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I Phil the only weird person that doesn't mind the colonoscopy prep? He drinks

colite (I think that's what it's called a powder mixed in a big jug) I agree

with the rest of you the prep is far worse than the procedure. I actually

wasn't totally out and found it interesting to watch.

There is one thing Phil can't tolerate - chicken broth or soup. It's funny

because prior to being diagnosed he had some chicken soup and threw up. Then

when he was in the hospital after his ERCP when he was badly infected he had a

day of nausea and had chicken broth and threw up. Now anytime anyone tries to

bring him chicken broth he almost gets violent. It's so funny! When they ask

him if he's allergic to anything he says chicken broth and I add that if you

don't want to see his violent side (which is almost none existant) don't bring

it to him. Otherwise he just takes stuff in his stride, he's such a sweety.

Peg

wrote:

> Oh, Tim,

> I sympathize with you about the colonoscopy. Good luck with the prep. It's

> certainly worse than the procedure. And I hope there's no major problem.

> Keep us posted.

>

>

> Romlein wrote:

>

> > & Larry,

> > Glad you had a good meeting at the Cheesecake Factory. Sounds

> > like a good time was had by all.

> >

> > you remind me that I go to prepare tomorrow for

> > colonoscopy on Thursday, I'm expecting a clean bill of health

> > also, but a bit of blood in thesmear samples indicated a more

> > though check was advised. (I know of other PSC transplant

> > patients who had UC show up 2 years after tx, I would rather

> > avoid it).

> >

> > Tim ltx 4/4/98

> >

> > =====

> >

> > __________________________________________________

> >

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Peg, I've never had UC, and last year's colonoscopy was good

enough for that dr to say another this soon was not necessary.

The transplant center wanted me to have one, so we compromised

on stool smears but when they came back positive my PCP said we

need to identify the source of the bleeding, just in case it

needs to be treated. I guess my hemorrhoids were small enough

not to warrant treatment.

Tim

--- Peggy Alfeld wrote:

> Phil had hemroids also and they decided to band them and

> remove them. He had to go back 3 or 4 times. That was real

> enjoyable. He also had a pollup (benign) but his colon is

> looking the best it has in years. Boy is that is

> always good news. Have you had UC problems before? You guys

> have enough problems with the PSC you don't need to contend

> with the UC acting up too.

> Peg

>

> tromlein@... wrote:

>

> > Good news from the colonoscopy - nothing observed but a few

> small hemorrhoids,

=====

__________________________________________________

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Peg, I've never had UC, and last year's colonoscopy was good

enough for that dr to say another this soon was not necessary.

The transplant center wanted me to have one, so we compromised

on stool smears but when they came back positive my PCP said we

need to identify the source of the bleeding, just in case it

needs to be treated. I guess my hemorrhoids were small enough

not to warrant treatment.

Tim

--- Peggy Alfeld wrote:

> Phil had hemroids also and they decided to band them and

> remove them. He had to go back 3 or 4 times. That was real

> enjoyable. He also had a pollup (benign) but his colon is

> looking the best it has in years. Boy is that is

> always good news. Have you had UC problems before? You guys

> have enough problems with the PSC you don't need to contend

> with the UC acting up too.

> Peg

>

> tromlein@... wrote:

>

> > Good news from the colonoscopy - nothing observed but a few

> small hemorrhoids,

=====

__________________________________________________

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Peg, I've never had UC, and last year's colonoscopy was good

enough for that dr to say another this soon was not necessary.

The transplant center wanted me to have one, so we compromised

on stool smears but when they came back positive my PCP said we

need to identify the source of the bleeding, just in case it

needs to be treated. I guess my hemorrhoids were small enough

not to warrant treatment.

Tim

--- Peggy Alfeld wrote:

> Phil had hemroids also and they decided to band them and

> remove them. He had to go back 3 or 4 times. That was real

> enjoyable. He also had a pollup (benign) but his colon is

> looking the best it has in years. Boy is that is

> always good news. Have you had UC problems before? You guys

> have enough problems with the PSC you don't need to contend

> with the UC acting up too.

> Peg

>

> tromlein@... wrote:

>

> > Good news from the colonoscopy - nothing observed but a few

> small hemorrhoids,

=====

__________________________________________________

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Tim,

So they feel the hemoroids are the cause of the blood? They are assuming

that with me without the colonoscopy. I wonder if that is safe. I have IBS

and had a colonscopy about 2 years ago. The blood was found in my stool

smears too. I very seldom have dark stools.

Peg

Romlein wrote:

> Peg, I've never had UC, and last year's colonoscopy was good

> enough for that dr to say another this soon was not necessary.

> The transplant center wanted me to have one, so we compromised

> on stool smears but when they came back positive my PCP said we

> need to identify the source of the bleeding, just in case it

> needs to be treated. I guess my hemorrhoids were small enough

> not to warrant treatment.

>

> Tim

>

> --- Peggy Alfeld wrote:

> > Phil had hemroids also and they decided to band them and

> > remove them. He had to go back 3 or 4 times. That was real

> > enjoyable. He also had a pollup (benign) but his colon is

> > looking the best it has in years. Boy is that is

> > always good news. Have you had UC problems before? You guys

> > have enough problems with the PSC you don't need to contend

> > with the UC acting up too.

> > Peg

> >

> > tromlein@... wrote:

> >

> > > Good news from the colonoscopy - nothing observed but a few

> > small hemorrhoids,

>

> =====

>

> __________________________________________________

>

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Tim,

So they feel the hemoroids are the cause of the blood? They are assuming

that with me without the colonoscopy. I wonder if that is safe. I have IBS

and had a colonscopy about 2 years ago. The blood was found in my stool

smears too. I very seldom have dark stools.

Peg

Romlein wrote:

> Peg, I've never had UC, and last year's colonoscopy was good

> enough for that dr to say another this soon was not necessary.

> The transplant center wanted me to have one, so we compromised

> on stool smears but when they came back positive my PCP said we

> need to identify the source of the bleeding, just in case it

> needs to be treated. I guess my hemorrhoids were small enough

> not to warrant treatment.

>

> Tim

>

> --- Peggy Alfeld wrote:

> > Phil had hemroids also and they decided to band them and

> > remove them. He had to go back 3 or 4 times. That was real

> > enjoyable. He also had a pollup (benign) but his colon is

> > looking the best it has in years. Boy is that is

> > always good news. Have you had UC problems before? You guys

> > have enough problems with the PSC you don't need to contend

> > with the UC acting up too.

> > Peg

> >

> > tromlein@... wrote:

> >

> > > Good news from the colonoscopy - nothing observed but a few

> > small hemorrhoids,

>

> =====

>

> __________________________________________________

>

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Tim,

So they feel the hemoroids are the cause of the blood? They are assuming

that with me without the colonoscopy. I wonder if that is safe. I have IBS

and had a colonscopy about 2 years ago. The blood was found in my stool

smears too. I very seldom have dark stools.

Peg

Romlein wrote:

> Peg, I've never had UC, and last year's colonoscopy was good

> enough for that dr to say another this soon was not necessary.

> The transplant center wanted me to have one, so we compromised

> on stool smears but when they came back positive my PCP said we

> need to identify the source of the bleeding, just in case it

> needs to be treated. I guess my hemorrhoids were small enough

> not to warrant treatment.

>

> Tim

>

> --- Peggy Alfeld wrote:

> > Phil had hemroids also and they decided to band them and

> > remove them. He had to go back 3 or 4 times. That was real

> > enjoyable. He also had a pollup (benign) but his colon is

> > looking the best it has in years. Boy is that is

> > always good news. Have you had UC problems before? You guys

> > have enough problems with the PSC you don't need to contend

> > with the UC acting up too.

> > Peg

> >

> > tromlein@... wrote:

> >

> > > Good news from the colonoscopy - nothing observed but a few

> > small hemorrhoids,

>

> =====

>

> __________________________________________________

>

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Peg,

I haven't seen what the report said. I have never had dark

stools from bleeding but occasionally get small bright red

streaks from tiny ruptures near the anus. They have never been

large, frequent or bothersome enough to have checked out.

Tim

--- Phil & Peggy Alfeld wrote:

> Tim,

> So they feel the hemoroids are the cause of the blood? They

> are assuming

> that with me without the colonoscopy. I wonder if that is

> safe. I have IBS

> and had a colonscopy about 2 years ago. The blood was found

> in my stool

> smears too. I very seldom have dark stools.

> Peg

>

>

> Romlein wrote:

> > I had stool smears that came back positive, my PCP said we

> > need to identify the source of the bleeding, just in case it

> > needs to be treated.

=====

__________________________________________________

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  • 11 years later...

Amy....while my daughter was in the hospital for her 'just-short-of-one-year'

stay, she, too had severe colitis. She was on an IV diet for 6 weeks - unable

to eat by mouth. Her intestines were not absorbing nutrition due to the severe

inflammation. When she did begin eating again, they started her on one food at

a time at each meal for several days...chicken, then rice, etc. It was a celiac

protocol. Until the inflammation had calmed down, nothing could be taken by

mouth. All meds were IV. That was three years ago and she is doing pretty darn

well with only a few surgeries and short stays at the hospital.

You need to be careful what you try to eat and how much at a time.

Take good care....It is hard to feel better when you are not even able to

metabolize your meds.

colonoscopy

Hey Everyone

been sick since July 1 my family Dr was trying to kill me so when i went to my

rheumy and i told her i had diarrhea since July 1

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Hi Amy,

I have had this issue also. My Docs have me take Align daily and it has

helped. Align is an over the counter pro-biotic. You should ask your doctor

about it when you see her/him again if it would be good for you or not.

It isn't a cure-all, but it does help balance things out. I also have had

problems with everything going-in and going immediately out. It's no fun at

all. I have found that the best diet for it has been the BRAT diet has been

the best for me. I don't know if you have tried that or not. It's Banana's,

Rice (White, Plain - Steamed Rice), Apple Sauce (no Sugar added), and Toast

(totally plain) - you can eat Rice Cakes too (totally plain also). It's a

boring diet, but it seems to work in regards to keeping food in for a little

bit at least.

Anyway, I hope you feel better soon!

Hugs,

Alli

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