ABR and tubes for the ears

[Guest guest]

Hello, Amy 3, ChARgE, had an ABR the other day. I was completely shocked to hear

that she has a mild to moderate loss in the right and a moderate to severe loss

in the left. Later that afternoon we saw the ENT and he checked her ears out. He

found that they were full of fluid in the middle ear. up to age 1 when her soft

palate was repaired she had constant ear infections even with the tubes in her

ears. Blood and fluid was always coming out. after her repair it was like magic,

and 3 months later her tubes fell out, still no more problems. She had an ABR

done at a local doctors office(not a specailist) at age 1 1/2 and the one side

they did do was completely normal. They told me it was very unlikely that she

had any loss in the other ear. not one ear infection in the 2 years since, so i

never even thought there could be a problem. apparently she still needs the

tubes and they said this will most likely clear up her hearing and bring it

close to normal. All this time she has been hardly hearing at all. They were

amazed at the few words she did have and how clearly she said them. I cried, i

would go to the ends of the earth to do whatever is necessary for Amy, and its

as simple as putting another set of tubes in? Why didn't anyone tell me??? I am

always told when we need to have a return visit, or what to look for, or what

the next step may be. The ENT we saw years ago, basicly lead me to beleive this

was not a concern anymore, problem solved. And for us, this was great, one less

thing we had to worry about for her, we could finaly put this behind and

concentrate on what else was to come. Anyway, she is schedualed for the day

before Thanksgiving to get in her tubes. They will recheck her hearing a few

weeks later. They think maybe a mild loss in the left, but a hearing aid may

help. One step at a time!! They also got the pictures of her colobomas(wile she

was under)that they have been trying to get for 3 years now. She is getting more

near sighted and will need glasses at some point, not now though. and her

colobomas affect the macula(central vision) totaly in the right, but only

partial in the left. I'm very excited for her tubes to be placed. I can't

imagine what this world will sound like to her after all this time not being

able to hear it that well. Fingers crossed...Her speach will improve, and all

communication should pick up nicely...just in time for entering pre-school.

Kerrie mom to Amy 3 ,ChARgE

Ear Wax!

Hi all

haven't really kept in touch with the list recently as I have started

back

at work and am finding it rather hectic, but I hope everyone is OK.

My son Archie (nearly 2) went for a hearing test the other day and they

discovered that his ears are being blocked by wax, and it seems to be

effecting his hearing further (already ahs severe loss left ear and

mild-moderate right). We have now been given an appointment to see his

ENT

consultant to discuss what to do about the wax and whether to put PE

tubes

in. They also want to talk about bone-conduction hearing aids. So I have

a

couple of questions - does anyone have any experience with

bone-conducting

aids, and in what way are they better than the usual ones? Secondly, has

anyone had to have wax removed from their toddler's ears? What is the

best

way of going about it? Is it really necessary? Archie's ENT consultant

is

pretty useless (doesn't listen to parents, doesn't read the patient's

notes) so I want to be prepared for meeting him. He's the one who told

me

it wasn't worth putting PE tubes in as Arch only has 1 " live ear " -

Arch's

audiologist later told me this was rubbish.

Thanks in advance

, mum to Archie aged nearly 22 months, Southampton UK

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