Re: Public Website: About Page

[Guest guest]

> > > How would you define 4s? A hypersensitivity to background sounds or

visual stimuli that are generally ignored by other people. More important is the

response to those stimuli " triggers " . The response is a reflexive emotional

flood of rage and panic in a storm of fight-or-flight with adrenaline flooding,

face flushing, heart-pounding and/or shaking and the need to physically flee or

attack. The mindful thoughts that the emotional reflex/response is unreasonable

given the facts of the stimulus come only after the fight-or-flight response is

in full force and the affected person may find themselves in a constant mode of

" talking themselves down " into a normal state of calm.

> > > Â

> > > How does it make you feel?

> > > Â

> > > Rich

> > >

> >

>

[Guest guest]

> > > How would you define 4s? A hypersensitivity to background sounds or

visual stimuli that are generally ignored by other people. More important is the

response to those stimuli " triggers " . The response is a reflexive emotional

flood of rage and panic in a storm of fight-or-flight with adrenaline flooding,

face flushing, heart-pounding and/or shaking and the need to physically flee or

attack. The mindful thoughts that the emotional reflex/response is unreasonable

given the facts of the stimulus come only after the fight-or-flight response is

in full force and the affected person may find themselves in a constant mode of

" talking themselves down " into a normal state of calm.

> > > Â

> > > How does it make you feel?

> > > Â

> > > Rich

> > >

> >

>

[Guest guest]

I too have this symptom.

> > > >

> > > > Excellent stuff, keep it coming everyone

> > > > Sent from my BlackBerry® smartphone on 3

> > > >

> > > > Public Website: About Page

> > > >

> > > >  

> > > > Hi All,

> > > >  

> > > > I’m planning on working on the  " about†page over the

weekend and would

> > >like to

> > >

> > > > know what you think should be said.

> > > >  

> > > > How would you define 4s?

> > > >  

> > > > How does it make you feel?

> > > >  

> > > > Rich

> > > >

> > >

> >

>

[Guest guest]

Hi all,thank you for your suggestions and feedback, i have put a draft together and uploaded it to the website. I have removed the welcome page and instead put it under the about page. I have created a symptoms and Triggers page that contains some of the trigger list we created a few years back, thanks maikaefer for your work on that one. we are slowly getting there, a few changes to be made on content, the resource page needs doing and the shop page and lastly, making it look all pretty. 

I will copy the pages below for your reference, if you want to make some changes please go right ahead, its midnight here and I have been working on other webpages since 6 so my head is buggered.  

About Page

Welcome to Sound Sensitivity Online, a website developed and maintained by volunteers to help share information and promote the awareness of an often debilitating condition in which the person has a collapsed tolerance to normal every day stimuli, in particular, sounds. The triggered stimuli quickly become intolerable and often feelings of immense rage and disgust overcome the sufferer plunging them into states of mental anguish until either the offending stimulus are removed or they escape the stimuli.

Dr. Marsha (Aud) labeled the condition “Selective Sound Sensitivity Syndrome” and has since set up a Yahoo Support Group which currently has over 1500 members and growing. You can find the support group HERE.

You may hear this condition referred to by other names, such as Soft Sound Sensitivity Syndrome, SSSS, SSS, 4S, Hyperacusis, Phonophobia, Misophonia, or just plain “Get Over It” and although the name has been a subject of great debate for some time, for those who suffer this condition the name is not what is important. Instead the knowledge that they are not alone, that an entire support network does exist to help and hopefully in time, conduct research to find a cure.

This website has been created as an extension of the Yahoo Support Group, as such from here forwards the condition will be labeled Selective Sound Sensitivity Syndrome or 4S.

On this website you will find resources and articles to help learn about the condition as well as tips and tricks you can try to help reduce your symptoms. You can also find a Forum with a Public and Private Support Section to offer advice, share stories and swap tricks and ideas. Separate sections for friends and family members are also available for those who help support someone with this condition. Youtube videos, newspaper articles and website articles are constantly being added as we aim to keep up to date and relevant with what’s happening in the world around us.

A special store has also been created by people with 4S for people with 4S and all revenue raised will go to supporting Sound Sensitivity Online as well as raising awareness and searching for a cure.

If you would like to know more about this condition and the stimuli that can trigger the adverse reactions please look over the Symptoms & Triggers page.

If you would like to learn some tips and tricks on how to reduce your symptoms or how to explain this to others please head over to the Resource pages and the Forum.

We encourage you to read through and join our community, to share your experience or your thoughts whether you have this condition or not as we value all opinions.

If you would like to donate to the website, or to help in the search for a cure, please contact the administration team by sending an email to admin@...

We hope you find the information here useful and we are always open to suggestions and feedback but we ask you to please keep an open mind and be respectful. Unfortunately this condition is real and its consequences can be and often are detrimental to a person’s way of life

Symptoms and Triggers:

Symptoms and Triggers

 

Selective Sound Sensitivity Syndrome can be defined as a

hypersensitivity to background sounds or visual stimuli that are generally

ignored by other people. More importantly than the individuals inability to

block out the offending stimuli or “trigger” is the acute negative emotional

response experienced as a direct result of being in contact with a trigger.

 

The response has been described as a reflexive emotional

flood of rage and panic with a storm of fight-or-flight reactions becoming paramount.

Adrenaline flooding, face flushing, heart-pounding and/or shaking and the need

to physically flee or attack are often experienced. The mindful thoughts that

the emotional reflex/response is unreasonable given the facts of the stimulus is

often actually harmless come only after the fight-or-flight response is in full

force and the affected person may find themselves in a constant mode of

" talking themselves down " into a normal state of calm.

 

The majority of Trigger stimuli are counted as harmless or

just part of every day to day life by the “normal” person, but to a person

inflicted with Selective Sound Sensitivity Syndrome, they are a tremendous

burden, often the analogy of nails down a chalk board or exposed nerves have

been used to describe the disturbing response.

 

Often a sufferer is forced into a life of isolation,

shrinking away from the general population and the offending triggers, not by

choice but out of necessity for their sanity. Many withdraw from social

occasions due to the fear and anxiety caused that a trigger may be present.

Often relationships are destroyed due to misunderstandings and misdirected

negativity. Work opportunities are reduced or obliterated altogether.

 

When asked how they feel, a sufferer will often detail the

tremendous levels of guilt and turmoil they feel due to their reaction, their

fear of an ever collapsing tolerance and the ever increasing restrictions imposed

on them by the condition.  

 

Although the initial list of Triggers was thought to be focused

around soft sounds or eating and bodily noises it has since been identified

that an ever increasing list of audio and visual stimuli may trigger the above

reaction. Not everyone who has this condition is affected equally, with some

being unaffected by trigger noises that torments others, while others still

seem to have no negative response visual stimuli but are completely overcome by

sounds.

 

A full list of Trigger Stimuli can be found on our public

and private forums by clicking here, but an extract from that list can be found

below:

 

 

MOUTH

& EATING:

 

crunching,

sucking, smacking, chewing, swallowing, talking with food in mouth, burping,

silverware scraping teeth, Gum chewing and popping, Gulping, slurping,

water bottle squeezing, ahhs after drinking tooth sucking, wet mouth sounds,

kissing sounds, spitting, nail biting

Toothbrushing, Flossing, plastic bags opening or being rubbed

 

 

BREATHING/NASAL:

Loud breathing, soft breathing, yawning, snoring, 

nose whistling, wheezing, sniffling, snorting

throat clearing, coughing, hawking phlemn, hiccups

VOCAL:

S & P sounds, Sibilance

humming, whistling, singing

gravelly voices, nasally voices, soft whispery

voices

overused words such as um or ah

muffled talking

tv laugh tracks

BODY MOVEMENT RELATED:

Foot shuffling (dry feet on floor), heels, flip

flops, heavy footsteps

Hand and Foot Rubbing

Knuckle/Joint Cracking

Nail biting, clipping, Finger Tapping, scratching

Eye blinking

Gadgets: Clicking from texting, keyboard/mouse, tv

remote, pen clicking, writing sounds, , Papers Rustling / Ripping, Ticking

clocks

Utensils:  Dishes clattering, silverware

hitting plates or other silverware, crinkling food packages. Wrappers, plastic

bags crinkling rustling.

VISUAL (Sound Related:) eating, chewing gum

VISUAL(NOT necessarily SOUND RELATED)

Repetitive foot or body movements, hair twirling,

hands near mouth, fidgeting, nervous tics, blinking eyes, Blinking lights, web

animations, movements out of the corner of eyes

ENVIROMENTAL 

Traffic, Construction Noise, Lawnmowers, Bouncing

Balls, back-up beepers

Other People's muffled / bass music  or TV

through walls, cars, or portable audio devices. electronic humming. Dogs

barking, Bird sounds, crickets, frogs, dogs or cat licking, drinking, eating.

Dripping Water. Water pouring, car doors

slamming, ticking clocks, floors creaking / Squeaking

Low frequency sounds such as base or muffled speaking,

rattling, rattling change in pockets

 

The above list is not exhaustive nor are all trigger

sounds experienced by each individual, but the majority with Selective Sound

Sensitivity Syndrome will be able to relate to a lot of the above.

 

 

Hi All, I’m planning on working on the “about” page over the weekend and would like to know what you think should be said.

 How would you define 4s? How does it make you feel? Rich

[Guest guest]

Hi all,thank you for your suggestions and feedback, i have put a draft together and uploaded it to the website. I have removed the welcome page and instead put it under the about page. I have created a symptoms and Triggers page that contains some of the trigger list we created a few years back, thanks maikaefer for your work on that one. we are slowly getting there, a few changes to be made on content, the resource page needs doing and the shop page and lastly, making it look all pretty. 

I will copy the pages below for your reference, if you want to make some changes please go right ahead, its midnight here and I have been working on other webpages since 6 so my head is buggered.  

About Page

Welcome to Sound Sensitivity Online, a website developed and maintained by volunteers to help share information and promote the awareness of an often debilitating condition in which the person has a collapsed tolerance to normal every day stimuli, in particular, sounds. The triggered stimuli quickly become intolerable and often feelings of immense rage and disgust overcome the sufferer plunging them into states of mental anguish until either the offending stimulus are removed or they escape the stimuli.

Dr. Marsha (Aud) labeled the condition “Selective Sound Sensitivity Syndrome” and has since set up a Yahoo Support Group which currently has over 1500 members and growing. You can find the support group HERE.

You may hear this condition referred to by other names, such as Soft Sound Sensitivity Syndrome, SSSS, SSS, 4S, Hyperacusis, Phonophobia, Misophonia, or just plain “Get Over It” and although the name has been a subject of great debate for some time, for those who suffer this condition the name is not what is important. Instead the knowledge that they are not alone, that an entire support network does exist to help and hopefully in time, conduct research to find a cure.

This website has been created as an extension of the Yahoo Support Group, as such from here forwards the condition will be labeled Selective Sound Sensitivity Syndrome or 4S.

On this website you will find resources and articles to help learn about the condition as well as tips and tricks you can try to help reduce your symptoms. You can also find a Forum with a Public and Private Support Section to offer advice, share stories and swap tricks and ideas. Separate sections for friends and family members are also available for those who help support someone with this condition. Youtube videos, newspaper articles and website articles are constantly being added as we aim to keep up to date and relevant with what’s happening in the world around us.

A special store has also been created by people with 4S for people with 4S and all revenue raised will go to supporting Sound Sensitivity Online as well as raising awareness and searching for a cure.

If you would like to know more about this condition and the stimuli that can trigger the adverse reactions please look over the Symptoms & Triggers page.

If you would like to learn some tips and tricks on how to reduce your symptoms or how to explain this to others please head over to the Resource pages and the Forum.

We encourage you to read through and join our community, to share your experience or your thoughts whether you have this condition or not as we value all opinions.

If you would like to donate to the website, or to help in the search for a cure, please contact the administration team by sending an email to admin@...

We hope you find the information here useful and we are always open to suggestions and feedback but we ask you to please keep an open mind and be respectful. Unfortunately this condition is real and its consequences can be and often are detrimental to a person’s way of life

Symptoms and Triggers:

Symptoms and Triggers

 

Selective Sound Sensitivity Syndrome can be defined as a

hypersensitivity to background sounds or visual stimuli that are generally

ignored by other people. More importantly than the individuals inability to

block out the offending stimuli or “trigger” is the acute negative emotional

response experienced as a direct result of being in contact with a trigger.

 

The response has been described as a reflexive emotional

flood of rage and panic with a storm of fight-or-flight reactions becoming paramount.

Adrenaline flooding, face flushing, heart-pounding and/or shaking and the need

to physically flee or attack are often experienced. The mindful thoughts that

the emotional reflex/response is unreasonable given the facts of the stimulus is

often actually harmless come only after the fight-or-flight response is in full

force and the affected person may find themselves in a constant mode of

" talking themselves down " into a normal state of calm.

 

The majority of Trigger stimuli are counted as harmless or

just part of every day to day life by the “normal” person, but to a person

inflicted with Selective Sound Sensitivity Syndrome, they are a tremendous

burden, often the analogy of nails down a chalk board or exposed nerves have

been used to describe the disturbing response.

 

Often a sufferer is forced into a life of isolation,

shrinking away from the general population and the offending triggers, not by

choice but out of necessity for their sanity. Many withdraw from social

occasions due to the fear and anxiety caused that a trigger may be present.

Often relationships are destroyed due to misunderstandings and misdirected

negativity. Work opportunities are reduced or obliterated altogether.

 

When asked how they feel, a sufferer will often detail the

tremendous levels of guilt and turmoil they feel due to their reaction, their

fear of an ever collapsing tolerance and the ever increasing restrictions imposed

on them by the condition.  

 

Although the initial list of Triggers was thought to be focused

around soft sounds or eating and bodily noises it has since been identified

that an ever increasing list of audio and visual stimuli may trigger the above

reaction. Not everyone who has this condition is affected equally, with some

being unaffected by trigger noises that torments others, while others still

seem to have no negative response visual stimuli but are completely overcome by

sounds.

 

A full list of Trigger Stimuli can be found on our public

and private forums by clicking here, but an extract from that list can be found

below:

 

 

MOUTH

& EATING:

 

crunching,

sucking, smacking, chewing, swallowing, talking with food in mouth, burping,

silverware scraping teeth, Gum chewing and popping, Gulping, slurping,

water bottle squeezing, ahhs after drinking tooth sucking, wet mouth sounds,

kissing sounds, spitting, nail biting

Toothbrushing, Flossing, plastic bags opening or being rubbed

 

 

BREATHING/NASAL:

Loud breathing, soft breathing, yawning, snoring, 

nose whistling, wheezing, sniffling, snorting

throat clearing, coughing, hawking phlemn, hiccups

VOCAL:

S & P sounds, Sibilance

humming, whistling, singing

gravelly voices, nasally voices, soft whispery

voices

overused words such as um or ah

muffled talking

tv laugh tracks

BODY MOVEMENT RELATED:

Foot shuffling (dry feet on floor), heels, flip

flops, heavy footsteps

Hand and Foot Rubbing

Knuckle/Joint Cracking

Nail biting, clipping, Finger Tapping, scratching

Eye blinking

Gadgets: Clicking from texting, keyboard/mouse, tv

remote, pen clicking, writing sounds, , Papers Rustling / Ripping, Ticking

clocks

Utensils:  Dishes clattering, silverware

hitting plates or other silverware, crinkling food packages. Wrappers, plastic

bags crinkling rustling.

VISUAL (Sound Related:) eating, chewing gum

VISUAL(NOT necessarily SOUND RELATED)

Repetitive foot or body movements, hair twirling,

hands near mouth, fidgeting, nervous tics, blinking eyes, Blinking lights, web

animations, movements out of the corner of eyes

ENVIROMENTAL 

Traffic, Construction Noise, Lawnmowers, Bouncing

Balls, back-up beepers

Other People's muffled / bass music  or TV

through walls, cars, or portable audio devices. electronic humming. Dogs

barking, Bird sounds, crickets, frogs, dogs or cat licking, drinking, eating.

Dripping Water. Water pouring, car doors

slamming, ticking clocks, floors creaking / Squeaking

Low frequency sounds such as base or muffled speaking,

rattling, rattling change in pockets

 

The above list is not exhaustive nor are all trigger

sounds experienced by each individual, but the majority with Selective Sound

Sensitivity Syndrome will be able to relate to a lot of the above.

 

 

Hi All, I’m planning on working on the “about” page over the weekend and would like to know what you think should be said.

 How would you define 4s? How does it make you feel? Rich

[Guest guest]

Wow, , thanks for moving forward on this! I will read it carefully when I

have some time, hopefully soon.

>

> > Hi All,

> >

> >

> >

> > I'm planning on working on the " about " page over the weekend and would like

> > to know what you think should be said.

> >

> >

> >

> > How would you define 4s?

> >

> >

> >

> > How does it make you feel?

> >

> >

> >

> > Rich

> >

>

[Guest guest]

Wow, , thanks for moving forward on this! I will read it carefully when I

have some time, hopefully soon.

>

> > Hi All,

> >

> >

> >

> > I'm planning on working on the " about " page over the weekend and would like

> > to know what you think should be said.

> >

> >

> >

> > How would you define 4s?

> >

> >

> >

> > How does it make you feel?

> >

> >

> >

> > Rich

> >

>

[Guest guest]

Thank you, it will most definitely need a read over and tweaking as my mind is distracted with lots of other things going on but thought it might be better to get something down that isn’t perfect so we can all make it that way J From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of fiatvoluntastua97Sent: Friday, February 04, 2011 8:00 AMTo: Soundsensitivity Subject: Re: Public Website: About Page Wow, , thanks for moving forward on this! I will read it carefully when I have some time, hopefully soon.> > > Hi All,> >> >> >> > I'm planning on working on the " about " page over the weekend and would like> > to know what you think should be said.> >> >> >> > How would you define 4s?> >> >> >> > How does it make you feel?> >> >> >> > Rich> >>