Re: OT: Fwd: personal message from Dr. Jemsek

December 2, 2010

Such terrible news, but not a surprise since his daughter has been battling this for over a year. He's a great man...saved my life with Lyme dx and treatment. Hope this gets to someone who can help.Thoughts and prayers to his entire family. From: jimjax2@...Date: Wed, 1 Dec 2010 22:39:02 -0500Subject: OT: Fwd: personal message from Dr. Jemsek

Subject: personal message from Dr. Jemsek

PLEASE DO PASS ON!! Message comes from ILADS

Barbara Buchman!! !! I did sign up and was a member of national bone marrow

donor program until 1997. I received a call as I was an exact MATCH for someone

but they would not let me give as I had had melanoma mole which had been caught

EARLY and COMPLETELY REMOVED AFTER two opinions. Very important as Dr Jemsek

has done so much for so so many!! Please do all you can!!

personal message

from Dr. Jemsek

Dear patients,

friends, and family,

My wife Kay and I are writing to you today to make a somber request on behalf

of our six year old daughter, Jordan. As most of you may already know,

last September 2009 Jordan

was diagnosed with acute myelogenous leukemia (AML). She received outstanding care during several rounds

of extended chemotherapy while hospitalized for 6 ½ months at Presbyterian

Hospital in Charlotte at the Hemby Cancer center. When

Jordan

was declared in remission we were finally able to bring her home on Easter day

this Spring. After several joyful months at home with Jordan, this past week we were devastated to

learn that Jordan

has relapsed. In the upcoming weeks, she will begin receiving chemotherapy in

preparation for a bone marrow transplant that she will have later this winter.

Last year, after

much research aided by the excellent support of the Hemby physicians in Charlotte and the Pediatric Oncology Department at

Children’s Hospital in Washington, DC,

we were already exploring the option for Jordan to have

a bone marrow transplant in the event that the chemotherapy was

ineffective. Unfortunately, neither members of her family, nor those in

the national donor registry provided a satisfactory match.

Unfortunately, at this time we are left without another option and must

proceed with a bone marrow transplant for Jordan

to survive. We anticipate that the transplant will occur in March/April 2011

at Children’s Hospital in DC after Jordan

undergoes an estimated 3 months of induction chemotherapy at the Hemby Center;

she is on her way to the hospital with us today. In order to increase the

likelihood that we find a better match for Jordan, we are asking friends and

family to participate in joining the National Marrow Donor Program. Because

patients are most likely to match someone of their own race or ethnicity,

please be aware that Jordan

comes from a ish, Irish, and Ukrainian background. We have outlined the

simple steps below in how one can get signed up to be part of this registry.

For all of our patients and others suffering from Lyme Borreliosis

Complex, the highly disturbing irony is that the National Marrow Donor Program (NMDP) does recognize chronic Lyme disease

while the general community does not. As part of the NMDP medical guidelines, patients with ‘chronic

Lyme disease ‘ may not register

(details on the linked site below). However, we would humbly request that

those individuals struggling with Lyme Borreliosis encourage other family

members and friends to consider joining the registry.

As for those of you wanting to be tested specifically as a match for Jordan, i.e. a

designated donation, due to the complicated process and cost of being tested

privately, we instead recommend and request that you enter the general

registry. We greatly appreciate all of the prayers and overwhelming support

that our family has received, and we ask for you all to continue to pray as we

continue on our journey towards Jordan’s

recovery from this devastating disease. If you have questions, please contact

Ballas at eballas@....

As

before, regular updates will be posted to www.caringbridge.org

under keyword jordanjemsek.

God Bless,

Dr. and Mrs. ph G. Jemsek

From

the National Marrow Donor Program website:

In

order to get signed up in the Be the Match

Registry, please follow these easy steps.

1. To get signed up now, you can

register online and have a test kit sent to your home!

·

Go to this website and follow the instructions: http://www.marrow.org/JOIN/Join_Now/join_now.html

Confirm you meet basic registry guidelines. (Must be between the

ages of 18 and 60. Please pay special attention to the medical

guidelines)

Complete the online form and order your registration kit, which

should arrive in 7-10 days. It is free to join and get tested, but please

also consider making a financial contribution.

Follow your instructions in your kit to collect a swab of cheek

cells and return the kit in the mail.

2. If you’d like to get tested

in person, please use the following link to locate a nearby donor drive or

recruitment center.

·

http://www.marrow.org/JOIN/Join_in_Person/index.html

For

more information, please visit: http://www.marrow.org.

December 2, 2010

Hi Jim,

Am I correct to think that the email " lymedocs@... " will get sent to Barbara

Buchman?

Thanks,

~

>

> Subject: personal message from Dr. Jemsek

>

> PLEASE DO PASS ON!! Message comes from ILADS Barbara Buchman!! !! I did

> sign up and was a member of national bone marrow donor program until 1997. I

> received a call as I was an exact MATCH for someone but they would not let

> me give as I had had melanoma mole which had been caught EARLY and

> COMPLETELY REMOVED AFTER two opinions. Very important as Dr Jemsek has done

> so much for so so many!! Please do all you can!!

>

> * personal message from Dr. Jemsek

>

> Dear patients, friends, and family,

>

> My wife Kay and I are writing to you today to make a somber

> request on behalf of our six year old daughter, Jordan. As most of you may

> already know, last September 2009 Jordan was diagnosed with acute

> myelogenous leukemia (AML). She received outstanding* * care during several

> rounds of extended chemotherapy* *while hospitalized for 6 ½ months at

> Presbyterian Hospital in Charlotte at the Hemby Cancer center. When Jordan

> was declared in remission we were finally able to bring her home on Easter

> day this Spring. After several joyful months at home with Jordan, this past

> week we were devastated to learn that Jordan has relapsed. In the upcoming

> weeks, she will begin receiving chemotherapy in preparation for a bone

> marrow transplant that she will have later this winter.

>

> Last year*, *after much research aided by the excellent support of

> the Hemby physicians in Charlotte and the Pediatric Oncology Department at

> Children's Hospital in Washington, DC,* * we were already exploring the

> option for Jordan to have a bone marrow transplant in the event that the

> chemotherapy was ineffective. Unfortunately, neither members of her family,

> nor those in the national donor registry provided a satisfactory match.

> Unfortunately, at this time we are left without another option and must

> proceed with a bone marrow transplant for Jordan to survive.* *We

> anticipate that the transplant will occur in March/April 2011 at Children's

> Hospital in DC after Jordan undergoes an estimated 3 months of induction

> chemotherapy at the Hemby Center; she is on her way to the hospital with us

> today.* * In order to increase the likelihood that we find a better match

> for Jordan, we are asking friends and family to participate in joining the

> National Marrow Donor Program. Because patients are most likely to match

> someone of their own race or ethnicity, please be aware that Jordan comes

> from a ish, Irish, and Ukrainian background. We have outlined the

> simple steps below in how one can get signed up to be part of this registry.

>

> For all of our patients and others suffering from Lyme

> Borreliosis Complex, the highly disturbing irony is that the *National

> Marrow Donor Program (NMDP) does recognize chronic Lyme disease* while the

> general community does not. As part of the NMDP medical guidelines, *patients

> with `chronic Lyme disease ` may not register* (details on the linked site

> below). However, we would humbly request that those individuals struggling

> with Lyme Borreliosis encourage other family members and friends to consider

> joining the registry.

>

> As for those of you wanting to be tested specifically as a match

> for Jordan, i.e. a designated donation, due to the complicated process and

> cost of being tested privately, we instead recommend and request that you

> enter the general registry. We greatly appreciate all of the prayers and

> overwhelming support that our family has received, and we ask for you all to

> continue to pray as we continue on our journey towards Jordan's recovery

> from this devastating disease. If you have questions, please contact

> Ballas at eballas@... * *As before, regular

> updates will be posted to www.caringbridge.org under keyword jordanjemsek.*

> *

>

> God Bless,

>

> Dr.* *and Mrs. ph G. Jemsek

>

> *From the National Marrow Donor Program website:*

>

> In order to get signed up in the *Be the Match Registry*, please follow

> these easy steps.

>

> 1. To get signed up now, you can register online and have a test kit

> sent to your home!

>

> · Go to this website and follow the instructions:

> http://www.marrow.org/JOIN/Join_Now/join_now.html

>

> - Confirm you meet basic registry guidelines. (Must be between the ages

> of 18 and 60. Please pay special attention to the medical guidelines)

>

> - Complete the online form and order your registration kit, which should

> arrive in 7-10 days. It is free to join and get tested, but please also

> consider making a financial contribution.

>

> - Follow your instructions in your kit to collect a swab of cheek cells

> and return the kit in the mail.

>

> 2. If you'd like to get tested in person, please use the following

> link to locate a nearby donor drive or recruitment center.

>

> · http://www.marrow.org/JOIN/Join_in_Person/index.html

>

> For more information, please visit: http://www.marrow.org.

>

December 2, 2010