I am a new member

[Guest guest]

I just found out the my son, who is mild to moderately retarded and regressing, has epilepsy and a language deficit, probably has misophonia.

I read an article about a boy who goes into a rage with the sound of voices. We visited my son's psychiatrist and I explained to her that his anxiety problem seems to worsen when my husband clears his throat, we talk to each other in the same room or talking on the phone. I had noted in the past that these things increased his anxiety. He has been on Lexapro and Ability, which sometimes helps his anxiety. A year ago it got so bad that they tried adding on different medications, which did nothing to help.

When upset by whatever, he starts to hyperventilate and looks like he is going to go nuts. He sometimes gets real mad and yells and screams. Large crowds seem to also bother him a lot. Lights have always bothered him because of his epilepsy.

Anyhow his psychiatrist yesterday told me about this condition and she believes that this could be what he has. She gave us a few coping mechanisms, which I am not sure he will be able to understand. I think he could wear the earphones when watching tv. I am looking for one that blocks out sounds, but is wireless. He might tolerate that.

ANY SUGGESTIONS WOULD BE APPRECIATED.

[Guest guest]

Hi ,First, I’m sorry your son has these issues to deal with. Your description of your son’s reactions to certain sounds does sound like misophonia. I’m impressed that his doctor is the one who suggested that might be misophonia since most doctors haven’t heard of it and it’s usually the patient/us who has to suggest it to the doctor and educate them! (Sounds like a doctor to stay with). There are many suggestions on this forum for coping, some of which might be appropriate for your son, including various regular and wireless ear buds, head phones, downloads of white/brown/pink noise, suggestions of background noise so small/soft sounds aren’t as noticable, and medications that do not cure, but help tone down some of the immediate rage. You can probably find some of these ideas by reviewing many of the past posts. Meanwhile, to make it easier for you, maybe someone can reply with some links to wireless headphones for listening to TV while blocking out other sounds (as you mentioned might help) or other ideas. Hang in there!- . . . another mom of a 4S/Misophonia ( & OCD) son From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of BarrasSent: Thursday, December 29, 2011 11:11 AMTo: Soundsensitivity Subject: I am a new memberImportance: High I just found out the my son, who is mild to moderately retarded and regressing, has epilepsy and a language deficit, probably has misophonia. I read an article about a boy who goes into a rage with the sound of voices. We visited my son's psychiatrist and I explained to her that his anxiety problem seems to worsen when my husband clears his throat, we talk to each other in the same room or talking on the phone. I had noted in the past that these things increased his anxiety. He has been on Lexapro and Ability, which sometimes helps his anxiety. A year ago it got so bad that they tried adding on different medications, which did nothing to help. When upset by whatever, he starts to hyperventilate and looks like he is going to go nuts. He sometimes gets real mad and yells and screams. Large crowds seem to also bother him a lot. Lights have always bothered him because of his epilepsy. Anyhow his psychiatrist yesterday told me about this condition and she believes that this could be what he has. She gave us a few coping mechanisms, which I am not sure he will be able to understand. I think he could wear the earphones when watching tv. I am looking for one that blocks out sounds, but is wireless. He might tolerate that. ANY SUGGESTIONS WOULD BE APPRECIATED.