Re: land Meeting & Colonoscopy

[Guest guest]

& Larry,

Glad you had a good meeting at the Cheesecake Factory. Sounds

like a good time was had by all.

you remind me that I go to prepare tomorrow for

colonoscopy on Thursday, I'm expecting a clean bill of health

also, but a bit of blood in thesmear samples indicated a more

though check was advised. (I know of other PSC transplant

patients who had UC show up 2 years after tx, I would rather

avoid it).

Tim ltx 4/4/98

=====

__________________________________________________

[Guest guest]

,

It was wonderful meeting your and your family as well. I was so glad we were

able to get together. I want to try and meet as many in the group as

possible. It is always good putting a face with the name and sharing more

information. It was good chance to talk in person with someone who has a lot

of knowledge about the procedures and about PSC. Since I still don't have

most of the symptoms, I try to learn as much as I can about the disease so I

know what to expect and hopefully I can help someone else along the way.

I am so glad to hear that you don't have the UC. That was great news. I know

what you mean about the prep for the procedure. IT IS AWFUL!!!! I would

rather be whipped than drink that liquid. I do hope and pray that the biopsy

comes back neg.

As far as supplements go, I take glucosamaine/chondroitin for joint pain.

Joint pain is a part of UC. The supplement really helps me. I take flax seed

oil for the anti-inflammatory properties. I have only been on it about a

month now. I think that is the reason I was able to go to every other day on

the Prednisone. So far so good. I also started taking L-Lysine. Lysine is an

important amino acid and is a necessary building block for all protein. The

older you get the less the body produces. I also take vitamin E, garlic,

calcium and milk thistle but only on an occasional basis. I take it for a

week about once a month.

Well, I think that is enough for now. It is early and I have to go to work.

Hope you have a great day.

Larry

[Guest guest]

Oh, Tim,

I sympathize with you about the colonoscopy. Good luck with the prep. It's

certainly worse than the procedure. And I hope there's no major problem.

Keep us posted.

Romlein wrote:

> & Larry,

> Glad you had a good meeting at the Cheesecake Factory. Sounds

> like a good time was had by all.

>

> you remind me that I go to prepare tomorrow for

> colonoscopy on Thursday, I'm expecting a clean bill of health

> also, but a bit of blood in thesmear samples indicated a more

> though check was advised. (I know of other PSC transplant

> patients who had UC show up 2 years after tx, I would rather

> avoid it).

>

> Tim ltx 4/4/98

>

> =====

>

> __________________________________________________

>

[Guest guest]

Oh, Tim,

I sympathize with you about the colonoscopy. Good luck with the prep. It's

certainly worse than the procedure. And I hope there's no major problem.

Keep us posted.

Romlein wrote:

> & Larry,

> Glad you had a good meeting at the Cheesecake Factory. Sounds

> like a good time was had by all.

>

> you remind me that I go to prepare tomorrow for

> colonoscopy on Thursday, I'm expecting a clean bill of health

> also, but a bit of blood in thesmear samples indicated a more

> though check was advised. (I know of other PSC transplant

> patients who had UC show up 2 years after tx, I would rather

> avoid it).

>

> Tim ltx 4/4/98

>

> =====

>

> __________________________________________________

>

[Guest guest]

Oh, Tim,

I sympathize with you about the colonoscopy. Good luck with the prep. It's

certainly worse than the procedure. And I hope there's no major problem.

Keep us posted.

Romlein wrote:

> & Larry,

> Glad you had a good meeting at the Cheesecake Factory. Sounds

> like a good time was had by all.

>

> you remind me that I go to prepare tomorrow for

> colonoscopy on Thursday, I'm expecting a clean bill of health

> also, but a bit of blood in thesmear samples indicated a more

> though check was advised. (I know of other PSC transplant

> patients who had UC show up 2 years after tx, I would rather

> avoid it).

>

> Tim ltx 4/4/98

>

> =====

>

> __________________________________________________

>

[Guest guest]

Good news from the colonoscopy - nothing observed but a few small

hemorrhoids,

and the prep wasn't too bad. Not that I'd want to sit down to a gallon

every

night, but I've had worse stuff for upper GI and CAT/MRI scans. I

particularly

didn't like one chalky viscous orange flavored concoction I had once.

I was totally out so don't remember anything other than going into the

room and

waking up in recovery - don't even remember getting dressed or much of

the ride

home. My wife must have been in a hurry to get us out of there <G>.

Tim

denise wrote:

> Oh, Tim,

> I sympathize with you about the colonoscopy. Good luck with the

prep. It's

> certainly worse than the procedure. And I hope there's no major

problem.

> Keep us posted.

>

>

> Romlein wrote:

> > you remind me that I go to prepare tomorrow for

> > colonoscopy on Thursday, I'm expecting a clean bill of health

> > also, but a bit of blood in thesmear samples indicated a more

> > though check was advised. (I know of other PSC transplant

> > patients who had UC show up 2 years after tx, I would rather

> > avoid it).

> >

> > Tim ltx 4/4/98

[Guest guest]

Tim,

I had the hermorrhoids, too. I was awake for the procedure this time. I

watched what the doc did on video. It was good to see what he saw while he

was telling me what it meant. But, I don't want to do it again anytime

soon.

Your news was great! Maybe neither of us will have to deal with it again

for a while.

Next week it's down to the Boston " Club Med " (as Penny says, without the

Pina Coladas and sandy beaches) for another ERCP on Wednesday. Hopefully,

though, after this next one I'll be done for another month. These ERCP's

are coming TOO close together these days, that's for sure. My HMO approves

six at a time now. YUK!

tromlein@... wrote:

> Good news from the colonoscopy - nothing observed but a few small

> hemorrhoids,

> and the prep wasn't too bad. Not that I'd want to sit down to a gallon

> every

> night, but I've had worse stuff for upper GI and CAT/MRI scans. I

> particularly

> didn't like one chalky viscous orange flavored concoction I had once.

>

> I was totally out so don't remember anything other than going into the

> room and

> waking up in recovery - don't even remember getting dressed or much of

> the ride

> home. My wife must have been in a hurry to get us out of there <G>.

>

> Tim

>

> denise wrote:

> > Oh, Tim,

> > I sympathize with you about the colonoscopy. Good luck with the

> prep. It's

> > certainly worse than the procedure. And I hope there's no major

> problem.

> > Keep us posted.

> >

> >

> > Romlein wrote:

> > > you remind me that I go to prepare tomorrow for

> > > colonoscopy on Thursday, I'm expecting a clean bill of health

> > > also, but a bit of blood in thesmear samples indicated a more

> > > though check was advised. (I know of other PSC transplant

> > > patients who had UC show up 2 years after tx, I would rather

> > > avoid it).

> > >

> > > Tim ltx 4/4/98

>

> ------------------------------------------------------------------------

>

> eGroups.com home: /group/

> - Simplifying group communications

[Guest guest]

Tim,

I had the hermorrhoids, too. I was awake for the procedure this time. I

watched what the doc did on video. It was good to see what he saw while he

was telling me what it meant. But, I don't want to do it again anytime

soon.

Your news was great! Maybe neither of us will have to deal with it again

for a while.

Next week it's down to the Boston " Club Med " (as Penny says, without the

Pina Coladas and sandy beaches) for another ERCP on Wednesday. Hopefully,

though, after this next one I'll be done for another month. These ERCP's

are coming TOO close together these days, that's for sure. My HMO approves

six at a time now. YUK!

tromlein@... wrote:

> Good news from the colonoscopy - nothing observed but a few small

> hemorrhoids,

> and the prep wasn't too bad. Not that I'd want to sit down to a gallon

> every

> night, but I've had worse stuff for upper GI and CAT/MRI scans. I

> particularly

> didn't like one chalky viscous orange flavored concoction I had once.

>

> I was totally out so don't remember anything other than going into the

> room and

> waking up in recovery - don't even remember getting dressed or much of

> the ride

> home. My wife must have been in a hurry to get us out of there <G>.

>

> Tim

>

> denise wrote:

> > Oh, Tim,

> > I sympathize with you about the colonoscopy. Good luck with the

> prep. It's

> > certainly worse than the procedure. And I hope there's no major

> problem.

> > Keep us posted.

> >

> >

> > Romlein wrote:

> > > you remind me that I go to prepare tomorrow for

> > > colonoscopy on Thursday, I'm expecting a clean bill of health

> > > also, but a bit of blood in thesmear samples indicated a more

> > > though check was advised. (I know of other PSC transplant

> > > patients who had UC show up 2 years after tx, I would rather

> > > avoid it).

> > >

> > > Tim ltx 4/4/98

>

> ------------------------------------------------------------------------

>

> eGroups.com home: /group/

> - Simplifying group communications

[Guest guest]

Phil had hemroids also and they decided to band them and remove them. He

had to go back 3 or 4 times. That was real enjoyable. He also had a pollup

(benign) but his colon is looking the best it has in years. Boy is that is

always good news. Have you had UC problems before? You guys have enough

problems with the PSC you don't need to contend with the UC acting up too.

Peg

tromlein@... wrote:

> Good news from the colonoscopy - nothing observed but a few small

> hemorrhoids,

> and the prep wasn't too bad. Not that I'd want to sit down to a gallon

> every

> night, but I've had worse stuff for upper GI and CAT/MRI scans. I

> particularly

> didn't like one chalky viscous orange flavored concoction I had once.

>

> I was totally out so don't remember anything other than going into the

> room and

> waking up in recovery - don't even remember getting dressed or much of

> the ride

> home. My wife must have been in a hurry to get us out of there <G>.

>

> Tim

>

> denise wrote:

> > Oh, Tim,

> > I sympathize with you about the colonoscopy. Good luck with the

> prep. It's

> > certainly worse than the procedure. And I hope there's no major

> problem.

> > Keep us posted.

> >

> >

> > Romlein wrote:

> > > you remind me that I go to prepare tomorrow for

> > > colonoscopy on Thursday, I'm expecting a clean bill of health

> > > also, but a bit of blood in thesmear samples indicated a more

> > > though check was advised. (I know of other PSC transplant

> > > patients who had UC show up 2 years after tx, I would rather

> > > avoid it).

> > >

> > > Tim ltx 4/4/98

>

> ------------------------------------------------------------------------

>

> eGroups.com home: /group/

> - Simplifying group communications

[Guest guest]

Phil had hemroids also and they decided to band them and remove them. He

had to go back 3 or 4 times. That was real enjoyable. He also had a pollup

(benign) but his colon is looking the best it has in years. Boy is that is

always good news. Have you had UC problems before? You guys have enough

problems with the PSC you don't need to contend with the UC acting up too.

Peg

tromlein@... wrote:

> Good news from the colonoscopy - nothing observed but a few small

> hemorrhoids,

> and the prep wasn't too bad. Not that I'd want to sit down to a gallon

> every

> night, but I've had worse stuff for upper GI and CAT/MRI scans. I

> particularly

> didn't like one chalky viscous orange flavored concoction I had once.

>

> I was totally out so don't remember anything other than going into the

> room and

> waking up in recovery - don't even remember getting dressed or much of

> the ride

> home. My wife must have been in a hurry to get us out of there <G>.

>

> Tim

>

> denise wrote:

> > Oh, Tim,

> > I sympathize with you about the colonoscopy. Good luck with the

> prep. It's

> > certainly worse than the procedure. And I hope there's no major

> problem.

> > Keep us posted.

> >

> >

> > Romlein wrote:

> > > you remind me that I go to prepare tomorrow for

> > > colonoscopy on Thursday, I'm expecting a clean bill of health

> > > also, but a bit of blood in thesmear samples indicated a more

> > > though check was advised. (I know of other PSC transplant

> > > patients who had UC show up 2 years after tx, I would rather

> > > avoid it).

> > >

> > > Tim ltx 4/4/98

>

> ------------------------------------------------------------------------

>

> eGroups.com home: /group/

> - Simplifying group communications

[Guest guest]

Phil had hemroids also and they decided to band them and remove them. He

had to go back 3 or 4 times. That was real enjoyable. He also had a pollup

(benign) but his colon is looking the best it has in years. Boy is that is

always good news. Have you had UC problems before? You guys have enough

problems with the PSC you don't need to contend with the UC acting up too.

Peg

tromlein@... wrote:

> Good news from the colonoscopy - nothing observed but a few small

> hemorrhoids,

> and the prep wasn't too bad. Not that I'd want to sit down to a gallon

> every

> night, but I've had worse stuff for upper GI and CAT/MRI scans. I

> particularly

> didn't like one chalky viscous orange flavored concoction I had once.

>

> I was totally out so don't remember anything other than going into the

> room and

> waking up in recovery - don't even remember getting dressed or much of

> the ride

> home. My wife must have been in a hurry to get us out of there <G>.

>

> Tim

>

> denise wrote:

> > Oh, Tim,

> > I sympathize with you about the colonoscopy. Good luck with the

> prep. It's

> > certainly worse than the procedure. And I hope there's no major

> problem.

> > Keep us posted.

> >

> >

> > Romlein wrote:

> > > you remind me that I go to prepare tomorrow for

> > > colonoscopy on Thursday, I'm expecting a clean bill of health

> > > also, but a bit of blood in thesmear samples indicated a more

> > > though check was advised. (I know of other PSC transplant

> > > patients who had UC show up 2 years after tx, I would rather

> > > avoid it).

> > >

> > > Tim ltx 4/4/98

>

> ------------------------------------------------------------------------

>

> eGroups.com home: /group/

> - Simplifying group communications