myself, I will have

> more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

My variation is instead of "that person is disgusting". I say to myself "Oh that poor lady, she needs self-soothing and has to chew her gum to make her feel better." and then try to forget about it. I know it's a bit condescending but its better than the alternative thoughts which just fuel my initial fight or flight response. HeidiSent from my iPhone

This is brilliant.

Sure, it's not a full cure, but it definitely helps! I've found a variation that works for me: instead of seeing the initial trigger as a spark, I imagine that I'm carrying around a snake in a purse. Every time I'm triggered the snake shoots out, wanting to hurt the offending person. My job is to grab it and stuff it back in the purse. (Then, just for fun, I ask the snake: "What is this called?" And it answers: "SSSS!". I don't think I could teach it to pronounce "missssssophonia" quite that easily...Ok, I'm having way too much fun with my imaginary snake).

Has anyone else done another variation of 's technique? Does it help?

Best wishes,

Kate

>

> >

> > Many of you know that I have been on both sides of the coin. I have

> had days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that

> might

> > be able to shed some light on what we are dealing with or a way to

> reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he

> was

> > cured. As you might imagine, this held my interest and I went over

> there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about

> just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear

> plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all

> talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is

> until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us

> and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I

> have,

> > many times when I tried to rid my self of this infliction by

> downloading and

> > listening to people chew apples and eat chip, I found I could listen

> to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all

> too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my

> computer and

> > felt all of the anger wash away. It just switched off! As another

> spoon made

> > that nail on the chalk board sound I felt the negativity rise and with

> a

> > huge surge of willpower I forced it away.

> >

> > "I am able to do this, the sounds are not getting to me, I can do

> this" I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my

> emotions and

> > willpower the negativity away I checked the time and it was

> 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people

> had been

> > making trigger noises around me all day and I had not noticed and it

> has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger

> sound

> > will remain, but the additional building negative response that is

> often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able

> to

> > control my reactions, I have turned down every aspect of 4s and even

> found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life

> back. I

> > know I am going to have bad days, but if I force myself, I will have

> more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

Fighting back with empathy? I love it!

Kate K.

> > >

> > > >

> > > > Many of you know that I have been on both sides of the coin. I have

> > > had days

> > > > where I have found it very difficult to cope and then days where this

> > > > condition did not phase me at all.

> > > >

> > > > I have been searching the internet for an answer, for something that

> > > might

> > > > be able to shed some light on what we are dealing with or a way to

> > > reduce

> > > > the negative reactions we face.

> > > >

> > > > I read a post through the UK support group where a member mentioned he

> > > was

> > > > cured. As you might imagine, this held my interest and I went over

> > > there

> > > > right away to read how.

> > > >

> > > > The post detailed a changed in mind set and the member spoke about

> > > just by

> > > > willing it, he overcame. It had been 6 weeks and he had not used ear

> > > plugs

> > > > and had faced his fears head on....and won.

> > > >

> > > > I have read information on NLP, CBTand brainwave entrainment all

> > > talking

> > > > about the power of your mind and the ability to recondition. I have

> > > dabbled

> > > > with this in the past but never have I put my whole into it that is

> > > until

> > > > this week.

> > > >

> > > > After reading the post about will power I decide to throw myself at it

> > > full

> > > > force and see what happens.

> > > >

> > > > At first I thought it was going to be extremely difficult, we all know

> > > what

> > > > it is like being trapped in a room with triggers blasting around us

> > > and we

> > > > cant get out, but how many of you have noticed that when you subject

> > > > yourself to a trigger, often the negative response does not exist? I

> > > have,

> > > > many times when I tried to rid my self of this infliction by

> > > downloading and

> > > > listening to people chew apples and eat chip, I found I could listen

> > > to

> > > > these sounds for a very very long time, but have someone else make the

> > > > sounds that I cant control and it is a very different story.

> > > >

> > > > The first day I arrived at work, and as normal people were eating

> > > breakfast

> > > > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > > > instinctively I reached for my Ipod to block out the noise as the all

> > > too

> > > > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > > > realized I dont need to run anymore.

> > > >

> > > > Without a second though I dropped my Ipod on my desk, sat at my

> > > computer and

> > > > felt all of the anger wash away. It just switched off! As another

> > > spoon made

> > > > that nail on the chalk board sound I felt the negativity rise and with

> > > a

> > > > huge surge of willpower I forced it away.

> > > >

> > > > " I am able to do this, the sounds are not getting to me, I can do

> > > this " I

> > > > repeated to myself two more times before logging onto the network and

> > > > starting work.

> > > >

> > > > And the most amazing thing happened, as I continued to check my

> > > emotions and

> > > > willpower the negativity away I checked the time and it was

> > > 3pm....someone

> > > > behind me was just finishing an apple....and I didn't even notice they

> > > were

> > > > eating it in the first place. Description: :!:

> > > >

> > > > I sat back and realized as I drifted through my memory, that people

> > > had been

> > > > making trigger noises around me all day and I had not noticed and it

> > > has

> > > > lead me to the following conclusion

> > > >

> > > > The initial surge of negative emotion that is sparked by the trigger

> > > sound

> > > > will remain, but the additional building negative response that is

> > > often

> > > > felt afterwards, such as rage and the need to escape is controllable.

> > > >

> > > > I now see it like this. The trigger noise is like a spark, it has the

> > > > ability to cause a fire if unchecked but if properly monitored, like a

> > > spake

> > > > with no more fuel, it will burn out harmlessly.

> > > >

> > > > It has been one week so far, and for this entire week I have been able

> > > to

> > > > control my reactions, I have turned down every aspect of 4s and even

> > > found

> > > > myself able to sleep last night without ear plugs.

> > > >

> > > > At present, I do not believe I will be able to remove the initial

> > > reaction,

> > > > (yet) but if I can control the rest I think I might just get my life

> > > back. I

> > > > know I am going to have bad days, but if I force myself, I will have

> > > more

> > > > good than bad and as far as I am concerned, that is a win.

> > > >

> > >

> >

> >

>

[Guest guest]

Interesting!  I really think that those kind of ideas are the path to finding answers.  I think 4s is definitely physiological—neurogical in nature.  I don’t think it begins from a psychological experience or trauma.  However, I think that it causes the sufferer psychological responses that are developed as a result of suffering with 4s. The body is so complex! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Heidi SalernoSent: Saturday, February 05, 2011 1:42 PMTo: Soundsensitivity Subject: Re: Re: The Power Of Your Mind - a step towards a cure? I've posted about 4S on the lowcarbfriends.com website in the thyroid section and one person believes we all should have our adrenals tested using the salvia test. Given that I have hypothyroid which usually occurs at puberty just like 4S, I'm gonna have the saliva test. My hypothyroid went untreated for over 20 years due to Drs only doing a TSH test which is worthless. I finally went to a naturopathy who did T3 free and T4 free testing and low and behold I need thyroid. I do know hypothyroid causes sound sensitivity, annoyance to loud sounds. So maybe the adrenals are a link to 4S. Gonna give it a try. HeidiSent from my iPhone It (4s) has got to be physiological in origin. Mind games may help cope, but, in my opinion, as a fellow sufferer, the cause of 4s is an imbalance of the neurotransmitters, namely: serotonin, dopamine, endorphins, nor-epinephrine and others. Also known as the chemical soup in your brain. Don't expect medical people to be of any help. Most don't even know these exist, let alone, play together like a symphony. In 4s, one of the players in the symphony out of tune. There is no way to measure these neurotransmitters, unless you do a spinal tap. And there won't be many volunteers for that. Even if you could measure easily the amount and ratio between neurotransmitters, it still wouldn't help, because there is no way to measure receptor sights that these chemicals need to work.For now, know it is not your fault or a parenting failure. In a generation or so, this issue will be visited by the scientific community and they will crack the code, and find sustainable and reliable relief. For now, coping is great. The condition, as you know, is uncomfortable, but not dangerous. Good luck to all. To: Soundsensitivity Sent: Sat, February 5, 2011 6:22:07 AMSubject: Re: The Power Of Your Mind - a step towards a cure? In my own clinical, I have thought of that very moment in time as The Gap. If we can widen the Gap, then the emotive surge, which often occurs pre-consciously, then we might find progress.Widening the Gap remains to be one investigative area in this malady, and to date, using the therapist, the psychological therapist, might end being the best venue for this exercise.I have worked directly with psychiatrists and psychologist, all over the world, interested in 4S and its larger category, misophonia, who have also attempted to widen The Gap, or to create the venue thru which people feel as if THEY were in control of the drivers' seat in the car, THEY steer the ship, THEY decide which direction to go....Another idea would be to pursue how to inhibit the 'trigger' that creates the 'spark' of reaction, in other words, impede the flow of neurological signals that have unusual significance, to shift its pathway PRIOR to the sparking of the response.This could be both an internal or external invention or inhibition or filtering or even a chemical agent which can taget specific over-excited neurons or unusually strong neural connections.The word you used, 'surge' is an excellent choice as often the 4S patient feels engulfed by....their own self! So it is very similar to being caught up in a tidal wave, a tsunami, of such strong primitive emotion, that it is hard to breathe or even perceive the rest of the magnificent world...Dr J> > > > > Many of you know that I have been on both sides of the coin. I have had> days> > where I have found it very difficult to cope and then days where this> > condition did not phase me at all.> > > > I have been searching the internet for an answer, for something that might> > be able to shed some light on what we are dealing with or a way to reduce> > the negative reactions we face.> > > > I read a post through the UK support group where a member mentioned he was> > cured. As you might imagine, this held my interest and I went over there> > right away to read how.> > > > The post detailed a changed in mind set and the member spoke about just by> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs> > and had faced his fears head on....and won.> > > > I have read information on NLP, CBTand brainwave entrainment all talking> > about the power of your mind and the ability to recondition. I have> dabbled> > with this in the past but never have I put my whole into it that is until> > this week.> > > > After reading the post about will power I decide to throw myself at it> full> > force and see what happens.> > > > At first I thought it was going to be extremely difficult, we all know> what> > it is like being trapped in a room with triggers blasting around us and we> > cant get out, but how many of you have noticed that when you subject> > yourself to a trigger, often the negative response does not exist? I have,> > many times when I tried to rid my self of this infliction by downloading> and> > listening to people chew apples and eat chip, I found I could listen to> > these sounds for a very very long time, but have someone else make the> > sounds that I cant control and it is a very different story.> > > > The first day I arrived at work, and as normal people were eating> breakfast> > at their desk, their crunchy , bowl smacking, slurping breakfast and> > instinctively I reached for my Ipod to block out the noise as the all too> > comon feelings of rage surfaced. Then I stopped, music in had....and I> > realized I dont need to run anymore.> > > > Without a second though I dropped my Ipod on my desk, sat at my computer> and> > felt all of the anger wash away. It just switched off! As another spoon> made> > that nail on the chalk board sound I felt the negativity rise and with a> > huge surge of willpower I forced it away. > > > > " I am able to do this, the sounds are not getting to me, I can do this " I> > repeated to myself two more times before logging onto the network and> > starting work.> > > > And the most amazing thing happened, as I continued to check my emotions> and> > willpower the negativity away I checked the time and it was 3pm....someone> > behind me was just finishing an apple....and I didn't even notice they> were> > eating it in the first place. Description: :!: > > > > I sat back and realized as I drifted through my memory, that people had> been> > making trigger noises around me all day and I had not noticed and it has> > lead me to the following conclusion> > > > The initial surge of negative emotion that is sparked by the trigger sound> > will remain, but the additional building negative response that is often> > felt afterwards, such as rage and the need to escape is controllable.> > > > I now see it like this. The trigger noise is like a spark, it has the> > ability to cause a fire if unchecked but if properly monitored, like a> spake> > with no more fuel, it will burn out harmlessly. > > > > It has been one week so far, and for this entire week I have been able to> > control my reactions, I have turned down every aspect of 4s and even found> > myself able to sleep last night without ear plugs. > > > > At present, I do not believe I will be able to remove the initial> reaction,> > (yet) but if I can control the rest I think I might just get my life back.> I> > know I am going to have bad days, but if I force myself, I will have more> > good than bad and as far as I am concerned, that is a win. > >>

[Guest guest]

Interesting!  I really think that those kind of ideas are the path to finding answers.  I think 4s is definitely physiological—neurogical in nature.  I don’t think it begins from a psychological experience or trauma.  However, I think that it causes the sufferer psychological responses that are developed as a result of suffering with 4s. The body is so complex! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Heidi SalernoSent: Saturday, February 05, 2011 1:42 PMTo: Soundsensitivity Subject: Re: Re: The Power Of Your Mind - a step towards a cure? I've posted about 4S on the lowcarbfriends.com website in the thyroid section and one person believes we all should have our adrenals tested using the salvia test. Given that I have hypothyroid which usually occurs at puberty just like 4S, I'm gonna have the saliva test. My hypothyroid went untreated for over 20 years due to Drs only doing a TSH test which is worthless. I finally went to a naturopathy who did T3 free and T4 free testing and low and behold I need thyroid. I do know hypothyroid causes sound sensitivity, annoyance to loud sounds. So maybe the adrenals are a link to 4S. Gonna give it a try. HeidiSent from my iPhone It (4s) has got to be physiological in origin. Mind games may help cope, but, in my opinion, as a fellow sufferer, the cause of 4s is an imbalance of the neurotransmitters, namely: serotonin, dopamine, endorphins, nor-epinephrine and others. Also known as the chemical soup in your brain. Don't expect medical people to be of any help. Most don't even know these exist, let alone, play together like a symphony. In 4s, one of the players in the symphony out of tune. There is no way to measure these neurotransmitters, unless you do a spinal tap. And there won't be many volunteers for that. Even if you could measure easily the amount and ratio between neurotransmitters, it still wouldn't help, because there is no way to measure receptor sights that these chemicals need to work.For now, know it is not your fault or a parenting failure. In a generation or so, this issue will be visited by the scientific community and they will crack the code, and find sustainable and reliable relief. For now, coping is great. The condition, as you know, is uncomfortable, but not dangerous. Good luck to all. To: Soundsensitivity Sent: Sat, February 5, 2011 6:22:07 AMSubject: Re: The Power Of Your Mind - a step towards a cure? In my own clinical, I have thought of that very moment in time as The Gap. If we can widen the Gap, then the emotive surge, which often occurs pre-consciously, then we might find progress.Widening the Gap remains to be one investigative area in this malady, and to date, using the therapist, the psychological therapist, might end being the best venue for this exercise.I have worked directly with psychiatrists and psychologist, all over the world, interested in 4S and its larger category, misophonia, who have also attempted to widen The Gap, or to create the venue thru which people feel as if THEY were in control of the drivers' seat in the car, THEY steer the ship, THEY decide which direction to go....Another idea would be to pursue how to inhibit the 'trigger' that creates the 'spark' of reaction, in other words, impede the flow of neurological signals that have unusual significance, to shift its pathway PRIOR to the sparking of the response.This could be both an internal or external invention or inhibition or filtering or even a chemical agent which can taget specific over-excited neurons or unusually strong neural connections.The word you used, 'surge' is an excellent choice as often the 4S patient feels engulfed by....their own self! So it is very similar to being caught up in a tidal wave, a tsunami, of such strong primitive emotion, that it is hard to breathe or even perceive the rest of the magnificent world...Dr J> > > > > Many of you know that I have been on both sides of the coin. I have had> days> > where I have found it very difficult to cope and then days where this> > condition did not phase me at all.> > > > I have been searching the internet for an answer, for something that might> > be able to shed some light on what we are dealing with or a way to reduce> > the negative reactions we face.> > > > I read a post through the UK support group where a member mentioned he was> > cured. As you might imagine, this held my interest and I went over there> > right away to read how.> > > > The post detailed a changed in mind set and the member spoke about just by> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs> > and had faced his fears head on....and won.> > > > I have read information on NLP, CBTand brainwave entrainment all talking> > about the power of your mind and the ability to recondition. I have> dabbled> > with this in the past but never have I put my whole into it that is until> > this week.> > > > After reading the post about will power I decide to throw myself at it> full> > force and see what happens.> > > > At first I thought it was going to be extremely difficult, we all know> what> > it is like being trapped in a room with triggers blasting around us and we> > cant get out, but how many of you have noticed that when you subject> > yourself to a trigger, often the negative response does not exist? I have,> > many times when I tried to rid my self of this infliction by downloading> and> > listening to people chew apples and eat chip, I found I could listen to> > these sounds for a very very long time, but have someone else make the> > sounds that I cant control and it is a very different story.> > > > The first day I arrived at work, and as normal people were eating> breakfast> > at their desk, their crunchy , bowl smacking, slurping breakfast and> > instinctively I reached for my Ipod to block out the noise as the all too> > comon feelings of rage surfaced. Then I stopped, music in had....and I> > realized I dont need to run anymore.> > > > Without a second though I dropped my Ipod on my desk, sat at my computer> and> > felt all of the anger wash away. It just switched off! As another spoon> made> > that nail on the chalk board sound I felt the negativity rise and with a> > huge surge of willpower I forced it away. > > > > " I am able to do this, the sounds are not getting to me, I can do this " I> > repeated to myself two more times before logging onto the network and> > starting work.> > > > And the most amazing thing happened, as I continued to check my emotions> and> > willpower the negativity away I checked the time and it was 3pm....someone> > behind me was just finishing an apple....and I didn't even notice they> were> > eating it in the first place. Description: :!: > > > > I sat back and realized as I drifted through my memory, that people had> been> > making trigger noises around me all day and I had not noticed and it has> > lead me to the following conclusion> > > > The initial surge of negative emotion that is sparked by the trigger sound> > will remain, but the additional building negative response that is often> > felt afterwards, such as rage and the need to escape is controllable.> > > > I now see it like this. The trigger noise is like a spark, it has the> > ability to cause a fire if unchecked but if properly monitored, like a> spake> > with no more fuel, it will burn out harmlessly. > > > > It has been one week so far, and for this entire week I have been able to> > control my reactions, I have turned down every aspect of 4s and even found> > myself able to sleep last night without ear plugs. > > > > At present, I do not believe I will be able to remove the initial> reaction,> > (yet) but if I can control the rest I think I might just get my life back.> I> > know I am going to have bad days, but if I force myself, I will have more> > good than bad and as far as I am concerned, that is a win. > >>

[Guest guest]

We are right on the same page in our thoughts on 4S. Sent from my iPhone

Interesting! I really think that those kind of ideas are the path to finding answers. I think 4s is definitely physiological—neurogical in nature. I don’t think it begins from a psychological experience or trauma. However, I think that it causes the sufferer psychological responses that are developed as a result of suffering with 4s. The body is so complex! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Heidi SalernoSent: Saturday, February 05, 2011 1:42 PMTo: Soundsensitivity Subject: Re: Re: The Power Of Your Mind - a step towards a cure? I've posted about 4S on the lowcarbfriends.com website in the thyroid section and one person believes we all should have our adrenals tested using the salvia test. Given that I have hypothyroid which usually occurs at puberty just like 4S, I'm gonna have the saliva test. My hypothyroid went untreated for over 20 years due to Drs only doing a TSH test which is worthless. I finally went to a naturopathy who did T3 free and T4 free testing and low and behold I need thyroid. I do know hypothyroid causes sound sensitivity, annoyance to loud sounds. So maybe the adrenals are a link to 4S. Gonna give it a try. HeidiSent from my iPhone It (4s) has got to be physiological in origin. Mind games may help cope, but, in my opinion, as a fellow sufferer, the cause of 4s is an imbalance of the neurotransmitters, namely: serotonin, dopamine, endorphins, nor-epinephrine and others. Also known as the chemical soup in your brain. Don't expect medical people to be of any help. Most don't even know these exist, let alone, play together like a symphony. In 4s, one of the players in the symphony out of tune. There is no way to measure these neurotransmitters, unless you do a spinal tap. And there won't be many volunteers for that. Even if you could measure easily the amount and ratio between neurotransmitters, it still wouldn't help, because there is no way to measure receptor sights that these chemicals need to work.For now, know it is not your fault or a parenting failure. In a generation or so, this issue will be visited by the scientific community and they will crack the code, and find sustainable and reliable relief. For now, coping is great. The condition, as you know, is uncomfortable, but not dangerous. Good luck to all. To: Soundsensitivity Sent: Sat, February 5, 2011 6:22:07 AMSubject: Re: The Power Of Your Mind - a step towards a cure? In my own clinical, I have thought of that very moment in time as The Gap. If we can widen the Gap, then the emotive surge, which often occurs pre-consciously, then we might find progress.Widening the Gap remains to be one investigative area in this malady, and to date, using the therapist, the psychological therapist, might end being the best venue for this exercise.I have worked directly with psychiatrists and psychologist, all over the world, interested in 4S and its larger category, misophonia, who have also attempted to widen The Gap, or to create the venue thru which people feel as if THEY were in control of the drivers' seat in the car, THEY steer the ship, THEY decide which direction to go....Another idea would be to pursue how to inhibit the 'trigger' that creates the 'spark' of reaction, in other words, impede the flow of neurological signals that have unusual significance, to shift its pathway PRIOR to the sparking of the response.This could be both an internal or external invention or inhibition or filtering or even a chemical agent which can taget specific over-excited neurons or unusually strong neural connections.The word you used, 'surge' is an excellent choice as often the 4S patient feels engulfed by....their own self! So it is very similar to being caught up in a tidal wave, a tsunami, of such strong primitive emotion, that it is hard to breathe or even perceive the rest of the magnificent world...Dr J> > > > > Many of you know that I have been on both sides of the coin. I have had> days> > where I have found it very difficult to cope and then days where this> > condition did not phase me at all.> > > > I have been searching the internet for an answer, for something that might> > be able to shed some light on what we are dealing with or a way to reduce> > the negative reactions we face.> > > > I read a post through the UK support group where a member mentioned he was> > cured. As you might imagine, this held my interest and I went over there> > right away to read how.> > > > The post detailed a changed in mind set and the member spoke about just by> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs> > and had faced his fears head on....and won.> > > > I have read information on NLP, CBTand brainwave entrainment all talking> > about the power of your mind and the ability to recondition. I have> dabbled> > with this in the past but never have I put my whole into it that is until> > this week.> > > > After reading the post about will power I decide to throw myself at it> full> > force and see what happens.> > > > At first I thought it was going to be extremely difficult, we all know> what> > it is like being trapped in a room with triggers blasting around us and we> > cant get out, but how many of you have noticed that when you subject> > yourself to a trigger, often the negative response does not exist? I have,> > many times when I tried to rid my self of this infliction by downloading> and> > listening to people chew apples and eat chip, I found I could listen to> > these sounds for a very very long time, but have someone else make the> > sounds that I cant control and it is a very different story.> > > > The first day I arrived at work, and as normal people were eating> breakfast> > at their desk, their crunchy , bowl smacking, slurping breakfast and> > instinctively I reached for my Ipod to block out the noise as the all too> > comon feelings of rage surfaced. Then I stopped, music in had....and I> > realized I dont need to run anymore.> > > > Without a second though I dropped my Ipod on my desk, sat at my computer> and> > felt all of the anger wash away. It just switched off! As another spoon> made> > that nail on the chalk board sound I felt the negativity rise and with a> > huge surge of willpower I forced it away. > > > > "I am able to do this, the sounds are not getting to me, I can do this" I> > repeated to myself two more times before logging onto the network and> > starting work.> > > > And the most amazing thing happened, as I continued to check my emotions> and> > willpower the negativity away I checked the time and it was 3pm....someone> > behind me was just finishing an apple....and I didn't even notice they> were> > eating it in the first place. Description: :!: > > > > I sat back and realized as I drifted through my memory, that people had> been> > making trigger noises around me all day and I had not noticed and it has> > lead me to the following conclusion> > > > The initial surge of negative emotion that is sparked by the trigger sound> > will remain, but the additional building negative response that is often> > felt afterwards, such as rage and the need to escape is controllable.> > > > I now see it like this. The trigger noise is like a spark, it has the> > ability to cause a fire if unchecked but if properly monitored, like a> spake> > with no more fuel, it will burn out harmlessly. > > > > It has been one week so far, and for this entire week I have been able to> > control my reactions, I have turned down every aspect of 4s and even found> > myself able to sleep last night without ear plugs. > > > > At present, I do not believe I will be able to remove the initial> reaction,> > (yet) but if I can control the rest I think I might just get my life back.> I> > know I am going to have bad days, but if I force myself, I will have more> > good than bad and as far as I am concerned, that is a win. > >>

[Guest guest]

This may be a bit extreme, but if you were to carry a real live snake, you could instead fuel instant flight response in the offender, though not very empathetic I realize...To: Soundsensitivity Sent: Sat, February 5, 2011 3:43:42 PMSubject: Re: The Power Of Your Mind - a step towards a cure?

Fighting back with empathy? I love it!

Kate K.

> > >

> > > >

> > > > Many of you know that I have been on both sides of the coin. I have

> > > had days

> > > > where I have found it very difficult to cope and then days where this

> > > > condition did not phase me at all.

> > > >

> > > > I have been searching the internet for an answer, for something that

> > > might

> > > > be able to shed some light on what we are dealing with or a way to

> > > reduce

> > > > the negative reactions we face.

> > > >

> > > > I read a post through the UK support group where a member mentioned he

> > > was

> > > > cured. As you might imagine, this held my interest and I went over

> > > there

> > > > right away to read how.

> > > >

> > > > The post detailed a changed in mind set and the member spoke about

> > > just by

> > > > willing it, he overcame. It had been 6 weeks and he had not used ear

> > > plugs

> > > > and had faced his fears head on....and won.

> > > >

> > > > I have read information on NLP, CBTand brainwave entrainment all

> > > talking

> > > > about the power of your mind and the ability to recondition. I have

> > > dabbled

> > > > with this in the past but never have I put my whole into it that is

> > > until

> > > > this week.

> > > >

> > > > After reading the post about will power I decide to throw myself at it

> > > full

> > > > force and see what happens.

> > > >

> > > > At first I thought it was going to be extremely difficult, we all know

> > > what

> > > > it is like being trapped in a room with triggers blasting around us

> > > and we

> > > > cant get out, but how many of you have noticed that when you subject

> > > > yourself to a trigger, often the negative response does not exist? I

> > > have,

> > > > many times when I tried to rid my self of this infliction by

> > > downloading and

> > > > listening to people chew apples and eat chip, I found I could listen

> > > to

> > > > these sounds for a very very long time, but have someone else make the

> > > > sounds that I cant control and it is a very different story.

> > > >

> > > > The first day I arrived at work, and as normal people were eating

> > > breakfast

> > > > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > > > instinctively I reached for my Ipod to block out the noise as the all

> > > too

> > > > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > > > realized I dont need to run anymore.

> > > >

> > > > Without a second though I dropped my Ipod on my desk, sat at my

> > > computer and

> > > > felt all of the anger wash away. It just switched off! As another

> > > spoon made

> > > > that nail on the chalk board sound I felt the negativity rise and with

> > > a

> > > > huge surge of willpower I forced it away.

> > > >

> > > > "I am able to do this, the sounds are not getting to me, I can do

> > > this" I

> > > > repeated to myself two more times before logging onto the network and

> > > > starting work.

> > > >

> > > > And the most amazing thing happened, as I continued to check my

> > > emotions and

> > > > willpower the negativity away I checked the time and it was

> > > 3pm....someone

> > > > behind me was just finishing an apple....and I didn't even notice they

> > > were

> > > > eating it in the first place. Description: :!:

> > > >

> > > > I sat back and realized as I drifted through my memory, that people

> > > had been

> > > > making trigger noises around me all day and I had not noticed and it

> > > has

> > > > lead me to the following conclusion

> > > >

> > > > The initial surge of negative emotion that is sparked by the trigger

> > > sound

> > > > will remain, but the additional building negative response that is

> > > often

> > > > felt afterwards, such as rage and the need to escape is controllable.

> > > >

> > > > I now see it like this. The trigger noise is like a spark, it has the

> > > > ability to cause a fire if unchecked but if properly monitored, like a

> > > spake

> > > > with no more fuel, it will burn out harmlessly.

> > > >

> > > > It has been one week so far, and for this entire week I have been able

> > > to

> > > > control my reactions, I have turned down every aspect of 4s and even

> > > found

> > > > myself able to sleep last night without ear plugs.

> > > >

> > > > At present, I do not believe I will be able to remove the initial

> > > reaction,

> > > > (yet) but if I can control the rest I think I might just get my life

> > > back. I

> > > > know I am going to have bad days, but if I force myself, I will have

> > > more

> > > > good than bad and as far as I am concerned, that is a win.

> > > >

> > >

> >

> >

>

[Guest guest]

This may be a bit extreme, but if you were to carry a real live snake, you could instead fuel instant flight response in the offender, though not very empathetic I realize...To: Soundsensitivity Sent: Sat, February 5, 2011 3:43:42 PMSubject: Re: The Power Of Your Mind - a step towards a cure?

Fighting back with empathy? I love it!

Kate K.

> > >

> > > >

> > > > Many of you know that I have been on both sides of the coin. I have

> > > had days

> > > > where I have found it very difficult to cope and then days where this

> > > > condition did not phase me at all.

> > > >

> > > > I have been searching the internet for an answer, for something that

> > > might

> > > > be able to shed some light on what we are dealing with or a way to

> > > reduce

> > > > the negative reactions we face.

> > > >

> > > > I read a post through the UK support group where a member mentioned he

> > > was

> > > > cured. As you might imagine, this held my interest and I went over

> > > there

> > > > right away to read how.

> > > >

> > > > The post detailed a changed in mind set and the member spoke about

> > > just by

> > > > willing it, he overcame. It had been 6 weeks and he had not used ear

> > > plugs

> > > > and had faced his fears head on....and won.

> > > >

> > > > I have read information on NLP, CBTand brainwave entrainment all

> > > talking

> > > > about the power of your mind and the ability to recondition. I have

> > > dabbled

> > > > with this in the past but never have I put my whole into it that is

> > > until

> > > > this week.

> > > >

> > > > After reading the post about will power I decide to throw myself at it

> > > full

> > > > force and see what happens.

> > > >

> > > > At first I thought it was going to be extremely difficult, we all know

> > > what

> > > > it is like being trapped in a room with triggers blasting around us

> > > and we

> > > > cant get out, but how many of you have noticed that when you subject

> > > > yourself to a trigger, often the negative response does not exist? I

> > > have,

> > > > many times when I tried to rid my self of this infliction by

> > > downloading and

> > > > listening to people chew apples and eat chip, I found I could listen

> > > to

> > > > these sounds for a very very long time, but have someone else make the

> > > > sounds that I cant control and it is a very different story.

> > > >

> > > > The first day I arrived at work, and as normal people were eating

> > > breakfast

> > > > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > > > instinctively I reached for my Ipod to block out the noise as the all

> > > too

> > > > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > > > realized I dont need to run anymore.

> > > >

> > > > Without a second though I dropped my Ipod on my desk, sat at my

> > > computer and

> > > > felt all of the anger wash away. It just switched off! As another

> > > spoon made

> > > > that nail on the chalk board sound I felt the negativity rise and with

> > > a

> > > > huge surge of willpower I forced it away.

> > > >

> > > > "I am able to do this, the sounds are not getting to me, I can do

> > > this" I

> > > > repeated to myself two more times before logging onto the network and

> > > > starting work.

> > > >

> > > > And the most amazing thing happened, as I continued to check my

> > > emotions and

> > > > willpower the negativity away I checked the time and it was

> > > 3pm....someone

> > > > behind me was just finishing an apple....and I didn't even notice they

> > > were

> > > > eating it in the first place. Description: :!:

> > > >

> > > > I sat back and realized as I drifted through my memory, that people

> > > had been

> > > > making trigger noises around me all day and I had not noticed and it

> > > has

> > > > lead me to the following conclusion

> > > >

> > > > The initial surge of negative emotion that is sparked by the trigger

> > > sound

> > > > will remain, but the additional building negative response that is

> > > often

> > > > felt afterwards, such as rage and the need to escape is controllable.

> > > >

> > > > I now see it like this. The trigger noise is like a spark, it has the

> > > > ability to cause a fire if unchecked but if properly monitored, like a

> > > spake

> > > > with no more fuel, it will burn out harmlessly.

> > > >

> > > > It has been one week so far, and for this entire week I have been able

> > > to

> > > > control my reactions, I have turned down every aspect of 4s and even

> > > found

> > > > myself able to sleep last night without ear plugs.

> > > >

> > > > At present, I do not believe I will be able to remove the initial

> > > reaction,

> > > > (yet) but if I can control the rest I think I might just get my life

> > > back. I

> > > > know I am going to have bad days, but if I force myself, I will have

> > > more

> > > > good than bad and as far as I am concerned, that is a win.

> > > >

> > >

> >

> >

>

[Guest guest]

Hi Heidi,Please keep us posted whether or not the thyroid approach is successful! It appears that there is a split between the group members regarding the root cause of 4S. I would be curious to know how many here think this is rooted in the mental or physical? I myself believe this is psychological rather than physiological.JRSent from my iPad

I've posted about 4S on the lowcarbfriends.com website in the thyroid section and one person believes we all should have our adrenals tested using the salvia test. Given that I have hypothyroid which usually occurs at puberty just like 4S, I'm gonna have the saliva test. My hypothyroid went untreated for over 20 years due to Drs only doing a TSH test which is worthless. I finally went to a naturopathy who did T3 free and T4 free testing and low and behold I need thyroid. I do know hypothyroid causes sound sensitivity, annoyance to loud sounds. So maybe the adrenals are a link to 4S. Gonna give it a try. HeidiSent from my iPhone

It (4s) has got to be physiological in origin. Mind games may help cope, but, in my opinion, as a fellow sufferer, the cause of 4s is an imbalance of the neurotransmitters, namely: serotonin, dopamine, endorphins, nor-epinephrine and others. Also known as the chemical soup in your brain. Don't expect medical people to be of any help. Most don't even know these exist, let alone, play together like a symphony. In 4s, one of the players in the symphony out of tune. There is no way to measure these neurotransmitters, unless you do a spinal tap. And there won't be many volunteers for that. Even if you could measure easily the amount and ratio between neurotransmitters, it still wouldn't help, because there is no way to measure receptor sights that these chemicals need to

work.For now, know it is not your fault or a parenting failure. In a generation or so, this issue will be visited by the scientific community and they will crack the code, and find sustainable and reliable relief. For now, coping is great. The condition, as you know, is uncomfortable, but not dangerous. Good luck to all.To: Soundsensitivity Sent: Sat, February 5, 2011 6:22:07 AMSubject:

Re: The Power Of Your Mind - a step towards a cure?

In my own clinical, I have thought of that very moment in time as The Gap. If we can widen the Gap, then the emotive surge, which often occurs pre-consciously, then we might find progress.

Widening the Gap remains to be one investigative area in this malady, and to date, using the therapist, the psychological therapist, might end being the best venue for this exercise.

I have worked directly with psychiatrists and psychologist, all over the world, interested in 4S and its larger category, misophonia, who have also attempted to widen The Gap, or to create the venue thru which people feel as if THEY were in control of the drivers' seat in the car, THEY steer the ship, THEY decide which direction to go....

Another idea would be to pursue how to inhibit the 'trigger' that creates the 'spark' of reaction, in other words, impede the flow of neurological signals that have unusual significance, to shift its pathway PRIOR to the sparking of the response.

This could be both an internal or external invention or inhibition or filtering or even a chemical agent which can taget specific over-excited neurons or unusually strong neural connections.

The word you used, 'surge' is an excellent choice as often the 4S patient feels engulfed by....their own self! So it is very similar to being caught up in a tidal wave, a tsunami, of such strong primitive emotion, that it is hard to breathe or even perceive the rest of the magnificent world...

Dr J

>

> >

> > Many of you know that I have been on both sides of the coin. I have had

> days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that might

> > be able to shed some light on what we are dealing with or a way to reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he was

> > cured. As you might imagine, this held my interest and I went over there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I have,

> > many times when I tried to rid my self of this infliction by downloading

> and

> > listening to people chew apples and eat chip, I found I could listen to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my computer

> and

> > felt all of the anger wash away. It just switched off! As another spoon

> made

> > that nail on the chalk board sound I felt the negativity rise and with a

> > huge surge of willpower I forced it away.

> >

> > "I am able to do this, the sounds are not getting to me, I can do this" I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my emotions

> and

> > willpower the negativity away I checked the time and it was 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people had

> been

> > making trigger noises around me all day and I had not noticed and it has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger sound

> > will remain, but the additional building negative response that is often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able to

> > control my reactions, I have turned down every aspect of 4s and even found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life back.

> I

> > know I am going to have bad days, but if I force myself, I will have more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

Hi Heidi,Please keep us posted whether or not the thyroid approach is successful! It appears that there is a split between the group members regarding the root cause of 4S. I would be curious to know how many here think this is rooted in the mental or physical? I myself believe this is psychological rather than physiological.JRSent from my iPad

I've posted about 4S on the lowcarbfriends.com website in the thyroid section and one person believes we all should have our adrenals tested using the salvia test. Given that I have hypothyroid which usually occurs at puberty just like 4S, I'm gonna have the saliva test. My hypothyroid went untreated for over 20 years due to Drs only doing a TSH test which is worthless. I finally went to a naturopathy who did T3 free and T4 free testing and low and behold I need thyroid. I do know hypothyroid causes sound sensitivity, annoyance to loud sounds. So maybe the adrenals are a link to 4S. Gonna give it a try. HeidiSent from my iPhone

It (4s) has got to be physiological in origin. Mind games may help cope, but, in my opinion, as a fellow sufferer, the cause of 4s is an imbalance of the neurotransmitters, namely: serotonin, dopamine, endorphins, nor-epinephrine and others. Also known as the chemical soup in your brain. Don't expect medical people to be of any help. Most don't even know these exist, let alone, play together like a symphony. In 4s, one of the players in the symphony out of tune. There is no way to measure these neurotransmitters, unless you do a spinal tap. And there won't be many volunteers for that. Even if you could measure easily the amount and ratio between neurotransmitters, it still wouldn't help, because there is no way to measure receptor sights that these chemicals need to

work.For now, know it is not your fault or a parenting failure. In a generation or so, this issue will be visited by the scientific community and they will crack the code, and find sustainable and reliable relief. For now, coping is great. The condition, as you know, is uncomfortable, but not dangerous. Good luck to all.To: Soundsensitivity Sent: Sat, February 5, 2011 6:22:07 AMSubject:

Re: The Power Of Your Mind - a step towards a cure?

In my own clinical, I have thought of that very moment in time as The Gap. If we can widen the Gap, then the emotive surge, which often occurs pre-consciously, then we might find progress.

Widening the Gap remains to be one investigative area in this malady, and to date, using the therapist, the psychological therapist, might end being the best venue for this exercise.

I have worked directly with psychiatrists and psychologist, all over the world, interested in 4S and its larger category, misophonia, who have also attempted to widen The Gap, or to create the venue thru which people feel as if THEY were in control of the drivers' seat in the car, THEY steer the ship, THEY decide which direction to go....

Another idea would be to pursue how to inhibit the 'trigger' that creates the 'spark' of reaction, in other words, impede the flow of neurological signals that have unusual significance, to shift its pathway PRIOR to the sparking of the response.

This could be both an internal or external invention or inhibition or filtering or even a chemical agent which can taget specific over-excited neurons or unusually strong neural connections.

The word you used, 'surge' is an excellent choice as often the 4S patient feels engulfed by....their own self! So it is very similar to being caught up in a tidal wave, a tsunami, of such strong primitive emotion, that it is hard to breathe or even perceive the rest of the magnificent world...

Dr J

>

> >

> > Many of you know that I have been on both sides of the coin. I have had

> days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that might

> > be able to shed some light on what we are dealing with or a way to reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he was

> > cured. As you might imagine, this held my interest and I went over there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I have,

> > many times when I tried to rid my self of this infliction by downloading

> and

> > listening to people chew apples and eat chip, I found I could listen to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my computer

> and

> > felt all of the anger wash away. It just switched off! As another spoon

> made

> > that nail on the chalk board sound I felt the negativity rise and with a

> > huge surge of willpower I forced it away.

> >

> > "I am able to do this, the sounds are not getting to me, I can do this" I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my emotions

> and

> > willpower the negativity away I checked the time and it was 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people had

> been

> > making trigger noises around me all day and I had not noticed and it has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger sound

> > will remain, but the additional building negative response that is often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able to

> > control my reactions, I have turned down every aspect of 4s and even found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life back.

> I

> > know I am going to have bad days, but if I force myself, I will have more

> > good than bad and as far as I am concerned, that is a win.

> >

>

[Guest guest]

That type of testing isn't available here.. people have been suggesting that to me for many years--but for other health reasons.†.:. Mae .:.†

You have not seen Christ, but still you love him. You cannot see him now, but you believe in him. So you are filled with a joy that cannot be explained, a joy full of glory. And you are receiving the goal of your faith -- the salvation of your souls. -1 1:8-9 (NCV)To: Soundsensitivity From: heidi@...Date: Sat, 5 Feb 2011 10:41:59 -0800Subject: Re: Re: The Power Of Your Mind - a step towards a cure?

I've posted about 4S on the lowcarbfriends.com website in the thyroid section and one person believes we all should have our adrenals tested using the salvia test. Given that I have hypothyroid which usually occurs at puberty just like 4S, I'm gonna have the saliva test. My hypothyroid went untreated for over 20 years due to Drs only doing a TSH test which is worthless. I finally went to a naturopathy who did T3 free and T4 free testing and low and behold I need thyroid. I do know hypothyroid causes sound sensitivity, annoyance to loud sounds. So maybe the adrenals are a link to 4S. Gonna give it a try. HeidiSent from my iPhone

It (4s) has got to be physiological in origin. Mind games may help cope, but, in my opinion, as a fellow sufferer, the cause of 4s is an imbalance of the neurotransmitters, namely: serotonin, dopamine, endorphins, nor-epinephrine and others. Also known as the chemical soup in your brain. Don't expect medical people to be of any help. Most don't even know these exist, let alone, play together like a symphony. In 4s, one of the players in the symphony out of tune. There is no way to measure these neurotransmitters, unless you do a spinal tap. And there won't be many volunteers for that. Even if you could measure easily the amount and ratio between neurotransmitters, it still wouldn't help, because there is no way to measure receptor sights that these chemicals need to

work.For now, know it is not your fault or a parenting failure. In a generation or so, this issue will be visited by the scientific community and they will crack the code, and find sustainable and reliable relief. For now, coping is great. The condition, as you know, is uncomfortable, but not dangerous. Good luck to all.To: Soundsensitivity Sent: Sat, February 5, 2011 6:22:07 AMSubject:

Re: The Power Of Your Mind - a step towards a cure?

In my own clinical, I have thought of that very moment in time as The Gap. If we can widen the Gap, then the emotive surge, which often occurs pre-consciously, then we might find progress.

Widening the Gap remains to be one investigative area in this malady, and to date, using the therapist, the psychological therapist, might end being the best venue for this exercise.

I have worked directly with psychiatrists and psychologist, all over the world, interested in 4S and its larger category, misophonia, who have also attempted to widen The Gap, or to create the venue thru which people feel as if THEY were in control of the drivers' seat in the car, THEY steer the ship, THEY decide which direction to go....

Another idea would be to pursue how to inhibit the 'trigger' that creates the 'spark' of reaction, in other words, impede the flow of neurological signals that have unusual significance, to shift its pathway PRIOR to the sparking of the response.

This could be both an internal or external invention or inhibition or filtering or even a chemical agent which can taget specific over-excited neurons or unusually strong neural connections.

The word you used, 'surge' is an excellent choice as often the 4S patient feels engulfed by....their own self! So it is very similar to being caught up in a tidal wave, a tsunami, of such strong primitive emotion, that it is hard to breathe or even perceive the rest of the magnificent world...

Dr J

>

> >

> > Many of you know that I have been on both sides of the coin. I have had

> days

> > where I have found it very difficult to cope and then days where this

> > condition did not phase me at all.

> >

> > I have been searching the internet for an answer, for something that might

> > be able to shed some light on what we are dealing with or a way to reduce

> > the negative reactions we face.

> >

> > I read a post through the UK support group where a member mentioned he was

> > cured. As you might imagine, this held my interest and I went over there

> > right away to read how.

> >

> > The post detailed a changed in mind set and the member spoke about just by

> > willing it, he overcame. It had been 6 weeks and he had not used ear plugs

> > and had faced his fears head on....and won.

> >

> > I have read information on NLP, CBTand brainwave entrainment all talking

> > about the power of your mind and the ability to recondition. I have

> dabbled

> > with this in the past but never have I put my whole into it that is until

> > this week.

> >

> > After reading the post about will power I decide to throw myself at it

> full

> > force and see what happens.

> >

> > At first I thought it was going to be extremely difficult, we all know

> what

> > it is like being trapped in a room with triggers blasting around us and we

> > cant get out, but how many of you have noticed that when you subject

> > yourself to a trigger, often the negative response does not exist? I have,

> > many times when I tried to rid my self of this infliction by downloading

> and

> > listening to people chew apples and eat chip, I found I could listen to

> > these sounds for a very very long time, but have someone else make the

> > sounds that I cant control and it is a very different story.

> >

> > The first day I arrived at work, and as normal people were eating

> breakfast

> > at their desk, their crunchy , bowl smacking, slurping breakfast and

> > instinctively I reached for my Ipod to block out the noise as the all too

> > comon feelings of rage surfaced. Then I stopped, music in had....and I

> > realized I dont need to run anymore.

> >

> > Without a second though I dropped my Ipod on my desk, sat at my computer

> and

> > felt all of the anger wash away. It just switched off! As another spoon

> made

> > that nail on the chalk board sound I felt the negativity rise and with a

> > huge surge of willpower I forced it away.

> >

> > "I am able to do this, the sounds are not getting to me, I can do this" I

> > repeated to myself two more times before logging onto the network and

> > starting work.

> >

> > And the most amazing thing happened, as I continued to check my emotions

> and

> > willpower the negativity away I checked the time and it was 3pm....someone

> > behind me was just finishing an apple....and I didn't even notice they

> were

> > eating it in the first place. Description: :!:

> >

> > I sat back and realized as I drifted through my memory, that people had

> been

> > making trigger noises around me all day and I had not noticed and it has

> > lead me to the following conclusion

> >

> > The initial surge of negative emotion that is sparked by the trigger sound

> > will remain, but the additional building negative response that is often

> > felt afterwards, such as rage and the need to escape is controllable.

> >

> > I now see it like this. The trigger noise is like a spark, it has the

> > ability to cause a fire if unchecked but if properly monitored, like a

> spake

> > with no more fuel, it will burn out harmlessly.

> >

> > It has been one week so far, and for this entire week I have been able to

> > control my reactions, I have turned down every aspect of 4s and even found

> > myself able to sleep last night without ear plugs.

> >

> > At present, I do not believe I will be able to remove the initial

> reaction,

> > (yet) but if I can control the rest I think I might just get my life back.

> I

> > know I am going to have bad days, but if I force myself, I will have more

> > good than bad and as far as I am concerned, that is a win.

> >

>