Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 Doesn't taking folic acid reduce the risk of NTD's? And as far as I have read, both SB and TSC are NTD's, one wth the skin being closed, the other, open. Nothing I have read specifically stated SB....just the reduction of NTD's. Nevertheless, I took mine for a year prior to trying to get preg with Marlee (the only one I took folic acid for) and so did our friend who had a baby three weeks after with Myelomeningocele. I guess it doesn't work for everyone, huh? inal Message ----- To: <tetheredspinalcord > Sent: Sunday, March 09, 2003 7:45 PM Subject: Re: Folic Acid Issue! > I know some of you may disagree, and that is Ok. But this is a very Hot > Topic on the Spina Bifida Lists I am on, so I felt the need to say that the > comment written below is best worded in a different manner...........such > as: The risk of having a baby with Spina Bifida MAY BE reduced by taking > Folic Acid...... Not can be and dramatically like it says below. > > I will stop there, since this is mainly a Spina Bifida issue, and not > Tethered Cord, especially since not everybody on this List has Spina Bifida. > > Just another Hot Topic of Brande's........which she will get off of now. > > Me > Nebraska, USA > mymocha@... > > > However, the risk of having a baby with spina bifida can be > > dramatically reduced by taking folic acid (a B-group vitamin). > > > > > > Not Medical Advice. We Are Not Doctors. > Need help with the list? Email kathy@...,michelle@..., rick@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 I know some of you may disagree, and that is Ok. But this is a very Hot Topic on the Spina Bifida Lists I am on, so I felt the need to say that the comment written below is best worded in a different manner...........such as: The risk of having a baby with Spina Bifida MAY BE reduced by taking Folic Acid...... Not can be and dramatically like it says below. I will stop there, since this is mainly a Spina Bifida issue, and not Tethered Cord, especially since not everybody on this List has Spina Bifida. Just another Hot Topic of Brande's........which she will get off of now. Me Nebraska, USA mymocha@... > However, the risk of having a baby with spina bifida can be > dramatically reduced by taking folic acid (a B-group vitamin). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 Yes, but it is better to say it may help reduce the Risk. Some forms of Tethered Cord may be NTD's, but not all. No, it doesn't. That is why you can't say it as an absolute.........such as: taking Folic Acid will reduce the risk of NTD's. May help, not will reduce. Me Nebraska, USA mymocha@... > Doesn't taking folic acid reduce the risk of NTD's? And as far as I have > read, both SB and TSC are NTD's, one wth the skin being closed, the other, > open. I took mine for a year prior to trying to get preg with Marlee > (the only one I took folic acid for) and so did our friend who had a baby > three weeks after with Myelomeningocele. I guess it doesn't work for > everyone, huh? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 Hi, Here is a quote: .....Tethered spinal cord syndrome appears to be the result of improper development of the neural tube, and is closely linked with spina bifida...... If only some forms of Tethered Cord are NTD's what are the other forms? Other than the one caused by trauma, which could still mean that the problem was there just never discovered until trauma impact. Folic Acid may help Neurological Disorders with the spinal cord. If anything is possible to help prevent these disorders and it doesn't create other problems it is worth taking. It doesn't help everyone but it does help some. It is not a cure all but if you are likely to have a child with a NTD it sure can't hurt in taking Folic Acid. Cherie > Yes, but it is better to say it may help reduce the Risk. > > Some forms of Tethered Cord may be NTD's, but not all. > > No, it doesn't. That is why you can't say it as an absolute.........such as: > taking Folic Acid will reduce the risk of NTD's. May help, not will reduce. > > Me > Nebraska, USA > mymocha@... > > > > > Doesn't taking folic acid reduce the risk of NTD's? And as far as I have > > read, both SB and TSC are NTD's, one wth the skin being closed, the other, > > open. > > I took mine for a year prior to trying to get preg with Marlee > > (the only one I took folic acid for) and so did our friend who had a baby > > three weeks after with Myelomeningocele. I guess it doesn't work for > > everyone, huh? > > > > > > Not Medical Advice. We Are Not Doctors. > Need help with the list? Email kathy@...,michelle@..., rick@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 Cherie, I am Tethered by Scar Tissue, which formed from Surgeries I had after I was Born. Therefore, atleast for myself, it is not an NTD. Yes, I do have Spina Bifida, but the Tethered Cord issue came up after I was born due to the Scar Tissue that formed after I had the Closure Surgery, then other Surgeries. Yes, Tethered Cord is closely linked with Spina Bifida, in which..........it is fairly likely that you will have Tethered Cord if you have Spina Bifida, especially, if you have a form of Spina Bifida that required a Closure Surgery. But just because it is likely that a person with Spina Bifida will have Tethered Cord, that doesn't make the Tethered Cord an NTD. But like I said before..........I am not saying there are not forms of Tethered Cord that are NTD's. I am just saying mine isn't. And I am sure I am not the only one. You are right, there is no harm done in taking Folic Acid..........but my thing is is that it is not all what it is cracked up to be. But it doesn't hurt, might not help, but doesn't hurt. There are just too many women out there who don't take care of themselves, at all, who have healthy Babies, which makes this Folic Acid thing hard to believe. I have Spina Bifida, and it was back in the Seventies, so no, my Mom didn't take Folic Acid.........she then went on to have another Child, my Brother, again didn't take Folic Acid, and he does not have Spina Bifida, or any other NTD's. I do not Blame her, that she did not take it with me, albeit she didn't know about it at the time, even if she did, and decided not to, but in all other aspects took care of herself, and looked after the Child inside of her, to a reasonable degree (none of us are perfect), I wouldn't blame her. And as a whole, I don't blame her for my Spina Bifida either. On a side note......................I don't consider not taking Folic Acid not taking care of yourself. So, for those of you who didn't, don't feel bad. Generally, I consider taking care of yourself , if you are Pregnant, as: having Prenatal Care, not using illegal Drugs, not having your Baby on the Streets.............among other resque Behavior. But not taking Folic Acid alone........I don't consider that not taking care of yourself, or your Baby. Trying to get of my Rant.........as you can see from my Response on this Subject, the Folic Acid parts, you can, maybe, imagine what it creates on the Spina Bifida Lists. Me Nebraska, USA mymocha@... > If only some forms of Tethered Cord are NTD's what are the other forms? > Other than the one caused by trauma, which could still mean that the problem > was there just never discovered until trauma impact. > Folic Acid may help Neurological Disorders with the spinal cord. If anything > is possible to help prevent these disorders and it doesn't create other > problems it is worth taking. It doesn't help everyone but it does help some. > It is not a cure all but if you are likely to have a child with a NTD it > sure can't hurt in taking Folic Acid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 No, it isn't Vitamin C. If I am not mistaken it is in the B class of Vitamins. Me Nebraska, USA mymocha@... > Is folic acid vitamin C? If so, I take 1000 (one thousand) mg/day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 does anyone know what kind of trauma can cause tsc??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 I've heard, not alot, that Whiplash Type Injuries may have the possiblity to create Tethered Cord, if there was enough damage done. Not everybody with a Whiplash Type Injury will have ongoing problems. Of course, it would have to be in the right spot too. If you really got down to it, and thought of every possiblity, in reality, there could be quite a few things. However, it is more that you will already have Tethered Cord, but if you were involved in some kind of Physical Trauma it may bring on the Symptoms of Tethered Cord, that you didn't have before. Hope that all makes sense. Me Nebraska, USA mymocha@... > does anyone know what kind of trauma can cause tsc??? > Quote Link to comment Share on other sites More sharing options...
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