Re: living with it !!

[Guest guest]

Joy, your newly improved health and energy are incredible and incredibly wonderful to hear about. I've always thought that part of what makes a doctor truly effective is the ability to think outside the box and use his or her own observational powers in practice. So often it's the lower tech things they can advise us to do and to proscribe that make the difference in illness outcomes.

I'll think of you enjoying your walks :-)

Kay

Re: living with it !!

Hi Marilyn, Thx so much for your kind words – there were times last year I felt anything but empathic toward anyone! Least of all any of the hospital / community health / doctors / etc etc the whole lot!!! However, the experience opened my eyes a lot as to how our system here works at least, so much overlapping bureaucracy, lines where certain practitioners can’t cross leaving us poor things to fall between the cracks. I guess US wouldn’t be greatly different in essence, having inherited similar systems as “1st world†countries (how NOT to be sardonic about that title!!)I don’t have much choice of specialists here – only two, and fortunately that 2nd one did more in 6 months that the previous one had in 6 yrs.... Has made a huge difference to my current management, where I now do daily neb physio – to do thoroughly takes 40 mins plus, but is worth it, I can notice changes for the worse within 24 hrs if I miss. When unable to do own physio adequately I’ve been able to have it done for me. My life is now more liveable, enjoying doing walks up the rainforest hills nearby, which I’d given up hope of ever doing again, doing more than one thing per day without total exhaustion. I truly wish I could make it the same for you...Do try find another practitioner, it can make such a difference, I wish you all the best in your search, that it comes easy and you have the help you’ve long needed.Hugsjoy